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Author Topic: Latest results ("My Way" works again)  (Read 2835 times)

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Offline gemini20

  • Member
  • Posts: 262
Latest results ("My Way" works again)
« on: June 11, 2007, 08:50:59 AM »
So it's been two months since I last saw my doctor as he thought the longer gap between appointments would show even more immune system damage and I would see the error of my ways and jump back on the treatment bandwagon. What he didn't realise is that Emma thrives on a challenge and was determined to prove him wrong.

So operation "My Way" began as soon as I left the clinic back in April and today was D-Day when the results came in. I have been perfectly well over the last couple of months so I was hoping that this might have been reflected in the numbers but experience tells me that this is often not the case!

Well initially the results didn't come in - someone somewhere in a lab decided that because I wasn't on treatment they didn't need to do all the tests - mini meltdown by me on hearing this news, bollocking of manager by my doctor and after an hour's wait the results were phoned through.

So my t-cells have gone up slightly from 177 to 210 (% from 12.2 to 12.6) and viral load has gone down from 24,022 to 16,807 - nothing statistically significant I know but psychologically just getting back over 200 is a boost to doing it "my way".

And what this all means is I get to add at least another two months to my ever extending time off meds - yippee!

One very relieved and happy person in London.  :)

Emma




Diagnosed 11th September 1991
Current CD4 count 484 (26%); viral load undetectable (December 2011).
Restarting boosted Prezista 08/04/11

Offline leatherman

  • Member
  • Posts: 6,337
  • Google and HIV meds are Your Friends
Re: Latest results ("My Way" works again)
« Reply #1 on: June 11, 2007, 09:26:11 AM »
WooHoo Emma!

I know those results maybe "statistically IN-significant" but anytime the numbers are moving in the "right" direction is a time to be happy. :D Now don't forget to make those changes to your signature line. ;)

mikie
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline allopathicholistic

  • Member
  • Posts: 3,258
Re: Latest results ("My Way" works again)
« Reply #2 on: June 11, 2007, 09:28:34 AM »
It's like a song too! Congratulations and continued goodness

Offline dad1216

  • Member
  • Posts: 135
Re: Latest results ("My Way" works again)
« Reply #3 on: June 11, 2007, 09:54:38 AM »
Emma,

Great news.......I knew you could do it!!!

Once again you inspire me....

Bob

23 years HIV+ (Oct 88)
11 years AIDS (March 00)

CD4=83  VL=47,000  (May 2011)
CD4=63  VL=78,470  (Oct 2010)
Prezista..Norvir..Truvada

Offline Robert

  • Member
  • Posts: 2,649
Re: Latest results ("My Way" works again)
« Reply #4 on: June 11, 2007, 10:02:23 AM »
Oh emma.....

what a great way to start the day.  It's only 7A here and already I know it's just going to be a great day!  Thanks.  I can never get enough of these.

robert
..........

Offline aztecan

  • Member
  • Posts: 5,430
  • 29 years positive, 57 years a pain in the butt
Re: Latest results ("My Way" works again)
« Reply #5 on: June 11, 2007, 10:14:17 AM »
Good for you dear. Keep up the good work!

HUGS,

Mark

(Who doesn't think Emma looks a bit like Sinatra.)
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline RapidRod

  • Member
  • Posts: 15,288
Re: Latest results ("My Way" works again)
« Reply #6 on: June 11, 2007, 10:20:32 AM »
Anytime my numbers move up I jump for joy. Keep it up.

Offline sweetasmeli

  • Member
  • Posts: 1,052
  • Love what you are...
Re: Latest results ("My Way" works again)
« Reply #7 on: June 11, 2007, 10:46:17 AM »
That is FANTABULOUS news Emma! Definitely worthy of a big WOOHOO!!! ;D

Whatever you're doing, keep on doing it.

Hugs
Melia xxx
/\___/\       /\__/\
(=' . '=)    (=' . '=)
(,,,_ ,,,)/   (,,,_ ,,,)/ Cats rule!

The difference between cats and dogs is that dogs come when called, whereas cats take a message and get back to you.

Yeia kai hara (health and happiness) to everyone!

Offline fondeveau

  • Member
  • Posts: 425
Re: Latest results ("My Way" works again)
« Reply #8 on: June 11, 2007, 10:53:14 AM »
I don't know your history with treatment.  I presume it was a very bad experience for you.  If it isn't too personal, could you post more regarding your reasons that you prefer not to treat?

I am glad you are doing well with your current lack of treatment and hope that you continue to be blessed with good health.

Offline frenchpat

  • Member
  • Posts: 516
  • Love your friends, don't eat them.
Re: Latest results ("My Way" works again)
« Reply #9 on: June 11, 2007, 11:32:48 AM »
Emma,

I am happy for you!

Pat :-*
People have the power - Patti Smith

Offline Longislander

  • Member
  • Posts: 2,486
Re: Latest results ("My Way" works again)
« Reply #10 on: June 11, 2007, 01:28:40 PM »
Good news Emma! Good for you ;D
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline gemini20

  • Member
  • Posts: 262
Re: Latest results ("My Way" works again)
« Reply #11 on: June 11, 2007, 02:24:05 PM »
A quick update for Fondeveau and anyone else who might be wondering why I'm choosing not to be on treatment.

Having been infected for over 16 years now I know my body extremely well and I have been blessed with excellent health throughout most of this time except a minor blip in 2003 when I got pneumonia and shingles.

I initially tried treatment in 1999 - Abacavir, Lamivudine (3TC) and Sustiva (efavirenz) was my first cocktail. Within 5 days I was hospitalised due to the allergic reaction to Abacavir. That got dropped and d4T replaced it but after 4 months of dealing with side effects I quit because for me it will always be more about quality of life than quantity.

I went back on a third cocktail in April 2004 - Lamivudine (3TC); Tenofovir; Atazanavir; and Ritonavir because my t-cells had spent a year under 200 and doc was concerned that they were falling at a faster rate.

Side effects were not as severe this time around but they still impacted on my quality of life. After 18 months I found my adherence to the meds was getting less and less so I  chose to stop them all. I only went back on septrin earlier this year when my t-cells went below 200 and I will continue to take that three times a week.

I have personally chosen not to go back on HIV treatment because at the moment my quality of life could not be any better and I am not prepared to compromise that when I currently have no health problems whatsoever except a low cd4 count. If or when that changes then I may adjust my thinking accordingly.

Hope that explains where I'm coming from.

And now I'm off to pour myself a glass of champagne to have with my strawberries as a mini-celebration at my improving numbers - your good health everyone!

Emma

Diagnosed 11th September 1991
Current CD4 count 484 (26%); viral load undetectable (December 2011).
Restarting boosted Prezista 08/04/11

Offline Robert

  • Member
  • Posts: 2,649
Re: Latest results ("My Way" works again)
« Reply #12 on: June 11, 2007, 04:58:42 PM »
well, emma, if you don't mind....i'm going to have freshly whipped cream with my strawberries...with one of my homemade chocolate cookies crumbled on top.   ;D

..........

Offline ds4146

  • Member
  • Posts: 317
Re: Latest results ("My Way" works again)
« Reply #13 on: June 11, 2007, 05:16:42 PM »
Quality over quantity is my biggest motivator for also not taking treatment, and so far it is working. I am so happy that it is working for someone else as well, inspirational fuel for my decision. Thank you for sharing.

Offline anniebc

  • Member
  • Posts: 5,956
  • AM member since 2003
Re: Latest results ("My Way" works again)
« Reply #14 on: June 11, 2007, 06:49:09 PM »
Good news is always welcome..well done Emma, fingers crossed those numbers keep rising.

Hugs
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Matty the Damned

  • Member
  • Posts: 12,244
  • Ninja Please
Re: Latest results ("My Way" works again)
« Reply #15 on: June 11, 2007, 07:38:24 PM »
Matty the Damned is so pleased to hear you're holding your own Emma.

:-*

MtD

Offline Queen Tokelove

  • Member
  • Posts: 6,033
  • Smokey the Smurf
Re: Latest results ("My Way" works again)
« Reply #16 on: June 11, 2007, 08:04:09 PM »
Congrats on those numbers. I always believe you should do what's best for you. My ID doc is quick to tell me he's just a doctor, not God which sometimes we expect them to know everything when no one knows you better than you. Keep up the good work..
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Latest results ("My Way" works again)
« Reply #17 on: June 12, 2007, 02:16:57 AM »
Way to go Emma...You continue to amaze!

But then again, you are an amazing woman.
xoxo
Positive since 1985

Offline Central79

  • Member
  • Posts: 527
Re: Latest results ("My Way" works again)
« Reply #18 on: June 13, 2007, 04:58:09 AM »
Hey Emma

Congratulations on the great results and another two months med free. Operation "My Way" made me laugh out loud. This is for you:

http://youtube.com/watch?v=sEbgB6X6S5c

Although, listening to the lyrics I'm not sure it's really very appropriate to your excellent health and determination. Calling pneumonia and shingles a "minor blip" is a measure of that.

All the best,

M.
Diagnosed January 2006
26/1/06 - 860 (22%), VL > 500,000
24/4/06 - 820 (24.6%), VL 158,000
13/7/06 - 840 (22%), VL 268,000
1/11/06 - 680 (21%), VL 93,100
29/1/07 - 1,020 (27.5%), VL 46,500
15/5/07 - 1,140 (22.8%), VL not done.
13/10/07 - 759 (23.2%), VL 170,000
6/11/07 - 630 (25%), VL 19,324
14/1/08 - 650 (21%), VL 16,192
15/4/08 - 590 (21%), VL 40, 832

Offline lucas clay

  • Member
  • Posts: 518
Re: Latest results ("My Way" works again)
« Reply #19 on: June 13, 2007, 09:20:57 AM »
Your good news just made my morning.

 


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