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Author Topic: needles and pins  (Read 1704 times)

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Offline joemutt

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  • Posts: 1,051
needles and pins
« on: June 30, 2007, 05:38:26 AM »
For a month, and not every day, I feel this discomfort (it's not really pain) where my back goes over to my neck. It's like very distinct needlepricks, a lot at a time, At the same spot I have some fatty deposit, so I wonder if it's got to do something with neuropathy and lipo.
I ask it here because my doctor has a tendency to say I'm fine at every  question I ask.
(I understand that, my cd4 numbers are good, and I have access to a lot of care in a country - Thailand- where this is not universal.)
Has anyone else got experience with this? Thanks for your feed back  :-*

Offline FiercenBed

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Re: needles and pins
« Reply #1 on: June 30, 2007, 01:24:50 PM »
dude....not being a doc but suffering from the same thing in my leg it sounds like neuropathy. i have the same doc problem. "ur fine, ur overreacting, or my favorite, well keep an eye on that. i dont know what ur insurance is, but if ur unhappy with ur current docs diagnosis go see a neurologist. my doc said my shoes were too tight. dumbass. went to a neurologist and got a neuropathy  diagnosis. good luck!

Offline bear60

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Re: needles and pins
« Reply #2 on: July 01, 2007, 05:04:51 PM »
"said my shoes were too tight"..quote .fierce
It could in fact be that wearing a different kind of shoe will help.  My partners doctor recommended a special shoe made by "SAS" shoes.  They are made for people who have to be on their feet a lot  (like nurses) I believe.  Now that is the only shoe he will wear.  The" pins and needles" are very real.  But it seems that treatment with drugs alone is not the answer.....you also have to deal with the shoe style.
Poz Bear Type in Philadelphia

Offline Miss Philicia

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Re: needles and pins
« Reply #3 on: July 01, 2007, 08:28:54 PM »
In my experience neuropathy is confined to one's limbs, not the back/neck area that the original poster has described in this thread.  Hence why the actual name is "Peripheral Neuropathy."  It's generally associated with the NRTI class of HIV medications.
"Iíve slept with enough men to know that Iím not gay"

Offline atxpozguy

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  • POZ+ 32 year milestone reached for Austin man
Re: needles and pins
« Reply #4 on: July 01, 2007, 11:47:36 PM »
Doctors that tell hiv patients that the needles and pin feeling is only in your head should lose their medical license.  ::)

From day one when my neuropathy began, both of my doctors knew right off the bat that it was neuropathy. It's a known fact that most people who suffer from neuropathy can't wear socks and most shoes, especially tenni shoes.

I can recall many episodes of neuropathy that hurt so bad, I cried because it felt like I was walking on broken glass barefooted, then soaking my feet in a tub of rubbing alcohol. Although, my neuropathy has gotten better as far as pain levels, it has moved from my feet up both legs above my kneecap. When it strikes, it does hurt, no denying that one bit. I usually take up to 3- 5 pills of 10/235 hydrocodone for pain depending how bad it gets.  :(

32 years poz LTS with no expiration date

Diagnosed HIV 1982
Diagnosed AIDS 2001

As of June 2015, VL <20 CD 435 26%

Currently taking a daily total of 17 meds while only two meds for AIDS, the rest for other body organs effected by years of retrovirals. Diagnosed with Lung Cancer 2012, COPD Stage 4 2015, IBS 2013, Chronic Cystitis, Chronic Renal Failure, Hearing Loss, Depression and everyday comes with different health episodes which has sent me to the Er via EMS on a regular basis.  My quality of life has been impacted dramatically.


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