Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
August 02, 2014, 04:39:34 AM

Login with username, password and session length


Members
Stats
  • Total Posts: 632721
  • Total Topics: 47930
  • Online Today: 222
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 2
Guests: 153
Total: 155

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Scared Shitless.  (Read 2852 times)

0 Members and 1 Guest are viewing this topic.

Offline ubotts

  • Member
  • Posts: 347
Scared Shitless.
« on: August 26, 2007, 11:21:35 AM »
HI all.
Recently Ive been bruising easily..My skin has gotten thinner.
Iam not on aspirin or nothing that could thin my blood.
I have purple looking blotclots on my arms...All someone has to do it tap me or if
i stretch myself ..it happens.
Then last night, i was on the computer for hrs with just my undies on and when i
when to get off the leather seat, my skin actually stuck to the chair...
I had to get off so slowly because it was so painful...
When i finally got off, I saw a layer of skin shaped like my butt and legs were on
the chair.. ??? I couldn't believe it.
I saw the Dr's that morning and was told my numbers were good, platelets were find
and they said the bruises on my arms were probably from taking prednisone ..
But that was in December of 2006...almost 9 months ago..
So ,, they really didn't have an answer for that.
But later on when my skin came off an stuck on the computer chair, i got scared
shitless.... :'( Iam am starting a new clinic on Friday..I was not very happy with the
one i have going to for 3 yrs now, since i moved from NYC to NJ..
I wish i would of stayed in NYC just for the doctors...There great there.
This state or this clinic stinks..Iam not happy and i am moving on..
I need answers...If anyone can help for now, id appreciate it..
Btw..

I started taking truvada last month and my tcells went up from 241 to 294, so that's
good news..Then they said all my numbers were good..FINE..
But whats up with my skin..Got no answer.. :'(
Iam so down about this...Hope the new clinic can help me..
Thanks for listening to me...If you have any suggestions, please post..
I need answers..thank you all...luv skinless bruising kinda girl.. ;) oops on the top of the page i meant stratching ....not stetching myself..lol :D
Live Love Laugh and dance like no ones watching.
Laughter is the best medicine, so try to have a laugh everyday..Even if your not feeling your best, think about something that was funny at one time in your life and work with it..   :o)

Offline aztecan

  • Member
  • Posts: 5,388
  • 29 years positive, 57 years a pain in the butt
Re: Scared Shitless.
« Reply #1 on: August 26, 2007, 01:23:48 PM »
Hey Ubotts,

I have seen bruising like you describe come about because of blood-thinning agents and for people with diabetes, but have not heard of any HIV-related reasons.

I am no doctor. When you go to the new clinic this Friday, make sure to show them what is going on and tell them what happened with the chair.

I wish I had a better answer for you. I will be keeping you in my thoughts.

HUGS,

Mark

"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline bear60

  • Member
  • Posts: 4,104
Re: Scared Shitless.
« Reply #2 on: August 26, 2007, 05:32:24 PM »
I would highly recommend you put a big fluffy terry cloth towel on your leather chair  if you choose to sit in it naked.....or wear clothes.  I have experienced the same problem of "sticking" to things.  Dont you live in New Jersey? I am in philadelphia and we had some of the worst hot and humid weather recently.....everything seems sticky.  I change clothes three times a day.
Poz Bear Type in Philadelphia

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,868
  • Vegas baby!
Re: Scared Shitless.
« Reply #3 on: August 26, 2007, 08:06:58 PM »
I don't know what the bruising thing is with you but I'm sending you HUGE {{{{{{HUGS}}}}}}
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline AlanBama

  • Member
  • Posts: 3,604
  • Alabama: the 'other' 3rd World Country!
Re: Scared Shitless.
« Reply #4 on: August 26, 2007, 10:09:27 PM »
ubotts, you don't take cumadin do you?   I have heard of people bruising easily, but if your platelet count is normal I just don't know what it might be.   Hope you can get some answers.

hugs,

Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline ubotts

  • Member
  • Posts: 347
Re: Scared Shitless.
« Reply #5 on: August 27, 2007, 10:15:25 AM »
 ??? I went to the drs on friday and told them about the brusing..
Iam not on aspirin or cumidin..so thats out.
In noovember of last year i took predisone, so thats what the dr said it was from.
I doubt it..Iam switching clinics anyway..
I go on friday to a new clinic..Hope i have better answers for my questions..
Thanks all for your time input and patience with me..
Live Love Laugh and dance like no ones watching.
Laughter is the best medicine, so try to have a laugh everyday..Even if your not feeling your best, think about something that was funny at one time in your life and work with it..   :o)

Offline RapidRod

  • Member
  • Posts: 15,281
Re: Scared Shitless.
« Reply #6 on: August 27, 2007, 12:05:43 PM »
ubotts, I bruse easier now than I use to and I brought it up to my ID doctor and she said it is normal for people on antivirals. They also did a platelet test and hematocrit test to make sure that by levels weren't falling low again. So far my hematocrit and platelets are staying in almost the normal range, nothing to be concerned about. I do have an OI and the majority of it is located within my bone marrow which affects my levels and production. Nothing worse than having to be transfused. In the last two years I've had 6 units of blood and 8 platelets. It's funny how it takes longer to receive it back, than it does to give it.

Offline JeffreyM

  • Member
  • Posts: 96
  • 11:11
Re: Scared Shitless.
« Reply #7 on: August 29, 2007, 03:36:47 PM »
Dear ubotts, I am so sorry you are having these problems.  I had a low platelet count since my initial diagnosis in 1991.  In 2003 I was bruising all over my body, just from the slightest tap or bump to a  chair, wall or anthing.  I had purple black bruises all over my body.  I was rushed to the hospital and they treated me with extra special care, they made me stay stll, I coud not move whatsoever I felt like the boy ion the` plastic bubble until they knew what was wrong with me, for fear that I would bleed out internally.  After a couple of days  the hematologist/oncologist figured out I had immune idiopathic thrombocenic pupura.  I said , I HAD WHAT? It's a very rare platelet disorder, only 200,000 people in America have it.  Steroids were prescribed initially prescribed.  I gained a lot of weight and 6 months later, my platelets were still whack.  So the next step of the protocol was to preform a splenectomy.  I was lucky they did it laproscopicly, so only 4 small cuts  instead of being cut wide open. The surgery was a success.  I hope you do not have ITP.  I urge you to ask your doctors to test you for this. Most people who have it do not have HIV/AIDS it can happen to anybody.  With my case they are still conflicted as to if it was a result of being on the Hiv meds for over a decade. The link below take you to the platelet disorder association, formerly ITP People. 

My Best To You,  JeffreyM
http://www.pdsa.org/index.htm



From the PDSA website

ITP, idiopathic thrombocytopenic purpura, also known as immune thrombocytopenic purpura, is classified as an autoimmune disease. In an autoimmune disease the body mounts an attack toward one or more otherwise normal organ systems. In ITP, platelets are the target. They are marked as foreign by the immune system and eliminated in the spleen, or sometimes the liver.

Researchers have identified more than eighty autoimmune diseases. The National Institutes of Health (NIH) estimates that 5% to 8% of the United States population, between 14 and 24 million people, suffer with autoimmune disease.

The number of individuals in the United States with ITP has been estimated to be approximately 200,000. In adults, about three times more women have the disease than men. In children, the ratio is about even. It affects all age and ethnic groups. There are about 100 new cases of ITP per million people per year. Approximately half of the new cases are in children.

No large sample study supports an estimate of the incidence of ITP, rate of new cases per year, or the prevalence of ITP, total number of people with a disease. There is anecdotal evidence that the percentage rate of ITP cases is increasing in the United States. However, no carefully documented studies exist.



 
« Last Edit: August 29, 2007, 05:49:50 PM by JeffreyM »

Offline zachysmom

  • Member
  • Posts: 112
Re: Scared Shitless.
« Reply #8 on: September 01, 2007, 12:59:36 AM »
Ubotts baby,
I think you should maybe give it some time to watch and see what happens. If the docs thinks it' s perdixone than wait to see what happens in another 6 months,,but you feel u don't like the answer get another doc,
you are you're own advocate.


much love,
Nicole
From Russia with love,
Nicole

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.