Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
November 24, 2014, 04:28:20 AM

Login with username, password and session length


Members
Stats
  • Total Posts: 647064
  • Total Topics: 49293
  • Online Today: 181
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 4
Guests: 129
Total: 133

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Emergency Prayers Needed!! LOUIE Update  (Read 10242 times)

0 Members and 1 Guest are viewing this topic.

Offline RevMC

  • Member
  • Posts: 224
  • It's me!
    • Psychic AwakeningSchool.com
Emergency Prayers Needed!! LOUIE Update
« on: January 30, 2008, 10:08:28 PM »
Blessings Everyone,

I was just told today by his home health nurse and his HIV doctor's nurse that Louie's in VERY bad shape.  His hem count is 6.2, hem rate 19.4 and is need of a transfusion badly, up to 5 units of blood.  The procrit and Iron suppliment's are not working.  The lasix is not working on removing the excess water like it should.

They both told me that his body is shutting itself down and that the transfusion would only be a temporary bandaid.  If he went for the transfusion he may end up in the hospital (which he doesn't want) so that they can try dialysis while doing the transfusion to help remove the excess fluids.  He may not even be strong enough to handle that.

So his nurse is coming over tomorrow (thursday) early in the morning to help me to tell him the bad news and see what he wants to do. 

How can I tell him that he was right, that he's dying and it's only a matter of time.  OMG I can't even imagine how to approach that subject.  Thank God his nurse offered to help me tell him.  I've notified his family yesterday and told his sister who lives down the road about the news today.  She'll help contact everyone in the family to let them know that the time is near.

Louie's been asking questions about what to expect and told me that when he can't fight no more that he'll go ahead and make sure that it's OK by me that he goes.  I told him that he doesn't need my permission, that he already has it to go when it's time.  He asked the nurse what to expect as well and she told him that when he sees god with his open arms that it'll be OK to go and that I'll be fine.  She told him that there is no time there and though I may be here for who knows how many years, that he'll turn around when he gets there and there I'll be.

His sister in Indiana told him not to worry about me that I'm family no matter what the government says and that they'll always consider me his family and do what ever they can for me.  He felt more comfortable after hearing that from her.  He told me that he's not worried as much any more and that though he doesn't want to die that he feels it coming.

Please pray for his highest good that no matter what happens that if it's his time to go that it be quickly and painless.

I'll do my best to keep everyone informed as to what's going on.

Please pray for me too that I have the strength to continue taking care of him until he passes.  Please pray that I have the strength, courage, health and anything else that I need.

In the 20 years that I've known that I've been HIV+ this is the 1'st time I've ever had to go through losing a lover/spouse/husband!

I'm scared!!!

I've been crying and letting it out, I feel like crying as I write this,  without him knowing it and actually got a good nights sleep last night.  I have my hydroxyzine on me at all times so if I start getting a panic attack that I can take one to help calm me down.  Doc's nurse told me that if I need anything else to help me through this to let them know.  I just don't want to be out of it or unable to drive.

It now appears that "Sale Of A Lifetime" POZ December 2003 http://www.poz.com/articles/172_752.shtml is now  entering it's last chapter and coming to a close.  It's been one hell of a journey, one that I would gladly do over again, and one that I do not have any regrets about.  It's hard to believe, seeing the date of the issue, that it's been 4 long years, almost 5 now since he first got so very sick.  Though we never did get to travel like we had hoped in the article, we have grown closer to each other, more than we had before.  March 9, 2008 will be our 11'th anniversary.  It would be nice to see him make it to that day, but it's not looking good.

I want to thank everyone in advance for all your support, help, advice and prayers.

May what ever god you believe in bless all of you, help you and comfort you during your trouble's, struggles and through this terrible disease.

I love all of you and, like I said, try to keep in touch as best as I can.

Thank you

Rev. Michael Carbone

Part of my story: "Sale Of A Lifetime" POZ December 2003
http://www.poz.com/articles/172_752.shtml

Started on Truvada and Viramune on 2/15/07

Jan 8, 2007   t-cells 215  Viral Load 10,000  24%
March 26'th  T-cells 306   Viral Load  UNDETECTABLE
June 2007 t-cells 375 Viral Load UNDETECTABLE
August 2007 t-cells 290 Viral Load UNDETECTABLE



Love and Light and Reiki sent your way,
Rev. Michae

Offline Matty the Damned

  • Member
  • Posts: 12,239
  • Ninja Please
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #1 on: January 30, 2008, 10:11:03 PM »
Oh Rev!

Matty the Damned is terribly saddened to hear this news and wants you to know he's thinking of you and Louie.

How can you tell him? Honey there's only one way to tell him. Straight up, gently and compassionately. Tell him it's OK to let go if he wants to.

 :'(

MtD

Offline Teresa

  • Member
  • Posts: 1,753
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #2 on: January 30, 2008, 10:16:28 PM »
You, Louie, and family are in my thoughts and prayers!

Big Hugs
Teresa
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Offline jabez

  • Member
  • Posts: 97
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #3 on: January 30, 2008, 10:17:54 PM »
I will definitely keep you and Louie in my prayers. 
Sept 2007 -- CD4 = 68; VL = 469,000
Started Atripla Sept 21, 2007
Nov 2007-CD4=217;VL=332
Feb 2008-CD4=237;VL=<50
Apr 2008-CD4=271;VL=66
Aug 2008-CD4=440;VL=52
Jan 2009-CD4=403;VL=61
May 2009-CD4=480;VL=129
Sep 2009-CD4=376;VL<40
Jan 2010-CD4=476;VL<40
Jul 2010-CD4=539;VL<40
Jan 2011-CD4=461;VL=53
Jul 2011-CD4=515;VL<20
Jan 2012-CD4=506;VL=54
Aug 2012-CD4=440;VL=21
Jan 2013-CD4=447;VL=<20
Jul 2013-CD4=406; VL=<20
Feb 2014-CD4=450; VL=<20
Aug 2014-CD4=535; VL=<20

Offline cmhjeff

  • Member
  • Posts: 870
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #4 on: January 30, 2008, 10:27:15 PM »
Breaks my heart to read this...I'll be praying for you both as I close my eyes tonight.

Offline AlanBama

  • Member
  • Posts: 3,644
  • Alabama: the 'other' 3rd World Country!
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #5 on: January 30, 2008, 10:27:20 PM »
Michael,

I am so sorry to hear this.   I pray for strength for you both, especially you, and also courage....and most of all I wish you peace.   I pray that God will be merciful with Louie, and his transition will be peaceful.

It's important for him to see you as "at ease" as you can possibly be.  He will be worried more about you than about himself.    When and if the time comes, let him know that it is alright for him to go, that you love him and you believe that everything will be o.k.   Say that with conviction, and it will be so.

You both remain in my prayers. 

with love,

Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline sacinsc

  • Member
  • Posts: 353
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #6 on: January 30, 2008, 10:38:32 PM »
I am so sorry. I have you in my thoughts now always. Reading this tore me up, so I know what you are going through is terrible. I will be thinking of you and hoping and praying that both of you are alright.

Matt
March 07 - Negative
May 07 - Exposed
June 07 - Seroconversion
September 07 - CD4 402 VL 118000 25%
October 07 -     CD4 294 VL 124000 22%
November 07 - Norvir, Triuvada and Reyataz
December 07 -  CD4 355 VL  550 .... guess the meds are working.
January 08 - CD4 446 VL <48 undetectable!
April 08 - CD4 554 VL <48 undetectable!
July 08 - CD4 666 VL <48 undetectable! Hporay...I have devil CD4's

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #7 on: January 30, 2008, 10:42:00 PM »
Rev

Your courage and love for Louis are an inspiration and a strength for you to draw on.  Hold him, as much as the physical constraints of his care will let you, and name those who love him.

Respectfully

A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline minismom

  • Member
  • Posts: 2,608
  • Quocumque jeceris stabit
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #8 on: January 30, 2008, 10:51:50 PM »
I'm so very sorry to hear that Louie has taken such a sharp turn.  I will also be praying for your peace and your strength. 

Mum
www.watoto.com
www.MotherBearProject.org
"Whichever way you throw me, i will stand"
"Don't worry about the world coming to an end today...it's already tomorrow in Australia"  Charles Schultz

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,050
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #9 on: January 30, 2008, 11:10:48 PM »
Rev, it is with sadness that I type this.  When my mum was in her last days, she looked at me one time with very deep concern (over how I was going to handle her passing).  I just looked her in the eyes and said "Mum, I'll be alright!"  It wasn't long after that that she passed-peacefully.

I'm keeping you and Louie in my prayers at this most difficult time. :'(
Peace~
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline leatherman

  • Member
  • Posts: 6,305
  • Google and HIV meds are Your Friends
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #10 on: January 30, 2008, 11:11:58 PM »
Mike,

As I read through your post, I remembered all too well how scared and sad I was as my Randy was fading. It's a terrible subject to have to broach with someone, and I too had no idea what to really say. It doesn't matter what you say though, what does matter is that you're there with him. You've been taking good care of Louie, and he knows it, and that's all that matters.

This is the really tough part now, I know. I pray for strength and courage for you to get through what will come. I pray for peace and comfort for your Louie.

with love and sorrow,
mikie
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline thunter34

  • Member
  • Posts: 7,318
  • His name is Carl.
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #11 on: January 30, 2008, 11:18:34 PM »
Know that you both are in my thoughts, sending you comfort, strength and peace.

Tim Hunter

AIDS isn't for sissies.

Offline bryonut

  • Member
  • Posts: 283
  • I'm not just sure, I'm HIV positive!
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #12 on: January 30, 2008, 11:45:53 PM »
My prayers and thoughts are with you.

bry

Offline Buckmark

  • Member
  • Posts: 1,563
  • Would you like to tie me up with your ties, Ty?
    • Henry's Home Page
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #13 on: January 30, 2008, 11:46:19 PM »
Michael,

I'm sending you and Louie all the prayers I can.  I wish both of you the courage and wisdom to make whatever decisions you have to make,  whenever you make them.

Love,

Henry
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline Miss Philicia

  • Member
  • Posts: 24,420
  • celebrity poster, faker & poser
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #14 on: January 30, 2008, 11:48:28 PM »
Rev., you're an amazing, supportive man to Louie and I wish both of you fortitude in the coming hours and days.
"Iíve slept with enough men to know that Iím not gay"

Offline Robert

  • Member
  • Posts: 2,648
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #15 on: January 30, 2008, 11:52:20 PM »
REv.

It's a sad day here at Aidsmeds.  My heart goes out to you and Louie.  

God bless.

robert
..........

Offline anniebc

  • Member
  • Posts: 5,951
  • AM member since 2003
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #16 on: January 31, 2008, 12:38:34 AM »
Dearest Rev

You are both in my prayers today.

I agree with Matty, when the time comes just let Louie know that you love him and tell him it's OK for him to go, and I'm praying that you will find the strength to do this.

Hugs to you both
Jan :'(
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline +Man

  • Member
  • Posts: 23
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #17 on: January 31, 2008, 12:45:31 AM »
Praying for you both tonight.
Tested Neg 4/7/07
Tested Poz 6/20/07
CD4 6/20/2007 = 449 at 30%
VL >100,000
CD4 7/17/2007 =721 at 35%
VL =1430
CD4 8/14/2007 = 671 at 34%
VL =875
CD4 9/17/2007 =1010 at 38%
VL =368
CD4 11/07/2007 = 815 at 37%
VL =<50

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #18 on: January 31, 2008, 12:56:48 AM »
Dear Lovely Sweet Man,

It is ok to be scared. But you do know that both you and Louie are surrounded with love. You are indeed strong even though you  feel  weight of this is crushing you.
Whenever it is time, you will know what to do.

I send you much love tonight

Offline beefbud

  • Member
  • Posts: 117
  • just some flesh caught in this big broken machine"
    • cubster dot com
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #19 on: January 31, 2008, 04:33:51 AM »
thoughts and prayers are with you. 
"first impressions are cheap auditions"

Offline sweetasmeli

  • Member
  • Posts: 1,052
  • Love what you are...
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #20 on: January 31, 2008, 04:41:13 AM »
Michael, I just woke up to this sad update. Please know that both you and Louie are in my thoughts.

Debra xx
/\___/\       /\__/\
(=' . '=)    (=' . '=)
(,,,_ ,,,)/   (,,,_ ,,,)/ Cats rule!

The difference between cats and dogs is that dogs come when called, whereas cats take a message and get back to you.

Yeia kai hara (health and happiness) to everyone!

Offline Nadine

  • Member
  • Posts: 1,253
  • Member since: August 2005
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #21 on: January 31, 2008, 06:13:01 AM »
Michael...I am so sorry to hear this.  I know what a struggle this has been for the both of you.

I'm sending you strength and compassion.

(((HUGS)))

Offline bear60

  • Member
  • Posts: 4,104
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #22 on: January 31, 2008, 08:19:43 AM »
You know I am with you.
Poz Bear Type in Philadelphia

Offline Dragonette

  • Member
  • Posts: 1,190
  • Spring symptoms
    • NotPerfectAtAll
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #23 on: January 31, 2008, 08:26:14 AM »
Dear Rev.

Your post moved me to tears this morning. I am praying for you & Louie.
"If you keep one foot in yesterday, and one in tomorrow, you piss all over today". Betty Tacy

Offline BrooklynGuy

  • Member
  • Posts: 49
  • Tomorrow is not a promise, it's a gift.
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #24 on: January 31, 2008, 09:26:46 AM »
my thoughts and prayers are with you and Louie during this difficult time.  i only hope to approach such a similar situation with as much grace and dignity as the two of you are.  all my best.
Infected:  Probably 1995
Diagnosed: June 2005
Baseline VL: 650,000
Baseline CD4: 30

Last Dr. Visit: 12/2013
VL: Undetectable
CD4: 700
Meds: Complera

Offline structuredjen

  • Member
  • Posts: 71
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #25 on: January 31, 2008, 10:00:57 AM »
My thoughts and prayers are with the both of you-

sending my love,
Jen

Offline aztecan

  • Member
  • Posts: 5,411
  • 29 years positive, 57 years a pain in the butt
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #26 on: January 31, 2008, 10:06:11 AM »
Michael,

I send to you and Louie all the strength and energy I can muster. Know that my thoughts are with you both and I am hugging you both.

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #27 on: January 31, 2008, 10:15:24 AM »
Dear Micheal,

I was talking with my mom about you and Louie last night. Being the mom she has become, after witnessing the experience of my loss (and boy she has come a long way), she sends you love and strength. Knowing her and the miracle of the internet, I have a feeling that most of Central Oregon is praying for you both right now.

Much love,
Sharkie

Offline RapidRod

  • Member
  • Posts: 15,288
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #28 on: January 31, 2008, 10:36:26 AM »
Micheal,
Sending you both prayers and strength in this most difficult time. May God watch over you with open arms.

Rodney

Dan J.

  • Guest
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #29 on: January 31, 2008, 10:46:03 AM »
Micheal,

Thinking of you and Louie during this difficult time.

Dan J.


Offline komnaes

  • Member
  • Posts: 1,898
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #30 on: January 31, 2008, 11:05:28 AM »
My thoughts are with you guys Michael...
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

Offline northernguy

  • Member
  • Posts: 1,347
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #31 on: January 31, 2008, 11:27:00 AM »
I am thinking of you both.  Courage in this difficult time.
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline heartforyou

  • Member
  • Posts: 1,105
  • I must be a survivor in many ways...
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #32 on: January 31, 2008, 11:36:45 AM »
Michael and Loui,

Just hold his hand Michael.. you know he needs that right now.
SOunds like you have already told im you're fine with his leaving.
Of course, as humans, parting hurts.

I never had a chance to say goodbye. My lover just dropped dead.

So, know that we are all thinking of you and Loui here. I am lighting a candle right now in belgium and pray his passing will be smooth and painless.

It hurts to see you in agony Michael.. I am holding you both.

With love

Hermie
Diagnosed in 1987 and still kicking
Viread, Kivexa (Epzicom),Viramune once daily

Happiness is the freedom of breathing fresh air every day.

Offline Iggy

  • Member
  • Posts: 2,435
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #33 on: January 31, 2008, 05:13:47 PM »
Michael,

I'm so sorry.

My love, thoughts and prayers are with you and Louie.

Mark

Offline LatinAlexander

  • Member
  • Posts: 599
  • Bogota, Colombia
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #34 on: January 31, 2008, 05:24:14 PM »
Sad day , no doubt

I hope your mutual love gives you the strength needed in these moments

Alex
Poz since Jul 19 2006
Initial numbers : CD4-250 VL 3500
First labs after HAART (Dec 04-2006) : CD4-432 VL-<40 (Undetectable)  cd4%=25.11%
Started HAART: Combivir+Efavirenz Aug 26 7:38 pm
Feb 08 2007 - Gradually stopping HAART cause of Myalgia. Protecting Efavirenz. Stopped Efavirenz, ahead with Combivir....
February 17 Combivir stopped.
April 3 -07 : Started ddi+3tc+efavirenz...
Gay and positive (What a lack of Identity...:) )
Looking for my Ben....

Offline J.R.E.

  • Member
  • Posts: 7,251
  • Joined Dec-2003 Living positive, since 1985.
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #35 on: January 31, 2008, 05:28:48 PM »
Michael,


You and Louie, will be in my daily thoughts...


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 25 mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 8/25/14,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Just John

  • Member
  • Posts: 267
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #36 on: January 31, 2008, 06:08:05 PM »
Reading this brings back many bitter-sweet memories.

I wish both of you the strength to get through this, I'll keep you both in my thoughts.
Some cause happiness wherever they go; others, whenever they go.

Offline MOONLIGHT1114

  • Member
  • Posts: 1,918
  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #37 on: January 31, 2008, 09:10:02 PM »
Dear Michael~

I am so sorry to hear of this tonight.  I lost my husband to AIDS in '96 when we were both very young.  I, too, didn't want to talk about "it," about the inevitable.  I was blessed in that my husband was in little pain and was able to communicate with me up until the day he passed.  I remember sitting next to his bed that night, he was on morphine to keep him comfortable.  I took his hand and I said, "You know, sweetie, its time for you to go now, and its OK.  I'll be alright. You've worked hard enough here, and now God needs you." 

I stayed positive, smiling as I spoke to my husband, not knowing if he could really understand me, but I somehow think he did.  He peacefully passed about six hours later.  I saw it as courageous, for him to leave this world on his own, and to go to a new place.

I also felt much relief for him, as I knew that he was OK.  At last.

May God bless you and keep you strong during this very difficult time, Michael. 

And may God bless Louie tonight.

~ Cindy
« Last Edit: February 01, 2008, 11:08:23 AM by MOONLIGHT1114 »
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline Basquo

  • Member
  • Posts: 3,272
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #38 on: January 31, 2008, 09:22:26 PM »
Just be there for him, and know that we're all praying for both of you.

Offline WorriedWife

  • Member
  • Posts: 82
  • Our Little Gift From God
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #39 on: January 31, 2008, 11:12:51 PM »
Michael,

Im so sorry to hear this. Please know that you and Louie are in my thoughts and prayers.

Stacy
"Everything Happens for a Reason"

Offline David_CA

  • Member
  • Posts: 3,246
  • Joined: March 2006
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #40 on: January 31, 2008, 11:35:07 PM »
Michael,

You both are in David's and my thoughts and prayers. 

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline joemutt

  • Member
  • Posts: 1,042
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #41 on: February 01, 2008, 02:57:54 AM »
I am sorry for this turn to the worse. You will be both in my thoughts.

Offline Queen Tokelove

  • Member
  • Posts: 6,033
  • Smokey the Smurf
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #42 on: February 01, 2008, 03:25:00 PM »
You are in my thoughts and prayers, Rev.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline NLEWLAD

  • Member
  • Posts: 230
  • Anything is possible, ANYTHING
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #43 on: February 01, 2008, 03:31:52 PM »
you and louie are in my thoughts and god bless you and louie i will definately pray that if he has to go, he goes peacefully to sleep.

x
Simon - Location Manchester England
Negative test 10/11/07
Tested poz 28/12/07
Confirmed WB 07/01/08
Sero-converted Late December 07

Date        CD4            %              VL

7/01/08   1273 :)      N/A       100,232
24/01/08   755 :(      42%         4,010
13/2/08     922 :)      45%       78,234
09/04/08   652 :(      38%       36,604
05/05/08   936 :)      39%       38,952
07/07/08   844 :)      34%       24,000
12/11/08   753 :(      31%       45,600
no meds yet:)

Offline OneTampa

  • Member
  • Posts: 2,295
  • "Butterflies are free."
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #44 on: February 01, 2008, 05:06:06 PM »
Michael,

My thoughts and prayers are with you and Louie.  Having gone through a similar situation this past November with a  dear friend of 35 years, I know what you are facing.  You are right to cry and let it out.  Please know that Louie is joyful inside with the knowledge that you are there with him.  I wish you and Louie the best.

Many blessings to you and Louie.
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaŪto frito."

Offline RevMC

  • Member
  • Posts: 224
  • It's me!
    • Psychic AwakeningSchool.com
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #45 on: February 02, 2008, 12:16:56 AM »
TY everyone so much for the kind words and support.

The doctor still wants to do a transfusion for Louie.  We were under the impression on Thursday that it was a good sign.  I found out this morning that it's a comfort measure.  They want to do 2-3 units to hopefully make him feel better and to give him more time.  His enemia is critical right now and nothing else is helping.  Another diaretic has been added to the mix.

The home health agency out here is a dual agency, part home health and another part that's hospice.  We have Louie signed up now for the Hospice Support, which will help to keep him comfortable and offer extra's that home health can't provide.  Since he said he does not want to stop the TPN then he will not go to the full hospice side.  So they are doing just that, supporting what we need them for.

The hardest part is pretty much over, everyone in the family now knows.  The hardest part was telling his 87 yr old mother.  Louie's sister came up here to where we are at on the weekends so that the 3 of us can tell his mother.  It was one heck of a balancing act to have hospice here signing him into the system and not letting her know exactly why.  I didn't lie to her, just didn't tell her the whole truth.  She asked why they were putting Louie into hospice and I told them for extra care that the home health nurse could not do in regards to his adema in his legs.  Which is true.

Louie's 27 yr old neice, who they have always been very close, got an emergency flight out to see us.  She's 5 months pregnant and was planning on coming back home from California in a few weeks so we can meet her new husband before the baby is born.  She's closes to the point of not being able to fly.  When she was told today of his situation, she found out a flight for Saturday, she should be here in the afternoon/early evening.  We'll see her on Sunday.

They had always wanted Louie to walk her down the aisle when she got married, but because he was so sick in October, he wasn't able to do it.  She even called us up right before walking down the aisle to tell us that she loved us both and understood why he couldn't be there. 

I have the full backing of the entire family and his older brother said at least 5 times how much they appreciate everything I've done for Louie and how the family appreciates that I've been so helpful and kind to their mother.  I told him to me she's my mother in law and even after Louie's gone, I'll always be here for her.  His sister down here is even going to take over payments of the cell phone for awhile for us and had me increase my minutes so I didn't have to worry about taking a call.  All nursing agencies and doctor's have my cell phone as well as the entire family so no matter where I'm at I can be reached.

I'm going to keep working even when Louie's unable to go back and forth from our home to his mothers, for awhile.  When he get's to the point that the doctor says it's only a matter of days, then I'll stop working completely and spend all my time with him.  Of course all this may change depending on his condition, especially when it comes to administering his morphine.  Work is at least 1 hr away so it'll be hard to drive here to give him his meds and then to go back to work only to come back a while later. 

We're just taking it all one day at a time.

BTW, Louie and I are going to have a committment ceremony so that in the eyes of god we'll be married.  It's something the 2 of us have always wanted but never got around to doing it.  I have a co-worker who is an ordained minister who will be dong the ceremony for us.  We're going to pick out the rings this weekend and get all paperwork finalized by monday afternoon.

The hospice nurse told me the doctor's prognosis was 2 weeks, so we'll see how that changes  after the transfusions.  Louie's a fighter and is willing to go through the transfusions and the risks to stay here a bit longer.

Again, TY everyone for all your support and prayers.  The "Sale of a Lifetime" story has officially entered it's final chapter.

I'll keep everyone updated as much as I can.

Love and Light,

Michael
Part of my story: "Sale Of A Lifetime" POZ December 2003
http://www.poz.com/articles/172_752.shtml

Started on Truvada and Viramune on 2/15/07

Jan 8, 2007   t-cells 215  Viral Load 10,000  24%
March 26'th  T-cells 306   Viral Load  UNDETECTABLE
June 2007 t-cells 375 Viral Load UNDETECTABLE
August 2007 t-cells 290 Viral Load UNDETECTABLE



Love and Light and Reiki sent your way,
Rev. Michae

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,050
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #46 on: February 02, 2008, 07:42:34 AM »
Michael, it really touches my heart that you two are going to have a commitment ceremony.  What a man you are.  And it's a great thing that you and Louie's family are so bonded.  It will make the final transition and the aftermath just a little bit easier.  Please keep us informed.  My prayers are still with you and Louie.
Peace~
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #47 on: February 02, 2008, 11:05:19 AM »
holding you two in love and light


Offline BrooklynGuy

  • Member
  • Posts: 49
  • Tomorrow is not a promise, it's a gift.
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #48 on: February 02, 2008, 11:17:38 AM »
guys, i said it before and i'll say it again - you both are the model of compassion and dignity.  all my love and prayers...............
Infected:  Probably 1995
Diagnosed: June 2005
Baseline VL: 650,000
Baseline CD4: 30

Last Dr. Visit: 12/2013
VL: Undetectable
CD4: 700
Meds: Complera

Offline minismom

  • Member
  • Posts: 2,608
  • Quocumque jeceris stabit
Re: Emergency Prayers Needed!! LOUIE Update
« Reply #49 on: February 02, 2008, 11:42:12 AM »
Oh, sweet Michael and Louie!  My heart is broken but at the same time so full to see the compassion that you two have not only from each other but from those around you.  It's a comfort to know that you wont' be alone, Michael, but surrounded by Louie's family - your family.  I'm glad you have hospice.  They were a comfort to our dear friends when her hubby passed. 

Our continued prayers are with you both.

Mum
www.watoto.com
www.MotherBearProject.org
"Whichever way you throw me, i will stand"
"Don't worry about the world coming to an end today...it's already tomorrow in Australia"  Charles Schultz

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.