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Author Topic: Mistero Ensoli  (Read 4148 times)

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Offline Bobitalia

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  • Posts: 14
Mistero Ensoli
« on: April 15, 2007, 01:13:31 PM »
 di una piccola
inchiesta giornalistica , prodotta negli Stati Uniti ,
che in queste cose sono un po + attenti di noi , nel seguirle o lasciarne
traccia per lo meno :)) .

In cui si esprimevano fortissime perplessità interne al Congresso stesso
degli Stati Uniti per il procedimento inusuale e contro le loro regole
con cui si erano fatti passare stanziamenti a favore del vaccino
Ensoli , bypassando tutte le loro regole interne di presentazione e
approvazione fondi .

Cosa che qui in Italia è una regola ; non solo , è una costante nell'
auto-referenzialità delle decisioni prese in campo di fondi aids,
e dei meccanismi attraverso cui presentarle, e giustificarle .

E in tutto il baraccone della beneficienza che si è messo in piedi ,
ai tempi dello scoppio dell' epidemia aids .

http://lilanew.forumup.it/index.php?mforum=lilanew

http://lilanew.forumup.it/about73-0-asc-15-lilanew.html
 >:( Lila Blah

Offline Bobitalia

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  • Posts: 14
Re: Mistero Ensoli
« Reply #1 on: April 15, 2007, 01:15:44 PM »
Non parlo inglese.
C'è qualcuno che parla italiano? C'è qualcuno che può illuminarci in merito al vaccino Ensoli di cui in Italia non si hanno alcune notizie?

Ensoli è sparita....con i soldi ......come Gringeri.

La LILA ha chiuso le porte. Attivismo italiano.

Offline frenchpat

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  • Love your friends, don't eat them.
Re: Mistero Ensoli
« Reply #2 on: April 15, 2007, 01:23:57 PM »
Ciao Bobitalia,

io parlo abastanza bene l'italiano però non ho idea di quello che si trata. Di piu sono in francia, non nei stati uniti. Parlo anche inglese e forse posso aiutarti.

Addesso sono al lavoro ma prendero il tempo di leggere quel link che hai messo nel tuo messagio.

saluti

Pat
People have the power - Patti Smith

Offline milker

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Re: Mistero Ensoli
« Reply #3 on: April 15, 2007, 01:51:53 PM »
I think he's talking about Barbara Ensoli who is an italian researcher that has been working on a vaccine that I think is in phase II now. I'm not sure what he means by Congress bypassing laws to give this vaccine priority.

If other people know about her please chime in.

Milker.
mid-dec: stupid ass
mid-jan: seroconversion
mid-feb: poz
mar 07: cd4 432 (35%) vl 54000
may 07: cd4 399 (28%) vl 27760
jul 07: cd4 403 (26%) vl 99241
oct 07: cd4 353 (24%) vl 29993
jan 08: cd4 332 (26%) vl 33308
mar 08: cd4 392 (23%) vl 75548
jun 08: cd4 325 (27%) vl 45880
oct 08: cd4 197 (20%) vl 154000 <== aids diagnosis
nov 2 08 start Atripla
nov 30 08: cd4 478 (23%) vl 1880 !!!!!!!!!!!!!!!!!!!!!!!!!!
feb 19 09: cd4 398 (24%) vl 430 getting there!
apr 23 09: cd4 604 (29%) vl 50 woohoo :D :D
jul 30 09: cd4 512 (29%) vl undetectable :D :D
may 27 10: cd4 655 (32%) vl undetectable :D :D

Now accepting applications from blowjob ninjas™

Offline bimazek

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  • Posts: 781
Re: Mistero Ensoli
« Reply #4 on: April 15, 2007, 03:35:45 PM »
computer translation of what he wrote... some of the flowery-ness is just how the italians write...

Of a small journalistic question, produced in the United States, that in these things I am a little +
attention of those, in the to follow them or to leave the track for it except for Smiley). 

In which they expressed themselves strong perplexity it to the same Congress of the United States for the
procedure inusuale and against their rules with that allocations to favor of the vaccine were make passed
themselves Ensoli, all bypassando their rules it of presentation and deep approval. 

It does that here in Italy it is a rule; not only, is a costing nell' car-referenzialità of the decisions
taken in field of deep aids, and of the mechanisms across that present them, and to justify them. 

And in all of the booth of the beneficienza that it has put in foots, to the times of the explosion dell'
epidemic aids. 


Offline frenchpat

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  • Posts: 516
  • Love your friends, don't eat them.
Re: Mistero Ensoli
« Reply #5 on: April 15, 2007, 04:32:48 PM »
Sorry but I don't think computers are that great at translating...  attribute all flowery-ness to bot, italian grammar is just not the same as english one (or french one for that matter).


Of FROM a small journalistic question INQUIERY, produced in  COMING FROM the United States, that in these things I am  WHERE THEY PAY a little + (MORE) attention of  those THAN US TO THESE MATTERS, in the to follow them or to leave the track for it except for Smiley).  IN FOLLOWING THEM UP OR AT LEAST LEAVING A TRACE...

In which they expressed themselves strong perplexity it to the same ... IN WHICH  STRONG PERPLEXITY WAS EXPRESSED, FROM WITHIN THE Congress of the United States, for REGARDING the UNUSUAL
procedure inusuale and THAT, against theirITS OWN rules,  with that allocations to favor of ALLOWED FOR THE ADVANCEMENT OF THE ENSOLI  VACCINE, vaccine were make passed
themselves Ensoli
, all bypassando BYPASSING ALL their INTERNAL GUIDELINES rules it of presentation and deep approval. REGARDING SCREENING AND APPROVAL OF FUNDING.

It does that here in Italy it is a rule; not only, is a costing nell' car-referenzialità of the decisions
taken in field of deep aids, and of the mechanisms across that present them, and to justify them. 

THIS IS WHAT CONSTANTLY HAPPENS IN ITALY, WHERE, IN THE FIELD OF AIDS FUNDING, IT IS THE SAME BODIES THAT APPLY FOR FUNDS, JUSTIFY AND APPROVE ALL REQUESTS.

And in all of the booth of the beneficienza that it has put in foots, to the times of the explosion dell'
epidemic aids. 


THIS WAY OF DOING THINGS IS PERVASIVE THROUGHOUT THE STRUCTURE THAT WAS ESTABLISHED AT THE TIME OF THE EXPLOSION OF THE EPIDEMIC.

...............

In his second message he says:

IS THERE SOMEONE HERE WHO COULD GIVE US SOME INFORMATION ABOUT THE ENSOLI VACCINE, SINCE WE IN ITALY HAVE NONE?

follows this note:

ENSOLI LEFT WITH THE MONEY... LIKE GRINGERI (another scientist??)

LILA HAS CLOSED DOWN (a forum for hiv+ people in italian) ... ITALIAN ACTIVISM


My take on this is that besides the request he makes for information about the Ensoli vaccine (which I would gladly forward and translate), he seems to be quite bitter about the state of things (aids related) in Italy.

Anyone has info on this?

Pat


People have the power - Patti Smith

Offline J220

  • Member
  • Posts: 587
Re: Mistero Ensoli
« Reply #6 on: April 15, 2007, 05:05:08 PM »
None..or in Italian, niente (I think). The very last that was heard about the Ensoli trial was a purported email Dr. Barbara Ensoli herself sent to someone on the old lilachat forums (now Lilanew) where she stated that the phase one was a success, and assured everyone that the phase two was going to go forward, and that the delay was a bureaucratic one (i.e. money). Personally I think the lack of news means nothing detrimental, these things take time. We'll probably hear something before the end of the year, hopefully good news about the phase 2.
"Hope is my philosophy
Just needs days in which to be
Love of Life means hope for me
Born on a New Day" - John David

Offline bear60

  • Member
  • Posts: 4,104
Re: Mistero Ensoli
« Reply #7 on: April 15, 2007, 05:13:10 PM »
I did a google search for:
Ensoli HIV vaccine Italy ..  and found all sorts of information

here is one link:   http://www.thebody.com/content/art28394.html
Poz Bear Type in Philadelphia

Offline milker

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Re: Mistero Ensoli
« Reply #8 on: April 15, 2007, 05:29:17 PM »
Damn.. I lost my fluency in italian!!

You mean there is a crook in the HIV world?  :o :o :o :o :o

Milker.
mid-dec: stupid ass
mid-jan: seroconversion
mid-feb: poz
mar 07: cd4 432 (35%) vl 54000
may 07: cd4 399 (28%) vl 27760
jul 07: cd4 403 (26%) vl 99241
oct 07: cd4 353 (24%) vl 29993
jan 08: cd4 332 (26%) vl 33308
mar 08: cd4 392 (23%) vl 75548
jun 08: cd4 325 (27%) vl 45880
oct 08: cd4 197 (20%) vl 154000 <== aids diagnosis
nov 2 08 start Atripla
nov 30 08: cd4 478 (23%) vl 1880 !!!!!!!!!!!!!!!!!!!!!!!!!!
feb 19 09: cd4 398 (24%) vl 430 getting there!
apr 23 09: cd4 604 (29%) vl 50 woohoo :D :D
jul 30 09: cd4 512 (29%) vl undetectable :D :D
may 27 10: cd4 655 (32%) vl undetectable :D :D

Now accepting applications from blowjob ninjas™

Offline frenchpat

  • Member
  • Posts: 516
  • Love your friends, don't eat them.
Re: Mistero Ensoli
« Reply #9 on: April 15, 2007, 06:01:23 PM »


You mean there is a crook in the HIV world?  :o :o :o :o :o


quelle surprise...

Pat
People have the power - Patti Smith

Offline frenchpat

  • Member
  • Posts: 516
  • Love your friends, don't eat them.
Re: Mistero Ensoli
« Reply #10 on: April 15, 2007, 06:04:29 PM »
I did a google search for:
Ensoli HIV vaccine Italy ..  and found all sorts of information

here is one link:   http://www.thebody.com/content/art28394.html

Thank you.
interesting stuff though the article is dated june 2003. Either they are developping this very discreetly or she really ran away with the money!

Pat
People have the power - Patti Smith

Offline bear60

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  • Posts: 4,104
Re: Mistero Ensoli
« Reply #11 on: April 15, 2007, 06:24:59 PM »
pat.....as the saying goes..."follow the money"
Poz Bear Type in Philadelphia

Offline Jake72

  • Member
  • Posts: 145
Re: Mistero Ensoli
« Reply #12 on: April 15, 2007, 08:23:20 PM »
If she ran away, she's still keeping a high profile.  She's apparently the research director of Italy's Instituto Superiore di Sanita (Italy's high-level health institute, I reckon).  Notice that her e-mail address is given if anyone wants to contact her:

http://www.iss.it/site/attivita/ISSWEB_istituto/RicercaPersonale/dettaglio.asp?idAna=1573&lang=2

Her vaccine received a decent amount of media attention-even in the English-language news-a couple of years ago when she announced extremely good Phase I results.  I've been wondering about the trials for this one as well.  Here's some news from 2005:

http://www.medicalnewstoday.com/medicalnews.php?newsid=27136

I'm hoping that the vaccine is still in trials and that all is proceeding as anticipated (meaning that the results are as expected and the trials haven't been cancelled).

Regarding the involvement of the US, I remember reading somewhere (maybe here?) that there was a hunt for the funds to conduct the phase II trials, and in the end the money came (at least in part) from the US.   Maybe there was something irregular in the way the money was allocated?
« Last Edit: April 15, 2007, 08:25:22 PM by Jake72 »

Offline frenchpat

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  • Posts: 516
  • Love your friends, don't eat them.
Re: Mistero Ensoli
« Reply #13 on: April 16, 2007, 02:32:14 AM »
If she ran away, she's still keeping a high profile.  She's apparently the research director of Italy's Instituto Superiore di Sanita (Italy's high-level health institute, I reckon).  Notice that her e-mail address is given if anyone wants to contact her:

http://www.iss.it/site/attivita/ISSWEB_istituto/RicercaPersonale/dettaglio.asp?idAna=1573&lang=2

Her vaccine received a decent amount of media attention-even in the English-language news-a couple of years ago when she announced extremely good Phase I results.  I've been wondering about the trials for this one as well.  Here's some news from 2005:

http://www.medicalnewstoday.com/medicalnews.php?newsid=27136

I'm hoping that the vaccine is still in trials and that all is proceeding as anticipated (meaning that the results are as expected and the trials haven't been cancelled).

Regarding the involvement of the US, I remember reading somewhere (maybe here?) that there was a hunt for the funds to conduct the phase II trials, and in the end the money came (at least in part) from the US.   Maybe there was something irregular in the way the money was allocated?

Bobitalia,

apparentamente questo link sarebbe il mail della signora Ensoli http://www.iss.it/site/attivita/ISSWEB_istituto/RicercaPersonale/dettaglio.asp?idAna=1573&lang=2 poi, il piu recente articolo trovato da Jake72 e questo, che data sal' 2005: http://www.medicalnewstoday.com/medicalnews.php?newsid=27136 se vuoi una traduzione dimilo, te la posso fare.

Per quanto riguarda al sito LILA, non ho capito bene, perche quando seguo quel link di fatto mi ritrovo sul lorò sito... ma forse traffico cè? o no?

saluti,

Pat
People have the power - Patti Smith

Offline freddy65

  • Member
  • Posts: 4
Re: Mistero Ensoli
« Reply #14 on: April 16, 2007, 06:39:55 AM »
Hi, I'm writing to you from Italy and unfortunately my english is not so good but I hope you will understand what i'm writing and maybe Frenchpat wuold be so kind to help us.

So, the situation about Ensoli research is not clear at all. The fhase one was finished long time ago but the complete results were not pubblished. We just know that the anti-tat vaccine was safety but nothing else, specially nothing about immunological response of the people involved on that fhase.
Then, the Ensoli and media made a campaign about "the excellent" results and Ensoli asked more founds to carry on the fhase two, about 50 millions euros. Others researchers, scientists and associations complained because of the lak of informations given, saying that what were knew was not enough to go forward with fhase two, pretending more details which actually have never come up from the Ensoli's team.
Since then, everything has been stopped and during the past two years we didn't know anything else about the research not even if or when fhase two will start.

The Ensoli didn't run away with the money, also because she didn't get them yet  :), she is actually still working as researcher and togheter with her team I belive are still working on anti-tat, she also become a member of the Italian Aids Comminsion and got some important position inside the National Health Institute. She still keep saying that fhase two will start very soon but....time is passing and nothing happen. I leave to you how to consider it, here, like usual, some people are still optimistic and some are pessimistic!

About Lila forum, which was close at the end of the past years without any advice or information, at this moment is still close even if the lila's staff are saying that it will be open again soon. The link posted by Bobitalia: "lilanew.forumup.it" is a new forum created by ourself in order to have a place where keep on talking and stayng togheter and by the way, if some of you would like to join us are more than welcome.  :) 
I read quiet often your forum which I found very interesting, specially side effects and research sections, you are all doing a great job keep on people informed.

Freddy

Offline Jake72

  • Member
  • Posts: 145
Re: Mistero Ensoli
« Reply #15 on: April 16, 2007, 09:40:23 AM »
Thanks, Freddy, for that update.  Scratch that off my list of encouraging vaccine candidates!  >:(

Offline milker

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Re: Mistero Ensoli
« Reply #16 on: April 16, 2007, 09:53:22 AM »
Thanks Freddy! That was very clear !

Milker.
mid-dec: stupid ass
mid-jan: seroconversion
mid-feb: poz
mar 07: cd4 432 (35%) vl 54000
may 07: cd4 399 (28%) vl 27760
jul 07: cd4 403 (26%) vl 99241
oct 07: cd4 353 (24%) vl 29993
jan 08: cd4 332 (26%) vl 33308
mar 08: cd4 392 (23%) vl 75548
jun 08: cd4 325 (27%) vl 45880
oct 08: cd4 197 (20%) vl 154000 <== aids diagnosis
nov 2 08 start Atripla
nov 30 08: cd4 478 (23%) vl 1880 !!!!!!!!!!!!!!!!!!!!!!!!!!
feb 19 09: cd4 398 (24%) vl 430 getting there!
apr 23 09: cd4 604 (29%) vl 50 woohoo :D :D
jul 30 09: cd4 512 (29%) vl undetectable :D :D
may 27 10: cd4 655 (32%) vl undetectable :D :D

Now accepting applications from blowjob ninjas™

Offline sadboy

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  • Posts: 38
  • Sadboy is here, so let's get the party started.
Re: Mistero Ensoli
« Reply #17 on: April 16, 2007, 10:54:53 AM »
I e-mailed Ensoli in January and she was kind enought to reply and give me words of comfort. A couple of articles I read stated that Phase 2 or 3 would begin in January 07'. What is delaying the trial if the money has been approved?

Offline NYCguy

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Re: Mistero Ensoli
« Reply #18 on: April 17, 2007, 03:21:27 PM »
Thank you Freddy.  After the extensive postings about this a year or so ago in the old forums plus Lilachat, this seemed like one of the most promising vaccine candidates out there.  There was also talk in Italy of Erwann P Loret and his tat Oyi vaccine moving to trials in 2007.  Any word or rumor of that?
11/9/06 = #$%^&!
sometime early Dec 2006:
CD4 530 20%/VL >250,000 (&*$$%!!)
started Reyataz300mg/Norvir/Truvada 12-27-06.
1/30/07 CD4 540 30%/VL <400
4/07 CD4 600+ 33%/VL <50
6/9/07 CD4 720 37%/VL <50
10/15/07 CD4 891 (!) %? VL <50
1/2010 CD4 599 (37%) VL<50 (drop due to acute HCV)
9/2010 - looks like HCV is gone for good! And I'm finally drinking again, thank GOD
2013 - considering a switch to Stribild. but I love my Kidneys (but I hate farting all the time!)...
June 2013 - switched to Stribild.  so far so good...

 


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