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Author Topic: another sustiva question..l.  (Read 2015 times)

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Offline RICKY77531

  • Member
  • Posts: 104
  • just Chill
another sustiva question..l.
« on: July 06, 2007, 08:59:24 PM »
I take my meds (truvada and sustiva) at  9.00pm then go to sleep at 1030pm...I feel the effects at about that time...so I have trouble sleeping....would it be wise to change the time i take it to 10 pm...so that I would be asleep (probably) by 1130....if i changed my time...is it critical ...or adjusting the time to an hour would not hurt my regimen....have a docs appointment next week...on meds for a week now, but  am restless at night, maybe thinking of asking the doc for sleep meds...like luvista or whatever it's called, i wake up for work so early  (430am) that i think I would still be groggy from the sleeping pills...any advice???
06/2007   CD4 266  Vl 62000
06/2007   CD4 200  Vl 13495
07/2007   ATRIPLA
09/2007   CD4 323  VL Undetectable
11/2007   CD4 428  VL Undetectable
01/2008   CD4 357  VL Undetectable
04/2008   CD4 357  VL UNDETECTABLE
08/2008   CD4 402  VL UNDETECTABLE
11/2008   CD4 421  79 DETECTABLE..
2/2009     CD4 450  VL UNDETECTABLE

Offline newbie76

  • Member
  • Posts: 238
Re: another sustiva question..l.
« Reply #1 on: July 07, 2007, 04:42:35 AM »
They say you have an hour window either side so changing the time you take your meds within that timespan won't have any adverse effect.
Good luck!
25th Apr 07: The worst day of my life
27th Apr 07: cd4 202 14%
30th Apr 07: cd4 126 18% VL 110000
19th May 07: Started Truvada/Sustiva
20th Jun 07: cd4 218 25% VL 435
13th Aug 07: cd4 374 20% VL 64
20th Dec 07: cd4 435 24% VL <50
20th Oct 08: cd4 725 31% VL <50
30th Nov 09: cd4 725 30% VL <50
01st Nov 10: cd4 755 33% VL<50
11th Nov 11: cd4 754 32% VL<50
01st May 12: cd4 864 40% VL<50
01st May 13: cd4 615 VL 609 :-/
14th May 13: VL <50

Offline aztecan

  • Member
  • Posts: 5,429
  • 29 years positive, 57 years a pain in the butt
Re: another sustiva question..l.
« Reply #2 on: July 07, 2007, 01:30:01 PM »
From what I know of Sustiva/Truvada, it shouldn't hurt to adjust it an hour if you wish.

I also have the sleep issues with it, among other things. I find sleeping after I take it is problematic but that, by mid afternoon, I can sleep like a baby.

Most inconvenient.

I would ask the doc about the sleep aid. It may leave you groggy if you rise at 4:30 a.m.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline bradmeistr

  • Member
  • Posts: 36
Re: another sustiva question..l.
« Reply #3 on: July 08, 2007, 01:03:24 AM »
I just switched from Sustiva to Viramune as i did not like the multiple issues I had with Sustiva.  I never had scarey dreams, but I never felt like had a real reastful nights sleep.  I took Sustiva for a year and  half and wish I had switched earlier.  I use to take my sustiva, right before bed 11:00pm; most mornings I woke up around 3:00am wide wake, and had a hard time getting back to sleep - it sucked!!!.  I also had fairly bad cognitive issues with Sustiva - felt like I was drunk most mornings and could barely concentrate at work.

I never tried a sleep aid - you might try it, but i hate taking more pills to treat side effects.  Sustiva and Truvada was my first regimen and I felt like I had to stay on it and endure the side effects.  If they don't get better over the next three months definitely talk to your doc. 

FYI - most of my friends who are on sustiva have no issues - they are so lucky.

For what it is worth I am really glad i made the switch to Viramune; I'm still on Truvada as well
Sept 2002 tested poz
Started Sustiva and Truvada March 2006 - CD4 just below 300
May 2007 CD4 440

Offline Gary

  • Member
  • Posts: 37
Re: another sustiva question..l.
« Reply #4 on: July 22, 2007, 07:40:19 PM »
i take zopiclone to help me get to sleep. I'm on sustiva and truvada and take em at 9pm, I was having the odd night where I would just lie there for ages or some nights feel like I never dropped off.  There were some nights when the sustiva dizziness helped me doze off but when it was the other way and I couldn't sleep it started driving me mad.
I think zopiclone can be habit forming tho  :-X

Offline David_CA

  • Member
  • Posts: 3,246
  • Joined: March 2006
Re: another sustiva question..l.
« Reply #5 on: July 23, 2007, 04:23:29 PM »
I take my Sustiva (Atripla) in the mornings first thing.  When I took it at night, I took it right before I went to sleep.  I didn't notice any problems with falling asleep doing it this way.  I tried taking it earlier, but that only caused me to feel weird and not able to get to sleep.  Taking it in the morning works best for me (and a few other AM members).  I get the benefit of a really good sleep (like I did pre-meds) and I tolerate the side effects better.  I do take Adderall in the morning too, so maybe that has something to do with how well I tolerate it, but who knows.  As to an hour or so for changing dosing times, it shouldn't be an issue.  Good luck with it.

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline Blixer

  • Member
  • Posts: 712
Re: another sustiva question..l.
« Reply #6 on: July 23, 2007, 08:05:28 PM »
I too take Sustiva in the AM.... usually right around 6 AM.  When I first started on meds over a year ago I had significant insomnia.  So my trials nurse suggested trying them in the morning. It worked for me.   Maybe things will resolve in a few days to week or so since you are just fresh on meds.  I tried Ambien when I first started but it did nothing for me.  Like others have suggested, you can talk to your doctor.  I was a bit hesitant to do much with sleep aids because so many of them were habit forming.  Of course, the side effects seem to impact everyone differently. 

My doctor said that the sustiva stays in your system at high enough levels that changing the time isn't an issue.  When I changed from night to morning he just had me skip the night does and start taking them on the new schedule the next morning.  He also said not to worry about time zone changes when traveling but to just stay on my same dosing schedule.

Best of luck...
« Last Edit: July 23, 2007, 08:07:21 PM by Blixer »
David
Diagnosed 1/9/06
8/27/2007 CD4 598, 29%, VL 58 (72 wks)
11/19/2007 CD4 609, 30%, VL < 50 (84 wks)
2/11/2008 CD4 439, 27%, VL <50 (96 wks)
5/5/2008 CD4 535, 28%, VL <50 (108 wks)
10/20/2008 CD4 680, 28%, VL <50 (132 wks)
Changed to Atripla in 2012
1/14/2013 CD4 855, 35%, VL <40

Offline appleboy

  • Member
  • Posts: 344
  • Just me!
Re: another sustiva question..l.
« Reply #7 on: July 24, 2007, 07:52:33 AM »
I too have switched to AM dosing.  Now I am not sure I would suggest it if just starting due to the dizziness.  Right now I appear to be adjusting well to the morning dose and notice sleep is a lot better at night.
If you are walking down the street and your pants drop to your ankles bend over pick them up and keep on walking!
My Blog

Offline ubotts

  • Member
  • Posts: 347
Re: another sustiva question..l.
« Reply #8 on: July 24, 2007, 10:03:59 AM »
i STARTED ON SUSTIVA AND HAD REALLY SCAREY DREAMS THAT SEEMED
SO REAL..I GOT THOUGH THAT PART, BUT EATING AT NIGHTIME ALWAYS
HELPED ME UNWIND..BUT YOUR SUPPOSE TO TAKE SUSTIVA ON AN EMPTY STOMACH..WELL HONI,, MY STOMACH WAS NEVER EMPTY AT NIGHT..
AFTER A FEW MONTHS THEY DID A PANEL TEST AND IT SHOWED THAT
SUSTIVA WASNT WORKING ANYMORE..PROBABLY DUE TO MY EATING HABITS.
SO I GOT SWITCHED TO KALETRA AND TRUVADA..SO FAR SO GOOD, I GO TO
SEE MY DOCTOR THIS THURSDAY FOR BLOOD WORK.. HOPE ALL IS WELL, BECAUSE I FEEL FINE..JUST HOPE THERES NOT AS MUCH SIDE EFFECT AS THE OTHER PILLS CAUSED..YOU KNOW..FAT BELLY, SKINNY ARMS N LEGS..DAMN
I LOOK LIKE HUMPY DUMPY..OTHER THAN THAT, I FELL GREAT, BUT DONT LOOK GOOD IN A BIKINI ANYMORE.. :'(
Live Love Laugh and dance like no ones watching.
Laughter is the best medicine, so try to have a laugh everyday..Even if your not feeling your best, think about something that was funny at one time in your life and work with it..   :o)

 


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