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Author Topic: It's cancer  (Read 11381 times)

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Offline mjmel

  • Member
  • Posts: 2,069
Re: It's cancer
« Reply #50 on: August 12, 2007, 04:34:57 AM »
Thanks to everyone for your support. The first time he had cancer he insisted on only telling the people who had to know. We even managed to keep it a secret from his family, a plan I disapproved of but went along with. This time he says he is going to tell his parents about everything, including his HIV status, which will completely shock them but be a relief to me. We have a lot more support this time around and I am preparing for the bad times and hoping for the best.
Ford, this is a big deal for your partner...........to disclose everything he formerly held back from his family.  The news will likely shock many yet family ties that unify will offer support. It will be a blessing to have some help through those days ahead.
Please continue to keep us posted here at AIDS MED forum. Rant when you need. Many will be here for you and partner.
Mike
« Last Edit: August 12, 2007, 04:39:51 AM by mjmel »

Offline anniebc

  • Member
  • Posts: 5,939
  • AM member since 2003
Re: It's cancer
« Reply #51 on: August 12, 2007, 06:00:14 AM »
Thinking of you both...and sending you (((hugs))) from NZ.

Praying that you both find the strength to see this through.

Hugs
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 24,760
Re: It's cancer
« Reply #52 on: August 12, 2007, 10:34:50 AM »
Ford, hope you guys are getting through this latest challenge the best you can. It sounds like you have a wonderful strength together. You know we're all here hoping for the best.

Hugs to you both.

Andy Velez

Offline lucas clay

  • Member
  • Posts: 518
Re: It's cancer
« Reply #53 on: August 12, 2007, 06:09:08 PM »
medicine has come a long way in the last ten years.
im praying for you  and you partner.

                                                Lucas

Offline Christine

  • Member
  • Posts: 1,069
Re: It's cancer
« Reply #54 on: August 12, 2007, 06:56:11 PM »
Oh...I am so sorry. He is blessed to have you by his side. Sending you both good thoughts, prayers, strength..anything you need.

Christine
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline Teresa

  • Member
  • Posts: 1,753
Re: It's cancer
« Reply #55 on: August 12, 2007, 09:40:16 PM »
I am so sorry to hear the news about your partner. Hes lucky to have you there for love and support. I will keep you both in my thoughts and prayers.

Big Hugs
Teresa
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Offline Longislander

  • Member
  • Posts: 2,486
Re: It's cancer
« Reply #56 on: August 13, 2007, 12:20:26 AM »
Ford, I'm so sorry to hear it has returned.  It won't be an easy road, but hopefully it will be a short one to wellness.  Your inner, as well as physical strength will be able to carry you both through this. I hope all goes smoothly with his family.

Remember, we're always here for you, whatever you need from us, just ask for it.

Love,
Paul
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline StrongGuy

  • Member
  • Posts: 492
Re: It's cancer
« Reply #57 on: August 13, 2007, 12:33:14 AM »
My thoughts and wishes are with you for strength for you and your partner.

Mike

 
"Get your medical advice from Doctors or medical professionals who you trust and know your history."

"Beware of the fortune teller doom and gloomers who seek to bring you down and are only looking for company, purpose and validation - not your best physical/mental interests."

"You know you all are saying that this is incurable. When the real thing you should be saying is it's not curable at the present time' because as we know, the great strides we've made in medicine." - Elizabeth Edwards

Offline DCGUY2007

  • Member
  • Posts: 315
Re: It's cancer
« Reply #58 on: August 13, 2007, 02:12:40 AM »
Gso,

really sorry to read this. I really hope the chemo this time won't be so bad for your partner

Offline woodshere

  • Member
  • Posts: 1,477
  • ain't no shame in my game
Re: It's cancer
« Reply #59 on: August 13, 2007, 09:25:19 AM »
Thinking of you both,

Woods
"Let us give pubicity to HV/AIDS and not hide it..." "One of the things destroying people with AIDS is the stigma we attach to it."   Nelson Mandela

Offline Grinch

  • Member
  • Posts: 325
Re: It's cancer
« Reply #60 on: August 13, 2007, 11:24:53 AM »
That is bad news indeed.  Hang in there and let us know the DX

Offline chadly

  • Member
  • Posts: 35
Re: It's cancer
« Reply #61 on: August 14, 2007, 11:37:39 AM »
You are both in my thoughts-

Chad

Offline zeb

  • Member
  • Posts: 172
Re: It's cancer
« Reply #62 on: August 15, 2007, 03:34:24 PM »
I wish you all the best! I really hope your partner will get better!

My thoughts are with you!!!

Zeb

Offline GSOgymrat

  • Member
  • Posts: 5,031
  • HIV+ since 1993. INTJ
Re: It's cancer
« Reply #63 on: August 18, 2007, 03:01:42 AM »
After the blood tests, ultra sound, CAT scan, PET scan, lymph biopsy and bone marrow biopsy we met with the oncologist Friday. To everyone's surprise my partner has Hodgkin's lymphoma, not a recurrence of the non-Hodgkins lymphoma he had 10 years ago. The oncologist said this was the best outcome that we could have hoped for, considering my partner has small tumors throughout his lymphatic system. Fortunately he doesn't have cancer in his bone marrow. If it had been non-Hodgkins again the outlook would have been grim. However the prognosis with Hodgkins is relatively good. My partner was thrilled. I told the oncologist that my partner was probably the happiest patient to which he had ever given a cancer diagnosis.

Monday he has to get a MUGA scan of his heart to see which chemo combo he can tolerate and Tuesday he will start chemotherapy. He won't have to have a bone marrow transplant, radiation or spinal injections. It will last either 3 months or 6 months depending on which combo will be effective without damaging his heart.

Even though doing chemo again is going to be a bitch (mouth sores, hair loss, weight loss, etc.) my partner is psyched and ready to kick ass. He told his parents and all our friends about the current cancer situation and everyone is very supportive. Even though we have been through cancer before, not to mention other fun things like AIDS, blood clots, stroke, etc. we have both been completely stressed all week. Right before we went into the oncologist's office he said "I'm afraid he's going to tell me this is it. It's like the end of the world." I said "We've been to the end of the world several times before. Let's vacation somewhere else next time, okay?"

Offline Queen Tokelove

  • Member
  • Posts: 6,033
  • Smokey the Smurf
Re: It's cancer
« Reply #64 on: August 18, 2007, 03:27:32 AM »
Gee....Should I say congratulations? Although it is something else? It doesn't sound right to say it but I hope he kicks ass and gets rid of this other or lighter version of the cancer.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: It's cancer
« Reply #65 on: August 18, 2007, 04:17:52 AM »
I hope everything goes well with all of this, i'm glad the results were better then origionally thought.
All the best!
Positive since 1985

Offline bear60

  • Member
  • Posts: 4,104
Re: It's cancer
« Reply #66 on: August 18, 2007, 09:02:40 AM »
Hey Ford
I dropped in to see what was happening here at AIDSMEDS and am really happy to see that your partner is going to be ok.
Poz Bear Type in Philadelphia

Offline Grinch

  • Member
  • Posts: 325
Re: It's cancer
« Reply #67 on: August 18, 2007, 10:17:04 AM »
I'm so glad to hear that he won't have to endure interthecal (In the spinal fluid) or bone marrow injections!
His attitude sounds great so hang in there.
I found really consistent almost fanatical adherence to the mouth washes they gave me helped tremendously with the mouth sores.
Ask the nurses about "swish and spit and swish and swallow"  They'll know what you mean.  He'll end up with discolored teeth but hey they can be cleaned.

Hang in there and if he ever needs someone to just vent about chemo to just drop me a PM.
 

Offline JohnOso

  • Member
  • Posts: 816
Re: It's cancer
« Reply #68 on: August 19, 2007, 03:47:09 AM »
Right before we went into the oncologist's office he said "I'm afraid he's going to tell me this is it. It's like the end of the world." I said "We've been to the end of the world several times before. Let's vacation somewhere else next time, okay?"

Hell yeah!   :D

Offline MOONLIGHT1114

  • Member
  • Posts: 1,918
  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: It's cancer
« Reply #69 on: August 19, 2007, 04:15:01 AM »
Hi Ford~

Wow, nice to get a surprise when you were going to the doc's anticipating THE very worst!  I say attitude is half the battle with cancer, and I am very happy to hear about your partner's raised spirits!  You guys KICK ASS together, and know that we're here rooting for you both!

~Cindy   :D
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline PeteNYNJ

  • Member
  • Posts: 979
  • When life gives you AIDS...make LemonAIDS!
    • Dance for Me, Puppets
Re: It's cancer
« Reply #70 on: August 20, 2007, 12:04:19 PM »
Ford

Such great news (even though its cancer) and it couldnt happen to a nicer guy.  Your partner is lucky to have you.

Sending good vibes to both of you

Pete

Offline gaspode

  • Member
  • Posts: 37
  • A very naughty nurse
Re: It's cancer
« Reply #71 on: August 20, 2007, 01:16:24 PM »
my partner has Hodgkin's lymphoma, not a recurrence of the non-Hodgkins lymphoma he had 10 years ago.

Still a bitch to have to go through, but great that is isn't NHL. Thinking of you both.
Gary
xxx

Offline northernguy

  • Member
  • Posts: 1,347
Re: It's cancer
« Reply #72 on: August 20, 2007, 09:02:41 PM »
I'm glad to hear that its the easier to treat Hodgkins.   
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline Life

  • Member
  • Posts: 2,388
  • Member 2005
Re: It's cancer
« Reply #73 on: August 20, 2007, 09:24:28 PM »
Ford, my I say that both of you are inspirations to all of us.  When things get tuff, you turn and face it with alot of dignity and prowess...

Eric


Offline Longislander

  • Member
  • Posts: 2,486
Re: It's cancer
« Reply #74 on: August 20, 2007, 11:16:04 PM »
I too am glad it's better than originally thought. I wish him great success in beating this. Please take care of yourself as well~

Paul
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline RapidRod

  • Member
  • Posts: 15,288
Re: It's cancer
« Reply #75 on: August 20, 2007, 11:42:12 PM »
Ford, please keep us updated. Best wishes to you both.

Offline milker

  • Member
  • Posts: 4,034
  • Protected phone sex
Re: It's cancer
« Reply #76 on: August 20, 2007, 11:50:43 PM »
he said "I'm afraid he's going to tell me this is it. It's like the end of the world." I said "We've been to the end of the world several times before. Let's vacation somewhere else next time, okay?"
There are great places you can visit after his chemo. I'm waiting for the pictures of the vacations that are inside the world :)

Milker.
mid-dec: stupid ass
mid-jan: seroconversion
mid-feb: poz
mar 07: cd4 432 (35%) vl 54000
may 07: cd4 399 (28%) vl 27760
jul 07: cd4 403 (26%) vl 99241
oct 07: cd4 353 (24%) vl 29993
jan 08: cd4 332 (26%) vl 33308
mar 08: cd4 392 (23%) vl 75548
jun 08: cd4 325 (27%) vl 45880
oct 08: cd4 197 (20%) vl 154000 <== aids diagnosis
nov 2 08 start Atripla
nov 30 08: cd4 478 (23%) vl 1880 !!!!!!!!!!!!!!!!!!!!!!!!!!
feb 19 09: cd4 398 (24%) vl 430 getting there!
apr 23 09: cd4 604 (29%) vl 50 woohoo :D :D
jul 30 09: cd4 512 (29%) vl undetectable :D :D
may 27 10: cd4 655 (32%) vl undetectable :D :D

Now accepting applications from blowjob ninjas™

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: It's cancer
« Reply #77 on: August 21, 2007, 12:09:44 AM »
Ford,

I'm genuinely pleased that you guys have gotten a break at this grim time and that the prognosis is better than first thought.

Know that I'm thinking of the pair of you and hope you share many more happy years together.

MtD

/edited for a one armed typo/
« Last Edit: August 21, 2007, 12:11:16 AM by matty.the.damned »

Offline Ann

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  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: It's cancer
« Reply #78 on: August 21, 2007, 05:56:50 AM »
"We've been to the end of the world several times before. Let's vacation somewhere else next time, okay?"

Sounds like a good plan, Ford!

I don't know how I missed your update the other day - but I'm happy to read it now. Better late than never, eh? I'm so glad things are looking (comparatively) up.

Sending some special recipe love, light and positive healing vibes your way... for the next three to six months at least. Hang in there, both of you.

Hugs,
Ann
xxx
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