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AIDSmeds/POZ Community Forums  |  Main Forums  |  Living With HIV  |  Topic: Why does this HIV chart bother me? 0 Members and 1 Guest are viewing this topic. « previous next »
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Author Topic: Why does this HIV chart bother me?  (Read 2632 times)
thirtysomething
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« on: May 22, 2007, 11:40:46 pm »

I'm kinda pissed off with the term 'Death' !

Infected: sometime between Sep 2005 - Feb 2006
02/11/2009 - CD4 - 750 || CD4% - 28 || Viral Load 3000 Not on Meds yet!
05/28/2007 - CD4 - 1140 || CD4% - 42.6 || Viral Load 734
01/23/2007 - CD4 - 1300 || CD4% - 47    || Viral Load  97
10/23/2006 - CD4 - 1214 || CD4% - 48.7 || Viral Load  < 50
07/01/2006 - CD4 - 1392 || CD4% - 43    || Viral Load  90
06/13/2006 - CD4 - 946   || CD4% - 46    || Viral Load < 400
03/19/2006 - CD4 - 974   || CD4% - 40      || Viral Load < 400
matty.the.damned
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« Reply #1 on: May 22, 2007, 11:47:50 pm »

Why? You ain't gonna live forever doll.

MtD
(Who thinks it doesn't matter what kills ya, ya still end up dead)

Religion controls the weak, stupid and criminal minded in ways that threats of jail or community service cannot.

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northernguy
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« Reply #2 on: May 23, 2007, 12:08:42 am »

As MtD points out, every living thing's "life chart" is going to end in death.  That's a chart showing untreated HIV progression, right?  So we have treatments, that will extend that.  Even if there was a cure tomorrow, we're still all going to die sometime.

Apr 28/06 cd4 600 vl 10,600 cd% 25
Jul 21/06 cd4 800 vl 9,400 cd% 19
Oct 21/06 cd4 580 vl 3,470 cd% 24
Jan 14/07 cd4 560 vl 16,400 cd% 21
Apr 14/07 cd4 620 vl 10,200 cd% 24
Jul 22/07 cd4 820 vl 4,390 cd% 20
Oct 21/07 cd4 760 vl 12,400, cd% 19
Jan 27/08 cd4 700 vl 14,200 cd% 22
Jun 30/08 cd4 820 vl 23,250 cd% 21
Oct 26/08 cd4 830 vl 24,950 cd% 23
Feb 28/09 cd4 660 vl 39,301 cd% 22
Jun 14/09 cd4 480 vl 17,182 cd% 20
Sep 22/09 cd4 580 vl 45,500 cd% 16
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
No meds...yet
leatherman
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« Reply #3 on: May 23, 2007, 12:11:33 am »

Just curious, where did you get that graph and what year is that data based on?

On a lighter note, how come my graph doesn't look like that? LOL I didn't get any of that nice "latency" period, my OI came way too early, and I've already missed my death (by that chart) by a couple of years.


leatherman (aka mIkIE)

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StrongGuy
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« Reply #4 on: May 23, 2007, 12:14:02 am »

I wouldn't fret over the chart. It's just showing the average progression of the disease WITHOUT treatment. We all know some progress much faster, and some it takes much longer without meds.

You can't sugarcoat the progression of the disease sans meds. It's a good reminder to keep on top of your health and take a serious look at starting meds when the time is right -- because the progression is what is if you don't get treatment.

Smiley

"Get your medical advice from Doctors or medical professionals who you trust and know your history."

"Beware of the fortune teller doom and gloomers who seek to bring you down and are only looking for company, purpose and validation - not your best physical/mental interests."

"You know you all are saying that this is incurable. When the real thing you should be saying is it's not curable at the present time' because as we know, the great strides we've made in medicine." - Elizabeth Edwards
milker
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« Reply #5 on: May 23, 2007, 12:15:23 am »

This chart is showing what 90% of people go through when infected. It shows the acute infection, then the stabilization, then the slow death of cd4s and regrowth of the virus, and death if untreated. The "after balance to death" period was about 10 years for most people.

If you're on meds, this is not relevant.

Milker.

mid-dec: stupid ass
mid-jan: seroconversion
mid-feb: poz
mar 07: cd4 432 (35%) vl 54000
may 07: cd4 399 (28%) vl 27760
jul 07: cd4 403 (26%) vl 99241
oct 07: cd4 353 (24%) vl 29993
jan 08: cd4 332 (26%) vl 33308
mar 08: cd4 392 (23%) vl 75548
jun 08: cd4 325 (27%) vl 45880
oct 08: cd4 197 (20%) vl 154000 <== aids diagnosis
nov 2 08 start Atripla
nov 30 08: cd4 478 (23%) vl 1880 !!!!!!!!!!!!!!!!!!!!!!!!!!
feb 19 09: cd4 398 (24%) vl 430 getting there!
apr 23 09: cd4 604 (29%) vl 50 woohoo Cheesy Cheesy
jul 30 09: cd4 512 (29%) vl undetectable Cheesy Cheesy

Now accepting applications from blowjob ninjas™
thirtysomething
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« Reply #6 on: May 23, 2007, 01:05:42 am »

I know I'm going to die someday, but while looking at the chart..something clicked in my mind that I'm going to die of HIV (though that might not be true.. I might die of something else as well), and I guess I just got pissed off thinking of past mistakes and this closeted faggoty life that I live..

I'm not on meds and let's see how many years I can live off without them.. According to the chart, I guess it's 8 years.

Leatherman, I got this chart from Wikipedia. Your chart is much better :-)


Infected: sometime between Sep 2005 - Feb 2006
02/11/2009 - CD4 - 750 || CD4% - 28 || Viral Load 3000 Not on Meds yet!
05/28/2007 - CD4 - 1140 || CD4% - 42.6 || Viral Load 734
01/23/2007 - CD4 - 1300 || CD4% - 47    || Viral Load  97
10/23/2006 - CD4 - 1214 || CD4% - 48.7 || Viral Load  < 50
07/01/2006 - CD4 - 1392 || CD4% - 43    || Viral Load  90
06/13/2006 - CD4 - 946   || CD4% - 46    || Viral Load < 400
03/19/2006 - CD4 - 974   || CD4% - 40      || Viral Load < 400
RapidRod
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« Reply #7 on: May 23, 2007, 04:45:31 am »

thirtysomething, HIV is not what kills us. It's what follows in the footsteps of HIV that puts the damper on everything. With the meds we have now more than likely you will live out your life span. I won't say normal, but you'll get as OLD or Older than most of us. I have one of those boogers that follows in the foot steps of HIV making me advance to the hole with one foot in and the other on a banana peel. It's just a matter of when and what you do with yourself till the end. I like to think of my hole as being dug in the sand, no matter how much you dig out, that much falls back in. I'm a fighter and I have plans on being here awhile longer.

Basquo
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« Reply #8 on: May 23, 2007, 07:46:38 am »

WTF are "constitutional symptoms"?
Matt Mee
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« Reply #9 on: May 23, 2007, 07:47:44 am »

Hey

This is just the natural course of HIV - the aim is to take drugs before the viral spike at the end of the graph, and the crash in CD4s. I don't think it's news to anybody that uncontrolled HIV infection will kill you right? So lets control it - I personally think life expectancy is gradually reaching the levels of the general population. My favourite study on life expectancy said that an HIV+ person diagnosed at 25 looses about 11 years of life compared with his HIV- counterpart. On current drugs. Who would have thought that 10 years ago?

Something is going to kill you. Personally I don't believe I'm going to die from HIV or the drugs used to treat it. But I maybe wrong. If you don't like your "closeted faggoty life" then maybe you need to make some changes? You need to value something in order to protect and prolong it.

M.

PS - constitutional symptoms are general symptoms. Like tiredness, weight loss, generally feeling shitty. As opposed to specific symptoms like PCP, cytomegalovirus, yada yada yada....

Diagnosed January 2006
26/1/06 - 860 (22%), VL > 500,000
24/4/06 - 820 (24.6%), VL 158,000
13/7/06 - 840 (22%), VL 268,000
1/11/06 - 680 (21%), VL 93,100
29/1/07 - 1,020 (27.5%), VL 46,500
15/5/07 - 1,140 (22.8%), VL not done.
13/10/07 - 759 (23.2%), VL 170,000
6/11/07 - 630 (25%), VL 19,324
14/1/08 - 650 (21%), VL 16,192
15/4/08 - 590 (21%), VL 40, 832
puertorico2006
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« Reply #10 on: May 23, 2007, 09:38:26 am »



Leatherman, I got this chart from Wikipedia. Your chart is much better :-)



Just so you know most universities including mine will not allow you to use sources from wikipedia due to there high rate of being unreliable. I'm pretty sure that chart is about right for someone not on treatment but for most of us with access to decent treatment its irrelevant

Infected Probably: may 2005
Diagnosed: 11/2006

11/28/2006 CD4:309 / VL: 1907 No meds yet
12/27/2006 CD4:339/  VL:1649 No meds yet
  4/28/2007 CD4:550/  VL:1800 No meds :-)
Miss Philicia
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« Reply #11 on: May 23, 2007, 09:44:03 am »

wikipedia unreliable?  CLUTCH THE PEARLS!!!

Also, I'm married to a beautiful woman. I am not gay. Not into nude photo shoots or anything in that field.
puertorico2006
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« Reply #12 on: May 23, 2007, 09:52:32 am »

Lol yes ive known professors to tell the students to re-write the article using another source even if the information is correct, if the professor told you not to use wikipedia and finds out you did because the site gave you false information they will give you a flat out F....

Personally i like wikipedia for its convenience in looking up information but i know when to use it and when not to....and even then it should be verified with another reliable source

Infected Probably: may 2005
Diagnosed: 11/2006

11/28/2006 CD4:309 / VL: 1907 No meds yet
12/27/2006 CD4:339/  VL:1649 No meds yet
  4/28/2007 CD4:550/  VL:1800 No meds :-)
DanielMark
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« Reply #13 on: May 23, 2007, 10:04:38 am »

Hmmm ... Wackypedia eh?

I'm not on meds and let's see how many years I can live off without them.. According to the chart, I guess it's 8 years.

Thirtysomething,

I went 12 years without meds before HIV hijacked me, but everybody's different - a fact that chart doesn't seem to take into account.

I will eventually die (who won't) but I won't be doing that on anybody's predicted schedule. I'm here today so I live today. After all, tomorrow I might wake up dead and then it’ll be too late. Wink You get my meaning I'm sure.

Daniel

MEDS: REYATAZ & KIVEXA (SINCE AUG 2008)

MAY 2000 LAB RESULTS: CD4 678
VL STILL UNDETECTABLE

DIAGNOSED IN 1988
sweetasmeli
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Love what you are...




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« Reply #14 on: May 23, 2007, 10:08:55 am »

WTF are "constitutional symptoms"?

LOL! Cheesy (at your phrasiology, not your question!)

Ditto. Was just wondering that myself... Huh

Melia

PS:
Hmmm ... Wackypedia eh?
Cheesy Cheesy Cheesy Stop it! Never mind HIV, you guys are killing me today! Grin
« Last Edit: May 23, 2007, 10:11:30 am by sweetasmeli »

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Yeia kai hara (health and happiness) to everyone!
planonstaying
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« Reply #15 on: May 23, 2007, 10:28:04 am »

It's a statistical average. HIV disease progression has an enormous variance. I was obsessed and  the more I read  the more frustrated i became about the inability to accurately  predict progression.  Any statistics  are pretty much useless  on a case to case basis for predicting outcomes. My labs are great today. They tell me nothing about my labs 2 yrs from now with any kind of certainty.

As to dieing. my mom had 5 miscarriages before i was born  and  was told not to get pregnant again  2 months into her pregnancy with me.  Predictions of my mortality  predate my birth. Screw Dieing. i am the pitbull,  HIV is the bull.  From addiction issues. depression, sexuality issues  there hasn't been a bull  I couldn't wrestle too the ground yet.  If HIV  kills me it won't be because i surrendered and stopped living and started dieing. I plan on living till the day i die...screw dieing...and yeah i say that with   outrage at the prospect  that some protein encased strands of RNA  will ever run my life.  I have HIV it doesn't have me....at least today Roll Eyes  

grinning at the world  another day as I  confoundthe anal retentives  by posting sentence fragments  and ignoring most  rules of punctuation.
last Labs
 cd4-700
vl-1700
 6-22 haart
634 cd4 and  haart ...when my Dr  can see me
bimazek
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« Reply #16 on: May 25, 2007, 12:53:06 am »

the interesting thing to me is that during that long plateau phase when the cd4s are slowly becoming less and less
 


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