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Author Topic: What's the Definition of Long Term Non-Progessor?  (Read 1106 times)

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Offline northernguy

  • Member
  • Posts: 1,347
What's the Definition of Long Term Non-Progessor?
« on: February 07, 2008, 11:14:07 PM »
So after last month's set of labs my doc said I could only go every 6 months, as the numbers are relatively stable over two years.  Dare I hope I'm a long term non-progessor?  I thought you had to have a low, low viral load for that?
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline Iggy

  • Member
  • Posts: 2,435
Re: What's the Definition of Long Term Non-Progessor?
« Reply #1 on: February 07, 2008, 11:31:39 PM »
Individuals who are infected with HIV, but show no signs of disease progression for over 12 years and remain asymptomatic are classified as Long Term Non-Progressors (LTNP).

Offline OzPaul

  • Member
  • Posts: 410
  • a very blessed 29 year ltnp
Re: What's the Definition of Long Term Non-Progessor?
« Reply #2 on: February 08, 2008, 12:06:29 AM »
Just to add to what Iggy said, LTNP's also are not any any HAART medications.

Some definitions put the time frame anywhere over 7 years. There are a number of LTNP's here at the Forums.

Another subset of those with HIV and somewhat similar are people called "Elite Controllers". The time frame for these people is above 1 year or more. They also have some distinct traits.

Here's a link to that study
http://www.massgeneral.org/aids/hiv_elite_controllers.asp

There are also several people here at the Forums who are elite controllers and are enrolled in this study, myself included.

Wishing you all the best  :D
Paul



Offline northernguy

  • Member
  • Posts: 1,347
Re: What's the Definition of Long Term Non-Progessor?
« Reply #3 on: February 08, 2008, 01:23:20 AM »
Oh :( doesn't look like I'm either a LTNP or an elite controller.  Oh well.
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline emeraldize

  • Member
  • Posts: 3,260
Re: What's the Definition of Long Term Non-Progessor?
« Reply #4 on: February 08, 2008, 07:59:15 AM »
To add variables to the mix, I'm well under 7 years and have been in the MGH study for two years as well as studies at NIH as an LTNP in the viremic controller category.

Offline Basquo

  • Member
  • Posts: 3,235
Re: What's the Definition of Long Term Non-Progessor?
« Reply #5 on: February 08, 2008, 12:27:56 PM »
To add variables to the mix, I'm well under 7 years and have been in the MGH study for two years as well as studies at NIH as an LTNP in the viremic controller category.

I'm right at 7 years and have been in the MGH study for 1.5 years as a viremic controller.

Offline redhotmuslbear

  • Member
  • Posts: 605
  • A genuine certified freak of nature, and a hot one
Re: What's the Definition of Long Term Non-Progessor?
« Reply #6 on: February 08, 2008, 01:18:45 PM »
Oh :( doesn't look like I'm either a LTNP or an elite controller.  Oh well.

NG,

It's not a contest, don't fret.  Your system does seem to be harmonizing -- what is this, an a capella group or Newfoundland? -- with the hivvies, so you may enjoy more years without meds and get the LTNP label, complete with secret handshake and festiva attire, in time.

I'm one of the freaks, too, as my signature indicates; and I can play pout quite well over being 'just viremic,' as opposed to 'elite'.... like, don't they know who I am???!!!  But, seriously, at least my body is tough enough to handle a barely detectable viral load  ;D  I also add yet another dimension to the LTNP madness, having spent 7 years on various ART combos, after choosing denial as my treatment option for the first 15 years with my bugs.

Namaste,
David
"The real problem is not whether machines think but whether men do." - BF Skinner
12-31-09   222wks VL  2430 CD4 690 (37%)
09-30-09   208wks VL  2050  CD4 925 (42%)
06-25-08   143wks VL  1359  CD4 668 (32%)  CD8 885
02-11-08   123wks off meds:  VL 1364 CD4 892(40%/0.99 ratio)
10-19-07   112wks off meds:   VL 292  CD4 857(37%/0.85 ratio)

One copy of delta-32 for f*****d up CCR5 receptors, and an HLA B44+ allele for "CD8-mediated immunity"... beteer than winning Powerball, almost!

Offline planonstaying

  • Member
  • Posts: 169
  • Hiv is the FOX,tcells the rabbit, CALL the HOUNDS!
Re: What's the Definition of Long Term Non-Progessor?
« Reply #7 on: February 08, 2008, 03:19:46 PM »
I'm curious. I am a viremic controller. Other than  when I had blood drawn when I was sick  in the hopes the VL was high enough to get a genotype/resistance test etc( it was 2k) I have been between undectable and  a 464vl. A year after diagnosis I had 1186 CD4s.  Have other controllers  lost great numbers of CD4s? Seen a slow decline? Stayed steady mostly?
If someone tells you  potential consequences of a behavior  it  doesn't  mean they jude you or mit    they may just give a shit about you

 


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