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Author Topic: what's this crazy "filmstrip" on my tongue?  (Read 6302 times)

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Offline billy

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what's this crazy "filmstrip" on my tongue?
« on: July 28, 2007, 06:11:48 PM »
hi guys... i have one question...
since my my epstein-barr virus and diagnosed positive i have a kind of white film on my tongue...
If i clean it with a spoon it's ok... but it appears again either if i drink milk products or if i dont clean it with the spoon.

what is it... i mean i will go to the doc to have a look at it this coming week... but does it have anything to do with hiv? any same experience? I worry a bit

cya
billy
09/07: VL 2.200.000
12/07: Kaletra-Kivexa
01/08: T4 720 VL<50
04/08: T4 1.350 VL<50
09/08: T4 1.465 VL<50
02/09: T4 1.230 VL<50
07/09: T4 1.150 VL<50
12/09: T4 1.110 VL<50
06/10: T4 1.600 VL<50
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Online Miss Philicia

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #1 on: July 28, 2007, 06:22:48 PM »
probably thrush

http://en.wikipedia.org/wiki/Candidiasis

ps:  don't let that picture scare you -- mine was never THAT bad when I had it.  You're doctor will probably prescribe something like Diflucan for it.  Thrush is easy to get in your lower range of cd4's, and I don't recall it being hard to get rid of.  Really not too big of a deal, but they will want to control it if that's what your doctor thinks it is.

edit:  your cd4's are a bit high for thrush (I just quickly glanced at your older postings) but then again mine were not far off from this one time that I had thrush.  Could be something else of course.
« Last Edit: July 28, 2007, 06:26:29 PM by philly267 »
"Iíve slept with enough men to know that Iím not gay"

Offline RapidRod

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #2 on: July 28, 2007, 08:41:03 PM »
Having a white tongue is normal and common. Thrush can happen to anyone at any time. Thrush is painful. You have nothing to worry about.

Offline Matty the Damned

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #3 on: July 28, 2007, 09:49:31 PM »
I agree with Roddles here Billy. A "white tongue" is quite common. It may be thrush. It may not. Smokers, for example, often have white tongues. That's something you should discuss when you see your doctor. If it is thrush, it's very easily treated.

Wackypedia (which has all the credibility of a ranting train station schizophrenic) is really not the best place to get information on medical stuff.

MtD

Offline milker

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #4 on: July 28, 2007, 10:12:36 PM »
You can clean your tongue with a tongue scrapper. I use that one https://store.breathrx.com/product.php?sku=BR1009&skey=74 because it doesn't make me gag like the other ones. If your tongue becomes painful or has scars then get it checked by your dentist or doctor. If it's just a white coating with no pain it's very common, just scrape it away when you brush your teeth.

Milker (who has a strong gag reflex  >:()
mid-dec: stupid ass
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Offline ThePerfectStranger

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #5 on: August 06, 2007, 09:01:51 PM »
While thrush is normal to a certain extent (everyone has it all over their bodies actually) it can and often is a first sign of HIV infection and/or some sort of immune system problem (it is sometimes associated with Hepatitis and various oral infections).  In fact my dentist noticing thrush on my tongue and the top of the mouth back in the early 80's is what led to my discovery that I was HIV+.  It is easily treated with Diflucan or Nystatin and is not considered to be a dangerous or serious infection in and of itself - only an indicator that there may be something more seriously wrong.  Most healthy people's immune system keeps the thrush (aka Candida) in check and have no noticeable signs of it.  If you are continually scraping it off and it is returning that is most definitely an indicator that something in your immune system is not functioning the way it should.  In any case, since you already know you are HIV+ this is very unlikely to be anything serious and may very well be something you will have to cope with from time to time throughout your life (I still get occassional bouts of it despite having had undetectable HIV levels for many years and a very high - at times almost normal and always high CD4 counts).  Just another little problem we HIVers get to deal with in life. Ahhhh big fun eh?

BTW when I had it initially it was not painful per se but my mouth was literally covered with it even on the outsides of the corners of my mouth.  Real pretty let me tell you.

Discuss it with your doc - he/she should prescribe something (Diflucan or Nystatin) that should erradicate the infection within a couple of days at the most.

Best of luck!

Peace!
Brian
(The Perfect Stranger)

BTW - oddly enough it has been recently discovered that a few drops of Nystatin mixed with water can treat and sometimes cure a disease in some finches called Stargazing disease which until now was untreatable and eventually resulted with the bird dying.  I just saved one of my finches after two weeks using that treatment.  Neato huh?
« Last Edit: August 06, 2007, 09:12:25 PM by ThePerfectStranger »

Offline Ann

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #6 on: August 07, 2007, 04:48:29 AM »
As we often get people from the Am I Infected forum reading posts over here, I'd like to clarify Brian's comments (above).

Oral thrush can sometimes be an indicator of hiv infection, but normally only when that infection has already been established for some time. It is not normally an indication of primary hiv infection/seroconversion illness.

ANYONE can get oral thrush. You do NOT have to be hiv positive.

Also, only a DOCTOR or DENTIST can diagnose oral thrush. Just because your tongue looks white to you does NOT mean you have thrush.

If you're worried about your tongue, whether hiv positive or questioning your status, show it to your doctor. It's the ONLY way to know for sure if you have thrush, or simply a white tongue.

Ann
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline ALH300

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #7 on: August 07, 2007, 11:27:33 AM »
If u have EBV you usually get OHL(Oral hairy leukoplakia) and that is probably what you have. I have OHL but not thrush, it is on the sides of my tongue but I do get a coating on the top of my tongue. My doctor said just scrape it of the side and top of my tongue. Everything I have read says you can't scrape it off, but when I do it seems to help. I brush my teeth, then my tongue, then the sides, then I swish with diluted hydrogen peroxide and water, and then listerine. It seemd to keep it in check.
Poz 7-27-07 
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07/13/2007 "Friday the 13th" What was I thinking???
314 CD4 17% 9410 VL
10/03/2007
479 CD4 18% 8220 VL
01/03/2008
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432 CD4 14.4 % 11,830 VL
05/06/2008
480 CD4 15.0% 2630 VL
07/16/2008
361 CD4 16.4% 12,830 VL
10/31/2008
362 CD4 15.5% 2500 VL
Started Atripla 11-17-2008
1/16/2009
395 CD4 20.5% undect. VL
5/05/2009
426 CD4 20.3% undect. VL
9/15/2009
422 CD4 22.2% undect. VL

Offline naftalim

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #8 on: September 14, 2007, 06:46:42 PM »
I had this as well (along with night sweats) which led me to look this up on the Internet and subsequently ask for an HIV test. Turns out I was infected for 6 years already. It was not painful, just irritating. Treated it and it has not been back for over 2 years.

Offline komnaes

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #9 on: September 15, 2007, 12:06:32 PM »
If u have EBV you usually get OHL(Oral hairy leukoplakia) and that is probably what you have. I have OHL but not thrush, it is on the sides of my tongue but I do get a coating on the top of my tongue. My doctor said just scrape it of the side and top of my tongue. Everything I have read says you can't scrape it off, but when I do it seems to help. I brush my teeth, then my tongue, then the sides, then I swish with diluted hydrogen peroxide and water, and then listerine. It seemd to keep it in check.

Hi ALH,

Is OHL what people call "coffee tongue"? I just recently tested positive but I have been having this coating for up to 3 years now, pre-dated my two previously negative tests. I remember I talked to my doctor at the time and he just say, "nothing to worry about, just coffee tongue, stop smoking and brush your tongue a bit more often and it will go away". It never does but it doesn't seem to get worse, and I still smoke.

Thanks, Shaun
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

Offline Ann

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #10 on: September 15, 2007, 01:51:25 PM »
Shuan,

It's not uncommon for a smoker to have a coated tongue. To a certain extent, the white appearance is caused by keratin- it's just the body's way of protecting the tongue. It's true that if you brush your tongue every time you brush your teeth, you won't get such a noticeable coat and your tongue will be healthier in general. I'm a smoker and I've been doing this for years.

And by the way, if you are in the habit of brushing your tongue, you get to know how your tongue feels and you WILL know when you really are getting a case of thrush. Because yes, it does happen, but people have white tongues naturally too.

Ann

 
« Last Edit: September 15, 2007, 01:54:31 PM by Ann »
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Online Miss Philicia

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #11 on: September 15, 2007, 02:15:47 PM »
I'm a smoker and I've been doing this for years.

SHOCKING
"Iíve slept with enough men to know that Iím not gay"

Offline komnaes

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #12 on: September 15, 2007, 10:08:33 PM »
Thanks Ann
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

Offline Tempeboy

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #13 on: September 15, 2007, 11:11:22 PM »
Useful resource regarding HIV and your mouth.

http://www.plwha.org.au/PLWHA/attachments/FS9_OralHealth.pdf

J x
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Offline Ann

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Re: what's this crazy "filmstrip" on my tongue?
« Reply #14 on: September 16, 2007, 07:54:17 AM »
SHOCKING

Philly, darling, are you shocked because I smoke or because I brush my tongue? They're both decadently sensuous oral experiences. ;D

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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

 


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