Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
October 25, 2014, 11:21:19 AM

Login with username, password and session length


Members
  • Total Members: 23785
  • Latest: corydon
Stats
  • Total Posts: 643536
  • Total Topics: 48966
  • Online Today: 191
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Family Disclosure  (Read 1635 times)

0 Members and 1 Guest are viewing this topic.

Offline pozinbama

  • Member
  • Posts: 74
Family Disclosure
« on: June 13, 2007, 09:37:39 AM »
Well I disclosed to some of my family over the weekend so I thought I'd tell you all about it. My mother died when I was a kid and my father is not a part of my life so I don't have many to tell. But I have my Grandfather who raised me after my mom died and one younger brother so I decided to tell them. I've known for more than 6 months now (how time flies....) and I'm tired of not being able to talk about the things that are going on in my life, such as all the doctor visits and such. So i made a 13 hour road trip because I didn't want to do it on the phone.

It was harder to say the words "I have Hiv" than I thought it would be to them. As I was about to do it I found myself not wanting to scare them into thinking I'm going to die right away or anything. That was what kept running through my head, not wanting to worry them. But I wanted to get it out. So I found myself giving them the it's a Chronic Disease sort of like Diabetes speech. I explained a bit to them about about Viral Load and Tcell numbers, that mine were undetectable and around 400 respectively, and what those numbers mean. And we talked about how I'm on meds and how I just need to stay on top of them and doctor visits and I'll probably die of some other normal random thing. Only time will tell of course, but that is how I ended up explaining it to my family.

It was also important for me to tell my Grandfather because he is 75 and a cancer survivor. He had colon cancer, and went through chemo and everything, but has been free of it for 5 years now. They say that I take after him, so I wanted him to know that he gives me hope because I know he has a strong body and will that helped him overcome his disease. And he knows about being sick, both from a disease and from the treatments for it as well. I think he appreciated the fact that I confided in him about it in that way.

Of course they were both sorry to hear the news. But they both offered their support in any way that they could. That they would take care of me "if it ever comes to that". Hopefully I won't ever have to rely on them for anything, but it's good to know that I can. I'm lucky to have a younger brother like I do, he is a good guy. I feel bad for having to burden them with news like this, but I do feel better that it is out in the open now and I don't have to lie or not tell them about my life. It was hard to do, but I'm glad I did it.

thanks for listening,
and have a good day,
Steven

Offline David_CA

  • Member
  • Posts: 3,246
  • Joined: March 2006
Re: Family Disclosure
« Reply #1 on: June 13, 2007, 09:49:53 AM »
Way to go!  It's good (for you) that you were able to disclose, since it was bothering you.  If it's one less thing for you to worry about, then that right there is a benefit.  It's so easy to practice the disclosure, but damned if it's not hard to do when one's right there, with the family, about to do it.  I was in the same situation of not wanting to 'lie' but not wanting to scare my family.  My mom was kind of upset that I felt that I couldn't disclose to her, but I really should have known that it would be ok.  Generally, I think everybody involved benefits, when the family is understanding, from the honesty of disclosing.  It always makes me happy when people are able to disclose something like HIV to their close family.  Take care.

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline bear60

  • Member
  • Posts: 4,104
Re: Family Disclosure
« Reply #2 on: June 13, 2007, 09:59:58 AM »
I think disclosing to my family has brought us a little closer. I wish you well and hope the results are positive for you.
Poz Bear Type in Philadelphia

Offline J.R.E.

  • Member
  • Posts: 7,218
  • Joined Dec-2003 Living positive, since 1985.
Re: Family Disclosure
« Reply #3 on: June 13, 2007, 10:13:10 AM »


That's great Steven. I know how difficult this probably was, but it certainly is a relief. I have stated this before, I'll say it again, I never regretted disclosing to my family. They have always been supportive, and I believe I couldn't have made it this long, without their support.



Take care-----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline keyite

  • Member
  • Posts: 514
Re: Family Disclosure
« Reply #4 on: June 13, 2007, 10:36:44 AM »
Disclosing to my parents is something I continue to struggle with. We're not particularly close but I know they do love me and that I'd be inflicting an awful lot of pain if I told them. My mum in particular is going to struggle with this. But I've underestimated her before and I know nothing good ever comes from keeping people in the dark. I will be flying out to see them in August and your story certainly gives further food for thought...

Offline woodshere

  • Member
  • Posts: 1,477
  • ain't no shame in my game
Re: Family Disclosure
« Reply #5 on: June 13, 2007, 10:39:39 AM »
How great this is for you. It encourages me to finally take this step. The words "I'm HIV positive" have been on the tip of my tongue a couple of times, but I chicken out.  Next time I will let your experience inspire me to say them.

Thanks for sharing,
Woods
"Let us give pubicity to HV/AIDS and not hide it..." "One of the things destroying people with AIDS is the stigma we attach to it."   Nelson Mandela

Offline englishgirl

  • Member
  • Posts: 387
  • ACT NOW TO CAMPAIGN AGAINST THE TRAVEL BAN
Re: Family Disclosure
« Reply #6 on: June 13, 2007, 04:00:55 PM »
im very proud of you and glad it went well xxx
ACT NOW TO CAMPAIGN AGAINST THE TRAVEL BAN:
http://campaigning.tht.org.uk/cms/cmsloader?WfJVLp&view=11,301,1385,0,-html

http://forums.poz.com/index.php?topic=17352.0


"I'm not keen on the idea of the afterlife - not without knowing who else will be there and what the entertainment will be. Personally I'd rather just take a rest." Oscar Berger, PWA: Looking AIDS in the Face, 1996. RIP.

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.