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Author Topic: Alone and Terrified  (Read 4306 times)

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Offline BigDaneDogs

  • Member
  • Posts: 35
  • Obviously does NOT like my FB pic.
Alone and Terrified
« on: May 08, 2011, 12:53:18 am »
For 18 years I have managed this "event" in my life with little complication.  Now all of the sudden I feel closer to the end of my life than I have ever felt before.  I've had to call  in a Care Team to help me with the day-to-day issues of life that I can no longer manage.  I appears I may be losing my sight (no pos word on that one yet) and my life has turned into a total disaster that I have no control over.  I feel like I am a shell of my former self and have no one near me to talk to regarding what is going on in my life.  It is a very destitute feeling.
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BigDaneDog because I have two big Danes.
Member since 1993

Offline mikeyb39

  • Member
  • Posts: 980
Re: Alone and Terrified
« Reply #1 on: May 08, 2011, 01:21:23 am »
im sorry to hear that bigdane   i hope you get better?  what might be causing you to lose your sight?
Logged
11/02/2010  cd4-251, vl-591000
12/09/2010  started Atripla
02/18/2011  cd4-425, vl-800
06/10/2011  cd4-447, vl-70
10/10/2011  cd4-666, vl-80
01/05/2012  swiched med (prezista,norvir ,isentress, )
02/10/2012  cd4-733, vl-UD  Viread removed
06/10/2012  cd4-614, vl-UD
12/14/2012  cd4-764, vl-UD
09/01/2013  cd4-785, vl-UD
03/06/2014. cd4- 1078, VL-UD
09/05/2014  cd4-850 , VL-UD
09/05/2014 switched meds isentress, prezcobix -still only two antivirals
10/14/2015  cd4-600 , VL-UD

Offline Matty the Damned

  • Member
  • Posts: 12,277
  • Antipodean in every sense of the word
Re: Alone and Terrified
« Reply #2 on: May 08, 2011, 01:43:01 am »
Hi Dane,

I'm sorry to hear that things have taken a turn for the worse. :( How bad is the vision loss?

MtD
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Offline RichardfromIndy

  • Member
  • Posts: 17
Re: Alone and Terrified
« Reply #3 on: May 08, 2011, 05:16:26 am »
Good Morning,

I'm very sorry to hear about your vision issues.  Thank you for reaching out to the community in this very difficult time.  Without repeating the questions already being asked, I hope that you are able to find an amicable solution to what is happening.  Please share how you are doing.  Though you may be a person that I have neither met nor really know, I am interested in knowing how you are doing.  My best wishes for an improvement in your circumstances.......Richard
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Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,786
Re: Alone and Terrified
« Reply #4 on: May 08, 2011, 05:36:05 am »
Dane, I am so sorry to read this.  I hope things get better for you, especially your vision.  We're here. :-*
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Offline weasel

  • Member
  • Posts: 1,906
Re: Alone and Terrified
« Reply #5 on: May 08, 2011, 08:53:47 am »

        Hi Dane ,
                           We are all here for you .
           Please keep us informed  it helps !   
             The forums keep many of us in the life loop .

           I am sorry  about your eye sight .

            Being alone is a frightful thing in itself .

                                          sending a (((( HUG ))))

                                                                                  Weasel
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" Live and let Live "

Offline OneTampa

  • Member
  • Posts: 3,021
  • "Butterflies are free."
Re: Alone and Terrified
« Reply #6 on: May 08, 2011, 09:00:00 am »
Dane,

I am so sorry to hear this news.

Good to know that you are able to get life care assistance.

I join others in extending best hope and wishes.
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"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaíto frito."

Offline CaptCarl

  • Member
  • Posts: 1,114
  • Located in the Palinsville subdivision, JesusLand
Re: Alone and Terrified
« Reply #7 on: May 08, 2011, 09:05:45 am »
Dane-

   I am sorry that you are having all this happen now after doing well for so long. It is good that you have a team to help you with the things you can no longer do for yourself. The vision is an especially scary proposition. I am pulling for you and hoping that it all turns out okay. Keep us informed as to how things are going okay? We will all be here if you need us.

CaptCarl
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The only thing I can do straight is shoot..

LabRat

  • Guest
Re: Alone and Terrified
« Reply #8 on: May 08, 2011, 10:35:14 am »
Dane

Just my two cents, but I think you should see an eye doctor asap.

Years ago when I was bouncing from one OI to another, I mentioned to a visiting nurse that the vision in one of my eyes was strange. She immediately called my opthomologist and I saw him that very day.

 It turned out that I had CMV and he started me on Ganciclovir.  It is important to start treatment right away to avoid permanent damage.

Hopefully you don't have CMV, but you should see an eye doctor...don't wait.
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Offline gonzo

  • Member
  • Posts: 52
Re: Alone and Terrified
« Reply #9 on: May 08, 2011, 11:26:42 am »
 I'm very saddened to read of your predicament, like everyone here I hope things turn out for the best.
Please keep us informed, feel free to PM/E-mail me if you like- nobody should have to feel alone going thru this disease.

your brother in the fight,
gonzo
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diagnosed in 1990, current Meds: Truvada/Reyataz/Norvir

Offline newt

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  • the one and original newt
Re: Alone and Terrified
« Reply #10 on: May 08, 2011, 01:22:51 pm »
Soz to hear your news, no great words to say, but I sincerely wish for a positive resolution.

- matt
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"The object is to be a well patient, not a good patient"

Offline drewm

  • Member
  • Posts: 1,248
Re: Alone and Terrified
« Reply #11 on: May 08, 2011, 01:42:33 pm »
(((HUGS)))  :)
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Diagnosed in  May of 2010 with teh AIDS.

PCP Pneumonia . CD4 8 . VL 500,000

TRIUMEQ - VALTREX -  FLUOXETINE - FENOFIBRATE - PRAVASTATIN - CIALIS


Numbers consistent since 12/2010 - VL has remained undetectable and CD4 is anywhere from 275-325

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: Alone and Terrified
« Reply #12 on: May 08, 2011, 02:22:05 pm »
Hope u get better real soon bigdane!
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Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 34,126
Re: Alone and Terrified
« Reply #13 on: May 08, 2011, 02:35:00 pm »
Hey Big Dane,

Glad you reached out to us.

Where are you located? I'm wondering about what services might be available for you to get you through this tough time and not be stuck alone. Have you talked with your Care Team about this?

Hugs to you, buddy.
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Andy Velez

Offline WillyWump

  • Member
  • Posts: 7,367
  • EPIC FIERCENESS!
Re: Alone and Terrified
« Reply #14 on: May 08, 2011, 04:58:43 pm »
Hey Big D,

Like the others I am really concerned about your eyesight, and I'll jsut repeat the fact that you need to get into an eye doc.

Also, you live in Austin?> you may already be hooked up with them but Aids Services of Austin has some great counselors that you might consider talking to about your situation. Also, Waterloo Counseling has some fantastic therapists and pretty much they will take anyone regardless of ability to pay (if money is a problem) http://www.waterloocounseling.org/

Talking of course is very therapeutic and whether it's a counselor, friend or even on here I think it would do you a wealth of good.

Thinking about you and sending some hugs.

-Will

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POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline BigDaneDogs

  • Member
  • Posts: 35
  • Obviously does NOT like my FB pic.
Re: Alone and Terrified
« Reply #15 on: May 08, 2011, 05:18:29 pm »
zzzzi vsn't get hooked up with ASA because eve though I live in Austin cit limits I live in Wimmiansom county which just compounds the problems for trying to retain services.  They are tell me a month at the bare minimum and living as I dok I don't know that I can tolerate it for another month.
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BigDaneDog because I have two big Danes.
Member since 1993
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