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Author Topic: PT good for lypo issues?  (Read 1177 times)

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Offline minismom

  • Member
  • Posts: 2,608
  • Quocumque jeceris stabit
PT good for lypo issues?
« on: November 11, 2007, 09:58:40 PM »
Mini has a perscription to start physical therapy.  However, I'm wondering if it actually helps w/ lypo issues.  I'm worried it will either cause more pain or make the pain she's feeling worse.  I spoke w/ her PT tonight and she agrees that she doesn't want to do anything to make Mini hurt, but says that she needs the PT.  So, just wondering if anyone has had PT for their lypo issues, what type they had, and if it did any good or make things worse.

Thx,
Mini's mom
www.watoto.com
www.MotherBearProject.org
"Whichever way you throw me, i will stand"
"Don't worry about the world coming to an end today...it's already tomorrow in Australia"  Charles Schultz

Offline Miss Philicia

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  • Posts: 24,109
  • celebrity poster, faker & poser
Re: PT good for lypo issues?
« Reply #1 on: November 11, 2007, 10:59:39 PM »
Lipodystrophy is really a mitochondrial dysfunction -- it's cellular based.  Has to do with DNA stuff and we know how a retrovirus and the medication interferes with this process for many.  Just getting on a stair master is not going to be beneficial in terms of making one's ass cheeks grow again -- however it will be good in terms of a cardio workout on the heart/circulation.

Why is your son on zerit anyway -- it's SUCH a major thing to get off of if one is having lipo issues.  It's like the worst.  Have you discussed this with his doctor?  Or is due to his young age?  I really have no clue on HIV treatment with kids.  Still seems like they could get him off zerit.
"Iíve slept with enough men to know that Iím not gay"

Offline paolo10954

  • Member
  • Posts: 57
Re: PT good for lypo issues?
« Reply #2 on: November 12, 2007, 12:28:32 AM »
Hi,

First of all, my heartfelt emotions to you...it's bad enough to live oneself with hiv, but to see your child live it is just unfathomable for me. I'm glad you both seem strong and pro-active which really is halfway winning the battle.

Physical Therapy isn't just all about the stairmaster, tho it isn't the answer to everything either. But at least it gives you alternatives in managing health problems on its own or as adjunct to other therapies such as medication.

I think you did the right thing talking to the PT. When Mini does go for PT, bring a written list of questions and concerns and discuss it with the PT. Make sure you don't feel rushed, and you are satisfied with the way she interacts with Mini and with you. I've seen too many professionals who are detached from their patients and treat them as statistics.

Treatment of lipodystrophy is a misnomer when it comes to PT since it only tries to treat the signs and symptoms that accompanies the problem. It can help reduce the pain with modalities like heat, ice, hydrotherapy, paraffin, massage, myofascial release, or the common TENS unit which stimulates the nerves as a counter-irritant to cover up the pain. If Mini presents with neurologic symptoms, like pins and needles, paresthesia, she could benefit from desensitization techniques or neuromuscular techniques. When there are gait/balance/proprioception problems ( as seen in some CP's ) then therapeutic activities, gait training, balance programs are most beneficial. When there's atrophy or weakness, then strengthening, endurance or conditioning exercises are in order. If spasticity is present, then a good stretching program can help. And believe it or not, the human touch is a powerful entity it itself not just for the body but for the psyche as well.

I hope this helps.

Paolo
 
jun03     hiv negative
dec03     tested positive
mar05     cd4 698  vl 23221 no meds
jul05       cd4 660  vl 2962 no meds
dec05     cd4 553  vl 5412 no meds
mar06     cd4 610  vl 3158 no meds
june06    cd4 523  vl 3924 no meds
dec06     cd4 616  vl 1236 no meds
march07  cd4 536  vl 1331 no meds
june07    cd4 486  vl   820 no meds
sept07     cd4 576  vl  380  no meds
aug08     cd4 530  vl 1725 no meds
april09    cd4 428  vl  1059 no meds
july09     cd4 511  vl   533 no meds
jan10      cd4 380  vl  1200 no meds
mar10     cd4 262  vl  2389 no meds
april28, 2010 started on Isentress and Truvada
july10     cd4 340  vl undetectable
nov10     cd4 431  vl undetectable
march11  cd4 350  vl undetectable

Offline minismom

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  • Posts: 2,608
  • Quocumque jeceris stabit
Re: PT good for lypo issues?
« Reply #3 on: November 13, 2007, 08:12:52 PM »
Paolo,
You are awesome, thank you for your response.  We are lucky in the sense that our PT has been with us off and on since mini was 8mths old.  I know that PT can't "cure" lipidystrophy.  Our concern was that since Mini is in pain (mostly in her legs, ankles, hips, feet, arms, and fingers), that some of the stretching that is done to help w/ her spasisity would, or could, make things worse and not better.  She does work on gait, balance, and proprioception problems (rocker board, balance beam, hands and kness w/ opposite leg / arm lifted, squatting, hopping, standing on one foot, ect.)  She also works w/ hand strengthening (by making play-dough balls and throwing weighted balls w/her weaker side).  We also discussed hydrotherapy and non-weight bearing stretching in a pool or a hot tub.  PT even suggested applying for a grant to get a hot tub to keep her muscles all warmed up and "pliable".  And, if mum and dad get in to relieve some stress...well ;D

Have a great, healthy week!

mum
www.watoto.com
www.MotherBearProject.org
"Whichever way you throw me, i will stand"
"Don't worry about the world coming to an end today...it's already tomorrow in Australia"  Charles Schultz

Offline paolo10954

  • Member
  • Posts: 57
Re: PT good for lypo issues?
« Reply #4 on: November 13, 2007, 11:49:19 PM »
You're welcome. Sounds like you are on the right track with Mini's rehabilitation. I only wish Mini the best. You can PM me anytime if there's anything else you think I can help you with...Paolo
jun03     hiv negative
dec03     tested positive
mar05     cd4 698  vl 23221 no meds
jul05       cd4 660  vl 2962 no meds
dec05     cd4 553  vl 5412 no meds
mar06     cd4 610  vl 3158 no meds
june06    cd4 523  vl 3924 no meds
dec06     cd4 616  vl 1236 no meds
march07  cd4 536  vl 1331 no meds
june07    cd4 486  vl   820 no meds
sept07     cd4 576  vl  380  no meds
aug08     cd4 530  vl 1725 no meds
april09    cd4 428  vl  1059 no meds
july09     cd4 511  vl   533 no meds
jan10      cd4 380  vl  1200 no meds
mar10     cd4 262  vl  2389 no meds
april28, 2010 started on Isentress and Truvada
july10     cd4 340  vl undetectable
nov10     cd4 431  vl undetectable
march11  cd4 350  vl undetectable

 


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