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Author Topic: Update on N.A.S.H.  (Read 5924 times)

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Offline aztecan

  • Member
  • Posts: 5,530
  • 36 years positive, 64 years a pain in the butt
Update on N.A.S.H.
« on: November 06, 2007, 09:44:14 pm »
Hey gang,

Well, I finally saw my doctor today and asked him about my NASH issue.

He said about the only thing that can be done is to reduce the fat in my diet and to keep monitoring it and cross our fingers.

He said for me not to get crazy and go on some nonfat diet. You'd think I was anal or something.  ::)

Anyway, he said a reasonable, low-fat diet would be the best idea. That way I could more or less maintain my weight yet cut down on the fat in my diet.

Sounds reasonable to me. I have already replaced eggs with Egg Beaters, or their equivalent,. They are a nice addition to the diet. They make nice omelets and I can add all kind of goodies like spinach, garlic, green chile, etc.

I did cut out the cheese too, and am limiting myself to either fish or skinless, boneless chicken or turkey for the most part, with some lean pork now and then to add a little variety. I also will try to add a meatless day or two in there just for giggles.

When I asked the doc what may have brought on this situation with me, he said the HIV meds may have contributed to it, but he couldn't say they definitely did.

He said I don't fit the profile, which usually includes obesity. I am not obese, hence the warning about losing too much weight.

The doc said less is known about NASH than Hep C and many other types of hepatitis. The only treatments being discussed at this point are the use of diabetes medications, which the doc said is still only experimental and not standard of care by any means.

It also means that, at least for the time being, I will stick with Reyataz rather than switching to Lexiva. Reyataz has one side effect other PIs don't - it actually helps to increase HDL cholesterol in the blood stream. I'll take all the help I can get.

So, there you have it. I really don't know much more than I did before, but at least I know it wasn't something I may have avoided because they really don't know why I have it.

Wish me luck.

HUGS,

Mark
« Last Edit: November 06, 2007, 09:52:32 pm by aztecan »
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline emeraldize

  • Member
  • Posts: 3,397
Re: Update on N.A.S.H.
« Reply #1 on: November 06, 2007, 09:55:44 pm »
Hey Mark
Thanks for the update. Is your doctor letting the pharma cos. know in the off chance there's a correlation with any of your meds? They're to track such things so if a trend is observed it may warrant additional investigation.
Em

Offline aztecan

  • Member
  • Posts: 5,530
  • 36 years positive, 64 years a pain in the butt
Re: Update on N.A.S.H.
« Reply #2 on: November 06, 2007, 10:00:22 pm »
Hey Em,

I really am not too sure if he is or isn't. Seems like the logical thing to do, so I'll drop the hint to him when next I see him.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: Update on N.A.S.H.
« Reply #3 on: November 07, 2007, 07:39:54 am »
Hey gang,


Anyway, he said a reasonable, low-fat diet would be the best idea. That way I could more or less maintain my weight yet cut down on the fat in my diet.


Mark



Thanks for the update Mark. And I wish you the best on the diet, and hope that things work out for you. I have been so into reading product labels these past 4 years, I think it probably drives Ed crazy. It certainly is hard to give up the bad stuff, especially when the bad stuff always taste so good !! I also filled my first prescription for Lipitor yesterday. So I am going to start on that this weekend. $91.00 for a 30 day supply.  OUCH !! I have to call Aetna today, and make sure that price is correct.


Good luck Mark-----Ray
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of Oct 2nd, 2023, Viral load Undetectable.
CD 4 @676 /  CD4 % @ 18 %
Lymphocytes,absolute-3815 (within range)


72 YEARS YOUNG

Offline aztecan

  • Member
  • Posts: 5,530
  • 36 years positive, 64 years a pain in the butt
Re: Update on N.A.S.H.
« Reply #4 on: November 07, 2007, 09:54:55 am »
I know exactly what you mean about being a label reader. You're gluten intolerant too, aren't you?

Between that and the lower fat, it makes it challenging to stick to a diet and also enjoy eating. But, I love a challenge.  ;)

Is that the full price or just your copay for the Lipitor? That seems rather high for a co-pay.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline J.R.E.

  • Member
  • Posts: 8,207
  • Positive since 1985, joined forums 12/03
Re: Update on N.A.S.H.
« Reply #5 on: November 08, 2007, 08:44:29 am »
Is that the full price or just your copay for the Lipitor? That seems rather high for a co-pay.

HUGS,

Mark



well,....You know how confusing this insurance racket is !! >:(


I ended up calling Aetna the other morning. They told me that I should be paying 50.00/per month for the  Lipitor. I then ended up calling Walgreens , and eventually the doctors office.
The reason it was 91.99 was because the doctor didn't pre-authorize it with Aetna, even though he called the script into walgreens.

Aetna needed to know before hand, that I have done the other least expensive statins, before they approve the change over to Lipitor @$50.00 a month. So, the doctor has notified Aetna on that. Supposedly, on my next refill in thirty days, the next prescription will be 50.00 Minus the overpayment of 41.99. Hopefully !! I am pretty sure, thats how I understood it to be. These insurance issues get to be challenging.


Take care Mark---------Ray


EDITED FOR CORRECTION
« Last Edit: November 08, 2007, 08:51:43 am by J.R.E. »
Current Meds ; Viramune / Epzicom Eliquis, Diltiazem. Pravastatin 80mg, Ezetimibe. UPDATED 2/18/24
 Tested positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of Oct 2nd, 2023, Viral load Undetectable.
CD 4 @676 /  CD4 % @ 18 %
Lymphocytes,absolute-3815 (within range)


72 YEARS YOUNG

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,786
Re: Update on N.A.S.H.
« Reply #6 on: November 09, 2007, 06:41:17 pm »
Good luck with the diet thing, Mark.  I myself am also a label reader nowadays.  Unless it's something with chocolate in it! ;)
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

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Offline vokz

  • Member
  • Posts: 391
  • efavirenz junkie
Re: Update on N.A.S.H.
« Reply #7 on: November 13, 2007, 04:54:50 pm »
Mark

I thought this article from AIDSmap might be of interest to you:

American researchers have found that about 42% of people with HIV have a fatty liver (http://www.aidsmap.com/en/news/1297CE40-ED0F-4BD1-BA64-75CD590A2BEC.asp)

The other article linked within the article is also quite revealing about the role of certain antiretrovirals in causing fatty liver:

"The greatest odds of steatosis, however, were associated with the use of any antiretroviral agent (OR, 1.99; p=0.043) and any nucleoside analogue (OR, 2.14; p=0.024). When types of nucleoside analogues were stratified into dideoxynucleoside analogues (the D drugs, ddI and d4T) versus non-dideoxynucleoside analogues, the risk of steatosis increased with the D drugs (OR, 2.63 vs. 1.78; p=0.05). Use of ddI and d4T together increased the odds even further (OR, 3.38; 95% CI, 0.67-17.07).".
« Last Edit: November 13, 2007, 05:21:53 pm by vokz »

 


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