Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
December 22, 2014, 07:29:11 AM

Login with username, password and session length


Members
Stats
  • Total Posts: 650142
  • Total Topics: 49630
  • Online Today: 180
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Getting AIDS diagnosis after 1 year of infection?  (Read 3167 times)

0 Members and 1 Guest are viewing this topic.

Offline cokaine

  • Member
  • Posts: 42
  • I AM THE ORIGINAL DIVA, okaaayy
Getting AIDS diagnosis after 1 year of infection?
« on: June 21, 2007, 01:57:06 PM »
I am concerned and baffled about this "virus strain" deal.

I was infected in December 2004 and was diagnosed in December 2005. My numbers were in the 100's. I tested negative On July 2004 for HIV and have so every 6 months prior to that.  My VL was in the 30k when diagnosed 12/05 and I started my HAART regimen immediately. Since then slowly my numbers have climbed to the 400's and VL is undetectable.

Before getting my first lab results my doctor explained to me that I was going to most likely be on meds within 5-10 years depending on how fast the virus progresses. He also mentioned very few people get below the 200 CD4 count in less than 2 years. He was almost certain that since I tested negative a year prior my numbers would look ok. After receiving my lab results I had an AIDS diagnosis. The doctor told me that I had a potent strain and that my body was not fighting the virus well on its own. So i assumed that without HAART I would not be alive for long. He continued to say that perhaps my body prior to HIV infection already had low numbers of CD4 counts. But I am baffled. Is having a potent strain kill quicker?

Offline Miss Philicia

  • Member
  • Posts: 24,520
  • celebrity poster, faker & poser
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #1 on: June 21, 2007, 02:12:50 PM »
HIV is different in every person. I suspect genetics comes into play.
"Iíve slept with enough men to know that Iím not gay"

Offline Peter6836

  • Member
  • Posts: 391
  • Me and my Granddaughter Noa
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #2 on: June 21, 2007, 02:30:42 PM »
Philly is right HIV is different for all people. I too tested negative one year then the next received an AIDS diagnosis. Just keep going and fight on. Life is still full of many wonders, take each day and experience it. Do not look at things negatively.
Peter

Offline J220

  • Member
  • Posts: 587
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #3 on: June 21, 2007, 04:54:38 PM »
I concur with Philly, and this goes to the heart of the matter about how HIV affects every person differently. There are a lot of studies out there and much progress is being made as to why some people can stay off meds for years and years, and others need them sooner. I don't necessarily think it has to do with a particular strain or mutation of the virus, as much as with some of the apparently inherent individual factors such as PD-1, TAT antibodies, or other biochemical processes that seem to affect disease progression. So as Peter says, don't feel bad that you needed meds quickly (I too had to start after 1.5 years), the important thing is how your body responds to treatment, which if done properly, will keep us all alive and healthy for decades to come and/ or until a cure is found. And yes, I feel confident that a cure will be found. Cheers, J.
"Hope is my philosophy
Just needs days in which to be
Love of Life means hope for me
Born on a New Day" - John David

Offline Matty the Damned

  • Member
  • Posts: 12,244
  • Ninja Please
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #4 on: June 21, 2007, 05:01:24 PM »
Hey Coke!

Matty the Damned was diagnosed with HIV in May 2002 and was the owner of a bright and shiny AIDS diagnosis in April of the following year.

MtD

Offline Queen Tokelove

  • Member
  • Posts: 6,033
  • Smokey the Smurf
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #5 on: June 21, 2007, 06:29:58 PM »
I agree with the rest of the crew, it does affect us differently. I was diagnosed in '97 and has not been on meds at all. The lowest my cd4 has been was 261 in March. I was prepared  to start meds cause I thought it would get lower but rebounded to 340 in June. I guess I have a mild strain but realizes that my body is still fighting. I know the day will come when I will be diagnosed with AIDS.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline otherplaces

  • Member
  • Posts: 398
  • Mutant Super Hero
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #6 on: June 21, 2007, 08:48:18 PM »

Just over a year after infection I had to start meds.  It's just different for us all.  Whether it's the strain of virus or the body type...who knows!  My CD4's hopped around like crazy and then just crashed, but now I'm undetectable and doing well, feel good physically.  While my cd4's fell fast, on the other hand I tolerate my meds EXTREMELY well.  Win some, lose some.  I guess I just take my health at face value...feel good, undetect....on we go.

best,
brian


Offline madbrain

  • Member
  • Posts: 1,208
  • No longer an active member
    • My personal site
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #7 on: June 21, 2007, 10:36:43 PM »
My bf tested negative in mid-April 2006, and I did so in June. On november 2, he tested positive, and had an AIDS diagnosis as well, due to only 13% CD4 :-( He is on meds now. I tested positive at the same time. We both had low VL when diagnosed, but he also had low CD4 unlike me. We both have the same virus and no drug resistance. We both got it around the same time. FWIW, I believe I infected him, not the other way around, but have no way to be certain. My doctor said it was most likely genetics that caused him to gets AIDS so quickly, and not me.

Offline David_CA

  • Member
  • Posts: 3,246
  • Joined: March 2006
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #8 on: June 21, 2007, 11:04:10 PM »
There doesn't seem to be a whole lot of rhyme or reason to it.  I was diagnosed HIV+ in March '06 and got my AIDS designation in November.  My T-cell count and percentage were both higher than my husband's were.  Being that we live and sleep together and spend lots of time together, we had to have been exposed to the same bacteria, but I'm the one who ended up with PCP.  He ended up with a lot of stress and worry; I'm not so sure which of us was better off during that time.

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline bimazek

  • Member
  • Posts: 781
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #9 on: June 22, 2007, 12:50:37 AM »
cokaine
the virus changes slightly in everyone that is not on meds every three days, so the body has to fight a slightly new version, this is not a new strain, but if lots of changes happen then a new strain emerges, many peolple who use cocaine and tina get really bad numbers very fast because it hurts thier bodies, i personally had a new poz buddy, who went the route of tina and now he has lost many front teeth and looks like he has been poz for ten years in one year, it breaks my heart and upsets me,

keep taking meds, rest alot, eat right, sleep, exercise and your numbers will go up

dont do the really bad things

give yourself a break


Offline grubby

  • Member
  • Posts: 20
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #10 on: June 22, 2007, 05:59:59 AM »
i was diagnosed in dec 2004 and started meds in june 2007,my bf who i was infected by was med free for 15 years until this year.i guess there are no answers as to why and trying not to sound glib about it i realised that i was stressed and overworked just prior to starting meds,graham

Offline dixieman

  • Member
  • Posts: 889
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #11 on: June 22, 2007, 10:28:03 AM »
There are so many different factors to consider? Now if had not start taking meds... I probally would not be here typing this today... figure? and I've known people whove never had to take meds for years on end... and a few still don't...

Offline AustinWesley

  • Member
  • Posts: 815
    • HIV Discussion Group on Myspace!
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #12 on: June 22, 2007, 12:51:06 PM »
I am concerned and baffled about this "virus strain" deal.

I was infected in December 2004 and was diagnosed in December 2005. My numbers were in the 100's. I tested negative On July 2004 for HIV and have so every 6 months prior to that.  My VL was in the 30k when diagnosed 12/05 and I started my HAART regimen immediately. Since then slowly my numbers have climbed to the 400's and VL is undetectable.

Before getting my first lab results my doctor explained to me that I was going to most likely be on meds within 5-10 years depending on how fast the virus progresses. He also mentioned very few people get below the 200 CD4 count in less than 2 years. He was almost certain that since I tested negative a year prior my numbers would look ok. After receiving my lab results I had an AIDS diagnosis. The doctor told me that I had a potent strain and that my body was not fighting the virus well on its own. So i assumed that without HAART I would not be alive for long. He continued to say that perhaps my body prior to HIV infection already had low numbers of CD4 counts. But I am baffled. Is having a potent strain kill quicker?

Hey Coke,

I completely understand how you feel.   Same thing happened to me although I still wonder if there was a lab error.  When my CD4 came up at 139 less than a year after diag. I was totally stressed out.   It seemed very surreal to me because I didn't look or feel sick at all.   It's wierd to me because some people I know have amazing olympic counts yet they have been sick or look to me like they have AIDS.

Since starting meds I went to Undectectable the first month and my counts have been climbing ever since.  I feel fine and I'm thankful I don't have any serious issues.   

Ironically, the guy I'm dating has had always way high CD4s and was showing Undectectable without any meds.   However, he has been sick in the past and was in the hospital at one point. 

It's all such a big numbers game and now I am not really playing it anymore.   I don't think any of these doctors know what the Hell they're talking about anymore either. 

I sort of look at it this way.   I'm not sick and don't look like I'm dying so I don't dwell on wondering why anymore.   I have to agree with what another poster said at least I don't have any issues tolerating the meds.

And I know several people who were diagnosed with AIDS 10 and 20 years ago that are doing just fine.   Hopefully the future will bring newer and better treatments.   In the meantime I just want to get on with life and have moved past that point finally.

Luckily, the meds work well so hang in there. 

Wesley
Diag. 3/06  Infected aprx. 2 mo. Prior
Date        CD4   %      VL
4/6/06     627    32    36,500     NO MEDS YET!
6/7/06     409    27    36,100
8/23/06   408    25     22,300
1/2/07     354    23     28,700
2/9/07     139    30     23,000  Hep A Vaccine same day???
2/21/07   274    26     18,500 
3/3/07    RX of Truvada/Sustiva Started.
4/5/07    321     27      Undectable 1st mo.  
5/16/07  383     28    Undectable 2nd mo.
8/10/07  422     32   UD <48 on new scale!

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #13 on: June 22, 2007, 01:40:19 PM »
Hey Coke

snif snif j/k

The good news is your meds are working really well. Keep taking them and try not to miss a dose, you will live a long time. I hope your name has to do with a love for soda????????????????

All the Best!
Positive since 1985

Offline Carolann

  • Member
  • Posts: 233
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #14 on: June 24, 2007, 08:53:17 PM »
Cokie,

One thing you need to remember is that a lot of people when initially infected may have their CD4 count drop below 200.  This can happen when newly infected because your body is newly dealing with the virus.  Often your body adjusts and jumps back into a normal or nearly normal range. 

The sad thing about an AIDS diagnosis is that it is forever.  The reason has much to do with protecting people living with HIV.  You don\'t want a person losing certain benefits when his or her health improves. 

Don\'t get hung up on the \"diagnosis\" or assume that you have some \"super bug\".   It sounds like you are doing well on your meds.

Interesting monicker name.  Before anyone gives you a hard time, my favorite perfume is \"Opium\" and believe it or not, there was much controversy surrounding the use of that name.

Take care,

Carolann

Offline Oceanbeach

  • Member
  • Posts: 3,565
Re: Getting AIDS diagnosis after 1 year of infection?
« Reply #15 on: June 26, 2007, 10:22:19 PM »
Hi Cocaine,

I guess we should add my name to the list... I tested positive in December 1994 but went through seroconversion a few months prior to that.  I had been tested every July and every December for several years.  Today is my 11 year anniversary of AIDS diagnosis.

Healthcare was offered in December 1994 but I was too busy trying to save the working world, one company at a time.  Disability was offered immediately following my HIV+ diagnosis but I refused that as well as treatment.

I found myself not being able to walk a city block without resting for at least 20 minutes and 11 years ago, I was admitted into the AIDS ward at St. Mary's with PCP.  I sometimes wonder if had I accepted early treatment, would I still be working?  Hell, save the working world, I can't even save myself.  Have the best day
Michael

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.