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Main Forums => Living With HIV => Topic started by: CaptCarl on May 21, 2011, 10:37:40 pm

Title: FUCKING SHIT!!
Post by: CaptCarl on May 21, 2011, 10:37:40 pm
Although I've not made it general information around here, it's time I shared this with you all. For the past few weeks, I've been getting sick a lot. A whole buch of random symptoms that occur sporadically, back pains, abdominal pains, headaches, the odd spot of projectile vomiting. The only consistent symptom has been a fever. Nothing too high, but running between 99.5 & 100.5. So with all of these things mixed together, I have been out of work for almost two weeks. Made a few trips to the Doc, as well as tests, blood work, x-rays, and a CT scan. I was finally feeling pretty good yesterday, even the fever seemed to be gone. I made plans to go to an Apocalypse Party today...


Then the phone rang. It was my doc, telling me that she had a partial read on the CT scan, and it showed a blood clot in my lung. She was doing the phone work to get me admitted to the hospital, and I needed to be there right away. So here I am. They started the treatment within an hour of my getting here, using Hepirin, a blood thinner. It will take a few days to to run the entire protocol, so I'm looking at being here 'til Wednesday. So far it's not too bad. But then my doc comes in to talk to me. She has the rest of the CT scan results, and they're not good. In fact, they're downright fucking ugly: There seems to be a "mass" in my liver. As most of you know, I had a liver transplant Twon and a half years ago for that very reason. Having it come back so quickly was a most unpleasant surprise. Adding to both the "unpleasant" as well as the "surprise" aspect is that there are also masses in my lung as well. Cancer is scary, been there, done that. But got through it. When cancer metasticizes, it goes from being scary to just being fucked....


The biopsy is scheduled for Monday morning, and will provide the dfinitive answer. Til then, nothing to do but wait.



Right now my biggest source of concern is for Norm. He has been through so much with my health issues for the last five years. I don't give a shit about me, but this is grossly unfair to him. I know this is hurting him very deeply, and there's nothing I can do about it, and it FUCKING PISSES ME OFF!!!


Thanks for letting me vent.



CaptCarl
Title: Re: FUCKING SHIT!!
Post by: leatherman on May 21, 2011, 10:44:06 pm
My thoughts are with you, Carl  :-*
good luck with this treatment!
Title: Re: FUCKING SHIT!!
Post by: Jeff G on May 21, 2011, 10:54:39 pm
Hi Carl . You are one of the people I admire greatly , your strength and honesty has been and will be an inspiration to me . I'm sorry for what you and Norm are dealing with and you both will be in my thoughts . 
Title: Re: FUCKING SHIT!!
Post by: WillyWump on May 21, 2011, 11:07:41 pm
Hey  Buddy,

I'm taken aback by all this. I wished I could wave a wand and make everything OK. But keep your chin up for us.

I'll be sure and send up some thoughts and prayers for you and Norm when I lay my head down tonight.

-Will
Title: Re: FUCKING SHIT!!
Post by: tednlou2 on May 21, 2011, 11:58:20 pm
I know there is nothing we can say to make this better, except that we care for you and Norm as a member of our group.  You know we'll all be sending positive thoughts your way that these "masses" aren't serious, and you'll be all better soon.  I can't even imagine and I'm heartened that you're more concerned for Norm.  Our partners and good family and friends are so awesome and often unsung heroes standing by us.  

All the best for a positive outcome!
Title: Re: FUCKING SHIT!!
Post by: bocker3 on May 22, 2011, 12:16:19 am
Carl,

I'm so sorry to hear about your test results.  There isn't anything I can say to help, but know you're in my thoughts and here's hoping things take a better turn.

Hugs,
Mike
Title: Re: FUCKING SHIT!!
Post by: GSOgymrat on May 22, 2011, 12:36:18 am
I hate that you are having to deal with this. It sucks and it is unfair. I wish you both strength and hope your test come back with some good results.

Ford
Title: Re: FUCKING SHIT!!
Post by: northernguy on May 22, 2011, 01:03:44 am
Hey Carl, I'm really sorry to hear you're having to go through this again.  What can I say, but I'm thinking of you, keep your chin up, and feel free to vent to us anytime.
Title: Re: FUCKING SHIT!!
Post by: Raf on May 22, 2011, 01:08:02 am
I can't find the right words...so I'll just say that my thoughts are with you carl.
Title: Re: FUCKING SHIT!!
Post by: PozJeepGuy on May 22, 2011, 01:35:43 am
sending you positive energy and love. 
Title: Re: FUCKING SHIT!!
Post by: Matty the Damned on May 22, 2011, 02:33:35 am
Oh Carl,

Matty the Damned sends you his love and support during this grim time.

:-*

MtD
Title: Re: FUCKING SHIT!!
Post by: BT65 on May 22, 2011, 04:49:51 am
Carl, I don't know what else to say except this is fucked up stuff, and it sucks.  I'm keeping you and Norm with me in my thoughts and sending lots of love. :-*
Title: Re: FUCKING SHIT!!
Post by: Theyer on May 22, 2011, 05:23:59 am
Dear Carl.
I am so sorry to read whats going on for you,
mhtv
Title: Re: FUCKING SHIT!!
Post by: hope_for_a_cure on May 22, 2011, 06:11:49 am
Sorry to read this man.  Nothing I can type here will make it better, but please know I am sending you my best wishes and lots of positive energy.

Title: Re: FUCKING SHIT!!
Post by: skeebo1969 on May 22, 2011, 06:57:42 am


   The Cap,


      Damn dude, this crap really blows.   I feel for both you and Norm... The two of you will be in my prayers.  Hang in there tough guy.

   Thomas
Title: Re: FUCKING SHIT!!
Post by: anniebc on May 22, 2011, 07:16:57 am
Hey Captain, just wanted you to know that I'm thinkig of you, and to let you know that I need you and the your crew need's you, so I'll give you the same advise I give to the others when they are having a few health problems:

Do as you are friggin told
Don't back chat the nurses
If the Doc say's jump you ask "how high"
If the news is good then you will go out and celebrate
If it's not so good, then you take it like the amazing man you are.

You know your crew will be here for you, all you have to do is yell out...and remember, empathy is your pain in our hearts.

Aroha :-*
Jan
Title: Re: FUCKING SHIT!!
Post by: wolfter on May 22, 2011, 07:47:07 am
I don't have the correct words this morning.  If there is anything we can do, let us know. 
Title: Re: FUCKING SHIT!!
Post by: J.R.E. on May 22, 2011, 08:18:51 am
Carl,

Sorry to hear you having to go through this.  Wishing you well and a speedy recovery.

Ray
Title: Re: FUCKING SHIT!!
Post by: karry on May 22, 2011, 10:01:05 am
Hi Carl,
Sending you lots of good vibes and  virtual hugs. Wish you a speedy recovery.
Karry
Title: Re: FUCKING SHIT!!
Post by: jb1973 on May 22, 2011, 10:32:25 am
Carl,
Being fairly new to the forums, I don't know many on here yet. But, I did want to tell you that I would be thinking of you and sending positive thoughts. Stay strong for not only Norm, but your friends family, and most of all yourself. Hugs.

JB
Title: Re: FUCKING SHIT!!
Post by: Buckmark on May 22, 2011, 10:50:47 am
Carl,

I am really, really sorry to hear this news.  I remember you talking here about your liver transplant, and I can't imagine how iit feels to be facing a similar situation again.  I am thinking of both you and Norm.

Hugs (from one motorcyclist to another!)

Henry
Title: Re: FUCKING SHIT!!
Post by: bear60 on May 22, 2011, 11:15:03 am
Big {{{{{{{{{{HUGS}}}}}}}}}
Thinking of you.
Title: Re: FUCKING SHIT!!
Post by: sharkdiver on May 22, 2011, 11:49:06 am
Hey Captain,

This is fucked up indeed!   My thoughts and love is with you.

Sharkie
Title: Re: FUCKING SHIT!!
Post by: CaptCarl on May 22, 2011, 12:00:56 pm
Thank you everyone. Been hanging in there so far, making calls, sending emails, and napping  in equal measures. Also been thinking about how to handle this if it is cancer, but I cannot make these decisions alone, Norm has to be in on it too. Meds keep me kinda fuzzy but what can you do? I kept looking wistfully out the window yesterday, looking towards the east. I was hoping to see Sandia Crest collapse most gracefully during the Apocalypse, thereby wiping out several Mega-churches, as well as entire neighborhoods of spoiled white rich folks. Any way, not too much to report at this time, other than the food is consisstently bad...

CaptCarl
Title: Re: FUCKING SHIT!!
Post by: Joe K on May 22, 2011, 12:10:52 pm
Hey Carl,

At times like these, I find myself at a loss for words. Just know that you and Norm are in my thoughts. Get well and stay strong.

Joe
Title: Re: FUCKING SHIT!!
Post by: woodshere on May 22, 2011, 01:45:08 pm
Hang in there Care!
Title: Re: FUCKING SHIT!!
Post by: phildinftlaudy on May 22, 2011, 01:49:56 pm
Carl -
I'm sending positive thoughts and energy your way and also Norm's way -
Hoping that you are getting the best possible care and treatment.
If anyone can get through this with strength and perserverance it is you.
If there is anything you need on this end that I can be of assistance with, just give a shout.

-Phil (who is bummed out, about this, but also maintaining hope 'cause I know the type of person you are)
Title: Re: FUCKING SHIT!!
Post by: pozniceguy on May 22, 2011, 02:09:06 pm
Hang in  there  Carl   you  can be  well again  there are  so  many people sending positive  energy  to  you including me...   now  id  when the  friends, partners and family  are more important than ever

Nick
Title: Re: FUCKING SHIT!!
Post by: Rev. Moon on May 22, 2011, 02:33:00 pm
Carl, as I told you yesterday (by now I am probably sounding like a broken record), I am thinking of you and Norm and sending you mah best.  Luff ya and hope that you come back to us in the best of health very soon.  :-*
Title: Re: FUCKING SHIT!!
Post by: eric48 on May 22, 2011, 05:22:30 pm
leaves me wordless...

Hoping dearly you will go through this safely

Eric
Title: Re: FUCKING SHIT!!
Post by: gemini20 on May 22, 2011, 06:27:33 pm
Dear Carl,

Thinking of you and your partner as you face up to yet another health challenge.

I truly hope that you both get all the love and support you need to cope with whatever comes your way over the coming days.

Sending positive energy and thoughts in your direction.

Best wishes,

Emma
Title: Re: FUCKING SHIT!!
Post by: LabRat on May 23, 2011, 09:57:09 am
Carl,
So saddened to read about your health. Like the rest of the crew, you and Norm are in my thoughts and my prayers. I'll light a candle for you tonight.
Title: Re: FUCKING SHIT!!
Post by: Basquo on May 23, 2011, 11:15:37 am
Damn, Captain. I hope it's better than worse.
Title: Re: FUCKING SHIT!!
Post by: Assurbanipal on May 23, 2011, 03:26:30 pm
Would I knew what more to say that would offer comfort and support... but it says a lot about you, as a man, that your first concern is for your partner.  . .

Title: Re: FUCKING SHIT!!
Post by: CaptCarl on May 23, 2011, 10:43:59 pm
Hello everyone. I thought I would give you all an update on how things are going here. There is a chance that the mass in the liver is not actually liver cancer per se, but rather a form of Lymphoma. Apparently, there are no markers in the bloodwork for the liver cancer, and lymphoma is a sometimes occurence for people with HIV who have had solid organ transplants. According to the transplant center wher I had my surgery, when this pops up, it has a very high fatality rate. Not quite as high as Liver cancer, but pretty far up there. So basically it has the potential to downgrade me from "Completely Fucked" to merely "Fucked"

They didn't get the biopsy done today, because the Interventional Radiation is run by a bunch of fucktards on crack. I went through this shit with them the first time I had cancer too. Bunch of arrogant assholes. So they re-scheduled me for noon tomorrow. If they pull this shit again, I'll probably get arrested. I'll let you know how it all comes out.

CaptCarl
Title: Re: FUCKING SHIT!!
Post by: Solo_LTSurvivor on May 23, 2011, 10:47:19 pm
Carl:

Sorry to chime in late, but I wasn't able to slip away from the rapture after party.  Anyway, I want to echo the sentiments that everyone else has expressed so far and say that I'm thinking of you and Norm.
Title: Re: FUCKING SHIT!!
Post by: anniebc on May 23, 2011, 10:54:46 pm
I have everything crossed, and hoping for the best possible result...and I will be watching this space tomorrow.

If they pull this shit again, I'll probably get arrested. I'll let you know how it all comes out.

CaptCarl

Have no fear Carl the Crew will be standing by to help you throw a few punches then bail you out... ;)

Aroha
Jan :-*

Title: Re: FUCKING SHIT!!
Post by: aztecan on May 24, 2011, 09:15:40 am
Carl, this just plain sucks.

Please let me know if there is anything you or Norm need. I am not that far away.

As for those idiots at interventional radiation to pull out their butt plugs and get to work.

I am sending you lots of energy.

HUGS,

Mark
Title: Re: FUCKING SHIT!!
Post by: chocaholic on May 24, 2011, 09:27:22 am
Im sorry you're going through that (((((((((((HUGS))))))))
Title: Re: FUCKING SHIT!!
Post by: Theyer on May 24, 2011, 04:00:52 pm
Thanks for keeping us regulary up=dated Carl, completely fucked to fucked I guess thats progress, I too hate it when Hospitals employ dim wits whose empathy is on a par with crack heads. Good luck tomorrow
Theyer
Title: Re: FUCKING SHIT!!
Post by: weasel on May 24, 2011, 04:56:07 pm


               Hi Carl ,
                           My prayers go out to you .

                                                Speechless .................

                                                 Carl  , your DeSoto pal
Title: Re: FUCKING SHIT!!
Post by: RAB on May 25, 2011, 03:53:28 pm
Hi Capt.

Did you get your biopsy done yesterday?

I'm just sick about what you're going through and dealing with. 

RAB
Title: Re: FUCKING SHIT!!
Post by: Miss Philicia on May 25, 2011, 03:58:25 pm
Yes, it was done yesterday (though that is all I know). He said it was pain-free this time.
Title: Re: FUCKING SHIT!!
Post by: CaptCarl on May 26, 2011, 04:26:21 am
Hey everyone. I had th biopsy done on Tuesday morning. I requested, and received, 2mg of attivan to keep me calm. Which combined with the drugs they gave me @ IR made it an almost pleasant experience. This time around, they went right through the front, rather than through the back, Hey took six samples altogether. There was a bit of discomfort nvolved, but nothing that could have been considered painful. I was pretty out of it for the rest of the day. Should have the result later today (Thursday).

Been busy trying to get things in order. Have an attorney coming later to day to do a Transfer of Deed on Death, so that the house and property reverts to Norm without having to go through probate or any of that Bullshit. The local ASO is helping with this, as well as other paperwork we need to get in order at this point.

At this point, I just want to go home to my little doublewide in the mountains, and be with Norm and the dogs.

CaptCarl
Title: Re: FUCKING SHIT!!
Post by: Matty the Damned on May 26, 2011, 05:03:37 am
Hey everyone. I had th biopsy done on Tuesday morning. I requested, and received, 2mg of attivan to keep me calm. Which combined with the drugs they gave me @ IR made it an almost pleasant experience. This time around, they went right through the front, rather than through the back, Hey took six samples altogether. There was a bit of discomfort nvolved, but nothing that could have been considered painful. I was pretty out of it for the rest of the day. Should have the result later today (Thursday).

Been busy trying to get things in order. Have an attorney coming later to day to do a Transfer of Deed on Death, so that the house and property reverts to Norm without having to go through probate or any of that Bullshit. The local ASO is helping with this, as well as other paperwork we need to get in order at this point.

At this point, I just want to go home to my little doublewide in the mountains, and be with Norm and the dogs.

CaptCarl

Mon Capitan,

You are constantly in my thoughts.

Enid's too. :)

MtD
Title: Re: FUCKING SHIT!!
Post by: Theyer on May 26, 2011, 05:15:41 am
I am glad the biopsy went as it did and hope that going home with Norm  to the dogs and the mountain comes soon,
with best wishes to all off you
mhtv
Title: Re: FUCKING SHIT!!
Post by: wolfter on May 26, 2011, 07:11:25 am
Good morning.  Sounds like you're handling everything well and I wish you the best.

Take care of yourself.

Greg
Title: Re: FUCKING SHIT!!
Post by: skeebo1969 on May 26, 2011, 07:54:41 am



    Cap, I hope you get to your desired place soon, with Norm and the dogs surrounded with love.

           Wishing you the best during this very difficult time...

           Thomas
Title: Re: FUCKING SHIT!!
Post by: CaptCarl on May 26, 2011, 11:39:51 am
Enid's too. :)

Did you show ol' Enid the pictar of my enormous horsey-cock I sent you for Christmans last year?

On a more serious note. The docs left a few minutes ago. They had the results of the biopsy. It is the liver cancer after all. It's too big to remove by surgery. Oncologist to be arriving later today to discuss "options" whatever they might be.

Carl
Title: Re: FUCKING SHIT!!
Post by: thunter34 on May 26, 2011, 11:55:22 am

On a more serious note. The docs left a few minutes ago. They had the results of the biopsy. It is the liver cancer after all. It's too big to remove by surgery. Oncologist to be arriving later today to discuss "options" whatever they might be.

Carl


 :-\   (Can't think of words.)
Title: Re: FUCKING SHIT!!
Post by: woodshere on May 26, 2011, 11:59:04 am
Oh I am so very sorry to hear this!  Thinking of you as always.
Title: Re: FUCKING SHIT!!
Post by: Miss Philicia on May 26, 2011, 12:12:12 pm
ugh Carlita, I didn't want to hear that (for your sake). "thinking of you" is an understatement at this moment. How about "pissed off"?
Title: Re: FUCKING SHIT!!
Post by: Dachshund on May 26, 2011, 12:59:01 pm
Carl, I'm overwhelmed by your courage. Thinking of you.
Title: Re: FUCKING SHIT!!
Post by: GSOgymrat on May 26, 2011, 02:37:29 pm
What terrible news. I hate you have to deal with this.
Title: Re: FUCKING SHIT!!
Post by: Joe K on May 26, 2011, 02:40:22 pm
Carl, what horrible news and my thoughts are with you and Norm.
Title: Re: FUCKING SHIT!!
Post by: Buckmark on May 26, 2011, 03:19:44 pm
Carl,

I am angry to hear this news, and so sorry that you have to go through all of this.  We're all thinking of you.

Henry

Title: Re: FUCKING SHIT!!
Post by: MarcoPoz on May 26, 2011, 03:51:30 pm
Capt. Carl,

Thank you for keeping us informed.  Hang in there and focus on your options.  You've been through tough shit before and still showed support here for others.  You're a good man, Carl.  Hang tough.
Title: Re: FUCKING SHIT!!
Post by: phildinftlaudy on May 26, 2011, 03:54:21 pm
Carl -
I am continuing to send positive energy your way -
And thanking you for taking the time to talk with me the other day -
You truly are the epitome of what it means to be a great human being.

I will be keeping you and Norm in my thoughts -

-Phil
Title: Re: FUCKING SHIT!!
Post by: hope_for_a_cure on May 26, 2011, 04:02:58 pm
Carl,

I am just getting in from being away most of the day and reading the update here is heart wrenching.  Extremely sorry to hear that you are dealing with this. 
Title: Re: FUCKING SHIT!!
Post by: Matty the Damned on May 26, 2011, 04:09:33 pm
Carl,

Well isn't this just shit on toast?  >:(

I love  you babe. :-*

MtD
Title: Re: FUCKING SHIT!!
Post by: Ann on May 26, 2011, 04:16:43 pm
(((((Carl)))))

Title: Re: FUCKING SHIT!!
Post by: skeebo1969 on May 26, 2011, 04:25:12 pm
(((((Carl)))))

Ditto to that.

Cap,  I have the utmost respect for you.  While I pray for solutions, I do know the dire situation you are in.  I do hope, once again, you get to go home soon to Norm, the dogs, and the things you cherish most.

With saddness in my heart,

Thomas
Title: Re: FUCKING SHIT!!
Post by: sharkdiver on May 26, 2011, 04:58:07 pm
Sending my love to you, Norm and the dogs.

You are wonderful and courageous man.

love you,
Sharkie
Title: Re: FUCKING SHIT!!
Post by: PeteNYNJ on May 26, 2011, 05:01:33 pm
Sending my love to you, Norm and the dogs.

You are wonderful and courageous man.


I just want to echo what Sharkie wrote - your courage in the face of this is amazing.  Please continue to  post, vent, etc.  Big Hug!
Title: Re: FUCKING SHIT!!
Post by: WillyWump on May 26, 2011, 06:01:12 pm
My thoughts are with you Carl.

-Will
Title: Re: FUCKING SHIT!!
Post by: bocker3 on May 26, 2011, 06:10:39 pm
Carl,

So sorry to hear this news.  Sending positive thoughts to you.

You and Norm are in my thoughts.

Big Hugs.......

Mike
Title: Re: FUCKING SHIT!!
Post by: anniebc on May 26, 2011, 06:47:33 pm
FUCK,FUCK,FUCK..why do bad things happen to good guys while the arseholes of this world , and believe me I can think of a couple right now, get to walk around as if they were God and owned the Fucking world.

Love you and thinking of you, but can't trust myself to call right now, hugs to you and Norm.

Aroha always
Jan :'(

Title: Re: FUCKING SHIT!!
Post by: AlanBama on May 26, 2011, 07:22:05 pm
Sending you much love and positive energy....

keeping you in my prayers.

Hugs, Alan  :'(
Title: Re: FUCKING SHIT!!
Post by: Rev. Moon on May 26, 2011, 09:13:30 pm
 :'(

This is awful, Carl.

Sending you many hugs and much love.
Title: Re: FUCKING SHIT!!
Post by: CaptCarl on May 26, 2011, 09:26:30 pm
Thanks for your outpouring of support everyone. It definitely does help to sustain me at this time. When the bad shit happens we frquently don't know what to say, and sometimes don't say anything fearing that our words will be ineffective in consoling out loved ones. Let me assure you, even when someone says "I am at a loss for words" That is enough. The feelings behind them come through. Never be afraid that your words are inadequate, they are not.

THe oncologists came by today and offered a partial ray of hope in the form of chemoembolization. They inject radioactive pellet things into the main artery that feeds the tumor, thus killing the tumor. It won't cure the cancer, but it will kill the tumor, thus buying some extra time. How much time is anbodies guess. They will also be biopsying the largest nodule in my lungs to get a better handle on that. They feel that there is a chance it could be a fungal infection

1st one who makes a "Fungus AmonGus" comment gets capped ;)

CaptCarl
Title: Re: FUCKING SHIT!!
Post by: thunter34 on May 26, 2011, 09:28:35 pm
1st one who makes a "Fungus AmonGus" comment gets capped ;)

CaptCarl


Phooey.
Title: Re: FUCKING SHIT!!
Post by: phildinftlaudy on May 26, 2011, 10:32:56 pm
I've been trying all night to come up with a sentimental fungus poem but so far no luck   :)

Carl - from South Florida to New Mexico - know that you are in my thoughts

I will try to give you a call tomorrow - I think my last call to you actually benefitted me more than it did you  --- that's just the type of person you are!

Now, back to the fungus poem writing.....

Oh - and love ya!!
Title: Re: FUCKING SHIT!!
Post by: anniebc on May 26, 2011, 11:18:56 pm
No too good with the poetry..but I did find this.

(http://i723.photobucket.com/albums/ww235/anniebc_2009/fungus.jpg)

It's a Micharrzae fungus...google it if you don't believe me.. ;)

Aroha always
Jan :-*
Title: Re: FUCKING SHIT!!
Post by: Jeff G on May 26, 2011, 11:33:31 pm
No too good with the poetry..but I did find this.

(http://i723.photobucket.com/albums/ww235/anniebc_2009/fungus.jpg)

It's a Micharrzae fungus...google it if you don't believe me.. ;)

Aroha always
Jan :-*

Looks like a mummy with a hard-on .
Title: Re: FUCKING SHIT!!
Post by: phildinftlaudy on May 27, 2011, 12:02:38 am
No too good with the poetry..but I did find this.

(http://i723.photobucket.com/albums/ww235/anniebc_2009/fungus.jpg)

It's a Micharrzae fungus...google it if you don't believe me.. ;)

I think I had that type of fungus in me before --- ::)
Title: Re: FUCKING SHIT!!
Post by: anniebc on May 27, 2011, 12:08:42 am
I think I had that type of fungus in me before --- ::)

I'm not touching this one.. (post that is)... :D

Aroha
 :-*
Title: Re: FUCKING SHIT!!
Post by: phildinftlaudy on May 27, 2011, 12:13:11 am
I'm not touching this one.. (post that is)... :D

That's okay --- that means more for me!!!  ;)
Title: Re: FUCKING SHIT!!
Post by: Theyer on May 27, 2011, 06:53:49 am
Take good care Carl,,who would off thought that we,maybe I should say I,is wishing a fungal infection on you,mad ain,t it ? Hope you get a break to go with Norm to see the dogs in the mountains soon.
love
mhtv
Title: Re: FUCKING SHIT!!
Post by: +/- on May 27, 2011, 07:34:12 am
Hope all turns for the better with you very soon. Take care of yourself.
Title: Re: FUCKING SHIT!!
Post by: brenner on May 27, 2011, 07:57:13 am
mushroom head....mmmmm...mushrooms.   

sorry, shouldnt be stoned and online....carl...thinking of you.  big big squeeze.
Title: Re: FUCKING SHIT!!
Post by: Jody on May 27, 2011, 09:18:23 am
Dear Carl, sorry for all the trials and tribulations you and Norm have endured.  Keep your spirits up (easier said than done I know) and we will all hope for the very best for you.

Hugs from NY, Jody
Title: Re: FUCKING SHIT!!
Post by: Assurbanipal on May 27, 2011, 03:50:44 pm
Wishing you strength.... and time -- time with those you love and those who love you --time with Norm, time with the dogs, time at home...
Title: Re: FUCKING SHIT!!
Post by: camille07 on May 27, 2011, 06:12:57 pm
Carl- 

I'm so sorry to read this.  Just awful~

You're in my prayers. 

Hugs, 

Camms
Title: Re: FUCKING SHIT!!
Post by: Hellraiser on May 28, 2011, 02:05:26 am
Did you show ol' Enid the pictar of my enormous horsey-cock I sent you for Christmans last year?

On a more serious note. The docs left a few minutes ago. They had the results of the biopsy. It is the liver cancer after all. It's too big to remove by surgery. Oncologist to be arriving later today to discuss "options" whatever they might be.

Carl

Sorry to hear this carl, you had a liver transplant, right?  Is this common?  I'm really unfamiliar with your history.
Title: Re: FUCKING SHIT!!
Post by: spacebarsux on May 28, 2011, 03:05:41 am
Best wishes to you during this difficult time.
Title: Re: FUCKING SHIT!!
Post by: 47DegreesNorth on May 28, 2011, 03:32:20 am
I'm sending positive thoughts your way from Seattle, I'm so sorry to hear about these troubles Carl :(
Title: Re: FUCKING SHIT!!
Post by: Snowangel on May 28, 2011, 08:19:59 am
Capt-
I am so sorry to hear what you are going through.  My thoughts are with you and Norm. 
With love and peace,
Snow
Title: Re: FUCKING SHIT!!
Post by: Cliff on May 28, 2011, 11:38:31 am
Carl, this is terrible.   :'(  I hate you're going through this. 
Title: Re: FUCKING SHIT!!
Post by: OneTampa on May 28, 2011, 01:20:39 pm
My thoughts are with you.
Title: Re: FUCKING SHIT!!
Post by: red_Dragon888 on May 28, 2011, 01:57:00 pm
Mine's are too.
Title: Re: FUCKING SHIT!!
Post by: thunter34 on May 28, 2011, 09:06:22 pm
You weren't available for chatting earlier, so I drew you a picture!


(http://01.media.lifeout.com/000/112/510/images/1306630191-lg.jpg)



(Not much of an artist, I know.)
Title: Re: FUCKING SHIT!!
Post by: denb45 on May 28, 2011, 11:34:28 pm
Carl  ??? SHIT  :'(  I hope that bob & my visit @  the Hosp. helped bring you some comfort the other day, I'm @ a loss for words, as I read this thread , stay strong my man, tell norm to call us, and you don't EVER give up ok, do that for me please, Bob & I love you very much....I'm @ a loss for words right now....I can hardley type any of thissss.../
Title: Re: FUCKING SHIT!!
Post by: leatherman on May 28, 2011, 11:45:58 pm
thinking of you, Carl. :-*
best wishes to you, and Norm, through this terrible time. :-*
Title: Re: FUCKING SHIT!!
Post by: CaptCarl on May 29, 2011, 12:02:40 am
Hello Everyone. Sorry I couldn't update any earlier, but things went to hell pretty quickly today. I felt pretty decent when I got up actually, but around noon or so, it was all over but the crying. Chest pains, and a fever that went up to 104.0F conspired to really fuck my shit up. It was successful too. Let me start at the beginning, so I don't jump around too much.

Yesterday, I was supposed to have had a procedure to kill the tumor in my liver. They unhooked the blood thinner at 6:00 am  in prep for this. There was also a no food or water fast for 12 hours before my my appt. time at noon. I had puked up lunch, and didn't even try dinner, so that I went considerably longer without food than water. They also had to infuse me with three bags of frozen plasma so that my blood would be thick enough to do the procedure safely.

I wound up waiting until 5:00 pm for my procedure... No fucking food for 32 hours, no water for close to 20 hours. When Norm questioned the stu pid fucking cow masquerading as a nurse, she told him that my INR was 7.5, and left the room. So Norm tried to get it out of her what the fuck thta was supposed to mean, but she ignored him. So went to the head of nursing and complained quite vocally. I woke uo about this time and saw that it was 4:15 in the afternoon. I melted down. It's a good thing that I cant breathe deeply or they would have have heard me clear up to Santa Fe. I called my ID doc on her personal phone and explained the situation in no uncertain terms what was going on. I told her that I would rip out my IVs and leave if I wasn't being worked on by 5:30. And I meant it. Norm kinda freaked and got the head nurse and brought her to my room. And I told her the same thing. Plus I gave her the backstory about my previous dealings with IR, which I will explain.

The first time I got diagnosed with cancer, the kind folks at IR would make appointments for my treatment, and then not treat me. I would be there for several hours past my sheduled appointment time, with IV tubes hooked up, and they would come in remove everything, and send me home. Never an explanation, never an apology. Ever once. This resulted in my going NINE FUCKING MONTHS WITHOUT TREATMENT!!! And whe they finally did, they did alcohol ablation, wherein they injected ethanol alcohol into my tumor. The pain was stunning, and Norm could hear me in the waiting room. The doc stopped after only 5 mg ( I was supposed to get 30 mg) and basically called me a wimp for not tolerating the pain. He had Norm come in and help me get dressed and sent us home. Before walking out of the room , he looked down at me then at Norm and told him that I wasn't going to make it, and to get ready for it. Then walked out.

So when I realized t how long i was waiting yesterday, I freaked because of seeing this as a continuation of an earlier pattern. The head nurse was quite angry about all of it, and dressed my nurse down pretty good, plus wanting to know why I hadn't been put on an IV drip of hydrating fluids. The cow bleated and mooed in protest, but it fell on deaf ears. Head Nurse then went to the phone and started making calls. The chief oncologist came, I told him the story. He got me down there within 10 minutes, telling me to share the entire story with the IR staff, which I did. They were very good to me there, and took the time to explain that the INR level had to be at least a 2.0 to perform the procedure safely. I was back in my room by 6:45.

The oncologist who has been in charge of my treatment came to see me this morning. She asked me when the plasma transfusion was started and finished. I told her that it was started at about 10:45 am and finished around 1:15. She got a look of pure rage, because she had left orders for it to be started at 7:00 am, so that the levels were high enough when my appointment time came round. I also told her that the bags would run out, and not be changed for up to 40 minutes apart. Everything I went through yesterday, HAPPENED BECAUSE THAT STUPID FUCKING TWAT OF A NURSE COULDN'T BE BOTHERED TO FOLLOW DOCTORS ORDERS

I believe that she has been terminated over the incident.

That's how my day went yesterday, todays 104 fevers were a walk through the tulips by comparison.

CaptCarl
Title: Re: FUCKING SHIT!!
Post by: denb45 on May 29, 2011, 12:27:31 am
I fucking HATE UNMH, they were like this w/ bob during his heart-attack & triple by-pass-surgery back in 2002 and again in 2005, I see that fucking place hasn't changed much at all, Carl, I still have no words, forgive me, it's hard for me right now, I do understand your hospital delmila tho, bob & I send you out the very best, call me, if you need too, you know where to reach us if you need ANYTHING.......ok  :-*
Title: Re: FUCKING SHIT!!
Post by: Hellraiser on May 29, 2011, 04:08:50 am
This is absolutely awful.  There's nothing quite as frustrating as not having all the information about your own healthcare and being unable to interject when necessary to speed things along.  I'm so sorry all this is happening to you on top of everything else.
Title: Re: FUCKING SHIT!!
Post by: Cliff on May 29, 2011, 04:28:04 am
That's terrible.  I'm glad you continued to speak up for yourself and that there was some resolution (termination).  Hang in there, mister.
Title: Re: FUCKING SHIT!!
Post by: skeebo1969 on May 29, 2011, 09:31:37 am


   Cap,  It really irks me that on top of everything  you're being subjected to this kind of treatment.   I think that nurse found out quickly she messed up with the wrong dude, to bad...NOT.

   Hang in there tough guy.