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Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

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Recent Posts

Pages: 1 2 [3] 4 5 ... 10
21
Someone I Care About Has HIV / Re: Partner newly diagnosed with HIV and PCP
« Last post by Ptrk3 on Yesterday at 07:39:06 PM »
Lee82:  I'm glad you found these forums. Please make sure you are tested, too, just to make sure of your own HIV status.

In answer to your question, yes, resoundingly, many on these forums have been in your partner's situation and have fully recovered and gone on to live their lives, return to their jobs, and attain health and peace of mind.

I was diagnosed in hospital with PCP and CD4's of nine (Viral Load of 110,000).  My oxygen saturation at the time was similar to your partner's.  I was back at work fulltime in about a month.  Today's medication is miraculous and the so-called Lazarus Effect is quite common: 

https://www.theguardian.com/society/2012/mar/11/aids-a-living-life

It sounds like your partner has already improved markedly, since he no longer is in the Intensive Care Unit, but now on a "regular" floor.  You have every reason to be very hopeful and be optimistic of his full recovery.

Most likely he will be started on antiretroviral medication immediately and some prophylactics to make sure he doesn't get pneumocystis pneumonia (PCP) again (Bactrim or the equivalent) until his CD4's are safely above 200 and azithromycin to guard against the opportunistic infection of Myobacterium-Avium-Complex (MAC) until his CD4's are safely above 100:

http://www.webmd.com/hiv-aids/guide/aids-hiv-opportunistic-infections-mycobacterium-avium-complex#1

It may take a while for his CD4's to recover to a safe threshold (above 200), but the goal now is to get his viral load to an "undetectable" state so his CD4's can begin to recover.

As long as your partner is adherent to his new medical regimen, you and he have long and healthy lives ahead of you.  Best wishes to you both as you begin the journey back to health.

Please use these forums for continued support and tell your partner to feel free to seek the support he may need here, too. 

We all here look forward to updates from you on his continuing progress.

22
Living With HIV / Re: Hep C
« Last post by Lightfighter on Yesterday at 07:38:18 PM »
When I met my ID doc he saw my negative hep C test.  He has a lot of patients with hep C due to the location of his practice.  He was talking about harvoni and how effective it, but it costs 120k for the course of treatment.

Hopefully you can clear on your own.  Hoping for the best.
23
Vivir con el VIH / Re: XXII AÑOS DE TIEMPO EXTRA
« Last post by Tonny2 on Yesterday at 07:31:18 PM »


        OJO      HELLO JOSPHEP, MUCHAS GRACIAS POR RESPONDER, ESPERO SEGUIR AQUI HASTA QUE YA MI LUPA NO ME AYUDE, JAJJ...TE MANDO UN ABRAZO        OJO
24
Questions About Treatment & Side Effects / Another blip?
« Last post by Kalel on Yesterday at 07:17:28 PM »
2 months ago I had a blip and my VL showed 64c/ml.
I didn't get worried until this week where my exams returned again VL 47c/ml:-\

I know it's a very low VL, but I see no reason why I'm not able to get UD again.
I pratically never missed a dose in 3 years! And nothing changed in the last 4 months, really worried about drug resistence.


Should I get worried about it?
When I started, I changed Efavirenz for Ritonavir after 14 months not getting undetectable, and now this...  I really don't want to change meds again...
Worried about not having many options on new meds..


So now 'm taking Lamivudina + tenofovir + atazanavir + ritonavir.
Also, any tips on what could I do to increase the meds absorption?
Take it with/without food, more water...?
25
Someone I Care About Has HIV / Partner newly diagnosed with HIV and PCP
« Last post by Lee82 on Yesterday at 07:04:24 PM »
So the last 3 weeks have been the toughest time of my life and I'm hoping for some support and advice.

For the last 3 months my partner of 4 years has been increasingly ill. Severe shortness of breath and weight loss resulted in him being admitted to hospital 3 weeks ago. After 4 days he was diagnosed with HIV and the day after he went into intensive care for 3 days as he had developed PCP. I'm told they were 30 mins away from a ventilator. During his time in ICU he was fitted with a mask and given up to 60% oxygen. Incidentally when he was admitted to hospital on day 1 his oxygen saturation was 70%. The mask steadied his sats and for a week after that he was moved to a high dependancy ward where they tried to reduce the amount of oxygen he was on. A few days in he developed severe thrush in his mouth which brought him to tears anytime he tried any food. He was given a new antibiotic to help with the thrush and slowly they reduced his oxygen. 2 days ago he moved onto the normal ward, today he is on 30% oxygen with a 30% flow and the thrush in his mouth is half as bad as it was. Physically he is so weak he can barely sit in a chair for any longer than 2 hours. I'm absolutely heartbroken at seeing him like this, he is the love of my life and it's taking every ounce of my strength not to break down every time I see him.

Has anyone else been in this situation, can people recover from this? His cd4 count was 24, and this has all happened so quickly, I'm trying to read up online about it but it is soul destroying and I need to remain positive for his sake.
26
Off Topic Forum / Re: Any of the old school members still lurking?
« Last post by minismom on Yesterday at 06:41:21 PM »
Wee One and I are still here. Life has been a bit crushing lately and neither of us has been on for a while. I do try to stop by and catch up, although I rarely post.

Wee One was the key note speaker at a WAD conference. I'll post the link as soon as Hubs posts it on YouTube.

Mum
27
Living With HIV / Re: Hep C
« Last post by mecch on Yesterday at 05:37:45 PM »
Yes I had about the same experience.  Got HIV, identified in seroconversion. Got on treatment quickly. When i was undetectable, contacted some HIV+ buddies and had a couple month no condom extravaganza and got Hep C.  Didn't know it was an STD. HIV doc informed me it was and comes in waves in European cities among barebackers. No fisting required.  It took me 6 months to clear it without medicine. You cleared it pretty damned fast!  In Switzerland, the surgeon general has NOT approved the cure as being required by insurance to cover.  So only people who suffer for some time get the 70K cure on insurance.
28
Living With HIV / Re: Hep C
« Last post by Ptrk3 on Yesterday at 05:25:06 PM »
Great news!  Glad to hear your life is not further complicated.  Best wishes to you for continued good health.
29
Living With HIV / Re: Hep C
« Last post by vertigo on Yesterday at 04:41:17 PM »
Good news, my body cleared the Hep C infection on its own.  No meds required.

A word of caution to poz guys, Hep C is most definitely an STD.  Transmission doesn't have to involve needles or fisting or anything crazy, just "regular" sex will do the trick.
30
Its possible to have some resistance issues with HIV meds and remain undetectable, especially if you go onto the new med already undetectable.

I do not think its malpractice in this case, far from it … the new more sensitive genotype test was not around until very recently and since you have had HIV so long it was not common for doctors to do any type of resistance testing unless they have a good reason in the past. Since you are not a LTNP its clear to me the meds were working despite some resistance issues with a few of the meds in a combo.

You wrote … “The multitude of medications they threw at me took what little fight I had left in me and I ended up with full blown AIDS and a resistance to at least 5 different drugs.”

This sentence is what led me to make the observations I did about your resistance issues.

I realize the OP is on a break but just wanted to post for the benefit of all who may read.
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