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Author Topic: TRUVADA/VIRAMUNE  (Read 4958 times)

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Offline libra11_dj

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TRUVADA/VIRAMUNE
« on: June 26, 2006, 10:20:47 AM »
It's June 26 and for the very first time I'm taking my combo (TRUVADA/VIRAMUNE)meds for HIV...I'm knda nervous about the side effects...and how well I will deal with the treatment... wish me luck... I just find out I'm poz a  month ago more less at my 30 years old... and my cd4 cells r 309 and  VL 1500...thankz. :-[

Offline allopathicholistic

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Re: TRUVADA/VIRAMUNE
« Reply #1 on: June 26, 2006, 10:26:33 AM »
... wish me luck...

wishing u the best!!   ;D


Offline newt

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Re: TRUVADA/VIRAMUNE
« Reply #2 on: June 26, 2006, 11:57:41 AM »
Hello Libra,

I am kinda surprised your doc has put you straight on meds after one set of tests...

Do you know how old your infection is?  If it is brand new, there may be a case for immediate treatment, but if it's several months old then the usual course of action would be to wait and see what your immune system does over 3-6 months.  You need two or three sets of test results really to judge what's going on.  A viral load of 1,500 is very low, which means your body is controlling the infection well on its own.

If your doc intends this treatment to be short-term, ie 6 months to a year, it is important to know that there is a right way and wrong way to stop using these medicines.  Because they stay in your body for several days, the recommended way to stop using them is to swap the Viramune for a protease inhibitor (PI) for 2 weeks, and then stop the Truvada 5 days before the PI.  This prevents the risk of developing resistance to Viramune and/or Truvada, and preserves these drugs (and similar ones) for use again later on.

Anyhow, welcome, and good luck.

Viramune is started at a half-strength dose for two weeks to reduce the chance of side effects like skin rash.

- matt
"The object is to be a well patient, not a good patient"

Offline doyourowndamndishes

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Re: TRUVADA/VIRAMUNE
« Reply #3 on: June 26, 2006, 12:58:16 PM »
Hey Libra,

I agree with Matt, meds at this point in time are not necessary.  Some doctors like the hit hard hit fast hit early, some wait till it is necessary.  At your cd4 count (309) there is no clear recommendation; some doctors will offer treatment, others hold off till the cd4s drop below 200 or you develop an OI (Opportunistic Infection: an AIDS defining illness).  With me, my initial lab tests were cd4s 260s, v.l. 150,000+.  I did not start meds till my cd4s dropped to low 180s which was about a year later.  Now, not all people are on meds.  For some reason, some people can go years without needing meds.  Where you fall in the spectrum is almost impossible, maybe even impossible to predict. 

Regarding side effects, I know they all sound scary but remember, drug companies have to list EVERY possible effect to cover their asses.  Also, just because a side effect is listed does not mean you will 100% for certain get it.  We all tolerate our meds differently: some people have no side effects at all; some people have mild side effects, more annoying than anything else; some people have very severe reactions and need to switch the offending meds to more tolerable one(s).  Also keep in mind part of antiviral treatment means to NOT compromise your quality of life.  If you do have side effects, don't suffer in silence.  Talk to your doctor to see what can be done to help alleviate or lessen the side effects.  Also, keep posting here.  There are many people on here and most likely every possible combination of drugs has been taken by the collective.  You can hear good side effect stories and bad ones too.  Hopefully, people will also chime in to let you know if they have discovered any tricks to taking meds to help minimize any possible side effects as well as things not to take with your combination of choice.

Hope this helps.

Cheers,

Alan
"All that we are is theresult of what we have thought." -Buddha

Offline libra11_dj

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Re: TRUVADA/VIRAMUNE
« Reply #4 on: June 27, 2006, 05:15:11 PM »
Well thank u guys for all ....well  my last hiv test in which I was neg was long time ago more than 2 years...and not till last march I  found out I was poz ...after that my doctor did 2 tests to see my cd4 cells and my VL and yes if my VL was low my cd4 were still going down , so she suggested to go on meds better now when my VL is low to help increase my cd4 cells.... and maybe later I might go off from meds for a while if I want ..she thinks I might have gotten the virus more than a year o maybe 2 ...so far all good...just a little dizzy right after i take my meds but it's mild

Offline doyourowndamndishes

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Re: TRUVADA/VIRAMUNE
« Reply #5 on: June 28, 2006, 08:51:43 AM »
Hey Libra,

Just a heads up, the dizziness can take up to 8 weeks before it goes away, if it does, as the body adjusts to having it now in the system all the time.  If it gets worse you may want to try gravol.  Still talk it over first with your doctor.  Gravol is pretty benign and does not interact with meds but it's always a good idea to check things out with your doctor before you start taking anything else with your meds.

Cheers,

Alan
"All that we are is theresult of what we have thought." -Buddha

Offline divadav3

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Re: TRUVADA/VIRAMUNE
« Reply #6 on: June 29, 2006, 10:10:08 PM »
I too am on TRUVADA/VIRAMUNE and i have been on it for about 2 months now. i only felt  slightly nauseated for about 2-4 weeks adnthen I realized that if i ate when I took my meds then i didn't feel as sick on my stomach or dizzy. It is a good combo so far and like everyone else has told you if you get any sid eeffects that are unbearable don't hesitate to call your DR. I accidentally took two truvada one day and thought i had overdosed(smile) how stupid I felt when the doctor told me that it wouldn't hurt me!! Good luck and welcome!!

Offline Joel90069

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Re: TRUVADA/VIRAMUNE
« Reply #7 on: June 30, 2006, 01:15:40 AM »
I'll check in here too. Today is my second day on Truvada/Viramune. I had been taking Sustiva. I'm already slightly clearer and feel like my concentration is better, though I have a slight headache and a strange tightness in my shoulders. I forced myself to go to the gym for the first time in a week and that has really helped me feel better. I became undectable on my old regimen in four weeks so I'm a little nervous switching but I'm told Viramune is equally as effective. Thanks for listening!

Offline DingoBoi

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Re: TRUVADA/VIRAMUNE
« Reply #8 on: June 30, 2006, 11:45:51 AM »
glad it's working for you joel so far. :)

I too just switched from sustiva/truvada to viramune/truvada... and I couldn't be happier.   Virtually no side effects, I feel like I have so much more energy and the mental issues are going away that sustiva brought on.   

I wish i had switched a long time ago.

Offline libra11_dj

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Re: TRUVADA/VIRAMUNE MORE SIMPTOMS
« Reply #9 on: July 11, 2006, 02:11:51 PM »
:-\This is my 3rd week on truvada/viramune now, but ...since I started the 3rd week headaches r back and I wake up w a mild pain in my lower back....I'm afraid of my kidneys,,,,does this side effects go away?

Offline Joel90069

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  • "Another turning point a fork stuck in the road."
Re: TRUVADA/VIRAMUNE
« Reply #10 on: July 11, 2006, 04:53:01 PM »
I'm beginning my third week since switching to Viramune also. I've noticed I'm a lot more tired then before and I'm having vivid dreams. Funny, that never happened with Susutiva, like most others, but it is happening with Viramune. Anyway, I'm going to the doctor for a liver toxicity test tomorrow. Libra, has your doctor asked you to do that yet? My doc made it sound like it was standard procedure for Viramune.

Offline libra11_dj

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Re: TRUVADA/VIRAMUNE
« Reply #11 on: July 11, 2006, 05:07:14 PM »
Thanks Joel for answering soon...well next week I have lab blood test again( my first one on meds)....and after that I will c my doc...further than that She hasn't asked me any other tests yet.
« Last Edit: July 11, 2006, 05:09:35 PM by libra11_dj »

Offline Joel90069

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  • "Another turning point a fork stuck in the road."
Re: TRUVADA/VIRAMUNE
« Reply #12 on: July 11, 2006, 11:09:01 PM »
Why don't you give her a call and confirm that they're going to run a liver toxicity test with the blood sample they're taking next week? From what I was told liver issues are a risk with Viramune.

Offline stevevaboy

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Re: TRUVADA/VIRAMUNE
« Reply #13 on: July 12, 2006, 01:53:26 AM »
Hi guys, Steve here in San Diego, I started taking Viramune/Truvada a couple of months ago.  I was VERY nervous about side effects since this was my first time on meds.  I had virtually no side effects with Viramune/Truvada  The liver is what to watch on this regimine... by the way, the rule-of-thumb here is CD-4 below 350 is time to consider meds... below 200 is considered AIDS!  What gives with what I'm hearing here??? 

Anyway, after 1st month on these meds my viral load had not gone undetectable, so we waited another month to see and after my visit this morning I found my viral load had gone up some - in other words, time to switch meds...ugghhhh!!!
 
Tonight I just took Truvada/Norvir/Reyataz - my new regimine.  Anyone have thoughts on this particular regimine??? 

Good luck all!  This seems like a good, informative forum.

Steve
;0

Offline libra11_dj

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  • what's so hard to love ?
Re: TRUVADA/VIRAMUNE
« Reply #14 on: July 13, 2006, 12:14:38 PM »
Sorry to heard that Steve...well looks like not all meds work same on us,,,thanks god we have a lot to chose from ...I wish you the best luck ever on this new combo ur on...please write back to tell ur side effects on ur new meds... ;)

 


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