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Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

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Recent Posts

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Questions About Treatment & Side Effects / Re: The Sustiva/Atripla Thread
« Last post by mlgoforth on October 02, 2015, 05:21:31 AM »
re; going_gone89
on: September 27, 2015, 01:10:04 PM

     "Just started Stocrin last night, along with Truvada. Feelings of depersonalization and derealization were pretty obvious. Vivid dreams were not as bad as I expected, in fact I feel rested despite them."
    [[ If your body can adapt this should go in a month or so, if it doesn't choose another HIV Cocktail.  Be careful don't get used to the depersonalization and derealization, I did that and it took 5 years to realize the drug was making me more and more and more crazy.]]
    "Besides that, I'm just happy I'm keeping my breakfast down. Which makes me curious, I know side effects vary greatly, but how soon after starting therapy do you experience those types of side effects? Nausea, vomiting, diarrhea, etc."
     [[For some it starts write away, some they never get those side effects. With Sustiva I had to take 1 1/2 dose Lopermide Hydrochloride (Imodium AD) every day to control diarrhea ]]
Off Topic Forum / Find the Pope in the pizza
« Last post by Almost2late on October 02, 2015, 04:57:34 AM »
While looking for other related Pope paraphernalia, ran in to this.. Still funny after all these years..

Insurance, Benefits Programs & HIV / Re: Applied for SSD
« Last post by poz91 on October 02, 2015, 02:57:17 AM »
The worst thing is I currently know of four people on SSID, two of them genuinely need it for cancer reasons, but the other two are just sheer lazy. I know this because the one guy is constantly posting pictures on facebook of him in his boat showing off the 120 lb shark he reeled in that day with his very healthy looking tan.

Have you ever considered that perhaps your friend is "very healthy looking" because he is on disability?

I was involved in a five year study of the effects of stress on HIV progression conducted by UNC Chapel Hill, and no surprise, at the end of the study those with higher levels of stress in their lives fared much worse than those with lower levels of stress in their lives.

Job-related stress is a biggie, and people with legitimate health issues shouldn't be shamed for choosing to go on disability... the peace of mind can be beneficial to their overall health.

Am I Infected? / Re: Not sure anymore
« Last post by franz1234 on October 02, 2015, 02:39:41 AM »
Hi Wade/Jeff

Thanks for the information supplied. I agree probably just an illogical sense of anxiety and guilt has come over me, and lasted so long now.

Just one final point, I did around the same time 1 year plus post my protected encounter also develop skin tags around the back of the head near the neck. Not painful and are gone now.

Just wondering if I should put this down to anxiety, stress, guilt ( perhaps unwarranted ) and move on and listen to the advise given.

Thanks so much for taking time to read and reply to my post.

have a good day
I Just Tested Poz / Re: First Appointment with HIV Clinic
« Last post by tednlou2 on October 02, 2015, 01:05:04 AM »
Update of sorts..... My blood has been sent to two different labs trying to get my viral load. Both results came back with "Unknown Inhibatory Substance in blood". Now my case and more blood has been sent to CDC. Anyone heard of this before?

I've never heard of this, but I've never heard of many things.  While you're waiting for some answers from your docs and the CDC, you could ask Dr. Gallant about it.  If you don't know, he is a very respected HIV doc and researcher, who answers questions.  The Body also has docs, who answer questions.  Maybe one of them has heard of such an issue.

The link below is for Dr. Gallant.

but in our own little bubble of the virus, i feel somewhat still like a guinea pig.  I wonder if we really know the long term side effects
I do understand your worries but I would, happily and encouragingly, point out that your bubble is pretty different from the bubble of someone who started medications over two decades ago. While these newer meds have not been around as long, most of them are based on drugs which have been around, have been studied, and have been improved upon. These are not the drugs of 1992. These newer meds are based on nearly 40 yrs worth of science about the disease, about the older meds, and about other not-quiet-old/not-quiet new meds.

So if you are a guinea pig, you're a test subject on 3rd or 4th generations meds. That's definitely a long ways away and a huge improvement from being a guinea pig who was put on a cancer drug that was shelved because of the horrid side effects and inability to treat cancer (the dreaded AZT).

I don't write this to be disparaging of your feelings at all. My reasoning was to suggest that being on meds now, after 40+ years of scientific research and testing, shouldn't make you feel like a guinea pig but like someone who is taking highly studied, highly effective medications to treat a complex retrovirus.

Next week, I plan to change from my current regimen which I've been on for around 10 yrs (reyataz, norvir, truvada - now considered an alternative regimen and not a first line regimen) and upgrade to something else (complera or triumeq) because I want something that is more effective with fewer side effects. (I'm actually in the middle of med failure with a skyrocketing viral load so it's pretty fortuitous that I had already begun a discussion with my doc about a change. ;) )
Off Topic Forum / Re: Bernie Sanders for President
« Last post by tednlou2 on October 02, 2015, 12:19:09 AM »
This is an example of issues I have with Hillary.  The State Department was planning to change how parents are identified on passports, to remove mother and father and make it more inclusive.  When she learned of it, she was upset.  She was upset for mostly political reasons-- worried FOX and Palin would make a big deal of it.  The article goes on to discuss issues she had with gay supporters in 2000. 

It does seem like she will only support change, once polls say it is safe for her to do so. 

Off Topic Forum / Re: Supreme Court Rules Against Kentucky Clerk in Gay Marriage Case
« Last post by tednlou2 on October 02, 2015, 12:08:50 AM »
I was talking to friends, who are Catholic.  They wondered how much Francis knew about Kim and whether the ultra-conservative leaders in the church orchestrated this.  He may have known full well who she is and really wanted the meeting.  Who knows. 

Then, I saw this article speculating the same.

tony1980 - sorry for my "down" post - it's been a tough day. Being so new to this (as you are) my emotions are all over the place - plus my husband left, moving 2x in 2 months, financial collapse, etc etc ....  Im having a hard time picking up the pieces and then on top of it WHAM! this DX :(    bright side you ask?  my kids  ;)  I get up, live and breathe for those 2 smiles

AND on the bright side you got responses from 2 of the MOST awesome guys on the boards!!  Tonny2 and Jeff G are great and will give you a straight answer - no sugar coating there. Plus they know their info being LTS.  There's 1 more than i can think of out there...let's see if he pops in ;) 

Tonny2 you dont need that extra eye :)  God gave you such a caring and helpful ability to communicate here that I appreciate!! HAPPY GRAND UNCLE DAY!!!!

Questions About Treatment & Side Effects / Re: Triumeq Day 4 - nervous
« Last post by PittGurl on October 01, 2015, 11:13:55 PM »
Tonny2 - thanks {with tears streaming down my face}......today almost unbearable emotionally.
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