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Author Topic: Most Important CAM Q in HIV to you--  (Read 2294 times)

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Offline FIARgmc

  • Member
  • Posts: 11
Most Important CAM Q in HIV to you--
« on: December 18, 2007, 05:02:25 PM »
There is an NIH grant that FIAR is considering applying for with collaborators on Complementary and Alternative Medicine (CAM) in the context of HIV disease.

If you could have one clinical question answered about CAM and HIV, what would it be?

Would it be about slowing disease progression? Managing a side effect?

What agents—vitamins, minerals, antioxidants, amino acids, herbs, etc.—are most important to you?

Please don’t hesitate to write to reply here or email me at fiar@verizon.net with your ideas.

Thanks for your thoughts!
George M. Carter


Offline risred1

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  • Posts: 419
  • My Source for Supps - www.newyorkbuyersclub.org
Re: Most Important CAM Q in HIV to you--
« Reply #1 on: December 20, 2007, 01:41:35 AM »
I believe that the whole issue of what is supplementation for needs to be addressed.

There are frequently questions about supplements as a substitute for Harrt or about lowering VL or boosting CD4. Targeting these areas would be of great help to put on paper how supplements can or cannot do things in this area. We have guidelines for treatment. I would like to see a guideline for supplementation.

2nd group has to deal with using supplements to deal with side effects from meds. There are frequent questions about PN and Gut issues, lipid issues, and metobolic issues that need to be better understood.

3rd group is the explanation of what types of effects HIV produces in the body in layman's terms, and how supplements counteract or mitigate those effects.

Thank you!
risred1 - hiv +
02/07 CD4 404 - 27% - VL 15k
10/07 CD4 484 - 31% - VL 45k
05/08 CD4 414 - 26% - VL 70k
01/09 CD4 365 - 23% - VL 65k
05/09 CD4 291 - 23% - VL 115k - Started Meds - Reyataz/Truvada
06/09 CD4 394 - ?% - VL 1200 - Boosted Reyataz with Norvir and Truvada
07/09 CD4 441 - ?% - VL 118 - Boosted Reyataz with Norvir and Truvada
09/09 CD4 375 - ?% - VL Undetectable - Boosted Reyataz with Norvir and Truvada
12/09 CD4 595 - ?% - VL Undetectable - VIT D 34 - Reyataz/Truvada/Norvir

Offline FIARgmc

  • Member
  • Posts: 11
Re: Most Important CAM Q in HIV to you--
« Reply #2 on: December 20, 2007, 08:36:15 AM »
Thanks Risred1 - good points....

There is some evidence that a potent multi/antioxidant formula (Kaiser's protocol) MAY raise CD4 cells. Should we pursue a follow up study?

Some botanicals MAY decrease viral load by small amounts. Which might we look at?

What's the most important side effect to you? And what supplements do we know about treating it?
For example, there are some data on acetylcarnitine for neuropathy. Should we follow up on that?

HIV causes hyperactivation of immune function, damage to lymphoid and neurological tissues. What agents might be best to evaluate to assess their capacity to mitigate these effects? (A tougher set of questions!)

So that's a bit more of the general--feel free, one and all, to suggest specific ideas! If something works, it should be ALSO covered on things like ADAP or Medicaid formularies.
George M. Carter

Offline risred1

  • Member
  • Posts: 419
  • My Source for Supps - www.newyorkbuyersclub.org
Re: Most Important CAM Q in HIV to you--
« Reply #3 on: December 21, 2007, 12:09:02 AM »
You may want to post this question in the research forum. The nutrition forum is pretty quiet lately.
risred1 - hiv +
02/07 CD4 404 - 27% - VL 15k
10/07 CD4 484 - 31% - VL 45k
05/08 CD4 414 - 26% - VL 70k
01/09 CD4 365 - 23% - VL 65k
05/09 CD4 291 - 23% - VL 115k - Started Meds - Reyataz/Truvada
06/09 CD4 394 - ?% - VL 1200 - Boosted Reyataz with Norvir and Truvada
07/09 CD4 441 - ?% - VL 118 - Boosted Reyataz with Norvir and Truvada
09/09 CD4 375 - ?% - VL Undetectable - Boosted Reyataz with Norvir and Truvada
12/09 CD4 595 - ?% - VL Undetectable - VIT D 34 - Reyataz/Truvada/Norvir

 


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