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Author Topic: Cancer update  (Read 6272 times)

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Offline GSOgymrat

  • Member
  • Posts: 5,037
  • HIV+ since 1993. INTJ
Cancer update
« on: November 24, 2007, 02:11:43 AM »
Thought I would update on my partnerís progress.  To recap he was diagnosed with Hodgkinís lymphoma with multiple tumors back in August and has been undergoing chemotherapy. He has had 6 of 12 treatments and just had a repeat PET scan, CAT scan, etc. The tests indicate the largest tumors, which were in his neck, are gone! The tumors in his chest and abdomen have all reduced more that 50%. It appears the two undiagnosed spots on his lungs are probably malignancies because they are responding to the chemotherapy but they have reduced from 6 millimeters to 2 millimeters. So this is great news!

He has experienced the usual side effects but is getting better at managing them. He initially had nausea and vomiting so badly he couldnít even talk without having dry heaves. He has also had a lot of constipation and stomach problems. Heís lost his hair and dropped about 25 lbs. More seriously he developed blood clots in his neck and armpit due to the catheter in his chest.

Fortunately he has most of the side effects under control. The main problems he is having at this time are fatigue and muscle and bone pain. Vicodin helps but I think we have watched too many episodes of Intervention because he refuses to take more than 2 vicodin in a 24 hour period. Some days he feels okay and we go shopping or for walks. Other days he doesnít feel well enough to leave the house.
 
Because he has been less secretive about his cancer this time around he has had a lot of support. His parents stayed for a couple of weeks to help out. When I am working friends come over and bring food, clean house, give him a massage, do the yard or just keep him company. He has a lot of people praying for him.

If all goes as planned February 5 will be his last chemo. We are very optimistic and look forward to our lives getting back to normal.

Offline frenchpat

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Re: Cancer update
« Reply #1 on: November 24, 2007, 02:16:52 AM »
I am glad to know things are progressing in the right direction. Hang in there!

Pat
People have the power - Patti Smith

Offline CowboyPOZ

  • Member
  • Posts: 61
Re: Cancer update
« Reply #2 on: November 24, 2007, 02:50:45 AM »
keep the faith. Its a hard battle but he has a strong will and will overcome this struggle. We are saying prayers for the both of you.

Offline anniebc

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Re: Cancer update
« Reply #3 on: November 24, 2007, 04:11:03 AM »
I'm glad to hear that the treatments are working and the tumours are shrinking..that is good news.

Is his Doctor going to put him on Warfarin?... not sure what you call it over there, it's for thinning the blood clots, I would be concerned about that, please let us know how things progress.

Thinking of you both.

Hugs
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Cliff

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Re: Cancer update
« Reply #4 on: November 24, 2007, 04:35:16 AM »
Thank you for the update Ford.  It is encouraging.  I hope things continue to progress this well and am glad you and your partner has plenty of support this time around.

Offline Dragonette

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Re: Cancer update
« Reply #5 on: November 24, 2007, 06:24:16 AM »
Glad to read this optimstic update. All the best to both of you
"If you keep one foot in yesterday, and one in tomorrow, you piss all over today". Betty Tacy

Offline BT65

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Re: Cancer update
« Reply #6 on: November 24, 2007, 07:33:08 AM »
What great news!  I'm so glad he has gotten the side effects under control also. I think they can be almost as devestating as the disease themselves.  And quit watching Intervention!  You better believe, even though I'm in recovery, that if I was going through everything he is, I wouldn't have a problem popping pain pills! ;)
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Central79

  • Member
  • Posts: 527
Re: Cancer update
« Reply #7 on: November 24, 2007, 08:11:20 AM »
Hey Ford

So glad to hear that everything is moving in the right direction and he's responding well. I hope you both put all this behind you soon.

Matt.

Diagnosed January 2006
26/1/06 - 860 (22%), VL > 500,000
24/4/06 - 820 (24.6%), VL 158,000
13/7/06 - 840 (22%), VL 268,000
1/11/06 - 680 (21%), VL 93,100
29/1/07 - 1,020 (27.5%), VL 46,500
15/5/07 - 1,140 (22.8%), VL not done.
13/10/07 - 759 (23.2%), VL 170,000
6/11/07 - 630 (25%), VL 19,324
14/1/08 - 650 (21%), VL 16,192
15/4/08 - 590 (21%), VL 40, 832

Offline heartforyou

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Re: Cancer update
« Reply #8 on: November 24, 2007, 10:44:38 AM »
Hi Ford,


what a battle... chemo really sucks and brings back memories of taking "overdoses of AZT" with the weakness, muscle pain and nausea..

But what a great news to hear he is responding well to the treatment.

Wishing both of you a lot of courage and know that we think about you.
Thanks for posting the positive news.

hermie
Diagnosed in 1987 and still kicking
Viread, Kivexa (Epzicom),Viramune once daily

Happiness is the freedom of breathing fresh air every day.

Offline bear60

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Re: Cancer update
« Reply #9 on: November 24, 2007, 11:39:25 AM »
Well that was quite an update!!!! Thanks for posting it. Its so great that your partner has a lot of help.  You are in my thoughts.
Poz Bear Type in Philadelphia

Offline Miss Philicia

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Re: Cancer update
« Reply #10 on: November 24, 2007, 11:52:03 AM »
I'm glad things seem to be looking better for both of you.  Keep up the good work!
"Iíve slept with enough men to know that Iím not gay"

Offline northernguy

  • Member
  • Posts: 1,347
Re: Cancer update
« Reply #11 on: November 24, 2007, 11:59:08 AM »
Glad to hear things are going in the right direction.  The woman who rents the suite in my house has just finished chemo for Hodgkins and I know now how brutal it can be!  Hang in there and Feb 5 will be here before you know it.
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline bocker3

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Re: Cancer update
« Reply #12 on: November 24, 2007, 12:24:32 PM »
What a great update!  Life's trials are always made easier by good friends and it sounds like you both have some great ones.  Here's hoping the remaining treatments continue their good work.

Hugs,
Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2013 691/31% <20

Offline BirdBear718

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Re: Cancer update
« Reply #13 on: November 24, 2007, 12:27:48 PM »
Very happy for both of you!
So glad things are moving forward in a positive waY!

I am very glad you get him out of the house when he is able.  That is very important. 

Add me to his long list of those praying for him.


Offline MOONLIGHT1114

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Re: Cancer update
« Reply #14 on: November 24, 2007, 12:35:02 PM »
Hi Ford~

I'm so glad to hear of your partner's progress.  Its nice to know that you have people to help out, too.  My husband had non-Hodgkins in '96, and it ran me into the ground, taking care of him by myself for nearly a year.

You are both in my prayers.

~ Cindy
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline CaptCarl

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Re: Cancer update
« Reply #15 on: November 24, 2007, 01:06:04 PM »
Ford,
   Glad to hear that things are going well with your partners treatment. I've had a go-'round with chemo myself, and can say for certain that it really blows. Big time. I will keep the two of you in my thoughts and prayers. My partner has a large golf ball sized lump that they will be removing after the new year. They are a bit tight lipped about what it may be, but I've seen lymphoma before, and this could be the start of it, we shall see...

Capt.Carl
The only thing I can do straight is shoot..

Offline pozniceguy

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  • Posts: 1,181
  • Niceguy Dallas
Re: Cancer update
« Reply #16 on: November 24, 2007, 02:26:27 PM »
What a great relief for both of you...that treatment is brutal but effective.... so much better to have the support of many people and a variety of help...so few people are willing or think of the cutting grass..cleaning house kind of help.....  if he has lost all his hair you can now be well matched "skinheads"

all my prayers and thoughts to both of you.

Nick
remember the good times...honor the past but don't live there
Le stelle la notte sono grandie luminose, nel cuore profondo del Texas

Offline Robert

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Re: Cancer update
« Reply #17 on: November 24, 2007, 04:28:44 PM »
ford.

Thanks for the post.  I hadn't forgotten and was just sorta hoping things were going OK.  It sounds like they are.  In fact, both of you sound like you're doing OK and that you both have plenty to give thanks for.

robert
..........

Offline mjmel

  • Member
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Re: Cancer update
« Reply #18 on: November 24, 2007, 04:43:48 PM »
Thanks for the update, Ford. Was wondering how it was going........rough, but looking good, eh?
You're still in my prayers, partner to gymrat!
xxx,
Mike

Offline Iggy

  • Member
  • Posts: 2,435
Re: Cancer update
« Reply #19 on: November 25, 2007, 11:25:58 AM »
As another has said, that is encouraging news about the tumors shrinking. 

I watched my mom go through chemo and know what it can be to witness the effects of the treatment.  That he has weathered them as well as he has is a testament to your partner's strength on many levels.

Here's hoping for all the best.

Offline Life

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  • Posts: 2,388
  • Member 2005
Re: Cancer update
« Reply #20 on: November 25, 2007, 12:23:06 PM »
Ford...   Stay strong for him...  He certainly is holding his own with those results, thats the best Thanksgiving news I have heard all week...

E
« Last Edit: November 25, 2007, 12:57:29 PM by Life »

Offline Andy Velez

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  • Member
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Re: Cancer update
« Reply #21 on: November 25, 2007, 12:54:00 PM »
Ford, you guys are holding up amazingly. Thanks for the update. That's major and very encouraging about the shrinking tumors.

Good to know you two have friends and loved ones who are supportive. What a difference that makes.

Praying for you both to get through successfully.

Cheers,
Andy Velez

Offline StrongGuy

  • Member
  • Posts: 492
Re: Cancer update
« Reply #22 on: November 25, 2007, 01:02:27 PM »
Very glad to hear the encouraging news and wish you and your partner all the best.

You both seem so fortunate to have each other and ony my best for both of you as fight through this toward better times.

:)
"Get your medical advice from Doctors or medical professionals who you trust and know your history."

"Beware of the fortune teller doom and gloomers who seek to bring you down and are only looking for company, purpose and validation - not your best physical/mental interests."

"You know you all are saying that this is incurable. When the real thing you should be saying is it's not curable at the present time' because as we know, the great strides we've made in medicine." - Elizabeth Edwards

Offline John2038

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Re: Cancer update
« Reply #23 on: November 25, 2007, 01:07:28 PM »
Hi GSOgymrat

just was willing to wishes you the very best in your battle.
I was also willing to tell you congratulation for the wonderful support you are providing to your partner !
Your partner is very brave, and I was also willing to tell him congratulations ! Do never give up.

May you then both return to your normal and very happy life for a long long time.

God bless you all

J.

Offline bryonut

  • Member
  • Posts: 283
  • I'm not just sure, I'm HIV positive!
Re: Cancer update
« Reply #24 on: November 25, 2007, 02:09:43 PM »
sounds like it has been a tough road but it is good to hear that things are looking good.

peace and good things!

bry

Offline cjc

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  • Posts: 1,011
  • Sweet Girl
Re: Cancer update
« Reply #25 on: November 25, 2007, 08:27:43 PM »
Thought I would update on my partner?s progress.  To recap he was diagnosed with Hodgkin?s lymphoma with multiple tumors back in August and has been undergoing chemotherapy. He has had 6 of 12 treatments and just had a repeat PET scan, CAT scan, etc. The tests indicate the largest tumors, which were in his neck, are gone! The tumors in his chest and abdomen have all reduced more that 50%. It appears the two undiagnosed spots on his lungs are probably malignancies because they are responding to the chemotherapy but they have reduced from 6 millimeters to 2 millimeters. So this is great news!

He has experienced the usual side effects but is getting better at managing them. He initially had nausea and vomiting so badly he couldn?t even talk without having dry heaves. He has also had a lot of constipation and stomach problems. He?s lost his hair and dropped about 25 lbs. More seriously he developed blood clots in his neck and armpit due to the catheter in his chest.

Fortunately he has most of the side effects under control. The main problems he is having at this time are fatigue and muscle and bone pain. Vicodin helps but I think we have watched too many episodes of Intervention because he refuses to take more than 2 vicodin in a 24 hour period. Some days he feels okay and we go shopping or for walks. Other days he doesn?t feel well enough to leave the house.
 
Because he has been less secretive about his cancer this time around he has had a lot of support. His parents stayed for a couple of weeks to help out. When I am working friends come over and bring food, clean house, give him a massage, do the yard or just keep him company. He has a lot of people praying for him.

If all goes as planned February 5 will be his last chemo. We are very optimistic and look forward to our lives getting back to normal.

     Ford, thank you so much for the update. So glad to hear of the improvements and hope things continue to get better. I will be keeping ya'll in my thoughts. Cristy

Offline sunseeker

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Re: Cancer update
« Reply #26 on: November 25, 2007, 11:55:53 PM »
Great news and my prayers are with you both.  Sunseeker

Offline AlanBama

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  • Alabama: the 'other' 3rd World Country!
Re: Cancer update
« Reply #27 on: November 26, 2007, 12:03:58 PM »
Ford,

I am glad to hear this news!   He has responded well to treatment -- that's fantastic!   I know you will be glad when February gets here, and he can take that final treatment....

hugs, and still keeping you BOTH in my prayers....

Alan   :-*
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline GSOgymrat

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Re: Cancer update
« Reply #28 on: November 26, 2007, 10:22:44 PM »
Thank you all for the support and prayers. I really appreciate it and will keep you updated.

Offline Jeffreyj

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Re: Cancer update
« Reply #29 on: November 27, 2007, 12:06:06 AM »
Great News!
Positive since 1985

Offline GSOgymrat

  • Member
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  • HIV+ since 1993. INTJ
Re: Cancer update
« Reply #30 on: March 11, 2008, 11:35:44 PM »
Today was the big day. After 12 rounds of chemotherapy my partner got his test results and he is 100% cancer free! We are both thrilled and relieved. He is officially in remission and will need to get a CAT scan every 4 months but the prognosis looks good. It's been a very long road. My partner is looking forward to getting the cather out of his chest, being able to taste food, not feeling achy all the time and growing eyebrows.

Thanks to everyone for their support and encouragement.

Offline Robert

  • Member
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Re: Cancer update
« Reply #31 on: March 12, 2008, 12:24:27 AM »
Ford.

this is such great news.  I so happy for both of you.

Why do I always feel so good when I hear the words, "I am a cancer survivor?"

robert
..........

Offline komnaes

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Re: Cancer update
« Reply #32 on: March 12, 2008, 12:30:37 AM »
Great news Ford! ;D
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

Offline cubbybear

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Re: Cancer update
« Reply #33 on: March 12, 2008, 06:11:06 AM »
Hey Ford, thats good to hear, and fantastic news.  Best of everything to you both.

x
Matt
There's a bear in there!
Positive since 2000
Diagnosed 17/9/2005 CD4 35 VL 293,000
Meds 23/9/2005 Sustiva/Truvada
Currently CD4 232 VL Undetectable

Offline J.R.E.

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Re: Cancer update
« Reply #34 on: March 12, 2008, 07:37:03 AM »
Hello Ford,

Glad to hear that everything is going along well. Wishing you and your partner the best..


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



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 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

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Offline BT65

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Re: Cancer update
« Reply #35 on: March 12, 2008, 08:44:08 AM »
That's wonderful news, Ford.  It was all worth it.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Ann

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Re: Cancer update
« Reply #36 on: March 12, 2008, 08:49:42 AM »
Aw, that's fantastic news, Ford! I'm so happy for you both. I know I didn't post in this thread before, but that doesn't mean I haven't had you two in my thoughts. Thanks for putting a smile on my face today. :)

Hugs X2,
Ann
xxx
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Offline bear60

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Re: Cancer update
« Reply #37 on: March 12, 2008, 09:22:37 AM »
Hi
Thats great news.  I hope his eyebrows grow back!!!
Joel
Poz Bear Type in Philadelphia

Offline Iggy

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Re: Cancer update
« Reply #38 on: March 12, 2008, 09:52:49 AM »
That is wonderful news indeed!

I'm happy for the both of you.

Offline Buckmark

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Re: Cancer update
« Reply #39 on: March 12, 2008, 10:28:37 AM »
Ford -- thanks for sharing this excellent news.



"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline englishgirl

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Re: Cancer update
« Reply #40 on: March 12, 2008, 06:00:00 PM »
fabulous news, i am so pleased for you both  ;D  ;D  ;D  ;D
lots of love
xxxx
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Offline AlanBama

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Re: Cancer update
« Reply #41 on: March 12, 2008, 07:11:36 PM »
That's wonderful news Ford !  I am so glad.   Now that he has made the difficult struggle through treatment, he can begin to "live" again now, and hopefully grow stronger and feel better each day.

hugs,

Alan

PS - ask him if he needs me to send him an eyebrow pencil   ;)
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Longislander

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Re: Cancer update
« Reply #42 on: March 12, 2008, 11:15:28 PM »
Beautful news Ford!!  ;D
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline aztecan

  • Member
  • Posts: 5,399
  • 29 years positive, 57 years a pain in the butt
Re: Cancer update
« Reply #43 on: March 12, 2008, 11:38:46 PM »
Hey Ford,

That is absolutely fantastic news!  ;D

Please give your honey a big hug for me. This is definitely some of the best news I have heard in quite a while.

Thank you for sharing.

BIG HAPPY HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline cjc

  • Member
  • Posts: 1,011
  • Sweet Girl
Re: Cancer update
« Reply #44 on: March 13, 2008, 08:15:39 AM »
So happy to hear your good news.   Cristy

Offline Dragonette

  • Member
  • Posts: 1,190
  • Spring symptoms
    • NotPerfectAtAll
Re: Cancer update
« Reply #45 on: March 13, 2008, 09:15:18 AM »
So happy to hear your good news.   Cristy

Me too.  ;D
"If you keep one foot in yesterday, and one in tomorrow, you piss all over today". Betty Tacy

Offline northernguy

  • Member
  • Posts: 1,347
Re: Cancer update
« Reply #46 on: March 13, 2008, 11:51:56 AM »
I'm so glad for both of you!
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline Snowangel

  • Member
  • Posts: 1,413
Re: Cancer update
« Reply #47 on: March 13, 2008, 01:14:55 PM »
Great to hear!  Congrats to you both!
Snow
Of all the things you wear, your expression is the most important

The heaviest thing you can carry is a grudge..

One thing you can give and still keep...is your word.

One thing you can't recycle is wasted time.

 


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