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Author Topic: An on-going thread  (Read 12957 times)

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Offline Jeff G

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Re: An on-going thread
« Reply #300 on: August 06, 2014, 10:22:19 AM »
It takes forever for referrerls at UAB where I see most of my doctors . I got tired of all that so I get my GP to call and get me in for some things in a weeks time or sometime the same day if its doable . It would not apply to my pain management, those doctors are booked months in advance .   

Offline BT65

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Re: An on-going thread
« Reply #301 on: August 08, 2014, 05:29:28 AM »
You can only imagine how difficult it is to express my concerns to my doctor when I can't even do it here correctly. :o  I've been told that my issues probably aren't neuropathy related.  I guess I'm not properly explaining the issues with my legs.  My level of pain isn't so great compared with what you all share.  But I question if I've lost the ability to actually feel the pain? 

It can be difficult to explain the pain from neuropathy accurately.  I mean, does it sound logical if someone tells you a part of their body is numb, yet they feel electrical charges through it?  If it's numb, how can that happen? 

I totally get it.  I go through it.  It's also difficult explaining to someone the level of pain I have in my knees due to the AVN/osteoarthritis.  Yesterday at work we had to learn defensive moves, so I was on my feet for 2 and 1/2 hours.  For some, that's no issue.  But when you're talking about knees that are bone on bone, that's extremely taxing. 

This morning I'm very, very achy.  And I've been up since 3 am.  Yesterday, after leaving work at 5, I had to go get the ladies for my HIV support group, and facilitate the group, then give the ladies a ride home.  The mileage, from picking up the ladies to taking them home, was 52 miles.  And I didn't get home until around 9:30 pm.  So, I'm also bitchy lol. 

I think we LTS'ers are pretty tough.  We've had to endure extreme hardship, and yet we go on.  We had serious physical issues, but go on.   We just keep puttering along lol.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline wolfter

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Re: An on-going thread
« Reply #302 on: August 08, 2014, 10:07:26 AM »
Oh Betty, that sounds dreadfully tiresome.  Just keep remembering the end prize.  How much longer are your classes/courses? 

When you're done, perhaps it's time to plan a long weekend get together.  There are many of us located nearby that we could easily do an inexpensive weekend.  (Just not Detroit).  lol

I had the most glorious day yesterday.  I spent the entire day outdoors, finally completing a couple of projects that have been stressing me something terribly.  My work shop is finally organized and looking good.  My 220 sub panel is complete along with my phone line and cable tv. 
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Miss Philicia

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Re: An on-going thread
« Reply #303 on: August 08, 2014, 03:29:21 PM »
Just got back from four hours at the dentist: second crown build-up in six months
"Iíve slept with enough men to know that Iím not gay"

Offline BT65

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Re: An on-going thread
« Reply #304 on: August 09, 2014, 06:29:16 AM »
Greg, I only have one more week of classes.  I believe I will be working primarily weekends.  When I filled out the application I told them I only wanted very part-time, since I'm still doing my other job.  So, the lady said they needed help on the 2nd shift on the weekends and wanted to know if I could do that and I said that would be no problem.  I'm not doing anything else after all.

Getting together would be a blast.  I know Jeff lives close, and I'm sure there are some others (well, not that Jeff lives close, but he's within traveling distance I think).  As long as it's during the week.  Indy?  Don't worry, I wouldn't choose Detroit.  I have relatives there, that's where my parents met.  Well, they live in the outlying areas.  But it's not like I want to go there anytime soon. 

Now, what is a 220 sub panel?  I'm guessing that's what the cables you are talking about go into?  That's very handy you are able to complete all those tasks.  Saves quite a bit of cash I'm sure.  How are you healing?

David, sorry about your ongoing dental issues.  Sometimes having dentures is a blessing, in that I don't have to visit the dentist anymore.  However, I would much rather have my teeth, so I could eat whatever I want.  And I always had to have a lot of work done on my teeth; bad teeth run in my family.

I had to take two tests yesterday; passed them both.  Two of the girls in my class didn't pass.  They weren't that difficult, just tricky questions.  Next week, at the end, we have CPR/first aid, for people who are not certified in these, which I am not.  The trainer told me if I could not kneel, and want to just sit, as long as I could compress the chest down 2 inches, she would have no problems.  She also said if I would like to do the first aid separate from the other people in the class, she would be willing to have me do it privately.  So, that's cool because I was worried about that.  Kneeling is quite the task, and then I have to kneel totally upright, I can't "sit back" while kneeling. 

My friend that I live with (Kathy) had pest control out for the raccoons.  The man put out two traps.  The first night the traps were out, a really big raccoon wandered into one.  They are not the type that cut heads off; they simply snap shut when the raccoon enters.  Well, the big guy was rattling the cage.  When I got up in the morning and turned on the light out on the deck and looked out, there he was, laying there, looking up at me with sad eyes.  So, I couldn't look at him for long because I started feeling sorry for him.  The man who did the traps said it was a male.  So I was thinking, where's the mama?  And for the next couple nights, nothing.  So Kathy and I were thinking maybe the man got the sex wrong and it was the mother; after all, how does one tell what sex a raccoon is?  Not like you can check them yourself.

Well, night before last, the mother wandered into the trap.  She was very adamant about wanting to get out and spent more time rattling the cage than the male did.  The man came and removed her yesterday, and left a trap.  We have no idea where the babies are.  Well, they're not little babies anymore.  We are wondering if they moved on, or if a coyote got them.  We do have a few of those around.  The Critter Ridder was not going to cover the whole area the raccoons were wandering into; they resided in the woody area right by our house.  So, that's what happened with that drama lol.. 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline wolfter

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Re: An on-going thread
« Reply #305 on: August 10, 2014, 01:15:15 PM »


Now, what is a 220 sub panel?  I'm guessing that's what the cables you are talking about go into?  That's very handy you are able to complete all those tasks.  Saves quite a bit of cash I'm sure.  How are you healing?


My home has 200 amp service.  I ran a 60amp, 220 volt lines out to a sub panel in my work shop.  I also wired it to accomdate a whole house generator.  Considering a natural gas unit but it's about twice the cost, but more convenient.

Also got the the cable and phone installed. 

I really like Indy.  I've spent several weekends there in the past.  Bill and I would go there when we visited his kids while they attended BGU.  We should do this before Winter kicks in.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline mitch777

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Re: An on-going thread
« Reply #306 on: August 10, 2014, 04:17:19 PM »
Betty, your truly amaze me doing everything do! Women's group, seeking and training for a new job, moving, and all with a healing broken hip! So much for doing it backwards and in high heels. You have that beat by a mile.

David, ugh. 4 hours in "the chair". Not sure what a crown buildup even is. Much more to go? I've had crowns but the just put in a temporary one until the permanent one is ready. My bottom teeth are giving me trouble. I think they are just getting worn down. The aggravation is on the top edges so at least it's not gum or root related. Not sure what can be done as he has already put some bonding material on 4 of them at $200. a whack.

Greg, I don't usually respond much to your comments as we chat often enough to get caught up. Thought I would mention it so it doesn't look like a snub. lol.

We went to a double graduation party yesterday. Two kids from the same family. It was nice to get out for a change. I worked with the mother over 30 years ago she as well as three of her kids have worked for us over the years. They had three kids and wanted a fourth. Well, the fourth turned out to be triplets. lol. I knew them all since birth but haven't seen several in over a decade. Nice day.
31 years hiv+ (oct. 2013) with a curtsy.

Offline wolfter

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Re: An on-going thread
« Reply #307 on: August 10, 2014, 08:51:59 PM »
You're too cute honey.  we discuss more in a few minutes than we could ever type.  :)

We might even allow NE peeps to join us. 
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline mitch777

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Re: An on-going thread
« Reply #308 on: August 10, 2014, 09:09:14 PM »


We might even allow NE peeps to join us.

When does the limo arrive?
31 years hiv+ (oct. 2013) with a curtsy.

Offline wolfter

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Re: An on-going thread
« Reply #309 on: August 10, 2014, 09:36:14 PM »
It's always about the girls.  So whenever Mrs Betty says a date is good I'll work my magic and be there with bells on.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline BT65

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Re: An on-going thread
« Reply #310 on: August 11, 2014, 03:41:55 AM »
It's always about the girls.  So whenever Mrs Betty says a date is good I'll work my magic and be there with bells on.

Aw, thanks Greg.  Let me get through this last week of training, see what my schedule is going to be, and then we can start planning.  Indy would be the best; it would be better, I think, to do this (as you said Greg) before the winter season.  Lord knows what that will bring this year, hopefully not like last year.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline AlanBama

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Re: An on-going thread
« Reply #311 on: August 12, 2014, 03:57:14 PM »
Betty, you truly are amazing honey.  I don't know how you do it!

I am still managing to work my little part-time job, which is really full time work that I cram into three days.   I find myself becoming more impatient with people, and that's not good.  I have had one lady who CONTINUES to send me Obama "hate emails", and rants, etc, which I usually IGNORE.  Today, however, it just hit me wrong and I let her have it with both barrels.  She sent a sweet apology. 

I agree with you, we LTSers are a strong bunch.  My partner's been given a "pat on the back" diagnosis by a SUBSTITUTE doctor (his own doctor was out of town), of "Chronic Fatigue Syndrome".  I'm paraphrasing, but he basically said "your clinic providers have done extensive testing and research and this is the best answer we can give you for all your debilitating muscle aches and fatigue".   Uhhh...extensive?  the ONLY thing they have done is blood work!  No neurologist referrals...nothing.   I think it is the 'thing' to just shove us LTS "on down the road", get us out the door, and not spend any time on us.   At least, that is how it feels.   

Well, we'll get over this hump and keep on keeping on.   HUGS to all of you

Alan    :D
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline aztecan

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Re: An on-going thread
« Reply #312 on: August 12, 2014, 11:57:43 PM »
Funny you should mention hump, Alan.

My recent doctor visit went pretty benignly. The HIV is well controlled, my lipids are almost OK.

But, the CPKs are still above 600 despite my efforts to do no exercises two weeks prior to having the blood drawn.

Another down side is my hump is growing again. So is at least one of the lumps at the base of my skull.

The doctor checked and confirmed what I feared was happening.

He asked if I wanted another referral for another surgery. I said no, at least, not now.

I doubt I would go through that again even if it does come back as big as ever. It was not a pleasant experience.

If it starts to cause other maladies, then maybe.

I really can't complain. After reading about Miss P and the difficulties he has been having, my hump is basically a vanity issue.

And so it goes.

HUGS,

Mark
« Last Edit: August 13, 2014, 12:01:33 AM by aztecan »
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline BT65

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Re: An on-going thread
« Reply #313 on: August 13, 2014, 04:57:34 AM »
Alan, thanks, that means a lot coming from you.  I just do what I have to, and when it seems like my legs won't go anymore (mostly because of my knees lol), I just tell myself to keep going.  Plus Christmas is coming, and I have 3 grandchildren to buy for.  Plus a daughter and various as sundry other relatives, friends. 

I'm so sorry to hear about what your partner is experiencing.  I agree with you, it seems a lot of doctors don't want to deal with us.  I keep thinking that someday the doctors will be wiser about LTS'ers, but by that time we will be gone.  I know my doctor is so very busy, and doesn't think much of what happens.  He is referring me to a neurologist, though, I just don't know when.  When his office makes referrals, it usually means 3-4 months later that you'll be seeing the referred doctor.  But, your  partner should insist on a better explanation if you tihnk something else is going on.  Don't settle for poor care.  I know, easier said than done.

Yesterday we had to demonstrate we could drive the company's vans safely.  One of my co-workers almost killed us lol.  She wasn't aware that in older vans, the brake petal is difficult to get pushed down (you have to push harder), and when she took the corner, the van almost tipped over.  Needless to say, I don't think she passed. 

I'm very, very tired.  I woke up this morning at 2:45 am.  My daughter called at 3, and I just got off the phone with her a few minutes ago. 

The raccoons are gone I believe.  The parents were moved to a far away location, and I believe the babies have relocated.  There was a groundhog, though, under the house so the pest control man put down a trap and apparently it caughter the animal yesterday.  But, it wasn't the type of trap that just catches the animal so the man can relocate it.  It was one that killed him, unfortunately. They are mean, though, and very destructive. 

I hope everyone's doing well.  I would love to go back to sleep, but it's too late now. Which is fine, I'll probably fall asleep in training again lol.  I hope everyone is doing well. 

Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline mrtoad

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Re: An on-going thread
« Reply #314 on: August 13, 2014, 05:40:26 AM »
If you need to upgrade from xp etc to windows 7 or 8,try newegg.com . They have sales often under 100 bucks.However by upgrade I mean a whole new os.you'll have to save your documents on cd/dvd or such.There just aren't many 'upgrades' that let you keep all your info anymore.And the ones that are available (if) will be 2x the cost.Most importantly you need a copy of all your "drivers". Just in case windows disk doesn't have them.Audio,video,lan .you can get them from pc manufacturer,such as hp,dell .
Lee
prezista with a kick from norvir,
Truvada, Intellence. celexa,xanax.Revolving statin

Offline wolfter

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Re: An on-going thread
« Reply #315 on: August 13, 2014, 08:34:42 AM »
Alan, sorry your partner is dealing with this crap.  I shook my head as I recalled a ridiculous diagnosis I rec'd probably 15 years ago.  I was rotating between extreme exhaustion for extended periods to times of unbelievable energy.  "Occasional chronic fatigue syndrome".  I was like WTF!!!  It can't be chronic if it's occasional. 

I've said before, I'm not sure how I survived with that idiot doctor.  Everything was just a result of HIV infection.  (including a ruptured, ulcerated duoduodenal ulcer).

Betty, unfortunately groundhogs are quite dangerous.  Not only in terms of being vicious but the problems they cause around your property.  My grandfather was a mounted posey deputy who raised quarterhorses.  When I was very young, one of the mares was running across the pasture and her leg went into a groundhog hole.  In those days, not many options but to put the poor thing down. 

I've not much cared them since.

I've quit taking the pain pills even though they really helped with sleep.  I think they were having negative affects on my mood.  For the past week or so, I've just felt "off". 

When do we get to see a new and improved smile from MissP ?  After all that work, his smile should pert near be as fabulous as mine.  :)
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline weasel

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Re: An on-going thread
« Reply #316 on: August 13, 2014, 10:26:54 AM »



     A quot from Greg  :  " I've quit taking the pain pills even though they really helped with sleep.  I think they were having negative affects on my mood.  For the past week or so, I've just felt "off". "

   I have been taking Pain pills after ripping my thigh muscles , my mood
  has been depressed  :(

    The leg is getting better so I have stopped them .
  I take trazadone for sleep , I occasionally go for a few days to see if I can
 sleep naturally  ; it does not work out well , I just get so tired I can't get
 off the couch  :'(

  Alan , My mother suffered from Chronic Fatigue for many years . It was
  sad that nothing was ever able to help her .  Not sure Doctors really know
  what it is .  I do think that is a reason " reds " were so popular  ::)

  Betty , I read most of what you write , I only wish perkiness was contagious :)   


                                                             Carl

 P.S. Bob and I are going to can 15 gallons of Roma tomatoes today  ;D

P.P.S.   Greg we tried one of jars I thought was over Cilantroed , apparently
 cooking in the water bath mellowed the flavors . It is super yummy ! 
" Live and let Live "

Offline wolfter

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Re: An on-going thread
« Reply #317 on: August 13, 2014, 11:22:21 AM »
You can differently than I do Carl.  I don't do the boiled jar method for salsa.  But I'm glad the taste mellowed.  I can't stomach cilantro, it's way too bitter for my liking.  I bring my salsa to a boil while my jars heat in the over.  I fill the jars, cap em and turn them upside down.  Much easier and they always seal.

Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline mitch777

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Re: An on-going thread
« Reply #318 on: August 13, 2014, 11:22:57 AM »
Carl, I know what you mean about attempting to sleep without Trazodone. It turns out to be a night of tossing and turning and the next day becomes a foggy blur. Oh well, another pill. :P

15 gallons of toomaters?!! Wow! Send me some lasagna please. :)
31 years hiv+ (oct. 2013) with a curtsy.

Offline wolfter

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Re: An on-going thread
« Reply #319 on: August 13, 2014, 11:35:40 AM »
Carl, I know what you mean about attempting to sleep without Trazodone. It turns out to be a night of tossing and turning and the next day becomes a foggy blur. Oh well, another pill. :P

15 gallons of toomaters?!! Wow! Send me some lasagna please. :)

I'm assuming and hoping he means 3, 5 gallon buckets.  :)  15 gallons of prepared tomatoes is a lot.  Mom went down home every season and picked up a truck bed full of maters.  Our family leases all the homestead farm down yonder to a large grower and we can have as many as we want.  I'm thinking it was usually about 10 - 12 5 gallon buckets full. 

Sometimes it grated my nerves to spend so much time canning with her but I'm already saddened by that loss this year. 
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline mrtoad

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Re: An on-going thread
« Reply #320 on: August 17, 2014, 01:21:08 PM »
Did someone say coffee?? where? yes please
Lee
prezista with a kick from norvir,
Truvada, Intellence. celexa,xanax.Revolving statin

Offline Miss Philicia

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Re: An on-going thread
« Reply #321 on: August 17, 2014, 01:48:43 PM »
I just picked up two bags of coffee beans on my way back from the Head House Farmer's Market: Costa Rican Jardin de Aromas Finca Quizzara and Honduran Juan Jose Alvarado Finca Buena Vista; both roasted by Dogwood Coffee of Minneapolis via our newly opened, lesbian owned coffee bar Menagerie on S. 3rd St, Old City.

They also gave me a free cortado while I was there.

#majcoffeesnob
"Iíve slept with enough men to know that Iím not gay"

Offline mrtoad

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Re: An on-going thread
« Reply #322 on: August 17, 2014, 03:25:11 PM »
they should give you a free cortado just for being able to pronounce those coffee names!
Lee
prezista with a kick from norvir,
Truvada, Intellence. celexa,xanax.Revolving statin

Offline mitch777

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Re: An on-going thread
« Reply #323 on: August 26, 2014, 01:42:23 PM »
So, I had my MOHS surgery done this morning at Yale. Geez, they took out a chunk the size of a penny! Stitched under the skin then more stitches on top to close up the 2" slice.

Most of the time was waiting for results of the tissue. Spent 3 1/2 hours there but they send you into a waiting room with coffee, bagels, and pastries.  8)

Oh, and they said I will most likely get a black eye. Haven't had one of those since I was a kid.
31 years hiv+ (oct. 2013) with a curtsy.

Offline Jeff G

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Re: An on-going thread
« Reply #324 on: August 26, 2014, 02:06:54 PM »
So, I had my MOHS surgery done this morning at Yale. Geez, they took out a chunk the size of a penny! Stitched under the skin then more stitches on top to close up the 2" slice.

Most of the time was waiting for results of the tissue. Spent 3 1/2 hours there but they send you into a waiting room with coffee, bagels, and pastries.  8)

Oh, and they said I will most likely get a black eye. Haven't had one of those since I was a kid.

Thanks for thew update ... get some rest now you hear .

Offline harleymc

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Re: An on-going thread
« Reply #325 on: Yesterday at 05:51:34 PM »
Mitch  if you haven't had a black eye since you were a kid then you must've been living in some very dull hoods.

Good to here you survived your surgical 'street cred'.

Offline mitch777

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Re: An on-going thread
« Reply #326 on: Yesterday at 07:03:34 PM »
Mitch  if you haven't had a black eye since you were a kid then you must've been living in some very dull hoods.

Good to here you survived your surgical 'street cred'.

Just a milk toast life. What can I say. Guess I will have to settle with the surgical Cred. Too funny. Glad to see you noticed my trauma and drama.
31 years hiv+ (oct. 2013) with a curtsy.

Offline J.R.E.

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Re: An on-going thread
« Reply #327 on: Yesterday at 08:20:50 PM »
So, I had my MOHS surgery done this morning at Yale. Geez, they took out a chunk the size of a penny! Stitched under the skin then more stitches on top to close up the 2" slice.

Most of the time was waiting for results of the tissue. Spent 3 1/2 hours there but they send you into a waiting room with coffee, bagels, and pastries.  8)

Oh, and they said I will most likely get a black eye. Haven't had one of those since I was a kid.


Hope you're healing well and quickly. !  Ed had this done ( MOHS) a little while back and it took about the same amount of time.  Four times they had to cut on him.



Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline mitch777

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Re: An on-going thread
« Reply #328 on: Yesterday at 09:02:16 PM »

Hope you're healing well and quickly. !  Ed had this done ( MOHS) a little while back and it took about the same amount of time.  Four times they had to cut on him.



Ray

Thanks Ray. Just was kinda surprised at the extent of it this time. I went through this last year or the year before , just in a better area and less carving.This near-the-eye crap. ugh. Im sure all will be well and good in no time. I just like to bitch about petty stuff like this that keeps interfering with my normal struggles. lol.
31 years hiv+ (oct. 2013) with a curtsy.

 


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