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Author Topic: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS  (Read 3850 times)

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Offline sanitex

  • Member
  • Posts: 388
PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« on: March 11, 2008, 01:15:44 AM »
h! guys, am sanitex from Bangkok.please do not be ofended in my question to long time survivors,i'm on meds (sustiva,tenofovir,lamuvidine,since last year 27dec 2007,so my question to you guys is ,since you've taken meds,have you ever encounter any liver and kidney problem from this meds,despite if the person is having hypertitis,(HBV,HAV,HCV,?
second,is it good to do exercise when the cd4 is low and vl is high? or dose exercise improve the cd4 or lower it?
my cd4 was 20 last year and my vl is 1000000,but my doc told me after one month that i look very healthy that i should continue doing my exercise but i feel very upset since i was diagonised,pls can somebody help me some advice on this esxrcise problem.
27/12/07 cd4 20 vl 1million
10/4 /08 cd4 86 vl 63
1/7/08  cd4 186 vl undetectable
16/10/08 cd4 196 vl undet
23/1/09 cd4 248 vl un
10/9/11 cd4 418 vl <40 %22
13/12/11 cd4 410 vl undet 23%
24/2/12 cd4 545 vl undet 26%
on 22/2/12 change truvada to Recovir-EM
due to no stock on Truvada.
10/9/11 cd4 418 vl <40 %22
7/7/12 cd4 359 vl <40 22%
23/8/12 cd4 400 vl <40 23%,
testosterone test 7.5 ng/ml and
thyroid (TSH)1.32 ulu/ml creatinine.eGFR blck 1.5 all fasting test morning.
13/12/2012 cd4 523 24% vl <40
18/3/2013 cd4  513  23% vl <40
regimen ATRIPLA
03/8/2013 cd4 429 22% vl <40
13/11/2013 cd4 455 23% vl <40
Anti-HBs test (quantitative ) Anti-HBs positive
Titer 16.95 mlu/ml <10.00
22/3/14 cd4 396 vl <40 24%
24/7/14 change to Teevir
24/9/14 cd4 517 vl <40 22%

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,081
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #1 on: March 11, 2008, 07:22:04 AM »
Sanitex, I detect a degree of desperation in your post.  So, please, take a breath. 

The liver is a pretty tough little organ.  It can take a lot of abuse; trust, I know.  I wouldn't be concerned about that right now.

About exercise, I can't say if it lowers the CD4s or not.  I don't exercise (because I smoke), but I can only imagine it would help a situation.  Maybe someone with more experience in these things can chime in.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #2 on: March 11, 2008, 10:25:51 AM »
I can only talk about myself in this matter, because I haven't done any research into the matter.

If I don't get at least 90 mins of moderate exercise daily, the fatigue sets in. I do weightlifting, yoga , modern dance or afro-cuban dance class,and long extended walks with my puppies mostly every day or every other day. I do know that when my cd4's have been low, it takes me awhile to recover, so I limit the kind of activity I do; gently yoga, walking on the treadmill, lighter weights, etc.  I have been poz a very long time, so i have learned to listen to my body and act upon that. If it says rest, I rest......if it says go lift 400 pounds,  I .... well I laugh (because i can't )  ;D

good luck with this
Sharkie

Offline redhotmuslbear

  • Member
  • Posts: 605
  • A genuine certified freak of nature, and a hot one
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #3 on: March 11, 2008, 11:32:05 AM »
A couple of thoughts here...

1.  This question is misplaced among the forums.  LTSes may have more longevity with the virus, but we may not have all of the right experience with these conditions.

2.  Don't let a few billion killer viruses running through your body keep you from getting physical acticity.  Unless a particular activity or any mobility poses an imminent risk to your health, it's always better to move than sit on your butt.  When I was first made to start dealing with HIV almost ten years ago, I had a viral load of 680K and CD4s of 231...amazing how I can remember those numbers like my birth date, social security number, and credit cards!  Anyway, my hepatologist told me to walk around my neighborhood for 10 minutes a day, then 15, then 30, even in ths heat and humiditity of a DC summer. 

What I have found in the years since is that it's much easier to stop a large object in motion that it is to get it moving at all.  Every day now I do at least one of the following:  walk at least two miles, lift weights for at least 30 minutes...more if there are hot guys gawking at my leg strength  ;D, or do 45 minutes of yoga or tai qi.  Even after having a spinal tap yesterday morning, I did 30 minutes of yoga beforehand and got in a two-mile walk late in the afternoon.

Namaste,
David
"The real problem is not whether machines think but whether men do." - BF Skinner
12-31-09   222wks VL  2430 CD4 690 (37%)
09-30-09   208wks VL  2050  CD4 925 (42%)
06-25-08   143wks VL  1359  CD4 668 (32%)  CD8 885
02-11-08   123wks off meds:  VL 1364 CD4 892(40%/0.99 ratio)
10-19-07   112wks off meds:   VL 292  CD4 857(37%/0.85 ratio)

One copy of delta-32 for f*****d up CCR5 receptors, and an HLA B44+ allele for "CD8-mediated immunity"... beteer than winning Powerball, almost!

Offline Dachshund

  • Member
  • Posts: 5,999
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #4 on: March 11, 2008, 01:50:24 PM »
If you are upset enough to ask don't worry about where you post your questions. The mods will move it to the appropriate forum if they think it belongs somewhere else. You haven't been around long yet and you'll soon learn the ropes.

As for your question it appears your doctor has given you the OK concerning excercise so I say go for it. Many of us long term survivors continue to work and exercise and seem to benefit not only physically but emotionally.

Once again that was a good question.

Offline Winiroo

  • Member
  • Posts: 2,082
  • Positive since 1991
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #5 on: March 11, 2008, 02:02:00 PM »
Getting exercise, eating healthy, getting plenty of rest, avoiding stress and not doing illicit drugs.

All these things will make pretty much anyone healthier or at the very least feel good.

Offline sanitex

  • Member
  • Posts: 388
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #6 on: March 12, 2008, 12:25:28 AM »
from sanitex,thanks for guys concerning the advice you sent to me,i appreciate it,remain bless
27/12/07 cd4 20 vl 1million
10/4 /08 cd4 86 vl 63
1/7/08  cd4 186 vl undetectable
16/10/08 cd4 196 vl undet
23/1/09 cd4 248 vl un
10/9/11 cd4 418 vl <40 %22
13/12/11 cd4 410 vl undet 23%
24/2/12 cd4 545 vl undet 26%
on 22/2/12 change truvada to Recovir-EM
due to no stock on Truvada.
10/9/11 cd4 418 vl <40 %22
7/7/12 cd4 359 vl <40 22%
23/8/12 cd4 400 vl <40 23%,
testosterone test 7.5 ng/ml and
thyroid (TSH)1.32 ulu/ml creatinine.eGFR blck 1.5 all fasting test morning.
13/12/2012 cd4 523 24% vl <40
18/3/2013 cd4  513  23% vl <40
regimen ATRIPLA
03/8/2013 cd4 429 22% vl <40
13/11/2013 cd4 455 23% vl <40
Anti-HBs test (quantitative ) Anti-HBs positive
Titer 16.95 mlu/ml <10.00
22/3/14 cd4 396 vl <40 24%
24/7/14 change to Teevir
24/9/14 cd4 517 vl <40 22%

Offline sanitex

  • Member
  • Posts: 388
PLS I NEED YOUR HELP ON THIS QUESTION
« Reply #7 on: March 14, 2008, 01:11:44 AM »
h! guys,
           i hope everybody is doing very well with good health ? pls help me with this question,
is't possible to get hepatitis with hiv/aids therapy,?and is't possible to stop meds maybe two or three days and start taking it again?
but my most concerning is about the liver damage,so pls i'd like some one who has been on meds for long years to advice me .
but before i startedd my meds i was diagonised for HAV HBV HCV all was negative .but now i've pain at the left side of my lower stomach which is upto five days now just like something hook me their.my meds as follow(sustiva none as efavirenz,tenofovir,3TC lamivudine)
27/12/07 cd4 20 vl 1million
10/4 /08 cd4 86 vl 63
1/7/08  cd4 186 vl undetectable
16/10/08 cd4 196 vl undet
23/1/09 cd4 248 vl un
10/9/11 cd4 418 vl <40 %22
13/12/11 cd4 410 vl undet 23%
24/2/12 cd4 545 vl undet 26%
on 22/2/12 change truvada to Recovir-EM
due to no stock on Truvada.
10/9/11 cd4 418 vl <40 %22
7/7/12 cd4 359 vl <40 22%
23/8/12 cd4 400 vl <40 23%,
testosterone test 7.5 ng/ml and
thyroid (TSH)1.32 ulu/ml creatinine.eGFR blck 1.5 all fasting test morning.
13/12/2012 cd4 523 24% vl <40
18/3/2013 cd4  513  23% vl <40
regimen ATRIPLA
03/8/2013 cd4 429 22% vl <40
13/11/2013 cd4 455 23% vl <40
Anti-HBs test (quantitative ) Anti-HBs positive
Titer 16.95 mlu/ml <10.00
22/3/14 cd4 396 vl <40 24%
24/7/14 change to Teevir
24/9/14 cd4 517 vl <40 22%

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,081
Re: PLS I NEED YOUR HELP ON THIS QUESTION
« Reply #8 on: March 14, 2008, 06:25:57 AM »
Sanitex, I've been on meds since the very early 90's, when AZT was the only thing available.

You're not going to get hepatitis from HIV therapy.  And I wouldn't mess around with the meds by stopping them for two or three days and then restarting them. That's how resistance begins.  You don't want that, as that limits your choices as to what HIV meds you can take.  Oh, and your liver is on your right side. 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Peter Staley

  • Member
  • Posts: 1,337
  • Founder & Advisory Editor, AIDSmeds.com
    • AIDSmeds.com
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #9 on: March 14, 2008, 07:44:02 AM »
sanitex  -- I've merged the two topics you started where you asked the same question.  Please do NOT start multiple threads/topics asking the same question.

Peter Staley
Founder
AIDSmeds.com


Offline Winiroo

  • Member
  • Posts: 2,082
  • Positive since 1991
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #10 on: March 14, 2008, 04:45:45 PM »
The only things on your left side is your stomach, spleen, intestines and bladder. In that order from top to bottom.

Offline Matty the Damned

  • Member
  • Posts: 12,244
  • Ninja Please
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #11 on: March 14, 2008, 06:20:01 PM »
Wendy is spot on Sanitex. If your liver was giving you trouble you'd feel the pain (if any) on the upper right hand side of your tummy, just under your ribs.

MtD

Offline sanitex

  • Member
  • Posts: 388
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #12 on: March 15, 2008, 12:30:07 AM »
thanks for the answer you guys gave to me,also am very sorry to the funder of AIDSMEDS.com pls do not blame me because this disease has no siblings to start with.i leave in thailand on which some docs here don't explain things easy for us to understand it ,because of the english problem.thanks
27/12/07 cd4 20 vl 1million
10/4 /08 cd4 86 vl 63
1/7/08  cd4 186 vl undetectable
16/10/08 cd4 196 vl undet
23/1/09 cd4 248 vl un
10/9/11 cd4 418 vl <40 %22
13/12/11 cd4 410 vl undet 23%
24/2/12 cd4 545 vl undet 26%
on 22/2/12 change truvada to Recovir-EM
due to no stock on Truvada.
10/9/11 cd4 418 vl <40 %22
7/7/12 cd4 359 vl <40 22%
23/8/12 cd4 400 vl <40 23%,
testosterone test 7.5 ng/ml and
thyroid (TSH)1.32 ulu/ml creatinine.eGFR blck 1.5 all fasting test morning.
13/12/2012 cd4 523 24% vl <40
18/3/2013 cd4  513  23% vl <40
regimen ATRIPLA
03/8/2013 cd4 429 22% vl <40
13/11/2013 cd4 455 23% vl <40
Anti-HBs test (quantitative ) Anti-HBs positive
Titer 16.95 mlu/ml <10.00
22/3/14 cd4 396 vl <40 24%
24/7/14 change to Teevir
24/9/14 cd4 517 vl <40 22%

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,081
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #13 on: March 15, 2008, 07:09:32 AM »
also am very sorry to the funder of AIDSMEDS.com pls do not blame me because this disease has no siblings to start with.i leave in thailand on which some docs here don't explain things easy for us to understand it ,because of the english problem.thanks

Don't know what you mean here, Sanitex, but maybe you have a problem understanding English as well as speaking it.  Peter just asked you to not start two different threads about the same topic.  Has nothing to do with siblings.  In other words, don't put the same thing in two different 'new topics.'
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline CaptCarl

  • Member
  • Posts: 1,114
  • Located in the Palinsville subdivision, JesusLand
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #14 on: March 15, 2008, 10:46:59 AM »
Sanitex,
   I want to say that it's a good thing that you have found this place on the internet. Don't worry too much about your english, for the most part we can figure out what you are saying, though sometimes it gets a bit difficult. I will try to make my response to you easy for you to understan as well. I have been HIV+ for twenty years now and still am in good health for the most part. I take it in your first post that you also have hepatitis, is this correct? I have had Hepatitis B for as long as I have had HIV. I am having trouble with my liver at this point, but it is not from the meds, it from having the HepB for 20 years, and the damage done to it over that time. Yes I do get pains from time to time, but like someone else pointed out, it is on the right side of my body, and higher up, underneath the ribs. It is not constant, and it does not keep me from working, but it in not fun either. I would get as much information from books as I could, especially if you can get books written in your native language. That would help you to understand things more easily, not having to interpret information in a secondary language. Also get books/pamphlets about HIV as well. Arming yourself with as much information as you can get will help you in the long run.
   As far as exercize goes, the more you can get, the healthier you will be. This is true for most everybody, HIV+ or not. I take my four dogs for a 2 to 3 mile walk every day before leaving for work. I work a physically demanding job in which I walk between 3 to 5 miles a day. When I get home from work I rest for awhile, then try to work around the house, and playing with the dogs. Last year when I went to see a doctor that specializes in the Liver, he was shocked at how good a condition I was in. He thought that I would be in bad shape because of the way things look on my medical charts. He asked how I managed to be so healthy in spite of everything. I told him what my average day is like, and he feels that the exercise is a major part of that reason. The trick is to not overdo it. I hope that I have been able to help you out in some way. Good luck to you, and keep us informed of how you are doing. Be Well...

CaptCarl
The only thing I can do straight is shoot..

Offline sanitex

  • Member
  • Posts: 388
Re: PLS I NEED YOUR AVDVICE FROM LONG TIME SURVIVORS
« Reply #15 on: March 17, 2008, 04:44:13 AM »
h!
   from sanitex,i appreciate you guys advices towards my question,very thanks to (bettytacy & abqcarl )but i want to express the reason i wrote that to (peter )is not that i don't understand english but ,i want to appologize for sending two topic at the same time maybe you guys misunderstood me .very much appreciation to (abqcarl ) for your encouragment,coming to english spoken i do speaks very fine and can write also fine,also when i was first diagonised my HAV HBV HCV all is negative,just want to know the status of my meds if perhaps may cause liver damage,but i do understand it now ,i'll see my ID doc on 27/3/08 for my latest result.
before cd4 20 and vl 1000000.hope to fine next apointment.thanks

27/12/07 cd4 20 vl 1million
10/4 /08 cd4 86 vl 63
1/7/08  cd4 186 vl undetectable
16/10/08 cd4 196 vl undet
23/1/09 cd4 248 vl un
10/9/11 cd4 418 vl <40 %22
13/12/11 cd4 410 vl undet 23%
24/2/12 cd4 545 vl undet 26%
on 22/2/12 change truvada to Recovir-EM
due to no stock on Truvada.
10/9/11 cd4 418 vl <40 %22
7/7/12 cd4 359 vl <40 22%
23/8/12 cd4 400 vl <40 23%,
testosterone test 7.5 ng/ml and
thyroid (TSH)1.32 ulu/ml creatinine.eGFR blck 1.5 all fasting test morning.
13/12/2012 cd4 523 24% vl <40
18/3/2013 cd4  513  23% vl <40
regimen ATRIPLA
03/8/2013 cd4 429 22% vl <40
13/11/2013 cd4 455 23% vl <40
Anti-HBs test (quantitative ) Anti-HBs positive
Titer 16.95 mlu/ml <10.00
22/3/14 cd4 396 vl <40 24%
24/7/14 change to Teevir
24/9/14 cd4 517 vl <40 22%

 


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