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Author Topic: Ich, Itch, Itch. Scratch, Scratch, Scratch  (Read 5356 times)

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Offline Irish Eyes

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  • Posts: 495
  • A closed mind is a beautiful thing to lose
Ich, Itch, Itch. Scratch, Scratch, Scratch
« on: February 27, 2014, 07:55:11 pm »
I haven't started meds yet but prescribed Stabild and waiting for insurance approval.
For at least the last 6 weeks I've done nothing but scratch randomly.
Last week it was my feet, deep itches in my heels, which lasted a few days, now it's the palms of my hands but mainly by my wrists between thumbs and wee fingers.
At night I've even scratched myself awake.
Is this a HIV symptom, or mind games.
I did mention to PA a couple of days ago but he didn't have an answer.
10/30/13          Exposure
Mid-Nov-Jan    Seroconversion (7-8 rough wks)
12.26.2013      WB dx. HIV+
02.01.2014      OraQuick (result Negative?)
01.31.2014      VL 250700
02.03.2014      CD4  491  26%
02.26.2014      CD4  503  26%
03.05.2014      HLA B6701  not present
03.18.2014      VL 530873 (typical fluctuation)
03.21.2014      Start Stribild
04.14.2014      VL 104 after 24 doses
05.12.2014      VL 129 after 52 doses
06.10.2014      CD4 940 32%
06.11.2014      VL 87
07.22.2014      VL 20
09.23.2014      VL 43
11.26.2014      CD4 1350 33%
01.26.2015.     VL 27
01.26.2015      VL <20
06/03/2015      VL 28
06/03/2015      CD4 1135 42%
12/10/2015      VL 27
12/10/2015      CD4 1111 36% cd8+tcell 1058 34%
06/23/2016      VL 49
06/23/2016      CD4 1255 41% cd8+tcell 882 29%

Offline buginme2

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  • Posts: 3,426
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #1 on: February 27, 2014, 08:50:21 pm »
Scabies?
Don't be fancy, just get dancey

Offline Irish Eyes

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  • A closed mind is a beautiful thing to lose
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #2 on: February 27, 2014, 09:12:42 pm »
Cute reply, good guess, but NO.
I think I could have guessed that.
Try again.
10/30/13          Exposure
Mid-Nov-Jan    Seroconversion (7-8 rough wks)
12.26.2013      WB dx. HIV+
02.01.2014      OraQuick (result Negative?)
01.31.2014      VL 250700
02.03.2014      CD4  491  26%
02.26.2014      CD4  503  26%
03.05.2014      HLA B6701  not present
03.18.2014      VL 530873 (typical fluctuation)
03.21.2014      Start Stribild
04.14.2014      VL 104 after 24 doses
05.12.2014      VL 129 after 52 doses
06.10.2014      CD4 940 32%
06.11.2014      VL 87
07.22.2014      VL 20
09.23.2014      VL 43
11.26.2014      CD4 1350 33%
01.26.2015.     VL 27
01.26.2015      VL <20
06/03/2015      VL 28
06/03/2015      CD4 1135 42%
12/10/2015      VL 27
12/10/2015      CD4 1111 36% cd8+tcell 1058 34%
06/23/2016      VL 49
06/23/2016      CD4 1255 41% cd8+tcell 882 29%

Offline pittman

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  • Posts: 286
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #3 on: February 27, 2014, 10:33:17 pm »
I can't think of anything related to your HIV, especially given your good numbers.

Offline tednlou2

  • Member
  • Posts: 5,730
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #4 on: February 27, 2014, 11:03:08 pm »
Stress can cause this in some.  Are you stressed about things including starting meds?

Of course, dry air in winter.  I've read poz folks can become more sensitive.  I noticed our indoor humidity was down to 20%, so I bought a humidifier to get it in the preferred 30-60 zone.  I had some body itching, but nothing like you describe.  In the sunlight, I could see the dry skin coming off me. 

Liver issues can cause itchiness, but I assume you're getting regular labs.  Started any new meds or supplements? 

Dust mites?  Do you change your sheets regularly? 

Just throwing things out, but a dermy doc may be a good place to get answers, if your doc doesn't have anything to say.  Hope it gets better soon. 

Offline Irish Eyes

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  • Member
  • Posts: 495
  • A closed mind is a beautiful thing to lose
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #5 on: February 27, 2014, 11:29:17 pm »
No stress, maybe subconscious.
No dry air, l live by the sea in So Cal.
No dry skin.
No meds whatsoever yet.
No dust mites, have a housekeeper.

Thanks for input, guess I gotta plod on. Peculiar.
10/30/13          Exposure
Mid-Nov-Jan    Seroconversion (7-8 rough wks)
12.26.2013      WB dx. HIV+
02.01.2014      OraQuick (result Negative?)
01.31.2014      VL 250700
02.03.2014      CD4  491  26%
02.26.2014      CD4  503  26%
03.05.2014      HLA B6701  not present
03.18.2014      VL 530873 (typical fluctuation)
03.21.2014      Start Stribild
04.14.2014      VL 104 after 24 doses
05.12.2014      VL 129 after 52 doses
06.10.2014      CD4 940 32%
06.11.2014      VL 87
07.22.2014      VL 20
09.23.2014      VL 43
11.26.2014      CD4 1350 33%
01.26.2015.     VL 27
01.26.2015      VL <20
06/03/2015      VL 28
06/03/2015      CD4 1135 42%
12/10/2015      VL 27
12/10/2015      CD4 1111 36% cd8+tcell 1058 34%
06/23/2016      VL 49
06/23/2016      CD4 1255 41% cd8+tcell 882 29%

Offline nixsmail

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  • Posts: 75
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #6 on: February 28, 2014, 12:10:41 am »
i don't have any suggestions or solutions for you but wanted to relate my experience because it seems the same. about three years after starting meds, so i know it's not the meds doing it, i started to get itching on my scalp that would last maybe half a day and then be gone. went to a dermy and he couldn't explain or figure out why. since that first year, and it last about 6 months, every time the season changes i get itchy in various locations on my body. if i can avoid scratching it lasts about 5 min if i can't it can go for hours. nothing like the first time with my scalp but really really intense itching. my theory is that hiv has changed my system enough so that i may be allergic to things that i wasn't before and it shows up with the itching or maybe not since i'm not a doc but i have gotten accustomed to it and refuse to scratch. tried everything to start with soap, laundry det, food, nothing seemed to help that first time and nothing since then has been as long or intense. in fact the itching was how i found the site to start with to try and find some answers. anyway i know this probably doesn't help much but had to relate to your situation.
09/05/07 Officially diagnosed +4yrs at the time
11/06/07 CD4 624 (18%) VL 43,200
05/04/09 CD4 272 (15%) VL 521,190
06/10/09 CD4 127 (13%) VL 626,376 Started Truvada/Prezista/Norvir
07/15/09 CD4 849 (20%) VL 379
09/09/09 CD4 594 (21%) VL 68
01/28/10 CD4 706 (23%) VL 127
05/27/10 CD4 655 (22%) VL 322
07/29/10 CD4 750 (22%) VL 220
10/22/10 CD4 669 (23%) VL 65
12/27/10 CD4 720 (24%) VL 270
03/08/11 CD4 644 (23%) VL 631
07/27/11 CD4 694 (23%) VL <20
03/09/12 CD4 601 (20%) VL UND
11/07/12 CD4 693 (23%) VL UND
04/17/13 CD4 559 (23%) VL UND
11/07/13 CD4 846 (24%) VL UND
03/28/14 CD4 869 (24%) VL UND

Offline LiveWithIt

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  • Posts: 535
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #7 on: February 28, 2014, 01:00:49 pm »
Can it be tingling and the start of neuropathy.  Otherwise take some Benadryl. 
Pray God you can cope
I know you have a little life in you yet.
I know you have a lot of strength left.

Offline Grasshopper

  • Member
  • Posts: 738
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #8 on: February 28, 2014, 01:09:30 pm »
Do you know your HepA & HepB  status ?  (Hep = Hepatitis)

Offline Irish Eyes

  • Standard
  • Member
  • Posts: 495
  • A closed mind is a beautiful thing to lose
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #9 on: February 28, 2014, 02:01:32 pm »
No tingling, that happened during sero.
Hep a/b neg.
Thx but the plod continues.
10/30/13          Exposure
Mid-Nov-Jan    Seroconversion (7-8 rough wks)
12.26.2013      WB dx. HIV+
02.01.2014      OraQuick (result Negative?)
01.31.2014      VL 250700
02.03.2014      CD4  491  26%
02.26.2014      CD4  503  26%
03.05.2014      HLA B6701  not present
03.18.2014      VL 530873 (typical fluctuation)
03.21.2014      Start Stribild
04.14.2014      VL 104 after 24 doses
05.12.2014      VL 129 after 52 doses
06.10.2014      CD4 940 32%
06.11.2014      VL 87
07.22.2014      VL 20
09.23.2014      VL 43
11.26.2014      CD4 1350 33%
01.26.2015.     VL 27
01.26.2015      VL <20
06/03/2015      VL 28
06/03/2015      CD4 1135 42%
12/10/2015      VL 27
12/10/2015      CD4 1111 36% cd8+tcell 1058 34%
06/23/2016      VL 49
06/23/2016      CD4 1255 41% cd8+tcell 882 29%

Offline le_liseur

  • Member
  • Posts: 134
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #10 on: March 01, 2014, 07:44:28 pm »
Does it happen anywhere or in specifics places in the house?

You have no lesions, spots, anything showing on your skin?


Offline WillyWump

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  • Posts: 7,367
  • EPIC FIERCENESS!
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #11 on: March 01, 2014, 08:49:44 pm »
I had unknown origin itching about 3 years in to my diagnosis, docs prescribed me Atarax which took the itching away completely. After about 6mos it went away.

Good luck

-Will
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline gavelkind

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  • Posts: 23
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #12 on: March 01, 2014, 09:01:21 pm »
I haven't started meds yet but prescribed Stabild and waiting for insurance approval.
For at least the last 6 weeks I've done nothing but scratch randomly.
Last week it was my feet, deep itches in my heels, which lasted a few days, now it's the palms of my hands but mainly by my wrists between thumbs and wee fingers.
At night I've even scratched myself awake.
Is this a HIV symptom, or mind games.
I did mention to PA a couple of days ago but he didn't have an answer.

Might just be paranoia. I remember before I got tested, I would think ANYTHING was a sign of aids. That cough I just took? yep! Aids! What about that wound that's taking a bit too long to heal? Def AIDS! After I was diagnosed, I stopped freaking out as much though.

I think when you first "come out" you tend to over-exaggerate things and think of your problems as more dangerous than they have to be. You're dealing with being hiv positive but instead of focusing on that you make up other imaginary diseases that help you cope with what you're truly going through.
2/13- Diagnosed
3/13- CD4,  885/39%   VL, 135,542
5/13- CD4,  867/46%   VL, 553
6/13- CD4,  720/42%   VL, 32
7/13- CD4,  1095/36%  VL, <20
10/13- CD4, 884/47%   VL, 42
1/14- CD4,  1165/48%  VL, 31
2/14- CD4,  1214/46%  VL, <20
5/14- CD4,  1715/49%  VL, <20
9/14- CD4,  1135/48%  VL, <20

Offline zach

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  • Posts: 3,586
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #13 on: March 01, 2014, 09:18:52 pm »
Might just be paranoia. I remember before I got tested, I would think ANYTHING was a sign of aids. That cough I just took? yep! Aids! What about that wound that's taking a bit too long to heal? Def AIDS! After I was diagnosed, I stopped freaking out as much though.

I think when you first "come out" you tend to over-exaggerate things and think of your problems as more dangerous than they have to be. You're dealing with being hiv positive but instead of focusing on that you make up other imaginary diseases that help you cope with what you're truly going through.

+1 this, all this. we're still human, we still get sick, in all kinds of ways totally unrelated to teh hiv/aids

one thing i've noticed, when an aidsey symptom strikes me, there is no doubt on gods green earth. its the first class funk. everything else is just the body getting sick

Offline Irish Eyes

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  • Posts: 495
  • A closed mind is a beautiful thing to lose
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #14 on: March 01, 2014, 09:56:23 pm »
Does it happen anywhere or in specifics places in the house?
You have no lesions, spots, anything showing on your skin?

Other than dx, nothing in my routine has changed.
Skin is all clear though a few days ago I looked as though i had been in the sun and gotten slight sunburn, everywhere.
That redness has gone and itching subsided slightly.
I'll accept 'gravelkind's diagnosis, paranoia.
Thx for the feedback everyone.
10/30/13          Exposure
Mid-Nov-Jan    Seroconversion (7-8 rough wks)
12.26.2013      WB dx. HIV+
02.01.2014      OraQuick (result Negative?)
01.31.2014      VL 250700
02.03.2014      CD4  491  26%
02.26.2014      CD4  503  26%
03.05.2014      HLA B6701  not present
03.18.2014      VL 530873 (typical fluctuation)
03.21.2014      Start Stribild
04.14.2014      VL 104 after 24 doses
05.12.2014      VL 129 after 52 doses
06.10.2014      CD4 940 32%
06.11.2014      VL 87
07.22.2014      VL 20
09.23.2014      VL 43
11.26.2014      CD4 1350 33%
01.26.2015.     VL 27
01.26.2015      VL <20
06/03/2015      VL 28
06/03/2015      CD4 1135 42%
12/10/2015      VL 27
12/10/2015      CD4 1111 36% cd8+tcell 1058 34%
06/23/2016      VL 49
06/23/2016      CD4 1255 41% cd8+tcell 882 29%

Offline le_liseur

  • Member
  • Posts: 134
Re: Ich, Itch, Itch. Scratch, Scratch, Scratch
« Reply #15 on: March 02, 2014, 09:04:51 am »
I hope the itching goes away soon tho, because I know it can be frustrating especially when you can't pinpoint to a cause!

Probably like the others said, something to do about stress and paranoia. The redness might have been caused by you when you scratched yourself. If it goes on maybe it will feel better if you can apply some hydrating lotion on it.

Take care!

 


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