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Author Topic: I'm Tired Of This Shit.  (Read 13471 times)

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Offline thunter34

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I'm Tired Of This Shit.
« on: October 15, 2007, 08:56:47 PM »
This is nothing but a rant thread.  In the scope of things, I realize it's not that bad...but I am still oh-so-fatigued with my near constant attachment to the damn toilet sometimes. 

Tired of the endless swallowing of Immodium (that may or may not always work).

Tired of the sudden (and sometimes damn near unstoppable) potty panics that ALWAYS seem to present themselves at the worst possible places and times.

Tired of having my crapper ending up looking like some Jackson Pollock installation at the local art museum.

OK.  I know to appreciate that I'm still alive and "hail to the meds" and all that...

But damn.

 >:(

AIDS isn't for sissies.

Offline whizzer

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Re: I'm Tired Of This Shit.
« Reply #1 on: October 15, 2007, 09:06:55 PM »
Have you thought about swapping out the special K for a more poop-friendly PI?

Offline Matty the Damned

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Re: I'm Tired Of This Shit.
« Reply #2 on: October 15, 2007, 09:08:24 PM »
Whizzles has a point, YPT.

Atazanavir/Norvir is a poop friendly combo.

MtD

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #3 on: October 15, 2007, 09:11:06 PM »
Have you thought about swapping out the special K for a more poop-friendly PI?

Yes, I have...though I was not really all that sure that there WAS a more poop-friendly PI.  I've heard some gripes from folks on several of them, though I admit that the K has an even nastier reputation for it than some.  Thing is, the combo has been working- and working well overall.  Part of me wants to ride that train as long is it runs.  

Yet at the same time, it's the runs that are killing me.
AIDS isn't for sissies.

Offline ademas

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Re: I'm Tired Of This Shit.
« Reply #4 on: October 15, 2007, 09:28:11 PM »
I hear you loud & clear, pal.
It's been so long now that it just seems normal,
and I forget that the rest of the world doesn't spend the better part of the first couple of hours of each day on the crapper.

Offline Queen Tokelove

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Re: I'm Tired Of This Shit.
« Reply #5 on: October 15, 2007, 09:30:08 PM »
Sorry to hear you have been worshipping the porcelain god, Thunter Bunny. I hope you are using some soft tissue for the sore bottom. Maybe you should consider what Matty and Whiz suggested.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline Andy Velez

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Re: I'm Tired Of This Shit.
« Reply #6 on: October 15, 2007, 09:36:27 PM »
Also, if your parts are getting sore and irritated, try putting some neosporin or bacitracin around the heavily trafficed areas to minimize wear and tear, Hunter. Lubing for pooping so to speak.

Even better, ask some good buddy to do it for you?

Andy Velez

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #7 on: October 15, 2007, 09:40:27 PM »
How much imodium are you taking?  Do you take it regularly with each morning and evening dose of Kaletra?  I'd suggest trying Pancrecarb if it's on your state ADAP in addition to imodium.
"Iíve slept with enough men to know that Iím not gay"

Offline milker

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Re: I'm Tired Of This Shit.
« Reply #8 on: October 15, 2007, 09:41:32 PM »
Even better, ask some good buddy to do it for you?
And give us the link to the torrent :)

I hope you get better soon, my friend.

Luv,

Milker.
mid-dec: stupid ass
mid-jan: seroconversion
mid-feb: poz
mar 07: cd4 432 (35%) vl 54000
may 07: cd4 399 (28%) vl 27760
jul 07: cd4 403 (26%) vl 99241
oct 07: cd4 353 (24%) vl 29993
jan 08: cd4 332 (26%) vl 33308
mar 08: cd4 392 (23%) vl 75548
jun 08: cd4 325 (27%) vl 45880
oct 08: cd4 197 (20%) vl 154000 <== aids diagnosis
nov 2 08 start Atripla
nov 30 08: cd4 478 (23%) vl 1880 !!!!!!!!!!!!!!!!!!!!!!!!!!
feb 19 09: cd4 398 (24%) vl 430 getting there!
apr 23 09: cd4 604 (29%) vl 50 woohoo :D :D
jul 30 09: cd4 512 (29%) vl undetectable :D :D
may 27 10: cd4 655 (32%) vl undetectable :D :D

Now accepting applications from blowjob ninjasô

Offline aztecan

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Re: I'm Tired Of This Shit.
« Reply #9 on: October 15, 2007, 10:34:36 PM »
Darlin Tim,

Special K is world renowned for its poop inducements. I know someone who just made the switch from Kaletra to the Reyataz/Norvir combo.

For the first time in quite some time, she is now able to keep a schedule and eat normally without fear it was all going to come out when least expected.

Trading straight across, pardon the expression, should not cause any resistance problems or alleviate your ability to go back on Kaletra should you ever decide to.

Think about it sweetie. Staying alive is great, but its even better when you actually are enjoying life too.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Robert

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Re: I'm Tired Of This Shit.
« Reply #10 on: October 15, 2007, 10:53:54 PM »
HI timmy.

I started out on Kaletra and combivir and it was positively, without  a doubt,  the   worst regimen I have ever had IN MY LIFE.  The runs was only one of the problems I had with it.  It's like the pill version of Psycho.

Of course doctors are a stubborn lot and don't like change.  It took a lot of talking from  me and my brothers to get her to change it.  Now I'm on Truvada,  Reyataz and Norvir.  Life is good (sorta).  I'm sitting pretty at 500+ t-cells (36%).

Give it a shot.  In the meantime just try to take care of your pretty self.

robert
..........

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #11 on: October 15, 2007, 10:57:44 PM »
Darlin Tim,

Special K is world renowned for its poop inducements. I know someone who just made the switch from Kaletra to the Reyataz/Norvir combo.

For the first time in quite some time, she is now able to keep a schedule and eat normally without fear it was all going to come out when least expected.

Trading straight across, pardon the expression, should not cause any resistance problems or alleviate your ability to go back on Kaletra should you ever decide to.

Think about it sweetie. Staying alive is great, but its even better when you actually are enjoying life too.

HUGS,

Mark

Mark,

One of my other concerns is the initial sickness of starting a new medication.  To put it straight out there:  I went through some serious hell getting adjusted to this combo originally.  Took months to get used to it & I was "can't even sit upright" sick for weeks of that.  I wondered if I would have to go throught that same kind of adjustment hell from making any switch- and what it might be like also if I have to switch back.  Something about your phrasing "trading straight across" sets me at ease a bit.

Mind you, I'm taking all these suggestions quite seriously.  I'm not trying to nix any of them.  I'm just going ahead and laying all my concerns right on out here.  I appreciate the responses, folks.  Thanks.
AIDS isn't for sissies.

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #12 on: October 15, 2007, 10:58:40 PM »
Also, if your parts are getting sore and irritated, try putting some neosporin or bacitracin around the heavily trafficed areas to minimize wear and tear, Hunter. Lubing for pooping so to speak.

Even better, ask some good buddy to do it for you?



Somehow it loses a bit of its romantic lustre when put in such a context.
AIDS isn't for sissies.

Offline Matty the Damned

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Re: I'm Tired Of This Shit.
« Reply #13 on: October 15, 2007, 11:00:42 PM »
Timmy,

The most common side effect from Atazanavir (Reyetaz) is turning yellow for a couple of weeks. Outside of that it's pretty good. Even when boosted with Norvir. It's potent stuff in terms of viral suppression.

MtD

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #14 on: October 15, 2007, 11:07:42 PM »
Timmy,

The most common side effect from Atazanavir (Reyetaz) is turning yellow for a couple of weeks. Outside of that it's pretty good. Even when boosted with Norvir. It's potent stuff in terms of viral suppression.

MtD

Rich seems to be handling it OK, so I'll consider it.   ;D

[attachment deleted by admin]
AIDS isn't for sissies.

Offline aztecan

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Re: I'm Tired Of This Shit.
« Reply #15 on: October 15, 2007, 11:12:17 PM »
Hey Tim,

I switched from Crixivan to Sustiva (the drug from hell in my case) then to Reyataz/Norvir. I never experienced any side effects from it.

No nausea, vomitting, diarrhea, etc., nor did I turn yellow.

The young woman I mentioned in my earlier post also reports she did not suffer any side effects from Reyataz/Norvir. It was she who switched from Kaletra.

By switching "straight across," I mean one PI for another. I have not heard of people having many problems with Reyataz/Norvir. I believe our Jan did indeed turn yellow, but I don't know if she suffered any other problems. She had been off meds for quite a while before starting, but she seemed to be doing fine in SF.

I wish I could guarantee you would have no problems, but we both know I can't. But I have not run into anyone who has had any real problems with Reyataz/Norvir as yet.

Hang in there young one. Have a chat with your doc and see what he'/she says.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline MSPspud

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Re: I'm Tired Of This Shit.
« Reply #16 on: October 15, 2007, 11:18:50 PM »
How much imodium are you taking?  Do you take it regularly with each morning and evening dose of Kaletra?  I'd suggest trying Pancrecarb if it's on your state ADAP in addition to imodium.

Philly is right about the Pancrecarb.  I started having these same issues myself and mentioned it to my doctor.  He said that a few years of HIV can make the villi in your small intestines flat which causes your body to not absorb sugars quickly.  When sugars sit around your intestines for too long they feed all the bad bacteria that your body tries to wash away with diarrhea. 

For me the problem was solved by Pancrecarb AND some Lactaid (dairy sugars are particularly bad).  I'd highly recommend checking into something that helps you digest better.

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #17 on: October 15, 2007, 11:21:35 PM »
Thanks, Mark.  The explanation of "straight across" helped a lot.  I'm seriously gonna have this discussion with my doctor on my next visit (which is the first week of November, so only a couple of weeks away).

And that goes to all you folks...thanks for taking the time to talk shit with me.

 ;)

AIDS isn't for sissies.

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #18 on: October 15, 2007, 11:26:30 PM »
Philly is right about the Pancrecarb. 

don't sweat it honey... thunterwhore has me on "ignore"
"Iíve slept with enough men to know that Iím not gay"

Offline Matty the Damned

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Re: I'm Tired Of This Shit.
« Reply #19 on: October 15, 2007, 11:40:05 PM »
Then it's agreed. Youth Pastor Tim will change his combo as of tomorrow.

:)

MtD

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #20 on: October 15, 2007, 11:42:51 PM »
don't sweat it honey... thunterwhore has me on "ignore"

Never!  You've proven yourself too good a resource for net flesh for that.

Not to mention tea.
AIDS isn't for sissies.

Offline sdcabincrew74

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Re: I'm Tired Of This Shit.
« Reply #21 on: October 15, 2007, 11:43:11 PM »
Dear god(dess) man!  Switch.  You can always go back to it.  I now only poop once a day and it is nice and firm, plus my triglycerides are back at a normal level.  You deserve a break and all that immodium cannot be good for you!
The difference between an overnight and a layover is luck!

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #22 on: October 15, 2007, 11:49:13 PM »
d all that immodium cannot be good for you!

Oh please Mary clutch the pearls.  I've been popping imodium for over a decade twice a day. 
"Iíve slept with enough men to know that Iím not gay"

Offline aztecan

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Re: I'm Tired Of This Shit.
« Reply #23 on: October 16, 2007, 12:11:17 AM »
Oh please Mary clutch the pearls.  I've been popping imodium for over a decade twice a day. 

Wouldn't a large cork be easier - and less expensive?

Immodium isn't on the formulary here. Neither is Pancrecarb, so you better be ready to shell out the sheckles, honey.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #24 on: October 16, 2007, 12:18:12 AM »
Wouldn't a large cork be easier - and less expensive?

Immodium isn't on the formulary here. Neither is Pancrecarb, so you better be ready to shell out the sheckles, honey.


Same here.  I have to shell out for the never ending Immodium.  Doubt the other is available either.
AIDS isn't for sissies.

Offline Londonguy

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Re: I'm Tired Of This Shit.
« Reply #25 on: October 16, 2007, 12:20:18 AM »
I can totally sympathise.  Having been on kaletra for about 4 months I'm still getting the shits all the time.  The first morning after I took it I threw up and I was immediately concerned that it would give me constant nausea but it never has.   It does however turn my crap to liquid all the damn time unless I take immodium.  I've been trying to cut back on immodium because it has made me very very bloated and constipated in the past, but it's a tough balancing act.  And when your arse feels a bit sore neither a torrent of liquid nor an incredibly solid bit of crap helps the matter.  And lets not even get into the anxiety I feel if I want to be passive during sex  ::)

It's unfortunate because apart from this my combo has been fine but it's quite a big annoyance.  I would look at switching but norvir has to be kept in the fridge and because of where I live I couldn't really do that so....it pretty much looks like I'm stuck with the kaletra because it's the only PI whcih is combined with the norvir. It's a shame no other PIs are like that.  I'll look at trying this pancrecarb stuff I guess.

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #26 on: October 16, 2007, 12:23:00 AM »
It's not my fault that you people live in sucky states with insufficient ADAP formularies.  Have you tried holding a sign up in front of the governor's mansion that says "AIDS TURNS MY INNARDS OUT AND YOU DON'T CARE"
"Iíve slept with enough men to know that Iím not gay"

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #27 on: October 16, 2007, 12:38:36 AM »
 And when your arse feels a bit sore neither a torrent of liquid nor an incredibly solid bit of crap helps the matter.  And lets not even get into the anxiety I feel if I want to be passive during sex  ::)

Dunno about all that, London.  There are times that I have such bouts with this that I'm downright proud once I finally pass a solid poo. 

I am with you on the latter part quoted.  "Inconvenient" doesn't even begin to describe it.
AIDS isn't for sissies.

Offline SouthSam7

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Re: I'm Tired Of This Shit.
« Reply #28 on: October 16, 2007, 12:45:59 AM »
If you have high cholesterol, they can put you on a statin that will knot you up for sure.  I haven't had to take imodium in a year.

Peace and good luck.

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #29 on: October 16, 2007, 12:50:47 AM »
If you have high cholesterol, they can put you on a statin that will knot you up for sure.  I haven't had to take imodium in a year.

Peace and good luck.

Not so for me.  I am on Crestor, but still gets the drips. 

By the by...thank heaven for laptops.  All this time spent on the toilet this evening, and you guys have really been there for me.

And with me.
AIDS isn't for sissies.

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #30 on: October 16, 2007, 12:59:08 AM »
Have you tried heroin?  It works quite well too.
"Iíve slept with enough men to know that Iím not gay"

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #31 on: October 16, 2007, 01:04:47 AM »
Have you tried heroin?  It works quite well too.

I'm more the crack and crystal sort.   ;)
AIDS isn't for sissies.

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #32 on: October 16, 2007, 01:15:31 AM »
I'm more the crack and crystal sort.   ;)

Then you'll just have to suffer.  Don't say I didn't try to help you.
"Iíve slept with enough men to know that Iím not gay"

Offline StrongGuy

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Re: I'm Tired Of This Shit.
« Reply #33 on: October 16, 2007, 01:52:55 AM »
I had nausea bouts after most dosings on Kaletra. Dealt with it as just par for the course and did what I had to do, but then I switched docs and he insisted on a switch and glad I did. I'd definitely consider lookimg into the other PIs. Good luck...



"Get your medical advice from Doctors or medical professionals who you trust and know your history."

"Beware of the fortune teller doom and gloomers who seek to bring you down and are only looking for company, purpose and validation - not your best physical/mental interests."

"You know you all are saying that this is incurable. When the real thing you should be saying is it's not curable at the present time' because as we know, the great strides we've made in medicine." - Elizabeth Edwards

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #34 on: October 16, 2007, 01:56:50 AM »
I'm definitely considering it.  Despite philly's advice, smack just isn't in my budget these days, nor is it on the ADAP formulary.  So a regimen change seems like the best route.
AIDS isn't for sissies.

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #35 on: October 16, 2007, 02:12:23 AM »
Damn, we even have Laudanum (tincture of opium) on ADAP up here.  You folks are being dreadfully short changed.

What IS on your ADAP formulary anyway? 
"Iíve slept with enough men to know that Iím not gay"

Offline fearless

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Re: I'm Tired Of This Shit.
« Reply #36 on: October 16, 2007, 03:21:37 AM »
Timmy, poor Timmy.

Even over the counter medications that contain codeine help with the Kaletra squirts. I can't stomach imodium so just pop painkillers with codeine for a day or so before I know that I need to go out and be a good clean bottom  ;D
Bananas and cheese work for me too.
Be forgiving, be grateful, be optimistic

Offline Dragonette

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Re: I'm Tired Of This Shit.
« Reply #37 on: October 16, 2007, 03:42:26 AM »
Thanks for this thread, my choice now is between Kaletra and atazanavir. I think I'll go with the yellow  :-\

Hope it gets better or you make it go away
"If you keep one foot in yesterday, and one in tomorrow, you piss all over today". Betty Tacy

Offline Cerrid

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Re: I'm Tired Of This Shit.
« Reply #38 on: October 16, 2007, 05:14:37 AM »
Timmy,

I can totally empathize with your bowel issues. I've been taking Kaletra myself for a year now and, while it's very effective, I encounter the same side effect. Changes in my diet (more rice and bananas, less fat and milk) caused some improvement but it's still a slippery and sometimes unpredictable business.

I tried Pancrecarb but it didn't help, in fact I had the impression it worsened the condition. What works better is a stuff called Cholestobran, an oat bran preparation which can be taken with the pills. It contains lots of soluble fibers and pectines which absorb excess water and make a more solid poop. It's not the perfect solution, but makes it somewhat manageable. Cholestobran is cheap but I'm not sure if you can buy it in the US. There's probably something equivalent on your shelves.

However, I've been thinking about switching to another PI as well but I'm a bit afraid of going yellow from Reyataz. Are there any experiences with boostered Prezista or Lexiva as far as diarrheas and blood lipid levels are concerned?

"Boredom is always counterrevolutionary. Always." (Guy Debord)

Offline BassMan

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Re: I'm Tired Of This Shit.
« Reply #39 on: October 16, 2007, 05:35:04 AM »
Cerrid

I've been taking boosted fosamprenavir (Lexiva, or Telzir as it's called over here) since June 2005. I have only very slight issues with "the trots;" if it happens, it's usually about an hour to 90 minutes or so after taking the meds, so it's predictable and therefore much easier to control. I have loperamide (imodium) on standby but rarely need to use it. My lipids are also excellent. I should point out I take it once daily, boosted with 200mg of ritonavir (Norvir) though I'm going to discuss dropping this to 100mg with my consultant.

I've tried Reyataz (atazanavir) and found no issues with diarrhea, sickness or yellowness; I only came off it because of very slight resistance caused by a polymorphism.

Of course what's sauce for the goose isn't necessarily sauce for the gander, so I guess you'd have to suck it and see.

Hope this helps.

Carl
Manchester, UK
Diagnosed December 2002
CD4 810 VL 750,000

Started meds October 2004
CD4 405 VL >100,000

Latest Results: October 2009
CD4 888 38%, VL undetectable
on fosamprenavir/ritonavir & Truvada

VL undetectable since November 2005

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #40 on: October 16, 2007, 08:47:28 AM »
Then it's agreed. Youth Pastor Tim will change his combo as of tomorrow.

:)

MtD

as if it would move that fast.  i wonder about the differences in our health systems sometimes. i know doxie will get this...but if i intend to change, i will have to first discuss it with my doc during my regularly scheduled appointment in two weeks.  if he is in line with it, i will then have to have an appointment to speak with the "meds nurse" about the new drug.  never mind that i already know more from this thread than she is going to tell me about it.  it's part of the procedure and nothing will go until i plant my ass in her office.  once i do that, the change can go as soon as i get back from her and then get the official scrip from him...most likely on my NEXT doctor visit (say, three months from now).  this sort of thing only gets speeded up if you are having a severe allergic type reaction to your meds and if your t cells are in free fall. 

i'm gonna address this with my doc, but i expect to be planted on the potty for some days to come.  though just not right now.  the immodium has kicked in, so i'm now in cork phase. 
AIDS isn't for sissies.

Offline Jerry71

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Re: I'm Tired Of This Shit.
« Reply #41 on: October 16, 2007, 08:52:23 AM »
Deal with it Timmy boy. We all have to do this at least two or three times a day. I have come to the decison to just bring the tv into my bathroom for all the times I have to run to the bathroom. They should supply anyone that is living with HIV a supply of toliet paper. :-*

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #42 on: October 16, 2007, 09:04:22 AM »
Deal with it Timmy boy. We all have to do this at least two or three times a day. I have come to the decison to just bring the tv into my bathroom for all the times I have to run to the bathroom. They should supply anyone that is living with HIV a supply of toliet paper. :-*

yeah, i found myself laughing at Sheryl Crowe yesterday quite a bit.  i think by her estimation, i used about 2 year's worth of toilet paper.   ::)

and like i said above...that's why i'm thankful for my laptop.  i can poo and tenderly reach out to all of you at the same time. 
AIDS isn't for sissies.

Offline Jerry71

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Re: I'm Tired Of This Shit.
« Reply #43 on: October 16, 2007, 09:06:18 AM »
Well it will not be called a laptop anymore it will officially be called the shittop. LOL :-*

Offline emeraldize

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Re: I'm Tired Of This Shit.
« Reply #44 on: October 16, 2007, 09:15:22 AM »



Craptop

Offline David_CA

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Re: I'm Tired Of This Shit.
« Reply #45 on: October 16, 2007, 10:36:35 AM »
We all have to do this at least two or three times a day.

We (hubby and I) have no problems with the runs.  I guess we're just lucky, so far.  I sure hope Atripla keeps working for us.  However, that's not to say I don't appreciate the portability of a notebook pc anyway!

I'm assuming it's just the Kaletra causing your problems.  Is this common with all PI's?  Years ago, I'd take Lomotil http://en.wikipedia.org/wiki/Lomotil.  It's by prescription only, and I'm not sure if it's available to you, but if so, it works like a champ.  I had to be careful and make sure I really had the runs prior to taking it, else I'd be stopped up for days.  It sounds like it might be the ticket for you. 

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline catwoman

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Re: I'm Tired Of This Shit.
« Reply #46 on: October 16, 2007, 01:03:47 PM »
I've been taking Kaletra for a year and 9 months.  It does run your belly but over time it has gotten much better.  I do notice, when I really start having problems, I realize I haven't been eating as much yogurt.  I truly believe making sure your acidophilus population in your gut is high helps.  I eat more yogurt or drink kefir and my bowels return to normal.  Try it.

Offline mjmel

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Re: I'm Tired Of This Shit.
« Reply #47 on: October 16, 2007, 01:26:12 PM »
Sweet Tim, if Pancrecarb is on the list of approved meds in Georgia, do give it a try. It's worth it. After a month of Pancrecarb dosing, I now can handle a missed dosage with no problems. I just notice this today. I had missed my dosages yesterday and had no problems this morning. Of course, I did take my morning dose.
Sound too good to be true, doesn't it?
But the shit works.  ;D

Mike

Offline MOONLIGHT1114

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Re: I'm Tired Of This Shit.
« Reply #48 on: October 16, 2007, 01:36:13 PM »
Timtation~

I have been reading this thread and wish I could help you!  I remember taking the PIs (Fortovase 18 pills per day) for 6 years.  I eventually complained to my doc about trips to the potty.  I started taking 1 Imodium every morning and suddenly I could hear angels singing!  It was an overnight success!  LOL  I'm so sorry that Imodium hasn't done the trick for you in this case.  I guess the "K" really is more "special" than I know!

Have you been buying generic (i.e. Target or Walmart brand) anti-diarrheals?  The price is much cheaper and it works great.  I just discovered the other day that Walmart actually has a bottle of their brand, 48 pills, NO bubble foil pack thingies to tear open.  I hate those things!

As for the long wait to see the meds nurse and eventually get your new script, months down the road, have you been dehydrated, run down, even losing weight?  Tell them this on the phone and ask to be seen SOON!  Squeaky wheel gets the grease!  I finally got through to my doc's office today, wanting to be seen for a cough.  This is my primary, a general practitioner.  I told the receptionist right off the bat that I was on insulin as well as HIV+, and wouldn't you know it?  They are seeing me today at 3pm!

If the squirts are causing such trouble and then some (dehydration, fatigue, weight loss) then there's no reason why you can't get your ass (no pun intended) in to see the doc sooner!  I am like you, I don't want to change a regimen if my counts are good, but this is compromising your lifestyle a bit too much, even after you've tried to handle things with Imodium.  Its just not working for you like you want it to.  I also was relieved to see that moving "straight across" in the same med category for a switch wouldn't be so detrimental, if I read that correctly.  

Lord knows I want you to be able to hear angels sing, that first morning when you wake up and have success on the shitter!  I really hope this all works out soon for you!  Maybe pick up the phone and call your doc?  It can't hurt, and its better than waiting.

~Cindy   :-*
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #49 on: October 16, 2007, 01:42:53 PM »
*1* immodium?  Child please... try taking 10 of them every day for years.
"Iíve slept with enough men to know that Iím not gay"

Offline MOONLIGHT1114

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Re: I'm Tired Of This Shit.
« Reply #50 on: October 16, 2007, 02:03:24 PM »
OMG, Philly, I had no idea.  I certainly was lucky then, but luck ran out when I became resistant.

Did you buy stock?   :P
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline dixieman

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Re: I'm Tired Of This Shit.
« Reply #51 on: October 16, 2007, 02:45:04 PM »
Kaletra is a hell drug... I was on it for 3 years... great numbers but, I had to plan exactly when I took the drug and wait for 30 minutes then run to the bathroom... watch the fats in your food.. eating Brown rice helped but, I was so grateful when I sought out a new doctor and started atripila... kaletra and zerit took all the fat from my body and it all went down the toilet... this combo almost made working in the office impossible...

Offline vegaslocal39

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Re: I'm Tired Of This Shit.
« Reply #52 on: October 16, 2007, 03:12:56 PM »
After I had some rectal bleeding, my doc examined me and said I had some internal 'roids.  But he sent me for a colonoscopy anyway to be sure.  The doc that gave me the 'ol poop chute camera test confirmed that I was indeed okay (no cancer), but did have internal 'roids.  The thing that surprised me is that I thought these were caused by straining/constipation.  (And of course, ever since I've been on meds, that's one problem I have not had to deal with.)  The GI doc said that they are also caused by going too often, which puts stress on your sensitive innards down there.

So, I guess what I'm saying is that in addition to the inconvenience of going too often, other problems can develop....and believe me, they are not funny.  They are painful as hell.  So, if you can switch, you might want to go ahead and do it.

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #53 on: October 16, 2007, 04:17:56 PM »
OMG, Philly, I had no idea.  I certainly was lucky then, but luck ran out when I became resistant.

Did you buy stock?   :P

Not only that honey, but I had to suffer through the entire era of protease inhibitors and the accompanying diarrhea, which obviously in my case was uber-severe, without the damn fucking pills every once giving me an undetectable viral load.

Oh, and I showed resistance to the entire class from day one when they came out with the geno/phenotype tests.  Still, they kept me on PI's anyway, in fact they then put me on paired PI's so not only did I have to take Kaletra but I had to take the even MORE diarrhea inducing Invirase with it.  Hence the 10 imodium each day (20 mg in total).
"Iíve slept with enough men to know that Iím not gay"

Offline Moffie65

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Re: I'm Tired Of This Shit.
« Reply #54 on: October 16, 2007, 07:57:32 PM »
Tim.

I have been on Kaletra since it came out, and when it went to a pill form my squirts didn't stop at all.  Now I enjoy those perfectly shaped movements because I have at least 6 to 8 ounces of Yogurt every day.  I buy the quarts of whole milk organic yogurt, but I am sure any choice you make would also do.  Please try it and let me know if you aren't having wonderful movements in about three days.  It really works, and if I miss a few days, it is back to liquid hell.

Just something I found really works without changing meds or without adding any other meds to the dish each day.  Please believe me, it really works.  Of course everyone is different so I can't guarantee it but it certainly isn't a bad thing to try because you will also find that it keeps the digestion working and I actually eat less, have more energy, and lost a few pounds that came on with the nasty Kaletra with olestra.

Love,
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline Oceanbeach

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Re: I'm Tired Of This Shit.
« Reply #55 on: October 16, 2007, 07:59:19 PM »
Dear Youth Pastor Tim,

You must remember that line of crap about, "every cloud must have a silver lining..."  Here is another one!!! ;D ;D ;D ;D ;D ;D ;D ;D ;D

I use this issue to get out of Jury Duty.  Doctor writes a letter introducing you as his/her patient with a disease which makes travel complicated with often embarrasing problems.  The Clerk of the Court will drop you from the list of potential jurors.  I have done it in 4 counties and Grand Jury, hey never argue about it.  Have the best day
Michael

Offline SouthSam7

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Re: I'm Tired Of This Shit.
« Reply #56 on: October 16, 2007, 11:04:44 PM »
Thunter, I'm sorry the ADs aren't working for you.  I used to take Imodium and Pepto pills every morning with my first dose of HIV meds.  Take them every day as a preventative, before you get in trouble.

Also, I take fiber twice a day (like Metamucil).  Sounds weird but it works for me.  The opiates work well, too.  They take a day or two to work, though.

There may be a prescription you can get when things get really bad.  I had a tropical bug one time and the doc gave me Lomotil or Lonox until it passed.  I think they are only for occasional use, though, and they will make you sleepy.  Ask your NP or Dr. about that.

I apologize if you have already tried these tips.  I don't have the problem anymore, but when for about a year on Norvir, I took Imodium and Pepto pills every day as a preventative.  Good luck.

Love,
Sam

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #57 on: October 16, 2007, 11:44:15 PM »
Thanks, Sam and all.  Yes, another day...same old shit.  The amount of TP I have gone through since early yesterday is staggering.  Whole rain forests are probably disappearing down my loo.

My ass is its own Inconvenient Truth.
AIDS isn't for sissies.

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #58 on: October 17, 2007, 12:22:58 AM »
Buy a bidet. 
"Iíve slept with enough men to know that Iím not gay"

Offline SouthSam7

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Re: I'm Tired Of This Shit.
« Reply #59 on: October 17, 2007, 12:26:34 AM »

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #60 on: October 17, 2007, 12:31:49 AM »
Buy a bidet. 

not an option.  we're in a drought here in north georgia.  there are water restrictions i would certainly break.
AIDS isn't for sissies.

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #61 on: October 17, 2007, 12:38:42 AM »
You remind me of some other posters here who just want to complain but not take any advice.
"Iíve slept with enough men to know that Iím not gay"

Offline milker

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Re: I'm Tired Of This Shit.
« Reply #62 on: October 17, 2007, 12:45:50 AM »
Buy a bidet. 
Having had a bidet at my house when I lived in France, I can give some information. The bidet's original purpose is ONLY for women washing their vagina and anus. Men did not need to wash their anus, of course.

The bidet delivers hot and cold water, modern ones will have a hot/cold mix so that you can conveniently wash your vagina with water that is not too cold and not too hot. It is not expected to wash out large components, i.e. turds, but rather expects only fluids. If you use a bidet and shit in it, then you're up for some trouble. Diarreha is acceptable if watery enough. We're talking small drains here, not toilets.

I hope it helped.

Milker.
mid-dec: stupid ass
mid-jan: seroconversion
mid-feb: poz
mar 07: cd4 432 (35%) vl 54000
may 07: cd4 399 (28%) vl 27760
jul 07: cd4 403 (26%) vl 99241
oct 07: cd4 353 (24%) vl 29993
jan 08: cd4 332 (26%) vl 33308
mar 08: cd4 392 (23%) vl 75548
jun 08: cd4 325 (27%) vl 45880
oct 08: cd4 197 (20%) vl 154000 <== aids diagnosis
nov 2 08 start Atripla
nov 30 08: cd4 478 (23%) vl 1880 !!!!!!!!!!!!!!!!!!!!!!!!!!
feb 19 09: cd4 398 (24%) vl 430 getting there!
apr 23 09: cd4 604 (29%) vl 50 woohoo :D :D
jul 30 09: cd4 512 (29%) vl undetectable :D :D
may 27 10: cd4 655 (32%) vl undetectable :D :D

Now accepting applications from blowjob ninjasô

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #63 on: October 17, 2007, 12:47:12 AM »
Sounds like a bidet would be perfect for Kaletra's infamous Explosive D.

Mind you Milkmaid.  I've been to France many, many times and am familiar with how a bidet works.
"Iíve slept with enough men to know that Iím not gay"

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #64 on: October 17, 2007, 12:53:58 AM »
Mind you Milkmaid.  I've been to France many, many times and am familiar with how a bidet works.

France be damned.  Any dignified bottom should know this.
AIDS isn't for sissies.

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #65 on: October 17, 2007, 12:58:11 AM »
France be damned.  Any dignified bottom should know this.

You've obviously never been gang raped by a group of Moroccan and Algerians from the Dix-HuitiŤme Arrondisement.
"Iíve slept with enough men to know that Iím not gay"

Offline edfu

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Re: I'm Tired Of This Shit.
« Reply #66 on: October 17, 2007, 01:05:15 AM »
Reply #55 above:

Hey, I got out of jury duty for the same reason.  My doctor wrote a very specific letter, and they couldn't get rid of me in the jury-appeals room fast enough.  

I've found Lomotil to cause the opposite problem.  Also not pleasant.  
"No one will ever be free so long as there are pestilences."--Albert Camus, "The Plague"

"Mankind can never be free until the last brick in the last church falls on the head of the last priest."--Voltaire

Offline edfu

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Re: I'm Tired Of This Shit.
« Reply #67 on: October 17, 2007, 01:07:34 AM »
You've obviously never been gang raped by a group of Moroccan and Algerians from the Dix-HuitiŤme Arrondisement.

Only you, Philly, only you.  Talk about being in the right place at the right time!
"No one will ever be free so long as there are pestilences."--Albert Camus, "The Plague"

"Mankind can never be free until the last brick in the last church falls on the head of the last priest."--Voltaire

Offline slimbimale

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Re: I'm Tired Of This Shit.
« Reply #68 on: October 17, 2007, 01:35:18 AM »
I know what your going through..I was on Kaletra for awhile , but the one that was worse for me was Viracept.( I use to call it Liquid Fire ) ..and I was on it for 4 and 1/2 years and it was a constant battle ..I did find something that worked for me most of the time .
I use to take between 1200 to 2400 Mg's of calcium a day ( 600 mg a pill ) so it was only 2 to 4 pills a day and take them with food ..after about a week I went off the anti- D's and most of the time it worked good .
Calicum doesn't get absorbed well so I would break the tablets in half ..
And if you keep an eye on some of the stores ..they will have a buy one get one free sale ..which makes it that much cheaper . And the bottles i bought was 500 pills to a bottle , so it lasted awhile ..I told a few friends about taking calcium pills and most it help ..some it didn't .. But I was willing to try about anything at that time ..Hope it works out for you ..I am now on Reyataz and it have been working fine ( no yellow ) and I just read that we need to drink a lot of water with it , because it can cause stones just like crixi ..Good luck to you ..
Let Go and Let GOD

Offline Jeffreyj

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Re: I'm Tired Of This Shit.
« Reply #69 on: October 17, 2007, 04:01:28 AM »
I've been on kaletra for 4 years now. I must say that I have had the runs allot less then I first did. That's the good news.

Hell of it is, believe it or not, I'm practically constipated all of the time!

I'm on crestor too, just started it this week.

So, I don't know, can it just be kaletra? How do we know that? Maybe it's the combo of certain drugs?

Whatever the case thunter, It does go away. I hope it goes away for you soon.
Positive since 1985

Offline LordBerners

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Re: I'm Tired Of This Shit.
« Reply #70 on: October 28, 2007, 03:16:12 PM »
Please excuse a newbies comment.  I'm not on meds yet, in fact was just diagnosed, but I'm a lifelong IBS sufferer - Irritable Bowel Syndrom - totally unrelated to and predating accuiring hiv.  I experience a violent need to poo 30 minutes after just about every meal!  Also I live in Thailand, so I occiasonally get the runs from ULTRA spicey food (which I love - the spicy food, not the runs).  So I'm used to diarrhea and am hoping that this stands me in good stead when I start meds.

Secondly, regarding biddets, here in Thailand and much of Asia they have a little sprayer on a tube attached to the toilet - it looks exactly like the sprayer next to some american kitchen sinks for washing dishes.  I have to say that thing is a life-saver - makes diarrhea less of a problem as there is no abrasion factor from the TP.

A typical toilet here:
« Last Edit: October 28, 2007, 04:02:07 PM by LordBerners »
Please, just call me Berners.. or Baron.

Offline marc11864

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Re: I'm Tired Of This Shit.
« Reply #71 on: October 28, 2007, 03:34:30 PM »
Here's the bright side...

AT LEAST WE'RE REGULAR!  ;D

(And now, a word from our sponsors...)

Felling a little rushed? Don't know where to go? Visit our new "Bathroom Finder" tool at Immodium.com.

http://www.imodium.com/page.jhtml?id=/imodium/include/3_5.inc

(Talk about knowing your audience.)  :o
Let us cavort like the Greeks of old! You know the ones I mean.

Offline Basquo

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Re: I'm Tired Of This Shit.
« Reply #72 on: October 28, 2007, 06:03:25 PM »
That's an intersting web tool!  There are only 37 bathrooms in Austin, and none in my zipcode!  Funny, most of the ones listed are reputed to be toe-tapping locations (Barnes & Noble, Starbucks, State Capitol Building)  but I can see that this could be useful to a visitor with mobile internet access.

Offline bryonut

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Re: I'm Tired Of This Shit.
« Reply #73 on: October 28, 2007, 06:39:44 PM »
Please excuse a newbies comment.  I'm not on meds yet, in fact was just diagnosed, but I'm a lifelong IBS sufferer - Irritable Bowel Syndrom - totally unrelated to and predating accuiring hiv.  I experience a violent need to poo 30 minutes after just about every meal!  Also I live in Thailand, so I occiasonally get the runs from ULTRA spicey food (which I love - the spicy food, not the runs).  So I'm used to diarrhea and am hoping that this stands me in good stead when I start meds.

Secondly, regarding biddets, here in Thailand and much of Asia they have a little sprayer on a tube attached to the toilet - it looks exactly like the sprayer next to some american kitchen sinks for washing dishes.  I have to say that thing is a life-saver - makes diarrhea less of a problem as there is no abrasion factor from the TP.

A typical toilet here:


EEEK! That toilet needs a good scrubbing!

Offline btobaby

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Re: I'm Tired Of This Shit.
« Reply #74 on: November 01, 2007, 11:18:12 AM »
me too! I'm tired of arranging my day around shit.

Offline Miss Philicia

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Re: I'm Tired Of This Shit.
« Reply #75 on: November 01, 2007, 01:31:12 PM »
omg... that bathroom finder is hilarious
"Iíve slept with enough men to know that Iím not gay"

Offline thunter34

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Re: I'm Tired Of This Shit.
« Reply #76 on: November 01, 2007, 01:35:08 PM »
omg... that bathroom finder is hilarious

not cool.  my first try returned "no results for that area"   :o
AIDS isn't for sissies.

Offline pozattitude

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Re: I'm Tired Of This Shit.
« Reply #77 on: November 01, 2007, 06:22:40 PM »
Rich seems to be handling it OK, so I'll consider it.   ;D

How did I get involved in this ? LOL
I'm on special K too and after 6 years on the damned thing, my pooping issues are much better..and I take VIDEX too...but at least since they changed the formula from those nasty chalk like tablets I don't have those problems anymore.

Have you checked your self for parasites....I had a real problem with pooping and came to find out it was caused by a parasite....as my doctor put it..."it happens when you eat ass"  ::)

Rich
(who now keeps a prescription of anti parasite drugs handy)
POSITIVE PEDALERS... We are a group of people living with HIV/AIDS, eliminating stigma through our positive public example.

Offline PJC0510

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Re: I'm Tired Of This Shit.
« Reply #78 on: November 06, 2007, 10:17:05 AM »
Thing is, the combo has been working- and working well overall.  Part of me wants to ride that train as long is it runs.  

Yet at the same time, it's the runs that are killing me.

Well sir, I too am tired of the insane amount of times I am spitting out shit.  How I would love to have a solid crap at least once a day. 

I am in the same boat with the Special K, my numbers have been going up (started at 130 and up to 513 TCells) and I have been undetectable since my second round of blood tests.

But I am going to talk to my doctor on Monday to switch to Atripla.  The deciding factor came Saturday night while I was at a friends house.  I was talking with he and his wife and thought I had to fart, and it was more than than that.  I had to excuse myself to use the bathroom, and as I sat on the commode, i said enough is enough. 

Tired of the constant running to the toilet at work, making sure I was alone before the water works started.  Tired of taking the Immodium, tired of throwing away underwear (you know the really comfortable ones.)  And then there is the occasional romp in the sack with the BF, although he is also POZ and says he understands, I still feel bad when it happens.

So good bye Kaletra, hello to saving $$$ on toilet paper!



I wish you a day filled with beauty and lovenad
I may never beat HIV, but then again, it will NEVER beat me!

 


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