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Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

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Recent Posts

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41
Hello! I've been lurking for a while, but always have questions or want to hear other people's experiences and advice and what to expect, so figured I would post. I'll try not to ramble too much...

My boyfriend and I have been together for 3 and a half years, both 35, and he was diagnosed with HIV 6-7 weeks ago while seeing his doctor about unusual swelling, fevers, and shortness of breath. It was a bit of a surprise since I tested negative the week before, and am still negative as of this week. I'm not sure how this is possible since, given the seriousness of what was to come, most likely he's been positive for long before I met him and that this was not initial acute infection.

A week and a half later, on July 17th, he was instructed to go to the hospital for kidney failure, which turned out to be a condition called glomerulonephritis. At this time he found out his CD4 level was at 195, and got the AIDS diagnosis. Being so compromised, the usual treatment (immunosuppressants) were not an option. He went through about 6 rounds of dialysis over two weeks before the kidneys stabilized for now.

A month and a few days later and he is still in the hospital, also diagnosed with histoplasmosis and CMV. He's already completed his treatment of Amphoteracin B and is now on itraconazole, as well as ganciclovir (amongst other things for pain, anxiety, etc.). We're finally about to start his HAART medications today which will be Sustiva, zidovudine (AZT), and lamivudine (3TC). At this point it's kind of a waiting game to see how the meds complicate kidney function and whether he'll have to go back on dialysis permanently.

So that's the back story. His CD4 count as of this week was 400 and his VL is 330,000 which seems odd since he hasn't started treatment and is a big jump in just 6 weeks, has anyone seen something similar with just getting OIs under control and treated?

And has anyone around here experienced these kinds of serious OIs all at once? How likely is it that he'll ever get back to "normal" and be well enough to go back to work and get back to life? What kind of things should we be watching out for in the future? What kind of specific questions should I be asking doctors? (I'm a bit of a control freak and just really want all the info and knowledge I can get)

His mood is decent, sick of being in the hospital, sick of being on a renal diet... but he doesn't seem to be very... "invested" in what is going on. It's not that he's given up or in denial, just isn't putting forth much effort into learning about these conditions, won't even look up info about the meds, stuff like that. I'm kinda the brains behind this operation right now and I feel like I'm in it alone and don't know how to get him to get on board and help himself get better.

I know I'll have a bazillion questions and looking for insight from people who have been in this situation on both sides of the fence, I just wanted to jump in and say hi. :) Feel free to ask about any more details, that all was the quick version, and it helps to be able to talk about all this.
42
Off Topic Forum / Re: Meet my new cat
« Last post by OneTampa on Today at 08:41:16 AM »
Wow!  She is beautiful.  She also has that commanding air about her.  Looks like she reads the fine print.  ;)
43
    In my best Bubba voice ....
Do they come with biscuits & gravy ?



 :D
44
Am I Infected? / Re: Performed oral 6 days ago... Freaked
« Last post by Jeff G on Today at 08:33:40 AM »
The bottom line ... All sexually active people should be testing for HIV and all stds so if you are uneasy simply go test . We have provided you the correct information and there really is nothing more to add to this assessment .
45
Questions About Treatment & Side Effects / Re: Trii vs Stribild
« Last post by Jeff G on Today at 08:30:26 AM »
Whereas, cardiovascular risk is most certainly a matter of time for all of us: we all age

Younger people are smarter and better educated than the older guys: they have more access to more science

Do not let our gift to you be engulfed by political correctness

That is our free gift to you, with no vested interests and with the sole hope that you will use it wisely

This is more of your fear mongering and trumped up assumptions . Its my hope that people who are new here and struggling to learn more about HIV realize that your interpretation of the cut and paste science you use is often way off . I am a fan of cut and paste when its appropriate, it saves time and is a great way to share valuable information as long as you can apply it in a way that is helpful ... Please stop scaring our forum members Eric with crap you post and comment on laced with assumptions because you do not fully understand the science you routinely dish out .

Ann and I have both sent very polite messages to Eric trying to engage him and deal with this but he has never once responded and continues to do these things . We have recieved many mod reports and more than a few messages from forum members in a panic from his post so calling him out on the forum is a choice of last resort .

To the OP . I'm sorry for the hijack but this is important .
46
Off Topic Forum / Re: Meet my new cat
« Last post by Growler on Today at 08:28:13 AM »
Its now 10:22pm and she's laying on the bed next to me loudly purring. She is so calm and affectionate. I will have to put the iPod into the dock next to my bed her purring is so loud I think I'll need to listen to music to get to sleep. I think I'll listen to Joe Jacksons album "Night and Day". Good night!
47
Off Topic Forum / Re: It Feels Like....
« Last post by OneTampa on Today at 08:21:42 AM »


....these days trying to survive...

Appreciate the humorous asides.  :)

My notion for the picture is that sometimes life can feel like a butterfly pulling a stone.  You know the  journey of struggle with overriding hope.  :)
48
Am I Infected? / Re: Performed oral 6 days ago... Freaked
« Last post by Johnvintij on Today at 08:20:09 AM »
Thanks for your response, I potentially had 1 small sore , not sure if it occurred during or after. I noticed it when I got home.!?
49
Thanks y'all . Iam getting stronger each and everyday, my ad are working more and more each day. I still have some bad days as I know we all have. but I can finally see the real me again. The one who don't take shit from anyone, and who careless if someone doesn't like me , that's so their problem and their loss. I'm a great person who cares and would do anything for anyone. and Yes I have found a lot of new friends here that I know will be true life long friends.  I  Thank each and everyone of you who have reach out and helped me thru some of the lowest days of my life. I just hope I can give back to others what y'all have given to me. I hope everyone has  a great day! 
50
Off Topic Forum / Re: Meet my new cat
« Last post by Jeff G on Today at 08:03:52 AM »
Very pretty Cat . Something to love does the soul wonders .
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