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Author Topic: A note of encouragement for those frustrated with CD4 numbers  (Read 1039 times)

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Offline woodshere

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  • Posts: 1,477
  • ain't no shame in my game
A note of encouragement for those frustrated with CD4 numbers
« on: October 18, 2007, 04:52:43 PM »
Six months ago my CD4 count was about 260.  It had moved less than 100 since being diagnosed in Mar 2006.  Three months ago I broke 300 and today my most recent labs show a CD4 at 527 and viral load continues to be undetectable.

I was very frustrated for quite some time that the CD4 was not increasing.  My Dr.  said as long as my viral load was undetectable that was most important and that the CD4 would improve slowly.  And now it's like they just called "0-69" in the bingo coverall game.

Hang in there and give your numbers time,

Woods
"Let us give pubicity to HV/AIDS and not hide it..." "One of the things destroying people with AIDS is the stigma we attach to it."   Nelson Mandela

Offline LACboi

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Re: A note of encouragement for those frustrated with CD4 numbers
« Reply #1 on: October 19, 2007, 02:19:39 AM »
Hey woods, glad your numbers are good.

My numbers have gone from 220 to 300's back to 200's then finally moved up to over 500 where they are now, and VL the same way moved to undetectable and every so often creeps up. the highest is creeped  was in the 700's. I have also been on meds since Jan 2005, and have never changed any of them. One thing I have learned is your number can change from morning to night, we all just need to expect these changes and not worry unless the CD4 takes a dive or major increase in VL and don't recover.

Well take care

Offline randym431

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  • Posts: 1,115
Re: A note of encouragement for those frustrated with CD4 numbers
« Reply #2 on: October 20, 2007, 12:53:27 AM »
Good numbers! Congrads!

Our immune system is, to say the least, pretty fragile in dealing with the effects and after effects with this virus. We must kinda remember that, when the numbers look good. And take care of yourself.
I've wondered if theres a point where we level out, so to speak. Where we reach the limit our body is able to recover, and pretty much stay  there long term. Mine have seemed to have leveled out at cd4 of 500 and 20%. As long as I feel good, I'm happy. But I've found I cant push it, like I use to in the good old days. I'd like to, but not too wise. We are still fragile.

Offline chemistry001

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Re: A note of encouragement for those frustrated with CD4 numbers
« Reply #3 on: October 20, 2007, 07:15:58 AM »
I hear you loud and clear :) everyone says don't focus on your CD4, but deep down you do use any info about your body and how its doing to quantify how you are. Every time i went for new bloods i would hope and pray that this time they would be over 200, and one year from diagnosis the little buggers have done it in good style. I would often read peoples posts about how theirs would rise by a 3 figure numbers and i would say its my turn to post like that, but i would always be disappointed. Every one says as long as they are going the right way i should be happy, which i am, but you always hope for more.

Fingers crossed for anyone wanting a good rise, hang in there.

Paul xXx
Diagnosed 01/08/06
CD4-9, VL->500,000, CD4% 1
Started on Sustiva/combivir 22/08/06 changed to kivexa 18/09/06
02/10/06
CD4-50, VL-1496, CD4% 5
04/12/06
CD4-112, VL-125, CD4% 7.5
22/02/07
CD4-121, VL-<50, CD4% 9
29/05/07
CD4-125, VL-71,(re-done 149), CD4% 11
25/09/07
CD4 -231, VL-74, CD4% 15
Cant remember the next few dates
17/01/08  Kaletra and Truvada
CD4 - 281, VL-115
06/03/08
CD4 - 287, VL-178

 


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