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Author Topic: Neuropathy/Tinnitus  (Read 654 times)

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Offline RickDallas

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  • Posts: 7
« on: March 16, 2016, 11:24:38 AM »
Hello to all. I have been HIV+ and relatively healthy for 31 years now. It is not a journey that I always have entirely accepted, but you persevere and keep moving forward. I was hoping someone could provide me with some answers concerning the side effects of Atripla medication. I have experienced bilateral tinnitus for the past 4 years now while taking Atripla and am now possibly developing neuropathy in both my feet. My doctors all claim that Atripla is not the root cause. Was hoping someone could shed some more light on these issues. Does anyone else have similar claims? My doctors claim that these issues are more the result of long-term HIV/genetics rather than the medication. Appreciate any helpful information concerning the above matters. Thanks to all.

Offline Wade

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Re: Neuropathy/Tinnitus
« Reply #1 on: March 16, 2016, 11:48:46 AM »
Hi RickDallas and Welcome to the Forums.
From one LTS to another its still a mystery and I tend to blame the early meds for most of my long term side affects. I suspect yours are the same , I cant give any personal feed back on atripla as I have not taken it.
I was on sustiva at one point though. I'm petty sure you will get plenty of responses on this though. Again Welcome !

Best, Wade
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Offline RickDallas

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Re: Neuropathy/Tinnitus
« Reply #2 on: March 16, 2016, 11:59:47 AM »
Thanks for your comment Wade.
Best, Rick

Offline J.R.E.

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  • Joined Dec-2003 Living positive, since 1985.
Re: Neuropathy/Tinnitus
« Reply #3 on: March 16, 2016, 03:17:57 PM »
Hello Rick,...

I can only tell you that I have been dealing with Tinnitus and Neuropathy, since  February of 2003. This was also after the start of HAART.  Both the Tinnitus and Neuropathy, started at about the same exact time. ( about 4 months after starting meds).   I take nothing for the neuropathy, as it's not that severe. The Neuropathy is in my feet and hands. I also have some hearing loss, for which I was prescribed hearing aids.  I was told that the hearing aids might help with lessening the ringing in the ears, but I really haven't noticed much difference, whether I wear them or not.

I am also a long term survivor of just about 31 years now. Diagnosed positive in 1985, and started medications for the first time in October of 2003. I went 18 years before starting in meds. When I finally did start, tcells were 16 viral load 500,000, and I had already gone through 12 months of wasting, Bacterial pneumonia, fatigue, and shingles, also esophageal candiasis.

As far as the early meds, I was only on Zerit and AZT, very briefly, for not much longer than a month, when the doctor and I were discussing meds in October of 03.

Then starting around December of 2003, I was placed on Viramune and Epzicom, which I am still on today. Also, I was on a 4 drug regimen for about 5 years, starting around July of 04, and going on until  2008 or 2009, when I decided to stop the viread. So basically I was on Viramune, Epzicom and Viread.

 I believe my Tinnitus and neuropathy was caused by untreated long term HIV infection. But,....  I also worked in a loud environment for most of my life, around high decibel machinery. So who knows, perhaps this was the cause of Tinnitus later on in life. In those days, OSHA wasn't really around, and none of us employees wore ear protection.

I've been through all the test and MRI's.

All the best---Ray
« Last Edit: March 16, 2016, 03:22:51 PM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 25 mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg






Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 4/11/16,  t-cells are at 385,   Viral load remains <40

Current % is at 14%

 64 years young.

Offline RickDallas

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Re: Neuropathy/Tinnitus
« Reply #4 on: March 16, 2016, 04:41:06 PM »
Thanks Ray for your comments. Much appreciated.

Offline BT65

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Re: Neuropathy/Tinnitus
« Reply #5 on: March 17, 2016, 08:15:35 AM »
Hi Rick, I don't believe Atripla is known for neuropathy, not sure about the tinnitus.  I would guess, as Ray said, it's more long term HIV infection.

I have neuropathy but mine was started with the early HIV meds and made worse by years of infection and diabetes.  I take Lyrica for it, but in lower doses due to kidney failure and a couple other issues.  But it's pretty severe, the pain I mean.  I didn't take anything for it for years and started out with Neurontin.

I would discuss this with your doctor to get his/her take on it.  If it becomes severe I would inquire about any treatments for the issues.

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Offline weasel

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Re: Neuropathy/Tinnitus
« Reply #6 on: March 22, 2016, 08:46:35 PM »
  Hi RickDallas  ,
                        Nice to meet you .

     I have had tinnitus since starting meds in 2004 .
   Some days are worse some are better .

     I think the drugs set it off ?   I am no longer on any drugs I started on other than
  Novir .  It may be the culprit ?  I do not know .

    I have background music or tv going to save me from going crazy .
    It works for me .

                                                      be well , Carl
" Live and let Live "


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