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Author Topic: Crisis situation: 27 CD4  (Read 2696 times)

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Offline allopathicholistic

  • Member
  • Posts: 3,258
Crisis situation: 27 CD4
« on: March 27, 2007, 08:13:55 AM »
Hi everyone. Would you please offer any ideas, or good thoughts, or even prayers if you're religious, for "tnboy" - Mike in Tennesee. His CD4 is down to 27 and he says even standing up is a chore. He can't move out of Tennessee for several reasons and is about ready to throw in the towel. Here is the message he sent:

Some time ago when I was explaining to my Doctor that I could not afford my meds he suggested that I get with the case worker there in his office because she could help me with assistance. I did speak with her and she told me that because I was on Medicare I could not get assistance from any other Government program. She said she understood my situation but there was nothing she could do.

    Not really understanding what that meant, I started doing my own research and seeking out assistance programs. She was right, everyone told me the same thing. Social Security and Medicare do offer low cost , or no cost premiums and drug co-pays if you do not draw more than the guide line they have set. I draw just a few dollars too much a month to meet their guidelines.

  There is no real margin with the guideline. If you draw  $1 less than the set amount you can get all the assistance. If you draw $1 too much you get no assistance. In my opinion, and I told them so, there should be other things taken into
consideration such as the cost of meds that a person may require.

 The last time I saw my Doctor I told him what the case worker told me and that I had been told the same things. He immediately went to his nurses and told them he wanted them to do their own research. The last I heard they told me they were checking out every possible program they knew about but have not been able to find one.

  Many have made the suggestion to me to speak with Lisa. I have spoken with her on the phone a few times ...She is doing a GREAT work and I admire her for it.

I know you just asked a simple question and got a long answer.



Offline Dachshund

  • Member
  • Posts: 5,942
Re: Crisis situation: 27 CD4
« Reply #1 on: March 27, 2007, 08:27:08 AM »
I'm a bit confused and need a bit of clarification. What are the costs of Mike's meds on Medicare...is he on TennCare? I might can steer him towards some agencies in TN that could help.

Hal

Offline allopathicholistic

  • Member
  • Posts: 3,258
Re: Crisis situation: 27 CD4
« Reply #2 on: March 27, 2007, 09:00:34 AM »
A.D.! Many thanks for responding first! ;D Mike didn't give details about costs or agencies. Best bet is for him to answer in this thread and check for new responses  :-\

Offline Gary85741

  • Member
  • Posts: 197
  • Native Virginian living in Tucson AZ
    • Good guy, good heart
Re: Crisis situation: 27 CD4
« Reply #3 on: March 27, 2007, 09:39:32 AM »

For Mike...

     It's easy for me to say this...but you cannot throw in the towel.  Why?  If for no other reason...you've come too far to do so.  If you throw in the towel then your future is behind you.  You must love yourself and resist that as an option.
     Every new day present a possibility...it may seem elusive right now...but nonetheless we each must seek out the answers where they exist. 
     If you truly and honestly cannot move out of TN...then keep at those who are supposed to be able to help you until they find a solution.  The squeaky wheel does usually end up getting oiled.
     Best of luck...
Gary
Poz since '89. 
Current regimen: Rescriptor, Emtriva, Kaletra, Invirase, Acyclovir, Lisinopril, Lipitor, Prilosec, Valium, Testim, Nandrolone, Loperamidr, Marinol.

Offline tnboy

  • Member
  • Posts: 108
Re: Crisis situation: 27 CD4
« Reply #4 on: March 27, 2007, 10:57:46 AM »
 
  First let me say a very Thanks to "allopathicholistic" for his concern of my situation and giving of his time to start this post. It was something he felt he wanted to do and with my permission he has followed through and I do very much appreciate any suggestions others may have to offer.

  I also want to make it clear that I know I am not the only person in a situation like this so with any luck others may benefit from any ideals that any of you may have to offer.

  For several months now much work and research has been done by myself and others who have taken an interest my situation. Unfortunately, so far, we have all reached the same dead end. I have always lived by the old saying "where there is a will there is a way" but sometimes it just take a while to find it and a little help along the way is always a plus.

 Gary, Thanks very much for your words of encouragement. I am not throwing in the towel but admit that somedays it seems the towel is being thrown in for me but I do not give up that easy. It is good to be reminded and I appreciate your encouragement.

 Hal, I am on Medicare only because that is all that I qualify for. I do have a part D plan but as many of you are aware that there is a gap and that is a big problem for me.  Because of the amount I draw each month I do not qualify for any assistance for premiums or co-pays as well.

  I could write a book here today and it probably still would not answer all the questions some of you may be wondering about but to be perfectly honest I do not feel up to, nor have the energy, to detail all that has been told to me or all that has already been done.

 I apologize for that but I know some you can relate to how I feel. I do not get on the computer very much these days due to lack of energy so if I do not respond to any questions some may have right away do not take it personal.

Thanks to everyone taking the time to read this and your thoughts and prayers are all I ask.

Love to All,
Mike

 


 

Offline Dachshund

  • Member
  • Posts: 5,942
Re: Crisis situation: 27 CD4
« Reply #5 on: March 27, 2007, 11:19:37 AM »
Mike here is the number for the TN Health Care Campaign...I don't know if they can help but they might be able to refer you to someone. I know it seems insurmountable but hopefully somehow, somewhere you can find some help.

Hal

T.H.C.C.
1-877-431-7083 Toll Free


Offline tnboy

  • Member
  • Posts: 108
Re: Crisis situation: 27 CD4
« Reply #6 on: March 27, 2007, 04:41:31 PM »
 Thank You, Hal for the info.

 I will certainly check it out. I know there are many more resources available in the Memphis area but unfortunately my area is serviced by Jackson. As close as Memphis is to me it is not possible for me to move into that service area at this time. As I have shared before, transportation is also an issue for me.

  I know there is "NO GOOD TIME" to be diagnosed with this illness but the truth is finding out I was HIV+ could not have come at a worse time in my life. I had just gone through Divorce, my credit was ruined, and I lost everything I had worked for all my life. When I screwed up I did it right but that is just how Life goes sometimes.

 We all have our own story and challenges with this disease and I am no different than anyone else.I have faith It will all work out for the best somehow but till then I will carry on. :)

Thanks Guys
 

Offline stratosphere

  • Member
  • Posts: 61
Re: Crisis situation: 27 CD4
« Reply #7 on: March 27, 2007, 07:03:28 PM »

Thanks to everyone taking the time to read this and your thoughts and prayers are all I ask.

Love to All,
Mike

 

Mike,  i dont know you and i really dont have any idea how to answer your questions.  But this last line i think i can help you with,  you are absolutely in my thoughts and prayers starting right now.  I know we all go through tough times but your post has moved me in that you seem very kind and thankful in your words.  Im sure you will find the answers you are looking for and you situation will improve,  because if nothing else from what you write you seem like an outstanding person.  Hang in there and know that we are all sending love and kind thoughts your way.

1/05   CD4 305  VL  ?        34%
2/05   CD4 310  VL  ?        35%
7/05   CD4 277  VL  <50    43%
11/05 CD4 516  VL  <50    46%
2/06   CD4 640  VL  <50    46%
6/06   CD4 578  VL  <50    46%
10/06 CD4 491  VL  <50    50%
3/07   CD4 674  VL  <50    50%
7/07   CD4 516  VL  <50    43%
11/07 CD4 635  VL  <50    44%
3/08   CD4 584  VL  <50    48%
7/08   CD4 510  VL  <50    49%
11/08 CD4 580  VL  <50    49%
2/09   CD4 661  VL  <50    50%

Offline milker

  • Member
  • Posts: 4,034
  • Protected phone sex
Re: Crisis situation: 27 CD4
« Reply #8 on: March 27, 2007, 07:17:15 PM »
Mike,

hang on there, people in this forum will help you find a solution! Not being in your situation and in a different state all I can do is send you zillions of hugz and wish you a long a happy life after those problems are resolved!

Milker.
mid-dec: stupid ass
mid-jan: seroconversion
mid-feb: poz
mar 07: cd4 432 (35%) vl 54000
may 07: cd4 399 (28%) vl 27760
jul 07: cd4 403 (26%) vl 99241
oct 07: cd4 353 (24%) vl 29993
jan 08: cd4 332 (26%) vl 33308
mar 08: cd4 392 (23%) vl 75548
jun 08: cd4 325 (27%) vl 45880
oct 08: cd4 197 (20%) vl 154000 <== aids diagnosis
nov 2 08 start Atripla
nov 30 08: cd4 478 (23%) vl 1880 !!!!!!!!!!!!!!!!!!!!!!!!!!
feb 19 09: cd4 398 (24%) vl 430 getting there!
apr 23 09: cd4 604 (29%) vl 50 woohoo :D :D
jul 30 09: cd4 512 (29%) vl undetectable :D :D
may 27 10: cd4 655 (32%) vl undetectable :D :D

Now accepting applications from blowjob ninjas™

Offline AlanBama

  • Member
  • Posts: 3,604
  • Alabama: the 'other' 3rd World Country!
Re: Crisis situation: 27 CD4
« Reply #9 on: March 27, 2007, 07:22:27 PM »
Mike,

sending you love and hugs, and hoping things improve for you, my friend.

Alan   :-*
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline J.R.E.

  • Member
  • Posts: 7,099
  • Joined Dec-2003 Living positive, since 1985.
Re: Crisis situation: 27 CD4
« Reply #10 on: March 27, 2007, 08:41:59 PM »
Hello Mike,

Just want you to know , That I am thinking of you, and sending good thoughts your way. I am not sure if any of the following links may be helpful to you, but please take your time and check the out. Continue making phone calls, I am glad to hear that you have others helping you.

http://www.atdn.org/access/index.html


http://www.atdn.org/access/states/tn/care.html

http://www.coetenn.com/MCM/CreateMCMpages.htm


http://www.atdn.org/access/padrugs.html


Like I said, I am not sure if any of the above can be helpful, but make sure to have someone follow through for you.


Take care of yourself, stay in touch--------Ray




« Last Edit: March 27, 2007, 08:43:33 PM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline Jody

  • Member
  • Posts: 1,818
Re: Crisis situation: 27 CD4
« Reply #11 on: March 27, 2007, 09:17:34 PM »
Dear Mike....I am so sorry you are going through such a diffcult time, it is such a crime that your counts have gone so low, the stress of financial worries does not help the situation at all...That donut hole in Medicare is so awful for so many good folks and you are indeed a kind man - a real southern gent indeed.

On Thursday here in New york we are marching for national heatlh care for all - for people first and profits secondary.  I will be thinking of you and so many others here at that time.  Keep us posted, don't quit, keep fighting for your rights- try local organizations and politicians in Tennessee.  Keep us posted.

Jody  >:(
"Wake up to find out that you are the eyes of the world".
 "Try to discover that you are the song that the morning brings."

Grateful Dead

Offline kentb

  • Member
  • Posts: 75
Re: Crisis situation: 27 CD4
« Reply #12 on: March 27, 2007, 09:18:26 PM »
Try giving Enatra Bell a call:
Enatra Bell
Insurance Specialist
Middle and South West Tennessee
615-259-4866 ext 293
866-902-3994
ebell@nashvillecares.org
she works with the Nashville Cares organization, I am under the impression they might be able to help with Copays.
 
best wishes,

Kent

Offline Christine

  • Member
  • Posts: 1,069
Re: Crisis situation: 27 CD4
« Reply #13 on: March 30, 2007, 01:13:43 PM »
What about calling the drug companies themselves? Patient Assistance Programs.

Joining a clinical trial? Meds and labs are almost always covered.

Keeping you in my thoughts and prayers.

Christine
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

 


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