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Author Topic: An on-going thread  (Read 40802 times)

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Offline wolfter

  • Member
  • Posts: 4,916
Re: An on-going thread
« Reply #800 on: February 20, 2015, 11:30:23 AM »
Some days, it does all seem surreal.  In the hospital, dying of AIDS at 26 years old and suddenly close to turning 50.  My most vivid memory during that hospitalization was listening to my doctor telling the family that my passing was imminent and soon.  I was pretty ok with that until the hospital priest came in and gave me last rites....OH HELL NO, it pissed me off and forced an internal fortitude to fight.

Perhaps we're different from our negative counterparts as I cherish each birthday and am not bothered in the least by aging.  :)



Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline bubba53

  • Member
  • Posts: 281
Re: An on-going thread
« Reply #801 on: February 20, 2015, 02:26:39 PM »
That's so bizarre, I was in the hospital and was told on the second
day, was not responding to the Bactrim ,
and would not make it through the night. they couldn't get my
oxygen level up high enough and my organs would start shutting down.
Obviously they were wrong.
The weird part is they sent a priest to my room too !
I'm not even catholic , I rang for the nurse and told her to
get him the fuck out of my room !
 All his babbling about my sins set me off !

We built a new house and are living happily too ,
and not suddenly will be turning 60 in a few weeks !
Go Figure.
"Who put the pepper in the....Vaseline  ? " Coffee Butler

Offline Theyer

  • Member
  • Posts: 2,639
  • Current ambition. Walk the Dog .
Re: An on-going thread
« Reply #802 on: February 22, 2015, 06:46:50 AM »
Hello one and all,
Been away walking in Lancashire AONB Bowland Forest with large group off friends. Did me tons off good. With the help off other completed walks that I would off said no to before going. One particular one consisting off thin muddy path with a immediate drop to fast flowing river / long assents / lots off differcult obstacles to manage along the way / 5miles  or there abouts.

Walking poles very useful as are helpful patient friends.

Back in London now with Dental work tomorrow and hospital Thursday. Blah blah.

As soon as dental work is either finished or there is a gap off 4 weeks I am off to Orkney.
Easter will be spent in Suffolk so good flat walking and beaches .
This is what I want more off.   Country and the ability to walk in it.

Hope all is well with you all will check thro for news tonight
Love Michael
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,208
Re: An on-going thread
« Reply #803 on: February 22, 2015, 09:30:01 AM »
Michael!  We were worried about you!  Mitch just posted wondering where you were.  I'm so glad you're able to go for long walks and can enjoyed it.  You deserve it with everything you've been through. 
Much love-
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Theyer

  • Member
  • Posts: 2,639
  • Current ambition. Walk the Dog .
Re: An on-going thread
« Reply #804 on: February 22, 2015, 03:09:54 PM »
Sorry to cause worry , no wi-fi where I was no phone signal unless you stood apon a chair half way out the window in the old maids room. Had thought I had successfully posted on the train going up , guess the train connection broke oh bother.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline bubba53

  • Member
  • Posts: 281
Re: An on-going thread
« Reply #805 on: February 22, 2015, 04:08:01 PM »
Hi Michael,
Sounds like your doing great ,
A five mile walk on rough terrains is quite a work out !
Easter by the sea sounds great !
How's your weather ?
"Who put the pepper in the....Vaseline  ? " Coffee Butler

Offline wolfter

  • Member
  • Posts: 4,916
Re: An on-going thread
« Reply #806 on: February 23, 2015, 08:30:13 AM »
That's so bizarre, I was in the hospital and was told on the second
day, was not responding to the Bactrim ,
and would not make it through the night. they couldn't get my
oxygen level up high enough and my organs would start shutting down.
Obviously they were wrong.
The weird part is they sent a priest to my room too !
I'm not even catholic , I rang for the nurse and told her to
get him the fuck out of my room !
 All his babbling about my sins set me off !

We built a new house and are living happily too ,
and not suddenly will be turning 60 in a few weeks !
Go Figure.

I could easily be upset with the hospital for my treatment during the dark ages, but they were ill equiped to deal with virus as it's a small town, unremarkable hospital.  They pretty much simply provided palliative care at the time. 

I was obviously so sick that I couldn't hold down food or water.  I suddenly woke one morning and was starving.  I rang for a nurse and explained that I was hungry.  It was so weird how fantastic I felt.  She had a horrid look of fear on her face.  Immediately called for the shift doctor who promptly came in and examined me.

I hadn't noticed anything weird until I was almost done eating.  It was then that I noticed my skin was bright orange.  I was informed that I was co-infected with HepB and my liver was shutting down.  Soon, my pancreas followed.  Some how, I cleared that on my own and regained some health.

I disputed the diagnosis and it  caused issues with my spouse.  He obviously knew how HepB is spread and we had been together a long time and he obviously knew I wasn't an IV drug user so that only left cheating as a way of contracting it.  I believe I convinced him, but I'll always have that lingering doubt.

Fast forward to my new ID doctor a few years back; he tested me for all strains of Hepatitis.  It was only then I learned that I had never been exposed to that virus.  I lived for almost 2 decades thinking I had HepB only to find out that I didn't.  He even vaccinated me against it. 

Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline mitch777

  • Member
  • Posts: 3,899
Re: An on-going thread
« Reply #807 on: February 23, 2015, 02:17:57 PM »
Hello one and all,
Been away walking in Lancashire AONB Bowland Forest with large group off friends. Did me tons off good. With the help off other completed walks that I would off said no to before going. One particular one consisting off thin muddy path with a immediate drop to fast flowing river / long assents / lots off differcult obstacles to manage along the way / 5miles  or there abouts.

Walking poles very useful as are helpful patient friends.

Back in London now with Dental work tomorrow and hospital Thursday. Blah blah.

As soon as dental work is either finished or there is a gap off 4 weeks I am off to Orkney.
Easter will be spent in Suffolk so good flat walking and beaches .
This is what I want more off.   Country and the ability to walk in it.

Hope all is well with you all will check thro for news tonight
Love Michael

Hey Michael! I was beginning to get worried about you and then you come back having had some wild adventure. Good for you and welcome back!

Hope all goes well with your dental work so you can enjoy some time in Orkney. As Betty said, you deserve it.

Love and hugs,
m.


32 years hiv+ (oct. 2013) with a curtsy.

Offline weasel

  • Member
  • Posts: 1,770
Re: An on-going thread
« Reply #808 on: February 24, 2015, 10:27:43 AM »
Some days, it does all seem surreal.  In the hospital, dying of AIDS at 26 years old and suddenly close to turning 50.  My most vivid memory during that hospitalization was listening to my doctor telling the family that my passing was imminent and soon.  I was pretty ok with that until the hospital priest came in and gave me last rites....OH HELL NO, it pissed me off and forced an internal fortitude to fight.

Perhaps we're different from our negative counterparts as I cherish each birthday and am not bothered in the least by aging.  :)

    Thank you  Wolfter & Bubba ,
                                                 I've been is such a down mood after I turned 60 last August .
   It is good to see others view on this aging thing .
     I know I shold be thrilled with each and everyday  but some days are hard  :-[

                                                                                                            Carl
" Live and let Live "

Offline bubba53

  • Member
  • Posts: 281
Re: An on-going thread
« Reply #809 on: February 24, 2015, 11:00:07 AM »
Hey Weasel,
60 is a good thing !
What bothers me is everything moved around,
What used to be here is there,
 
What used to be there is here,
Something's are missing altogether !

Saw myself in a three way mirror last summer trying on a bathing suit,
Thought someone else was in there with me !
Surly that's not my ass,and who let the air out of it !
Oh Well LOL.....
"Who put the pepper in the....Vaseline  ? " Coffee Butler

Offline wolfter

  • Member
  • Posts: 4,916
Re: An on-going thread
« Reply #810 on: February 27, 2015, 04:15:18 AM »
Goodness, I never expected I'd make it to 50 and it had nothing to do with AIDS.  I'll be damn fortunate if I make it to 60.  A lot of people who told me that if I didn't change my ways or I'd die young are now dead.   :) 

One thing I vowed to do early on if I survived was to try and enjoy each and every day even if it wasn't a great one.  I'm here on this earth for such a short period of time that I want to enjoy it on my terms. 

I'll never understand the mindset of the likes of the Koch brothers and many others.  Miserable existance if you ask me, having the ability to be so generous yet absorbed in selfish greed and disliked so badly.  How these types of people don't realize that being hated isn't a great legacy.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Theyer

  • Member
  • Posts: 2,639
  • Current ambition. Walk the Dog .
Re: An on-going thread
« Reply #811 on: February 27, 2015, 05:13:05 AM »
It's a paradox this ageing thing  , we do all we can to stay alive yet get depressed with the reality off ageing . I also have days when I beat myself up for not greeting each day as though I where  Maria von Trap on E , all because I have battled through a few might die months .

In our position , sorry in MY position I think I would be mad not to be depressed at times , for some situations it's the healthy response. What is not healthy is doing nothing about it once it's been recognised.

So hugs to all , double hugs to birthday men & women ....Carl &  David spring to mind.

I am about to tie on my apron , nipple half a breakfast E and do some decorating
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Miss Philicia

  • Member
  • Posts: 24,696
  • celebrity poster, faker & poser
Re: An on-going thread
« Reply #812 on: Yesterday at 11:48:27 AM »
I've been remiss with updates on my on-going efforts at treating my chronic acute neuropathy pain. As previously mentioned I began opioid treatment (specifically methadone) which had to be titrated slowly because of the nature of this specific medication's half-life. I've now been on 30mg/daily for a month, and it's only been partially successful. They may raise it to 45mg/daily but that will be the final amount they're willing to do because of my sleep apnea issue, even though the treatment for that is entirely successful.

So during this past week I went forward with the one-week trial of a neurostimulator device. The device during the trial clips on your belt and is attached to lead wires, which were inserted during outpatient surgery into my back, hooking somehow to my spinal nerve (at the bottom as that's closest to where my pain is located, being my feet). The first several days I thought the whole process was useless and not working, but once I got used to the electronic sensation and could handle increasing the frequency levels to the highest setting I suddenly was getting quite significant pain relief. Beyond any relief I have experienced with these opioids.

Today I went in to have the lead wires in my back removed, and I've now scheduled the full surgery for a neurostimulator implant for March 19th.
"Iíve slept with enough men to know that Iím not gay"

Offline Jeff G

  • Administrator
  • Member
  • Posts: 14,320
  • How am I doing Beren ?
Re: An on-going thread
« Reply #813 on: Yesterday at 12:05:15 PM »
Thats great news Miss P, you deserve a break after all you have been through .

Offline Tonny2

  • Member
  • Posts: 580
Re: An on-going thread
« Reply #814 on: Yesterday at 12:59:43 PM »


         ojo      good for you Miss Philicia...good luck with your procedure, I will thinking about you that day, thanks for sharing, I will look into the info you sent me..hugs    ojo

Offline wolfter

  • Member
  • Posts: 4,916
Re: An on-going thread
« Reply #815 on: Yesterday at 08:10:34 PM »
That's great news David.  As I've said before, I'm ever so grateful to never have experienced  that level of pain that you and others have.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline mitch777

  • Member
  • Posts: 3,899
Re: An on-going thread
« Reply #816 on: Yesterday at 08:25:18 PM »
I missed this until now. I last thought it wasn't working but it sounds promising now.

Geez, between your implant and apnea devices you are wired to the max.
32 years hiv+ (oct. 2013) with a curtsy.

Offline pozniceguy

  • Member
  • Posts: 1,204
  • Niceguy Dallas
Re: An on-going thread
« Reply #817 on: Today at 12:50:17 AM »
just  a follow up  on  visits  to  Oncologist....decided on a  treatment   for  the low level   prostate  cancers   will  start  thurs (  5  mar)  with  inplant of  markers  for  targeted  radiation...(  Dr  claims  over  95%  success). then  a  Mapping session  of the locations to  concentrate  xray treatment....  then  the  bad news....5  days a week  for  8  weeks  20 min  session...outpatient.... claims  little  side effects...from most patients.


apparently  this  is an Xray  machine  guided  like using  GPS  coordinates  but  this  uses the  "markers"  to  triangulate  position on prostate  like   satelites    are used   for  GPS

Nick
remember the good times...honor the past but don't live there
Le stelle la notte sono grandie luminose, nel cuore profondo del Texas

Offline harleymc

  • Member
  • Posts: 281
Re: An on-going thread
« Reply #818 on: Today at 03:36:40 AM »
PNG,
it's interesting how treatments vary from patient to patient, clinic to clinic, country to country. I have a friend who has some radium pellets inserted to tackle a prostate tumour.
He's getting a bit tired of the glow in the dark jokes, but so far it seems to be working for him.
Best of luck with your treatment.

Offline bubba53

  • Member
  • Posts: 281
Re: An on-going thread
« Reply #819 on: Today at 11:12:07 AM »
Hi Nick,
Hope all goes well, and the side affects are minimal .
Also hope you don't have too far to travel.
Wade
"Who put the pepper in the....Vaseline  ? " Coffee Butler

Offline wolfter

  • Member
  • Posts: 4,916
Re: An on-going thread
« Reply #820 on: Today at 12:57:55 PM »
Here's to hoping your're part of the 95%.  Take care of yourself and best wishes buddy.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline pozniceguy

  • Member
  • Posts: 1,204
  • Niceguy Dallas
Re: An on-going thread
« Reply #821 on: Today at 02:04:09 PM »
thnx  guys     discussed  treatment options  including the  "Pellets"  seems  most  Drs  stop using that  one recently  too  many long term  side effects to  other organs  around  the prostate   (  colon and some  muscle)  also  a  "one day  treatment"   6 hrs of  chemical drill  though  tubes inserted  directly  in prostate..very  invasive..very  hard on patient (  6  hours of  being  "sling position"with  chemical  drips )  so  bad news  clinic is one of two in Dallas  uses this  technique   both  more  than  30  miles.... this  clinic  primarily  Prostate  patients... other  primarily  breast  cancer
so  just  plan  to be a  "traveller"  for the  next  months

BTW   Greg   I  plan  to  be  a survivor   made it  so far  with the  bug  over  20 years  not letting this be the  "killer"


Nick
« Last Edit: Today at 02:06:21 PM by pozniceguy »
remember the good times...honor the past but don't live there
Le stelle la notte sono grandie luminose, nel cuore profondo del Texas

Offline Tonny2

  • Member
  • Posts: 580
Re: An on-going thread
« Reply #822 on: Today at 02:28:53 PM »


      ojo     hello pozniceguy, just want to say to you, good luck, I will be sending you good vibes during your treatment...hugs    ojo

Offline mitch777

  • Member
  • Posts: 3,899
Re: An on-going thread
« Reply #823 on: Today at 03:22:06 PM »
Nick,

Best wishes for you during your treatments. It all sounds promising.

m.
32 years hiv+ (oct. 2013) with a curtsy.

 


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