Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
August 27, 2014, 11:49:51 AM

Login with username, password and session length


Members
  • Total Members: 23332
  • Latest: ryant99
Stats
  • Total Posts: 636323
  • Total Topics: 48289
  • Online Today: 201
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 5
Guests: 176
Total: 181

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Quick update from me  (Read 3968 times)

0 Members and 1 Guest are viewing this topic.

Offline manchesteruk

  • Member
  • Posts: 630
Quick update from me
« on: November 22, 2007, 04:56:38 AM »
Hi All,

Just thought I'd let you all know what I've been up to in the last few weeks.  First off I've been busy revising for a Microsoft qualification I've got coming up in the next couple of weeks, fingers crossed for that one.  I had my latest labs done a couple of weeks ago but I'm having trouble getting my results back because my doctor is off long term sick at the moment but I'll post them on here when I manage to get them back.

I've been asked by the LTNP study in Boston to send some blood over again so I'm arranging to do that in the next couple of weeks.  They want 12 tubes of blood this time I'm going to have a withered arm by the end of that!  And last but not least I'm off to hospital to have a shoulder operation in the next couple of hours.  I'm going to have my arm in a sling for at least a month afterwards so don't expect any long replies from me for a while I'll be tapping away with one finger haha.   

Happy thanksgiving to everyone in the US as well!

See you soon
Chris
Diagnosed 11/05

"Life is too important to be taken seriously" Oscar Wilde

Offline carousel

  • Member
  • Posts: 821
Re: Quick update from me
« Reply #1 on: November 22, 2007, 05:36:15 AM »
Good luck with the qualification, do you get letters after your name?

Sorry to hear about the arm, best wishes for the operation.  Apart from writing is it the 'important' hand for 'daily relief'.   ;)

Offline penguin

  • Member
  • Posts: 747
  • The Penguin Whisperer
Re: Quick update from me
« Reply #2 on: November 22, 2007, 05:38:56 AM »
hope everything goes well with the surgery today, mr manchester  - and good luck with the qualification gaining  :)

kate

Offline Cliff

  • Member
  • Posts: 2,645
Re: Quick update from me
« Reply #3 on: November 22, 2007, 05:53:53 AM »
Hi Chris,

Good luck with the qualifications and surgery!!!!!  THanks for the update and keep us posted mister!


Cliff

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,912
Re: Quick update from me
« Reply #4 on: November 22, 2007, 06:29:44 AM »
Good luck with the surgery and the recovery!
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline RapidRod

  • Member
  • Posts: 15,286
Re: Quick update from me
« Reply #5 on: November 22, 2007, 06:52:58 AM »
Good luck Chris and I hope you have a speedy recovery too.

Rodney

Offline bear60

  • Member
  • Posts: 4,104
Re: Quick update from me
« Reply #6 on: November 22, 2007, 10:16:35 AM »
Hi Chris
Its good that you have been able to keep up with your participation in the Boston study.  This past Monday I too went in for the blood draw of 12 vials to be sent to Boston.  Have you asked for any information regarding the results of the study or the results of your genetic test?
Good luck with the surgery and recovery.
Poz Bear Type in Philadelphia

Offline BirdBear718

  • Member
  • Posts: 105
Re: Quick update from me
« Reply #7 on: November 22, 2007, 10:56:59 AM »
Here is hoping for a speedy recovery from surgery!

12 -- hoping for a talented vampire, and a speedy "withdraw" for that too!!!!! 

Offline cayucosguy

  • Member
  • Posts: 133
Re: Quick update from me
« Reply #8 on: November 22, 2007, 11:45:12 AM »
Good luck with the surgery, Chris. 

I need to update my MCSE and I'm working towards a Cisco certification this year, so I know what the studying is like.  Best of luck with the cert.

Vince

Offline Robert

  • Member
  • Posts: 2,644
Re: Quick update from me
« Reply #9 on: November 22, 2007, 11:46:16 AM »
hi chris.


always good to hear from the IT guy in manchester.  I'm wonder ~~  How many times have you told us about the LTNP study?  Apparently not enough.  I'm always forgetting that you're part of the study.  Good luck with your surgery.  Can't they just sort of snap it back into place and leave it at that? 

Can you get those manchester lassies to come make you some dinner?

robert
..........

Offline Miss Philicia

  • Member
  • Posts: 24,005
  • celebrity poster, faker & poser
Re: Quick update from me
« Reply #10 on: November 22, 2007, 12:36:16 PM »
Just curious, but how can one be labeled LTNP when you've only been diagnosed for two years?  Sorry, I have no clue how this study is set up.
"Iíve slept with enough men to know that Iím not gay"

Offline AlanBama

  • Member
  • Posts: 3,613
  • Alabama: the 'other' 3rd World Country!
Re: Quick update from me
« Reply #11 on: November 22, 2007, 06:40:33 PM »
Chris,

Good luck with your surgery, I hope your shoulder heals very quickly!   Keep us posted......

Hugs,

Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline heartforyou

  • Member
  • Posts: 1,105
  • I must be a survivor in many ways...
Re: Quick update from me
« Reply #12 on: November 22, 2007, 07:06:58 PM »
Hi Chris,

good luck with the surgery.
I just had "needling" performed on both my shoulders.  Procedure, by means of a long needle inserted in the shoulder shaft to remove calcarious growths... a bit painfull, but with very good results..

hermie
Diagnosed in 1987 and still kicking
Viread, Kivexa (Epzicom),Viramune once daily

Happiness is the freedom of breathing fresh air every day.

Offline Jerry71

  • Member
  • Posts: 955
  • {Lexiva, Norvir, Complera} Still Breathing!!!
Re: Quick update from me
« Reply #13 on: November 22, 2007, 10:51:27 PM »
Good Luck Chris.

I feel your pain for the taking blood part. I had to give 11 vials of blood last month just to get all my lab results and other tests done. Was doing pretty good till the 9th vial then started to turn a yellow color and started to sweat and nearly passed out. Just thank goodness Lisa was there for her support.  :-*

Offline Basquo

  • Member
  • Posts: 3,254
Re: Quick update from me
« Reply #14 on: November 22, 2007, 11:15:10 PM »
Hope you heal and recover quickly, Chris!  I gave my 12 vials a couple of weeks ago--it wasn't too bad even at the end, though I had to have some candy right afterwards.  I wish they'd share the results with me!

Offline mjmel

  • Member
  • Posts: 2,069
Re: Quick update from me
« Reply #15 on: November 23, 2007, 05:48:41 AM »
Chris, hope you do fine on the certification,
and that your shoulder heals well and rapidly,
and that, someday, I get to finish that conversation I was having with you that was interrupted at AMG 07 Meet & Greet.
Hugs and more hugs,
Mike

Offline manchesteruk

  • Member
  • Posts: 630
Re: Quick update from me
« Reply #16 on: November 23, 2007, 06:09:48 AM »
Thanks for the kind words everyone.  I think the Op went ok the surgeon had gone by the time I came around (last patient of the day surprise surprise!) so I won't actually know what he's done until I go back to see him in a couple of weeks.  Arm should only need to be in a sling for 2 weeks anyway I think.  It was on my right shoulder and I tend to do EVERYTHING with my left hand anyway so I'll be ok haha.  I'd oozed onto my bed sheets this morning though which wasn't nice they did warn me it might happen so it's my own fault for not putting something down!  Got my viral load test back yesterday as well which is undetectable so I'm pleased with that, CD4 won't be till early next week I think.

Just curious, but how can one be labeled LTNP when you've only been diagnosed for two years?  Sorry, I have no clue how this study is set up.

I'm not considered to be a LTNP Philly I think that's reserved for people who have been + for over 10 years without showing any signs of disease progression.  I think I'm considered to be an 'elite controller' haha sounds very over the top doesn't it.  That just means my viral load has always been undetectable without the help of meds.  It's always been less than 40 apart from once when it was 90 all very strange I don't understand it to be honest!

Creighton and Bear they haven't really told me anything about my results I don't think they have anything to report as of yet to be honest.  I got this back in an email though:

Quote
The last time you sent in blood it was used for DNA only and no immunology studies were done .  Your DNA was sent off with about 400 other samples back in April for an initial look at all of your genes in comparison to other people who also are able to control HIV to the same level as you.  Because it is such a broad look these results basically take an algorithm just to analyze and these results have not come back as of yet.  Eventually we are trying to compare 1000 people who control to same level as yourself in order to have statistical significance, so even though that is the big picture it may still be another year or so before we have those results.

In addition, your HLA genes that are on the surface of your cells were typed. These are the same genes that are examined when one is going to be an organ donor.  Basically these genes help to define the immune response your body will have during an infection.  Some forms of these genes have been found in a greater prevalence amongst people who control HIV really well and other forms have a higher prevalence in the AIDS population.  The forms of these genes you have no documented associations, meaning that your control of HIV cannot be solely attributed to just those genes.  There are many factors which we are trying to look at including the number HIV recognizing T cells that you have, and the properties that these T cells exhibit.  These are the studies that are currently going on in the lab.

Make sense of that if you can!  Right this has taken me over 40 minutes to type so I'm finishing here!

Chris
« Last Edit: November 23, 2007, 06:12:12 AM by manchesteruk »
Diagnosed 11/05

"Life is too important to be taken seriously" Oscar Wilde

Offline cjc

  • Member
  • Posts: 1,011
  • Sweet Girl
Re: Quick update from me
« Reply #17 on: November 23, 2007, 08:06:54 AM »
Best of luck to you and wishing you a speedy recovery. Cristy

Offline David_CA

  • Member
  • Posts: 3,246
  • Joined: March 2006
Re: Quick update from me
« Reply #18 on: November 23, 2007, 10:18:22 AM »
Good luck and quick healing from the surgery, you 'elite controller' you!  ;)  I hope it all goes well and that you do end up one of the fortunate ones who are considered LTNP!  Take care.

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline allanq

  • Member
  • Posts: 689
  • still life with pills
Re: Quick update from me
« Reply #19 on: November 23, 2007, 02:47:08 PM »
Chris,

Good luck with the surgery and for a speedy recovery.

Also good luck with the Microsoft certification.

"Elite Controller" is such a weird term. Sounds like a psychiatric disorder.

AllanQ
Top (Breakfast): Prezista, Norvir, Isentress, Zoloft (2), Glyburide (2), Aspirin
Bottom right (Dinner): Prezista, Norvir, Isentress
Bottom left (Bedtime): Sustiva, Trazodone (2), Lipitor, Septra (no longer taking this)
Center: Alprazolam (Xanax)
Not shown: various vitamins & supplements

Offline penguin

  • Member
  • Posts: 747
  • The Penguin Whisperer
Re: Quick update from me
« Reply #20 on: November 23, 2007, 04:00:58 PM »
"Elite Controller" is such a weird term. Sounds like a psychiatric disorder.

reminds me of Thomas the Tank Engine more than anything   :D

glad to hear things went ok yesterday chris.. hope you have a speedy recovery.

kate


Offline JohnOso

  • Member
  • Posts: 816
Re: Quick update from me
« Reply #21 on: November 23, 2007, 04:55:07 PM »
Chris,
Funny i should see this today, when i just asked Debra last night how you and englishgirl were doing.

Glad to hear the surgery is over with....please tell me they gave you lots of good pain meds.

Good luck with certs...i know it's a lot of studying about really awful stuff.

big hugs,
John

Offline OzPaul

  • Member
  • Posts: 410
  • a very blessed 29 year ltnp
Re: Quick update from me
« Reply #22 on: November 23, 2007, 05:10:14 PM »
Hey Chris

Glad to hear the surgery went well ! I'll be sending healing thoughts and vibes for a speedy recovery.

For those reading this thread, here is some more info about the "elite controller' study, which you and several other of us here at AM are enrolled in.

http://www.massgeneral.org/aids/hiv_elite_controllers.asp

Take good care

Cheers
Paul

Offline pozattitude

  • Member
  • Posts: 909
  • Enjoy
    • to find out more about me....
Re: Quick update from me
« Reply #23 on: November 23, 2007, 05:13:11 PM »
Hi Chris,

Hope your recovery from surgery is a speedy one and good luck with your Microsoft certification.
"elite controller' ...aren't you special?...lol ;)

Rich
POSITIVE PEDALERS... We are a group of people living with HIV/AIDS, eliminating stigma through our positive public example.

Offline manchesteruk

  • Member
  • Posts: 630
Re: Quick update from me
« Reply #24 on: December 05, 2007, 05:51:31 PM »
Hi all,

Just thought i'd give you a quick update.  Recovery from the surgery has gone well.  Went to see my consultant today who was happy for me to stop using my sling and i've got a physio appointment on Friday so I can start building my shoulder up again. It's all healed a lot quicker than I thought it would so that's a bonus.  Only problem is one of the incisions hasn't healed very quickly so i'm going back next week to get that checked out.

Got my CD4 back which was 1165 (43%) so all looking pretty good still on that front.  It's been two years since my diagnosis now which I find very strange doesn't seem like two years at all!  In other news i'm in the process of trying to get myself some CBT counselling to work on my Social Anxiety which I struggle with more now that anything else really.  I've noticed now how it effects your life in more ways than you realise and I want to try and do something about it.  Private CBT is very expensive though and waiting lists on the NHS are ridiculous so i'm still working on that one!

Chris
Diagnosed 11/05

"Life is too important to be taken seriously" Oscar Wilde

Offline poz1970

  • Member
  • Posts: 480
Re: Quick update from me
« Reply #25 on: December 05, 2007, 05:58:44 PM »
Hey

Grats!! 1165 is fantastic!!!  Good to know you've recovered well :-)

How did the microsoft certification go?

J
"The Bible contains 6 admonishments to homosexuals and 362 admonishments to  heterosexuals. That doesn`t mean that God doesn`t love heterosexuals. It`s just that they need more supervision." -- Lynn Lavne

Offline RapidRod

  • Member
  • Posts: 15,286
Re: Quick update from me
« Reply #26 on: December 05, 2007, 06:04:08 PM »
Chris glad to hear your recovery is going well.  Great numbers too. I know where I can get some CD4s now.  :D Social Anxiety? You? You put on a good front for having it. Good luck to you on that also Chris.

Rodney

Offline AlanBama

  • Member
  • Posts: 3,613
  • Alabama: the 'other' 3rd World Country!
Re: Quick update from me
« Reply #27 on: December 05, 2007, 07:18:34 PM »
Glad you're recovering nicely, Chris.   I agree with Rod, you did a good job of keeping us unaware of "social anxiety".   Best of luck with that too, honey.

Hugs,

Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Robert

  • Member
  • Posts: 2,644
Re: Quick update from me
« Reply #28 on: December 05, 2007, 07:36:09 PM »
hi chris.

glad to hear the sling is gone and the shoulder is repairing itself.  You'll be back to snuff in no time.

Don't let a little anaxiety bring you down.  Like Rod said, I saw a cslm, collected  and crazy cool kind of guy in SF.  Ummmm.  Now that I think about it, maybe it was that constant barrage of gibberish I was throwing at you on our walk home from the meet and greet that messed you up.  Sorry about that.

robert
..........

Offline BirdBear718

  • Member
  • Posts: 105
Re: Quick update from me
« Reply #29 on: December 05, 2007, 08:42:47 PM »
Glad to read your great report!

Social anxiety is a tough one -- I experience that too.  But here is the thing you mus remember (I have to remember it too....):  Other people are sfferig from it too, although it is something you cannot see.  Some people become quiet and withdrawn, while others actually get really loud trying to cover up their social anxiety.  So, when you are at a gathering, look at it as an opportunity to see what coping skills others are using to overcome their anxiety...oh yes....most are experiencing it.....maybe not as much as you and me, but they are experiencing it nonetheless.

Best wishes to you!

Offline fearless

  • Member
  • Posts: 2,191
Re: Quick update from me
« Reply #30 on: December 05, 2007, 10:11:15 PM »
... happy for me to stop using my sling ...

I'm not happy about this one bit Chris. I was hoping I could play in your sling one day.  ;D
Be forgiving, be grateful, be optimistic

Offline manchesteruk

  • Member
  • Posts: 630
Re: Quick update from me
« Reply #31 on: December 07, 2007, 01:53:28 PM »
I'm not happy about this one bit Chris. I was hoping I could play in your sling one day.  ;D

haha. i'll keep hold of it for you!

Yeah the social anxiety thing is pretty complicated to be honest I don't fully understand it myself.  It wasn't a problem for me at AMG though.  There are different types of social anxiety and different severity's.  Some people have a crippling fear of speaking to people on the phone, in public or talking face to face.  I'm not like that at all.  For me it's hard to pinpoint which is why i'm trying to get some help really.  I'm too self critical of myself and I overanalyse things which leads to insecurities and paranoia, quite often about completely ridiculous things.  I sound like a head case now don't I haha.  Anyway I think this CBT will help a lot because it helps to change the way you think and behave around certain situations.

Microsoft exam is scheduled for the 17th but i'm going to change it till after Christmas I think, i'm not quite ready yet!

Chris
Diagnosed 11/05

"Life is too important to be taken seriously" Oscar Wilde

Offline RapidRod

  • Member
  • Posts: 15,286
Re: Quick update from me
« Reply #32 on: December 07, 2007, 05:45:32 PM »
Quote
I sound like a head case now don't I haha.

That's alright Chris, we know you're on pain medication for your shoulder. ;)

Offline penguin

  • Member
  • Posts: 747
  • The Penguin Whisperer
Re: Quick update from me
« Reply #33 on: December 08, 2007, 09:59:37 AM »
glad to hear the arm is healing up - i wish you an equally speedy navigation through the cbt waiting list  :)

kate

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.