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Author Topic: Updated OK-I'm Starting to Freak Out a Bit - SJS?  (Read 2641 times)

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Offline northernguy

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Updated OK-I'm Starting to Freak Out a Bit - SJS?
« on: March 12, 2007, 10:09:54 PM »
As mentioned in a thread below.  My doc says I'm having an allergic reaction to Bactrim (which I stopped Saturday night). He said wait it out and the rash should be gone in @ 48 hours.  But I went on the net looking for Bactrim allergy and noticed Stevens-Johnson Syndrome can occur with Bactrim.   Now I'm starting to freak out!!!  How do you know the difference betwen a rash and developing SJS?!
« Last Edit: March 13, 2007, 07:04:01 PM by northernguy »
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline libvet

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Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #1 on: March 12, 2007, 10:30:29 PM »
As mentioned in a thread below.  My doc says I'm having an allergic reaction to Bactrim (which I stopped Saturday night). He said wait it out and the rash should be gone in @ 48 hours.  But I went on the net looking for Bactrim allergy and noticed Stevens-Johnson Syndrome can occur with Bactrim.   Now I'm starting to freak out!!!  How do you know the difference betwen a rash and developing SJS?!

Generally, the first sign of SJS is not a rash, it is a fever, sore throat, and headache, followed by a rash.   

Keep an eye on it, but don't panic at this point.


Offline northernguy

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Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #2 on: March 12, 2007, 10:46:40 PM »
Generally, the first sign of SJS is not a rash, it is a fever, sore throat, and headache, followed by a rash.   

Keep an eye on it, but don't panic at this point.



Thing is, I have a very mild fever (99.2) and yesterday a bit of a headache (thought it was sinuses).  Has anybody on the board gone through this?
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline Matty the Damned

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Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #3 on: March 12, 2007, 11:30:02 PM »
Yairs, I have. Rashes can be bad things. If you're concerned you need to see your doctor.

MtD

Offline jkinatl2

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Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #4 on: March 12, 2007, 11:43:06 PM »
Honestly, if you are as frightened as you indicate, you would be better served by calling your doctor ASAP and going in tomorrow. Perhaps even to the Emergency Room. SJS is nothing to play with, and nothing to diagnose over the phone nor internet.

If it turns out to be nothing, you can easily feel embarrassed. Last time I checked, feeling embarrassed did not kill someone. SJS, however, can.

Why a doctor would disregard a rash is beyond me, especially when a small but significant percentage of those on these drugs experience a very medically dangerous effect.

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

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Offline milker

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Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #5 on: March 13, 2007, 12:05:27 AM »
The problem with us is that we're over educated by reading so much about all those diseases that can happen when we're a bit weak, so I"m sure you read about every disease that can happen when you're hiv positive like I did, and now anything that goes wrong and you find the exact same symptoms online and you think you have the disease.

I'm not blaming you i'd do the same!!!!!!

But only a doctor can diagnose your problem. Go see a doctor and get him to do the appropriate tests.
mid-dec: stupid ass
mid-jan: seroconversion
mid-feb: poz
mar 07: cd4 432 (35%) vl 54000
may 07: cd4 399 (28%) vl 27760
jul 07: cd4 403 (26%) vl 99241
oct 07: cd4 353 (24%) vl 29993
jan 08: cd4 332 (26%) vl 33308
mar 08: cd4 392 (23%) vl 75548
jun 08: cd4 325 (27%) vl 45880
oct 08: cd4 197 (20%) vl 154000 <== aids diagnosis
nov 2 08 start Atripla
nov 30 08: cd4 478 (23%) vl 1880 !!!!!!!!!!!!!!!!!!!!!!!!!!
feb 19 09: cd4 398 (24%) vl 430 getting there!
apr 23 09: cd4 604 (29%) vl 50 woohoo :D :D
jul 30 09: cd4 512 (29%) vl undetectable :D :D
may 27 10: cd4 655 (32%) vl undetectable :D :D

Now accepting applications from blowjob ninjas™

Offline northernguy

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Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #6 on: March 13, 2007, 12:06:48 AM »
...
Why a doctor would disregard a rash is beyond me, especially when a small but significant percentage of those on these drugs experience a very medically dangerous effect.

Well, he didn't really didn't disregard it.  More like acknowledged it, gave me some antihistamines and expected it to resolve.  He's poz as well, so I'm quite confident in him.  Just freaked out. Sorry, I'm still relatively new to this.
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline budndallastx

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Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #7 on: March 13, 2007, 06:57:05 AM »
I had a bactrim reaction and ended up in the emergency room with a fever, very low blood pressure and a rash all over.  I just started to feel really crappy and it just got worse.  Luckily it was only an allergic reaction instead of SJS. 

How are you doing today ?
Meds since: 11/20/2006
Sustiva / Truvada
12/08/2008 VL:<48 CD4 622 (38%)   
9/8/2008 VL:<48 CD4 573 (30%)
5/2008 VL:<48 CD4 464 (30%)
1/2008  VL: <50  CD4 425(28%)
9/2007   VL: <50  CD4 465 (27%)
6/2007   VL: <50   CD4 443 (26%)
3/2007  VL: <50   CD4 385 (25%)
12/2006 - VL: <50   CD4: 384 (25%)
11/2006 - VL:  22K  CD4: 208 (18%)

Offline northernguy

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Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #8 on: March 13, 2007, 10:41:06 AM »
Woke up this morning after a good sleep.  The rash is a worse, but definitely no sore throat and my temp is it usual 98 (below normal).  I'll give my doc a call and see what he says.

Bud, what did they give you in the emergency room?
« Last Edit: March 13, 2007, 10:44:18 AM by northernguy »
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline Ihavehope

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  • Yes, I'm a cry baby, AND WHAT?
Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #9 on: March 13, 2007, 10:45:06 AM »
Keep us posted honey. Good luck.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline northernguy

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Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #10 on: March 13, 2007, 01:50:04 PM »
Thanks evryone for the advice and PM's.  I guess I'm freaking since this is the 1st definitely HIV related thing that has happened to me.  Plus the rash is so visible.  I just wish the antihistamone (aerius) would show some effect.  But I gather it can take a while for the reaction to subside.  Its weird, you think bactrim would have left my system by now.
« Last Edit: March 13, 2007, 02:29:01 PM by northernguy »
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline northernguy

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Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #11 on: March 13, 2007, 06:53:29 PM »
Just to update: saw my doc again today.  He said: yes the rash has gotten worse and is a classic allergic reaction rash.  He's given me a perscription for prednisone,  Hopefully this will do the trick.  Interestingly  despite his large AIDS practise he has yet to see a case of SJS. 

Especially since I was called for a job interview :o  I must admit, this whole episode has made me very wary about switching jobs and insurers etc.
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline Matty the Damned

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Re: OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #12 on: March 13, 2007, 07:03:22 PM »
He's given me a perscription for prednisone,  Hopefully this will do the trick.

Oh babe, prednisone will do the trick alright. Be sure to make yourself familiar with the side effects of this potent cortico-steroid, just so you don't get any nasty surprises.

MtD

Offline northernguy

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Re: Updated OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #13 on: March 13, 2007, 07:10:52 PM »
Thanks Matty - might this include something like projectile vomiting during my interview?  I do worry something like that might cost me the job.   And I will have to find a suit and tie colour that downplays my splotchy red face - green perhaps?
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline Matty the Damned

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Re: Updated OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #14 on: March 13, 2007, 07:15:17 PM »
Thanks Matty - might this include something like projectile vomiting during my interview?  I do worry something like that might cost me the job.   And I will have to find a suit and tie colour that downplays my splotchy red face - green perhaps?

Well taken on an empty stomach prednisone can cause nausea, so drop it with a feed doll. :-*

Good luck with the interview.

MtD

Offline milker

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Re: Updated OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #15 on: March 13, 2007, 08:02:57 PM »
hey northern I was on prednisone recently and the side effects I had was tingling and being high 30 minutes after I took it for about 2 hours. I felt like I had a big head (which would go well with my big mouth and my big................................................fingers).
mid-dec: stupid ass
mid-jan: seroconversion
mid-feb: poz
mar 07: cd4 432 (35%) vl 54000
may 07: cd4 399 (28%) vl 27760
jul 07: cd4 403 (26%) vl 99241
oct 07: cd4 353 (24%) vl 29993
jan 08: cd4 332 (26%) vl 33308
mar 08: cd4 392 (23%) vl 75548
jun 08: cd4 325 (27%) vl 45880
oct 08: cd4 197 (20%) vl 154000 <== aids diagnosis
nov 2 08 start Atripla
nov 30 08: cd4 478 (23%) vl 1880 !!!!!!!!!!!!!!!!!!!!!!!!!!
feb 19 09: cd4 398 (24%) vl 430 getting there!
apr 23 09: cd4 604 (29%) vl 50 woohoo :D :D
jul 30 09: cd4 512 (29%) vl undetectable :D :D
may 27 10: cd4 655 (32%) vl undetectable :D :D

Now accepting applications from blowjob ninjas™

Offline tigger2376

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  • too bad to die youngish!
Re: Updated OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #16 on: March 13, 2007, 08:26:52 PM »
I seem to remember my consultant saying that the chances of SJS were almost literally one in a million..when I got it!
Don't beat yourself up for worrying, better to get things checked..hope you feel better soon and good luck with job
(and may sound mad but you can get a pale green foundation cream which takes out the redness in your skin and doesn't make you look like an alien!)
Jo
x
« Last Edit: March 13, 2007, 08:29:08 PM by tigger2376 »
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

Offline northernguy

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Re: Updated OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #17 on: March 13, 2007, 08:42:45 PM »
Thanks all.  Bit of a downer, the message from the employer wasn't to schedule a second interview - it was to tell me they had selected someone else.  Bugger.  Oh well, better go drown my sorrows with tequila and prednisone. ;)
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline northernguy

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Re: Updated OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #18 on: March 13, 2007, 10:46:05 PM »
I seem to remember my consultant saying that the chances of SJS were almost literally one in a million..when I got it!..

Thanks Jo, was your Bactrim related?  I found an interesting  site from the UK(hope its not too conspiracy-theory for some) about Bactrim: http://briandeer.com/septrinindex.htm

Incidentally, two hours after the first dose of three 5 mg prednisone and the rash has subsided dramatically!
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline Matty the Damned

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Re: Updated OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #19 on: March 14, 2007, 01:27:17 AM »
Incidentally, two hours after the first dose of three 5 mg prednisone and the rash has subsided dramatically!

Oh babe, when it comes to shutting down inflammatory responses prednisone is Teh Shit. And, as you've noticed, it works fast. Now you've started it, you have to take it EXACTLY as the doctor prescribes. You can't just stop taking it suddenly.

15 mgs should be fairly light on the side effects. You might experience some water retention and some weight gain. Also, your CD4 counts may well drop. Don't fret if they do, they'll bounce up again when you stop.

MtD

Offline northernguy

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Re: Updated OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #20 on: March 14, 2007, 06:45:40 PM »
Thanks Matty.  The best side-effect I found listed for prednisone was "inappropriate happiness".  One does hate getting happy at innopportune times.  Thank heavens I don't have a funeral to go.
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline tigger2376

  • Member
  • Posts: 462
  • too bad to die youngish!
Re: Updated OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #21 on: March 14, 2007, 08:30:33 PM »
Speaking as someone who giggles at funerals, don't need drugs for 'innapropriate happiness!'...know its nerves but does look bad ;D
And my SJS was related sustiva...HIV, the disease thats like christmas, coz its always giving you gifts!
Seriously, glad the rash etc seems to be sorting itself out
take care, and let us know how you doing
xx
I know i'm going to enjoy the party in the afterlife, but do you all mind that I'm going to be VERY late!!!

Offline david25luvit

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  • Member since March 2005
Re: Updated OK-I'm Starting to Freak Out a Bit - SJS?
« Reply #22 on: March 18, 2007, 12:05:38 PM »
Having had a severe case of SJS I am relieved to hear you are doing better, Northernguy....
Imagine being microwaved for a half hour and that was me....my tongue and the inside of
my mouth peeled, lost all my fingernails, and toenails...went rabid for four days
had severe chemical burns to my trunk, arms, legs
and feet and we won't even talk about the inside of my anus and my penis ::)
.
I know its been a while but I
hope you're feeling better good buddy :-*
In Memory of
Raymond David McRae III
Nov. 25, 1972- Oct. 15, 2004
I miss him terribly..........

 


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