My boyfriend and I have been together for 3 and a half years, both 35, and he was diagnosed with HIV 6-7 weeks ago while seeing his doctor about unusual swelling, fevers, and shortness of breath. It was a bit of a surprise since I tested negative the week before, and am still negative as of this week. I'm not sure how this is possible since, given the seriousness of what was to come, most likely he's been positive for long before I met him and that this was not initial acute infection.
A week and a half later, on July 17th, he was instructed to go to the hospital for kidney failure, which turned out to be a condition called glomerulonephritis. At this time he found out his CD4 level was at 195, and got the AIDS diagnosis. Being so compromised, the usual treatment (immunosuppressants) were not an option. He went through about 6 rounds of dialysis over two weeks before the kidneys stabilized for now.
A month and a few days later and he is still in the hospital, also diagnosed with histoplasmosis and CMV. He's already completed his treatment of Amphoteracin B and is now on itraconazole, as well as ganciclovir (amongst other things for pain, anxiety, etc.). We're finally about to start his HAART medications today which will be Sustiva, zidovudine (AZT), and lamivudine (3TC). At this point it's kind of a waiting game to see how the meds complicate kidney function and whether he'll have to go back on dialysis permanently.
So that's the back story. His CD4 count as of this week was 400 and his VL is 330,000 which seems odd since he hasn't started treatment and is a big jump in just 6 weeks, has anyone seen something similar with just getting OIs under control and treated?
And has anyone around here experienced these kinds of serious OIs all at once? How likely is it that he'll ever get back to "normal" and be well enough to go back to work and get back to life? What kind of things should we be watching out for in the future? What kind of specific questions should I be asking doctors? (I'm a bit of a control freak and just really want all the info and knowledge I can get)
His mood is decent, sick of being in the hospital, sick of being on a renal diet... but he doesn't seem to be very... "invested" in what is going on. It's not that he's given up or in denial, just isn't putting forth much effort into learning about these conditions, won't even look up info about the meds, stuff like that. I'm kinda the brains behind this operation right now and I feel like I'm in it alone and don't know how to get him to get on board and help himself get better.
I know I'll have a bazillion questions and looking for insight from people who have been in this situation on both sides of the fence, I just wanted to jump in and say hi. Feel free to ask about any more details, that all was the quick version, and it helps to be able to talk about all this.