Author Topic: peripheral neuropathy pattern (Read 6974 times)

egello · « **on:** February 23, 2007, 05:14:50 am »

gosh, just tonight, my feet and leg started to hurt again. haven't felt this for like a week. the feeling comes and goes, why does it happen like htat?

allopathicholistic · « **Reply #1 on:** February 23, 2007, 09:19:45 am »

sorry to hear. describe the feelings to us.

when do you see your doctor next? he's the one who told you it was definitely PN?

egello · « **Reply #2 on:** February 23, 2007, 01:53:41 pm »

well, he said that nothing that i am on shoudl be causing pn.

i know its pn because of what i read. oh well, they come and go...

allopathicholistic · « **Reply #3 on:** February 24, 2007, 02:24:24 pm »

When I was on Truvada Reyataz Norvir I had tingling in my fingertips and that lasted for about 4 weeks if I gripped something too hard but it wasn't somethid I would call pain. How bad are your pains?

Did you see this old thread? http://forums.poz.com/index.php?topic=1729.0

egello · « **Reply #4 on:** February 24, 2007, 08:14:16 pm »

to the point that sometimes, my feet feel like they are going to pop open from all the pressure....

Miss Philicia · « **Reply #5 on:** February 24, 2007, 08:30:31 pm »

I've never had it.

egello · « **Reply #6 on:** February 24, 2007, 10:53:58 pm »

wow, after all these years you never had PN Philly?

did you have any OIs since you were diagnosed?

allopathicholistic · « **Reply #7 on:** February 25, 2007, 08:56:42 am »

Quote from: egello on February 23, 2007, 01:53:41 pm

i know its pn because of what i read. oh well, they come and go...

pop open from pressure? oh goodness, i hope that gets resolved for you, even if it's not an everyday thing for you. What did your doctor say about HIV's ability to cause PN independent of meds issues? I've heard members here say that HIV itself can cause PN

egello · « **Reply #8 on:** February 26, 2007, 01:56:29 am »

yeah, he said that it can,, he also realizes that i probably know everything more than he does from obsessive reading regaring HIV, he said that with PN, it tends to travel up your legs,,,, unless that happens, he told me to just keep monitoring it and see what happens,,, not whole a lot they can do... i am f$%ked for life

egello · « **Reply #9 on:** February 26, 2007, 06:19:02 pm »

ahh.. shoot, its bad today,,, and today my hands and arms are feeling the pressure and tingling too. my armas are lookign all veiny...

pozniceguy · « **Reply #10 on:** February 26, 2007, 07:17:36 pm »

Egello , I have the PN and have had it since 1994....it does travel up my legs..sometimes more than others....doesn't always "hurt" most times it just feels tingly or sort of numb...I have been using Neurontin for most of that time..It certainly seemed to help, when I don't take it ( tried to reduce dose) the the creep starts up the legs again.......also ..you need to be aware of the DVT..(deep vein thrombosis) this condition van be more serious..especially if you sit for long periods of time or lie down ( that is why getting out of bed can be a bitch some times...) until you get up and move around to get things moving again.....hopefully as you are working out regularly this will not be a problem....
There are other treatment beside Neurontin but this one has worked for me so I stick with it...

Nick

egello · « **Reply #11 on:** February 26, 2007, 07:23:53 pm »

thanks nice guy,,,

does PN and Lipo have any link?

allopathicholistic · « **Reply #12 on:** March 13, 2007, 11:42:10 am »

QUESTION: Does PN always start in both feet at the same time or can it begin in just one foot?

J.R.E. · « **Reply #13 on:** March 13, 2007, 07:05:10 pm »

Quote from: allopathicholistic on March 13, 2007, 11:42:10 am

QUESTION: Does PN always start in both feet at the same time or can it begin in just one foot?

It started in both feet, and also had tingling and numbness in both hands,( fingertips, and the tops of the hands) just about at the same time.

Ray

J.R.E. · « **Reply #14 on:** March 13, 2007, 08:28:16 pm »

Here'w a n informative link, from THE BODY ;

http://www.thebody.com/bp/julaug02/pn.html

Ray

gordonh28 · « **Reply #15 on:** March 16, 2007, 04:58:15 pm »

Neuropathy is certainly a strange bed fellow, I say this with all seriousness, because it comes and goes as it pleases, and will always feel different than the last time. I started meds right after diagnoses and with 2 years I had tinling and numbness in my fingers and toes, strange because I had high tcell and low viral loads. I took a nine month holiday, and it went away. It took 8 years to come back. I have a thumping in my Left heel, like there is a AA battery source there, and the bottom of both feet are numb. I get a burning feeling some times, and I still get the numbness in my finger tips. That is bothersome but I have learned to deal with it. I cannot sleep with anything covering my feet or toes, IE blankets sheets, etc. Good thing I live in Florida. I have tried every drug and nothing works for more than a few weeks.
I came off a three year drug holiday a couple of years ago, and the pesty beast never let up. I am now taking monthly shots of injectable B-12. It is only one mil. but it gives me relief for 3 out of the 4 weeks monthly. I am hoping that I can get the dosage increased eventually. I pray they could just come up with a cure all side effects pill, wouldn't that be something nice to wish from Santa.
Hope i helped a little.
Al

risred1 · « **Reply #16 on:** March 18, 2007, 10:17:26 pm »

http://newyorkbuyersclub.org/resources/all-about-supplements/index.html is a search engine for commonly used supplements for people with HIV, you may want to look at some of these supplements and their potenrial benefits they may, and I repeat, may help.

One line of thought is to follow diabetics who suffer from PN as well. supplements such as Alpha Lopaic Acid and other anti oxidents may help. Alwasy tell your doctor, some of this stuff interacts with meds!

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Author Topic: peripheral neuropathy pattern (Read 6974 times)