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Author Topic: Feeling Positive but still fighting fear  (Read 3471 times)

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Offline Poz-3/6/07

  • Member
  • Posts: 10
Feeling Positive but still fighting fear
« on: March 09, 2007, 08:28:39 AM »
Hello community,

I just found out on 3-6-07 that I was indeed HIV+.
It was a shock to my wife, however I knew that I had danced with the devil back in November with a drug party with people I didn't know.
Was my first sampling of a needle, and I guess it only takes one shot of a dirty needle to be thrown into a whole new life.

Lesson learned.

The great part is that my wife and I had not been intimate since the party in October, so she is negative. Thank God.

I have to admit that while I'm staying positive about being positive, I am very afraid of the unknown. My first doctors appt at the Mayo Clinic (supposedly the best place for HIV patients) is on later this month.

MY QUESTION:

What can I expect at my first doctors appt? I heard something about 9 vials of blood...ouch

Any education would be helpful in preparing my mind.....

I stumbled across this forum, and it is so nice to have a community of experts and people feeling that same as me.

Although I danced with the devil, it doesn't mean I have to live with the devil.
My mistake was made and now I have to accept the consequences.

My wife has vowed to stay for the long term and even better my dad heard the news and is by my side (only 2 people I told).

From this forum, Ive learned allot from each of you about CD4 and VL....THANK YOU !!!!!
Ill let you know what mine come back later this month.

Just wanted to introduce myself, and say that together we can walk through the storm with education and strength from others.

I'm trying to stay positive about being positive

Offline dtwpuck

  • Member
  • Posts: 1,013
  • дано мне тело, что мне делать с ним?
Re: Feeling Positive but still fighting fear
« Reply #1 on: March 09, 2007, 10:01:41 AM »
Wow.. poz...  just three days.  Welcome.

You have taken the first step in trying to remain sane, learning to deal with this disease.  Your positive outlook will take you farther.  And, when it's not so easy to maintain, we will be here to listen. 

You are very lucky that your wife and father are supportive.  This is a huge shock, and you might expect some really rocky times ahead.  They are going to need to talk to you as much as you are going to need to talk to them.  Remain open to the difficulties that occur when people have to express emotions regarding fear and mortality.

It's a tough lesson to learn, dancing with the devil, as you put it.    But, how you got hiv is now a thing of the past.  Your current reality is that you are living with the disease right now, and will continue to do so.  In my experience, the best advice people have given is not to dwell on anything about how you got it, and move into the realm of how you are going to deal with the emotions you feel.

You say you are still fighting fear.  We all are.  Fear of death.  Fear of being sick.  Fear of being alone.  Fear that no one will understand.  Fear is a normal human emotion.  It keeps us alive, keeps us out of danger.   But it also cripples us.. makes us make bad decisions... keeps us insecure.

When I am afraid, I ask myself (outloud)... what do I fear?  What is the worst that could happen?  Can I deal with it if that does occur?  If I can't, can I get help?  Most of the time, I don't get much farther than this before I start realizing that whatever anxiety about what will or won't happen has been mitigated by the fact that I know I can deal with whatever life throws my way.  Sometimes I don't know how I'm going to deal.  But I usually figure it out.   

Right now, your fears are probably all mixed together... difficult to sort out... not as easily defined.  Or, they are something huge, like fear of death.  Take time to talk them out.  Talk with your wife.  Talk to yourself.  Face each of them one by one.    Feel what you need to feel.  Remember, it's OK to cry, it's ok to be afraid, and it's ok to ask for help.

There is not a panacaea on how to deal with these anxieties.  Hopefully you will be exposed to different ways of coping on this board.  And, hopefully, you will see glimmers of your own experience reflected in the experiences of others here.

Again, welcome.  I am hoping someone else will be able to answer your medical questions.  I don't even remember my first doctor's appointment regarding hiv.  Unlike you... I did the drugs AFTER I seroconverted.  Those days are a haze.

Much respect and in the spirit of reaching out.... Scott
Floating through the void in the caress of two giant pink lobsters named Esmerelda and Keith.

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 24,381
Re: Feeling Positive but still fighting fear
« Reply #2 on: March 10, 2007, 05:03:20 PM »
Poz, welcome.

Feeling frightened is completely understandable and par for the course. You're not going to suddenly fall into a black hole. Really. Although your mind may scare you with that kind of thinking sometimes.   

I'm glad you have found your way to this site. Having HIV in your life is just about as new as it can be at this point. Gradually you'll learn everything you need to about staying healthy. It's essential that you get a doctor with whom you can form a good working partnership to keep you healthy.

Remember that anytime you and your wife have intercourse you need to be wearing a condom. No exceptions. Many thousands of sero-discordant couples are having good lives together in everyway including sexually, and you can as well. Just make sure you always use a latex condom.

You can come here anytime you like to ask questions or to discuss anything that's on your mind. And again, welcome.

Cheers,
« Last Edit: March 10, 2007, 05:07:07 PM by Andy Velez »
Andy Velez

Offline Poz-3/6/07

  • Member
  • Posts: 10
Re: Feeling Positive but still fighting fear
« Reply #3 on: March 11, 2007, 04:49:59 PM »
Thanks guys...

I appreciate the education and support.

Its so nice to have a community.

 ;D

Offline jyngfilm

  • Member
  • Posts: 121
  • AHH! I knew it, Betty had balls
Re: Feeling Positive but still fighting fear
« Reply #4 on: March 17, 2007, 07:35:36 PM »
welocme poz,
I just glanced at what the others have written so, if this is redundant I apoligize. But for me, it was the first month that was so scarey. After awhile the mind sorta takes stock and things begin to get better, the fear subsides.
I've been poz just a year and two months and its been easier to handle.
I MAKE THIS POINT: I lived in denial for that first year and it has cost me dearly. I didnt seek medical attention for  year and once I did, I had slipped into the next phase of HIV and that's AIDS. SO learn from my mistake and DO go and seek medical attention NOW. I wish I had.   But, even though I;ve progressed to this position I am asyemtimacatic, and ... actually feel great > but have made my recovery profoundly more difficult.
The blood work you'll first encounter is not at all bad, perhaps alot of vials of blood, but once they insert the exponge needle, it won't be removed till all viles are full and its no problem.  Glad you've found out so early.
Ask anything, and this group of wonderful people will help answer any question.  Peace ~jordon
munchausen by proxy is not an out in my case

Offline koi1

  • Member
  • Posts: 713
Re: Feeling Positive but still fighting fear
« Reply #5 on: March 18, 2007, 06:10:11 PM »
Regardless of how you got it, the important thing is to forgive yourself and move forward. It is also a great time to put your life in perspective as it looks like you have already begun to do. There is lots of hope to live a long healthy life for those being treated and newly infected. Yes the the road ahead maybe bumpy, but far less hazardous than in the past. I hope you get all the support that I got and continue to get here. Just remember that very important word, HOPE.  This little word has gotten me through many tough times with this disease, especially when I first found out.
diagnosed on 11/20/06 viral load 23,000  cd4 97    8%
01/04/07 six weeks after diagnosis vl 53,000 cd4 cd4 70    6%
Began sustiva truvada 01/04/07
newest labs  drawn on 01/15/07  vl 1,100    cd4 119    7%
Drawn 02/10/07
cd4=160 viral load= 131 percentage= 8%
New labs 3/10/07 (two months on sustiva truvada
cd4 count 292  percentage 14 viral load undetectable

Offline aztecan

  • Member
  • Posts: 5,382
  • 29 years positive, 56 years a pain in the butt
Re: Feeling Positive but still fighting fear
« Reply #6 on: March 19, 2007, 11:03:46 AM »
Hey Poz,

It is always bittersweet to welcome someone here. I am glad you found us, but sorry for the reason.

Just a few days into this new life. If I remember correctly, your head is probably swimming with all kinds of thoughts and emotions.

That is normal.

First thing I would do is to read the lessons here. They can be a great icebreaker into this new world. Don't try to do it all at once, there is a lot to digest.

Regarding your first doctor visit, it will undoubtedly be pretty thorough. Mine was. They poked and prodded me in places where I hadn't been poked or prodded before, which is saying something.

And nine vials sounds about right. They will do an initial viral load, CD4, and probably some screening for other things such as Hep C, Syphilis, etc.

This is routine and is necessary so the doctor knows where you are and what you will be dealing with.

So, just be ready for a slightly longer than usual appointment and a lot of questions.

Hang in there, you will be fine.

If you have questions, write them down so you won't forget to ask. I do because I always forget something.

Let us know how you're doing and how the doctor visit goes.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline dingowarrior

  • Member
  • Posts: 191
Re: Feeling Positive but still fighting fear
« Reply #7 on: March 19, 2007, 03:49:20 PM »
hi Poz, welcome to the family.
you'll find amazing support here. I know I have along with countless others.
I too am married and been diagnose poz. about a year this coming april.
Thankfully my wife and 17 month old are both neg.
Like others have said, its totally normal to think about your own mortality when you are hit with such news.
But in a weird way,it might just bring you closer to the ones you love.You get a whole new perspective as to whats important in this life and whats just plan old BS.
The thought of dying,as morbid as it sometimes may seem,can actually make you have a more enjoyable,appreciative life.
Take your meds if the doctor says you need to.
Never miss an appointment.
And excercise.
All will be ok

Dingowarrior

Offline Poz-3/6/07

  • Member
  • Posts: 10
Re: Feeling Positive but still fighting fear
« Reply #8 on: March 24, 2007, 10:03:29 AM »
Thanks so much for all of the support during this first few months.

An update.
I went to the doctors on Tuesday and it was very scary, however Im going to a doctor that has over 160 positive patients and he couldnt have been more supportive.

The blood taking was ok also....you were right about the tube that takes the blood out...much easier to give 9 vials from that thing.

DingoWarrior....it would be great to connect to share how our wives are handling this.
Mine is sticking with me...but so much of a shock to her system...and we are still early in the process...only been 2 weeks.

I get my results this Tuesday and will reach out to yall and see what yall think.

Ive been battling Mono for the past 6 weeks...do you think that will impact the numbers?

Thanks again for being such a great family !
 ;D ;D ;D ;D ;D


Offline dingowarrior

  • Member
  • Posts: 191
Re: Feeling Positive but still fighting fear
« Reply #9 on: March 25, 2007, 08:38:04 AM »
Hi Poz
send me a message anytime if you want to chat.  ;D

 


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