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Author Topic: Lowest CD4 number and long-term AIDS survivors  (Read 3804 times)

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Offline SASA39

  • Member
  • Posts: 690
Lowest CD4 number and long-term AIDS survivors
« on: March 20, 2007, 10:16:17 AM »
Just to give some strength to others and courage them :
please just note your lowest CD4 number , the highest one and for how long  are you living with AIDS .
Thanks                             Alex
Oct.     `06.  CD4=58  ?    %       VL not perform. ?!?
25.Dec.`06.         203       14        VL= 0
29.May.`07.    broken device        VL=1363
20.June`07     broken device        VL=0
25.Dec `07  CD4=582                  VL=70
14.May `08  CD4=448
29.July `08                                  VL=0
26.Nov `08  CD4=674                    VL=179
16.Mar `09  CD4=554                    VL=0
19.Jan`10 CD4=715               
03.Mar`10                                    VL=0
24.Aug`10 CD4=524                     VL=0
04.Dec`10 CD4=626                     VL=0
15.Sep`11                                   VL=93
17.Nov`11                                   VL=0
05/26 .Jul`12 CD4=713                 VL=0
28.Nov`12 CD4=916                     VL=0
09.May`13                                 VL=0

Offline thunter34

  • Member
  • Posts: 7,314
  • His name is Carl.
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #1 on: March 20, 2007, 10:28:47 AM »
So far, coming up on 2 1/2 years since diagnosis.

Last two counts before beginning meds:

December 2004:   CD4 = 145

February   2005:   CD4 = 89

VL was considered greater than a million. 


EDITED FOR THIS:  Oops!  Forgot to give the highest one.  Thus far, I think it has been 322 since meds, but it has dipped back down some since than and is typically hovering in the 275-300 range. 

VL is undetectable now and has been since near the beginning of 2006.  Started meds in late March 2005.  Took 9 months or so to get the VL down.

« Last Edit: March 20, 2007, 10:33:02 AM by thunter34 »
AIDS isn't for sissies.

Offline AlanBama

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  • Alabama: the 'other' 3rd World Country!
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #2 on: March 20, 2007, 10:39:35 AM »
CD4:
10/91 -  1
01/92 - 10
08/93 -  8
12/95 -  6  ; VL > 500k

latest labs 3/5/07:
CD4    - 488
VL      - <50
CD4% - 19

"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Christine

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  • Posts: 1,069
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #3 on: March 20, 2007, 10:45:28 AM »
Diagnosed in 1993- around 300-400 tcells. Don't know the vl. A few months later cd4 dropped below 200, and has stayed there since. Lowest cd4 was 5. I was working full time, felt great, no OI's at all.

Since then cd4 has gone up and down, but never over 200.

Highest vl was over 2 million when I was in the hospital in 2001.

Up until October 2005, I was doing pretty well. Since Oct, I have had a series of OI's, but am still hanging in there.

Christine
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline thunter34

  • Member
  • Posts: 7,314
  • His name is Carl.
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #4 on: March 20, 2007, 10:52:51 AM »
Hey, Christine!  I have a question.  I was told that my VL was likely closer to 2 million when I first got diagnosed, but the VL test results were "off the charts...greater than a million".  I was told they wouldn't test any higher than that- greater than a million was enough to know, so beyond that was neither here nor there.  Are there different tests that chart VL's higher up?  Like some CD4 tests read <400 and some read as <50 for undetectable?  I'm just curious.  I think the feeling with mine was that there was no real point to testing VL any further (at public expense) since it was already known to be so high to begin with- how much higher was irrelevent.  I am just curious if anyone knows if there are different VL testing methods and how high they can measure it up.

Gosh, this thread is already working!  5 CD4s?    1 ?!  I'm feeling inspired already myself. 
AIDS isn't for sissies.

Offline Miss Philicia

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  • celebrity poster, faker & poser
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #5 on: March 20, 2007, 11:44:25 AM »
Without digging up copies of labs my lowest was something like 180 cd4 in late 1993 a couple months after diagnosis, though by that time I'm sure I'd been infected for 4-5 years.

My highest was July of last year at 1037 cd4 which was a response during my 2nd month of switching to fuzeon/prezista.  So if any of you low count people need encouragement there it is -- however note that it took me 13 years to achieve that.  Currently my cd4's have stabilized in the 800 range.

Also of note, I lived ever since the advent of VL tests with never achieving an undetectable marker until August of last year, but even during all o f that my cd4's continued to increase (though very slowly but consistently) as well as my %.
« Last Edit: March 20, 2007, 11:47:02 AM by philly267 »
"Ive slept with enough men to know that Im not gay"

Offline bravebuddharich

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  • Posts: 179
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #6 on: March 20, 2007, 11:54:21 AM »
Diagnosed 1987.

Lowest Cd4 count: 53, Jan. 06
Highest viral load: 36,000, 3 years ago

Highest cd4 count: 700's for most of the 1990's
Lowest viral load: undetectable, for the past 7 months
Current cd4 count: 460

I didn't have any problems until 2001 - it's been a rollercoaster ride since then - I've been doing great so far this year, 2007, after my worst year, 2006!

Offline Fosbery

  • Member
  • Posts: 47
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #7 on: March 20, 2007, 11:57:57 AM »

I want to thank Sasa for starting this thread, it really does help the newbies stay encouraged about the future, it shows that there is still a furture and that goes a long way.

Thanks to all of you for sharing, your the salt of the earth.

Garret.

Offline Robert

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  • Posts: 2,644
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #8 on: March 20, 2007, 12:28:23 PM »
10/03  tcells  18 (8%)
10/03  vl  500,000+

11/06  tcells   634 (32%)
undetectable since 3/04.

Started meds Dec. 2003
Reyataz, Norvir, Truvada
..........

Offline shepsmom

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  • Posts: 38
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #9 on: March 20, 2007, 02:02:27 PM »
Dec 2002 -28
Feb 2007 -330

Diagnosed 1986

Offline joemutt

  • Member
  • Posts: 1,042
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #10 on: March 20, 2007, 02:10:38 PM »
1997 220 VL 500,000
2007 1140 at 48 %, VL < 35

Offline David84

  • Member
  • Posts: 34
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #11 on: March 20, 2007, 02:49:29 PM »
1984 cd4 200ish as I recall  .. they didn't have viral load back then. :)
02/07 cd4 77  viral load pending.

Doing well for 23 years!
Cheers.
David


Offline allopathicholistic

  • Member
  • Posts: 3,258
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #12 on: March 21, 2007, 09:51:10 AM »
Lowest 42 (7%) VL=100,000 (Sept 2005, started HAART too)
Highest 419 (18%) VL=67 (March 2006)
Current 342 (20%) VL=<50

I don't know how long I've had HIV. I can guess though: late 1990's  ???

Tested positive in the spring of 2000
« Last Edit: March 21, 2007, 10:14:11 AM by allopathicholistic »

Offline Moffie65

  • Member
  • Posts: 1,755
  • Living POZ since 1983
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #13 on: March 21, 2007, 12:12:44 PM »
Hi Alex,

Diagnosed with HIV, September, 1983

First AIDS diagnosis, July 1994
     CD4 - 20
      vl   not available
1996, vl  1,000,000


Last test,  January, 2007
     CD4 - 650
     vl   -  1500

I hope this helps.

Love,
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline koi1

  • Member
  • Posts: 713
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #14 on: March 21, 2007, 07:01:06 PM »
My lowest was 60 cd4 and
Highest vl 60,00

Currently 292
viral load undetectable since March 10th 2006
 
Yes there is hope and things will get better.

rob
diagnosed on 11/20/06 viral load 23,000  cd4 97    8%
01/04/07 six weeks after diagnosis vl 53,000 cd4 cd4 70    6%
Began sustiva truvada 01/04/07
newest labs  drawn on 01/15/07  vl 1,100    cd4 119    7%
Drawn 02/10/07
cd4=160 viral load= 131 percentage= 8%
New labs 3/10/07 (two months on sustiva truvada
cd4 count 292  percentage 14 viral load undetectable

Offline Rich_Leeds

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  • Posts: 15
  • I'm just a tennis freak!
    • Myspace
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #15 on: March 23, 2007, 07:14:37 PM »
Hi!  Just joined this forum this afternoon, so this is my first post!

My lowest readings were in September 2005, CD4 - 57 and Viral Load at 650,000
Highest was March 2007, CD4 - 425, Viral load undetectable.

My best set of results in 14 years, still smiling!
Diagnosed February 1993
Meds - Kaletra and Combivir
15/03/07 - CD4 - 425, Viral Load - undetectable
24/05/07 - CD4 - 486, Viral Load- 94
06/09/07 - CD4 - 502, Viral Load - undetectable
03/01/08 - CD4 - 475, Viral Load - 137

Offline Kellyk

  • Member
  • Posts: 49
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #16 on: March 23, 2007, 07:24:13 PM »
lowest - 10/06 (diag)
CD4 - 6
CD4% - 1

01/07
CD4 - 188
CD4% - 9

Offline Ihavehope

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  • Posts: 1,366
  • Yes, I'm a cry baby, AND WHAT?
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #17 on: March 23, 2007, 07:26:32 PM »
lowest - 10/06 (diag)
CD4 - 6
CD4% - 1

01/07
CD4 - 188
CD4% - 9


You seem to have made a very good improvement in the last 5 months. Keep up the good work.

Al
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline heartforyou

  • Member
  • Posts: 1,105
  • I must be a survivor in many ways...
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #18 on: March 23, 2007, 07:27:40 PM »
Diagnosed 1987. Infected : early eighties. On HAART since 1995

Lowest : 1995 : 6 cd4  Viral load : > 5 million !!!!. I think I hold about a measured record here.

Highest : 2000 : 950 CD4.

VL : undetectable since 1996

Latest CD4 count march 07 : 781

Hermie
Diagnosed in 1987 and still kicking
Viread, Kivexa (Epzicom),Viramune once daily

Happiness is the freedom of breathing fresh air every day.

Offline thunter34

  • Member
  • Posts: 7,314
  • His name is Carl.
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #19 on: March 23, 2007, 07:33:14 PM »
Diagnosed 1987. Infected : early eighties. On HAART since 1995

Lowest : 1995 : 6 cd4  Viral load : > 5 million !!!!. I think I hold about a measured record here.

Highest : 2000 : 950 CD4.

VL : undetectable since 1996

Latest CD4 count march 07 : 781

Hermie

Which makes me want to re-ask my question from post #4 of this thread.  Are there different testing methods for measuring VL?  If so, what are they and how high can they measure?  If anyone knows, post here or PM me.

This is another of the better current threads to me.  Amazing to see how far people have come.
AIDS isn't for sissies.

Offline Gary

  • Member
  • Posts: 37
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #20 on: March 23, 2007, 07:52:00 PM »
hello
July 2003 cd4 60, VL 3/4 million
Jan 2007 cd4 400 VL <40 (undetectable) which it has been since Dec 03
Highest cd4 has been 481, slowly climbing and my doc hopes it will still climb in the years to come.
 ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D

Offline dad1216

  • Member
  • Posts: 135
Re: Lowest CD4 number and long-term AIDS survivors
« Reply #21 on: March 23, 2007, 09:25:05 PM »
18 years

Current CD4 count of 3 is my lowest.
23 years HIV+ (Oct 88)
11 years AIDS (March 00)

CD4=83  VL=47,000  (May 2011)
CD4=63  VL=78,470  (Oct 2010)
Prezista..Norvir..Truvada

 


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