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Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

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Recent Posts

Pages: 1 ... 6 7 [8] 9 10
71
Living With HIV / Re: Just started meds.. possible chest infection coming
« Last post by eric48 on Today at 05:15:16 PM »
so its likely I am getting a virus. Should I act quickly to get antibiotics for this?

Antibiotics are not for viral infections

I would think it is safe to wait since you have a schedule appointment  Eric
72
So I guess I should continue monitoring my Viral Load and how CD4 acting up over the period of time as a trend.

What I am surprised is that the CD4 count almost doubled in one week.
74
Living With HIV / Re: Decision Time Already?
« Last post by eric48 on Today at 04:59:50 PM »
The rationale for test and treat is very reasonable

For example if you 'think' that you have been infected not too long ago, say < 2 years: this is called Early treatment

If, like the OP, Kardean, one has been infected more than 6 years ago, trying to win the race against the establishment of latency is pure illusion. Starting meds for a patient who is CHRONIC (several years) and is CD4 High is NOT called early treatment. This should be called HIGH start and not EARLY start

IMHO, early start and High start are 2 different things and people can get confused easily

Early start (at whatever CD4 value) may, possibly, make some sense, if you think that reservoir reduction will give you some benefits.

Yet, for all patients at CD4 500+ the following should be clarified: (*)

- If I make the free will decision to go on meds (knowing that it is not a life and death issue) and if I want (feel like) to stop
is this acceptable YES or NO

My doctor said YES and every one is kindly invited to discuss this with their own Doctor: your Doc is a paid professional: it is OK to corner a bit to get trustable answers. You can even post your question on theBody.com

If your Doctor says NO, I believe this NO will be an important factor in weighting the pros and cons

If you doctor says YES, then... Since you know that each molecule will differ by their Half life, Volume of Distribution, and Barrier to resistance, you can easily conclude that each combo has a different STOP procedure. If you doctor is not able or not willing to explain the procedure that he/she believes would be appropriate before you board the ship, then you may want to reconsider boarding

In the same fashion that they teach you the emergency procedure when boarding an airplane, they should teach you what to do if some thing goes wrong (especially since things may go wrong at the wrong time) and avoid things like this:

http://forums.poz.com/index.php?topic=53662.0

which I call criminal

In the same fashion that you find a life jacket under your seat, if pills (that are not on the script) are needed for the Stop procedure that your Doc think is appropriate, then you should get these pills before you start

If you don't , it is pretty much like boarding an intercontinental flight knowing that safety procedure are neglected

Before boarding, I think it is not unreasonnable to ask, beforehand, if you can deplane (**)

Eric

(*) this is what I personally think for patients who are way above the level of intervention that the UK's NHS applies. If you are an AIDS patient or CD4 < 250 or even 350, please disregard this, most likely your doctor's answer will be NO

(**) once you start, you should do your best until your are UD, then you can reassess.


75
Off Topic Forum / Re: Here kitty kitty...
« Last post by mitch777 on Today at 04:53:03 PM »
M, what kind of litter do you use?  I use Fresh Step and I never, ever smell it.  It's a little more than brands like Tidy Cat, but well worth the "no scent" effect.  I also put newspapers down under and a little around my cat's litter box to take care of the "stray litter" that gets kicked out of the box.

A friend recommended Naturally Fresh made by The Blue Buffalo Co. It is walnut based and is chemical free. It says "Superior Oder Control" and actually works pretty good but since the box was located in the bathroom a mere 12 feet away from my side of the bed... the odor springs to life every time they do their footwork dance. The box has a cover and I placed a plastic tray in front but the stray litter still spreads a bit.

I think they both are ok now with the new placement but we are leaving the door cracked open for a few days. Then comes the challenge of them getting used to the kitty door in the wall.

Today's nap:

76
Off Topic Forum / Re: Nutrition, Wumpette Style
« Last post by Miss Philicia on Today at 04:31:00 PM »
ALERT! FIRST RAMPS OF THE SEASON HAVE APPEARED AT READING TERMINAL MARKET

77
I need to save the graph that shows the progression of HIV.  It sums it up better than I can explain it, but I'll try my best.

With a new HIV infection, your body will naturally respond and fight like hell to kill the invaders.  You'll see a temporary improvement, but ultimately, your immune system isn't as strong as the virus and your troops start dying at a steady pace.  Once you're down to a few platoons, all your other enemies have the ability to step in destroy you.

wolfie

Your post clearly is about what happens when someone is untreated.  Maybe its about that use of "you".  Anyway I was merely pointing out the oversight. 
78
Im not demeaning you, at least not my intention. Sorry

The referred to graph is meaningless to interpret this situation. Because the OP is already on HAART.  The graph is about the course of untreated HIV infection. 
79
Hi:

I'm new to this forum. It's great to know you're here for support and information. Sad to say I'm not that confident in my dr. I'm thinking about switching meds and would like to get your opinions. 

I'm 60. If you had asked me a year ago, I would have said I've had no problems with Sustiva/Atripla. Now I'm not so sure.

I started Sustiva with Epzicom in 2002 because of lipoatrophy. I switched from Epzicom to Atripla -- around 2007 -- because of general cardiovascular concerns with abacavir -- even though I don't have risk factors for heart disease, except I'm a male and 60.

I've had memory problems for about 5 years. I also often forget what I'm saying in the middle of a conversation. In the past 12 months, I've had a feeling of being spacey and slightly off-kilter. I've also started to feel depressed and a bit anxious for the first time in my life. I talked to 2 drs and they have no explanation. After reading this forum I'm wondering whether these problems are related to Sustiva?

1. Can Sustiva cause delayed progressive cognitive problems? I had no noticeable cognitive problems from 2002 to around 2009. 

2. Also, have people reported a spacey, off-kilter feeling from Sustiva? If so, could it develop 11 years after starting it? I'm not taking any other meds.

3. I'm also wondering whether the slight depression and anxiety might be related to Sustiva. But again, it only started after 11 years.

My Dr. can't explain what's going on. He's willing to switch from Atripla.   

Has anyone heard of this situation I find myself in?

4.If Sustiva is causing these problems will they go away after I stop? I know that people who do drugs or drink heavily over a long period can have life long cognitive problems even after they stop. I'm thinking of Ozzy Osborne.

Is there any evidence that Sustiva can cause this type of delayed progressive damage to the brain? Thankfully I'm not as bad off as Ozzy and I haven't used street drugs at all or consumed alcohol excessively.

This post is already too long so I'll post another question about what combo I should switch to.

I would really appreciate any help. Thanks so much for your time.

80
yup, brain fart...  :D

I meant to say I'll ask my doctor for the truvada and tivicay.
In fact, I shot him an email, and he replied as follows:

----------------

Reply from my doctor:

Hi "survivor",

The only reason it's not my go-to yet is that it's still so new on the market. I've only got one guy on that regimen (tivicay/truvada), but he is doing well with it. Generally, many of the risks and side effects are consistent across medication classes, so hopefully it'll pan out to be as good from the cardiovascular risk perspective as isentress has been. I'd also recommend that you check with your insurance on the co-pay as it's usually one of the lower-tier medications (although isentress can be too depending on the plan...)

Let me know what you think. I'm glad to give it a shot if you're interested.

Will

**My initial message to my doc**

From: ME
Sent: Thursday, April 24, 2014 12:17 PM
To: MY DOCTOR (Will)
Subject: Re: Stribild / Truvada

Hi Dr. Will,

As discussed, I've been weighing my options with the stribild and the isentress/truvada regimen. The cobicistat has me concerned, so I'm leaning away from that.

During my research I stumbled across another truvada combo that is two pills, once daily -- truvada/tivicay. I see that this combo is well tolerated, although the tivicay is still quite new so we don't know what the long term effects will look like.

You mentioned that the isentress/truvada was a better fit given my size and my risk for possible cardiac issues. Can you say the same for the truvada/tivicay? If so, I'm thinking that this might be the regimen for me.

What is your opinion on this regimen?

Thanks,
Survivor
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