POZ Community Forums
Main Forums => Living With HIV => Topic started by: Sdgirl on June 05, 2006, 07:32:44 pm
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Okay, I am not on meds, and my numbers are okay...tcells 640 and VL 23,000...but MAN am I tired! I mean I laid down for a nap at 6:00p last night and didn't wake up until 6:30a this morning! Now what's that about? And I don't wake up "refreshed" either. Is fatigue a side effect of the HIV virus? Is what I'm experiencing normal? I asked my doctor about it, but she just kind of brushed it off. Shit, I can run training camps on sleeping.....do I need vitamins, WTF? :-\
Lisa
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HIV is a HUGE side effect of HIV, with or without drugs. Me, I've tried every trick in the book, from massive coffee to energy drinks to ephedrine. After a time, none of it seems to work very well. There is, it would appear, no more "jumpstarting" the system.
Oddly, drinking lots of water, and moving around al I can seems to help a little. But every time I go to the doc about it (and you ought to, because anemia is a common HIV side effect) I have gotten the dismissive "its just part of the disease process" line. Methinks doctors get pissed when they can't directly diagnose or fix a problem.
But it's real, and it's not necessarily depression or anything other than the fact that you are, on a cellular level, fighting a non stop, vicious battle. You are using almost double the calories of your HIV negative friends, and your body is under constant assault. One of the effects of that waged war is going to be fatigue. I try to make the most of my up-time, though sadly, things like housekeeping and errand running have taken a serious backseat.
But don't stop pestering your doctor. Seriously.
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Over the past few months I have encountered the same thing, typically around the same time of day (late afternoon). My ID doc is running tests on testosterone levels. I guess it is common in HIV+ guys. My situation is a bit different though, Lisa. I am on meds and a considerably lower CD4 count.
I do think that even the element of HIV can cause a mental fatigue. I have caught myself wondering if I am doing too much sometimes.
I find fresh air to be the best spell for it.
:)
John
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Oddly, drinking lots of water, and moving around al I can seems to help a little. But every time I go to the doc about it (and you ought to, because anemia is a common HIV side effect) I have gotten the dismissive "its just part of the disease process" line. Methinks doctors get pissed when they can't directly diagnose or fix a problem.
Water and activity helps me too. before I would nearly always need to nap around 1PM .....when I was a denialist my low energy was almost guaranteed, especially on the weekends after working 5 days a week, 8 hours a day. ..... Now I feel fatigue issues have improved since starting meds ...and boy I'm glad because I was told meds can make you tired. I was like --oh no please!!! And at first they did make me tired but I think my body has since adjusted. I do know one thing - and please, no eyeball rolls - high-fat big-portion meals which aren't nutritious make me very very tired. I like to eat sprouts and salads because they seem to help
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I had the same problem, was needing a nap every day around 5pm, and sometimes slept for 12 hours too. Got worse the longer I had it. Since I've started meds, I don't think I've taken a nap once! Even though I never got below 360 cd4s.
I found that multivitamins helped tremendously. I especially love Super Nutrition http://www.supernutritionusa.com/ vitamins, they have mens' and womens' blends. A couple HIV+ friends I've recommended them to swear by them. You can take 3-6/day, and they are food based so they are more easily absorbed into your bloodstream. Also, they contain everything under the sun you'd ever want to take - I did some research on HIV and nutrition, and vitamins, and compared what's in them to the recs - and they cover just about everything, like selenium, magnesium, and various herbs too.
2 recs: you have to take them every day, don't stop if you feel better! Also, best to take them with food.
Good luck.
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I haven't been on meds since I tested poz, but I can totally feel ya on being tired. It's really wierd, I'll go months at a time feeling great, then periods, like now, where I'm sluggish. I sleep 8 hours and can't drag my butt out of bed for another 3 hours or so. I've wondered if it was my depression kicking in or what, but I feel fine and happy...so what gives?
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I completely relate to this post, I use to be able to leap out of bed and be showered, dressed and had breakfast in thirty minutes, now it takes twenty to get my legs out, In the afternoons I can crash any where, and go so deeply to sleep. I tried to have a social evening with friends yesterday, but found it difficult to keep alert through my constant yawning and struggle to stay awake. My Doctor has now signed me off, labelling it as Chronic Fatigue, Yet, I am living as is recommended, as in diet, nutrition and exercise, and have taken so much advice from those that say they Know, but to no avail. Before HIV I lived my life, only needing four hours sleep a day, now I seem to need fourteen hours and a nap half way through my awaken hours.
John(UK)
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Hey Lisa,
I'm assuming your doctor checked your blood count recently and decided you weren't anemic since she brushed it off. Drinking enough water? Drinking too much alcohol? Not eating right?
Just throwing stuff off the top of my head that I can think of, especially since you're not on meds. The anemia thing jumps right out at me, especially for younger women.
Take care sweetheart,
John
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Hey Lisa,
If i remember well, it's not so long that u discovered u r poz.
All traumatic experiences that we face , create 'big waves' for some it 'comes' down 6 months later, for some 1 yr.......................................
I called it the 'de-stressed' period, the doc that follows me at the hospital , did not brush it off. She putted me on multi-vit - with magnesium, vit B. I pick-up after a month on these vits.
Hope this ease alittle your worries.
Siang
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I feel the same thing you are feeling...I am tired all the time and I am not on meds. I have no idea why that is the case....I've tried asking my doctor, but she did not give me any reasons aside from HIV is intrusive to the body and it causes tiredness more easily in a person who is HIV +....thus she said to get plenty of rest. Even with the rest I am tired. It is funny though, when I am on the treadmill for 30 mins, I feel energized afterwards; I have no idea what that is the case. Maybe exercising could help to reenergize. I have also noticed that a well balance diet gives me a little more energy, but I have to be consistent, such as having breakfast, lunch and dinner. I use to go without breakfast and only had small lunches, but now I eat breakfast and a fairly larger meal for lunch. Though sometimes eating too much will give me food coma, so I try not to overly eat. Sometimes drinking green tea helps me too. with the vitamins, it also reenergizes me as well. Even with all these...I still feel tired sometimes. My doc kinda brushed it off too with a brief explanation. I think she doesn't know of any advice so she just kinda kept quiet about it.
Justin
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I cant really help cause I have been on drugs since I found out in 89 that I was positive. I do know that in my first 5 years I slept all the time. It was nuts. I was a drinker back then.
I do know that depression can make sleep seem like the only solution. I like and recommend lexapro. I started taking ADs only when I knew I was depressed(about 5 years ago), and I for one believe you know when you are depressed.
Like many here have stated exercise does wonders, but I also know nothing could stop my daily 3 hour naps in the first 5 years I knew I was pos. I thought it was the azt.
I dont think there is anything wrong with taking a 30 to 60 min nap each day,in fact it is probably healthy. I usually take mine at lunch time. Yesterday, I went down for over two hours. Must be the drugs.
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Hmmm I don't think I'm in quite the same position as some of you guys. I rarely have to nap in the middle of the day and can get out of bed fairly easily, but since my CD4 count plummeted from 420 to around 200 I have felt fatigued on occasion. Not in a 'I need to sleep right now!' way but a general feeling of weakness in my limbs.
It's never debilitating and it never stops me doing anything, but it makes it a bit more of an effort to get off my ass sometimes! I also find that getting up and going for a 30 minute walk and some fresh air often boosts me for a few hours after. The days where I mostly stay in the house are those where I feel the most exhausted.
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. It is funny though, when I am on the treadmill for 30 mins, I feel energized afterwards; I have no idea what that is the case. Maybe exercising could help to reenergize.
Justin
Optimistic (Justin),
You sound like you get a 'runner's high'. I feel the same way each day when I get finished with my stair stepper. If I exercise for 15 minutes, I'm tired. After I reach 17 minutes, I get that 'runner's high', 'second wind,' or whatever you want to call it. Once I reach this point, I can keep exercising for over 45 minutes and not be really tired at all. Strenuously exercising past the point of being really fatigued supposedly releases endorphines. These are what make us feel so good. This, and the obvious health benefits, are the reasons I advocate exercise. Plus, it'll help keep one looking good! Here's a link that kind of explains it: http://www.lehigh.edu/dmd1/public/www-data/sarah.html (http://www.lehigh.edu/dmd1/public/www-data/sarah.html)
David
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I've had that problem for a while now, but I'd never made the association between HIV and fatigue. I sometimes have slept for 21 hrs and still feel tired when I'd wake up. Funny, never once thought about HIV being the reason. Learned something new.
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yeap, when your body is fighting this virus it gets tired. Us poz boys and girls need more sleep. I can go weeks and feel great but every once in a while I have a day where I need to sleep A LOT. And, it is not depression, I think ANN calls them viral days. So, that is what I calll them too.
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the tiredness thing is kicking my butt. I can hardly make a full day without taking a nap or laying down. If I can't get to a bed I just begin to zone out. This is really difficult to deal with at 19. My friends don't really understand why I sleep so much and am always tired, I'm not sure I do either. :(
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I think ANN calls them viral days. So, that is what I calll them too.
That's right, or VD days for short. :D
Ann
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I find sticking my fingers in the light socket gets things going.. Not recomended for kids.. ;D
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Last night I slept from 1:30 AM until 10 AM, woke up, had half a sandwich, watched some TV, and went back to bed from 2 until 7:30. Such is my life :)
HIV causes fatigue for many reasons, among them the obvious (anemia, ongoing viral warfare) and the not so obvious (subtle depression, HIV's activity in the brain throwing off hormones, et al). And the drugs used to fight HIV can cause fatigue for many of the same reasons. Not in everyone, not all the time, and not at exactly the same level. It's different in us all.
Another bonus, just for playing :)
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jk, I call that life in the slow lane... or the geritol lane
:D :D
i dunno - the slow lane is "growing" on me. slowly of course
:D :D
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It does sorta grow on a person... like athlete's feet, maybe :)
I used to be seriously hyper, tree-climbing, bouncing around, gym bunny. I really want that guy back. My doctors think that because I look alright in clothes, and my weight's up, then it's not really an issue.
Anyone with energy producing tips? I mean, besides the stockpile of ephedrine I have in my kitchen (which does not work like it used to) and energy drinks (which cause a crash like you wouldn't believe)?
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JK, drive your car really really fast? Base Jump? Rob a bank?
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:) Drive the car fast, skydive, empty my bank account :)
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I have been getting B12 shots for a couple of months now and I have a lot more energy and don't need a nap as soon as I walk in the door every afternoon.. Ask your doc, they work!
Jena
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Since I started taking Truvada and Sustiva I've been getting very restful sleep and have more energy than I can remember. 6 or 7 hours a night refreshes me pretty well. Occasionally I'll doze off after supper, but only for a half hour or so. I take the meds about 10 and couldn't stay awake past 11 if I had to. I'm up and at it by 6 am. I did have a low platelet count which is on the mend. Perhaps that's why I'm feeling better. I also take a B12 complex with my multivitamin. If I try to sleep longer than 8 hours it seems to make me more tired. Check this out.
http://www.insomnia-connection.com/too-much-sleep.html
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Hi Lisa,
Over the years, I have known many people who were living in L.A. and wanting to move to San Diego. Since Sonoma County is about to lose it's Title I status, I have been thinking about moving back to L.A.. but San Diego has kept me awake many nights recently because the closeness to the Mexico border, the Sea of Cortez and the close proximity to South Bay Beach cities (Long Beach, Hermosa Beach, Redondo Beach, and Manhattan Beach) and Costa Mesa, Palm Springs, Laguna Beach, Balboa Island. Maybe you are so tired because you live in one of the most exciting cities in California and have been there long enough to not notice it.
Could you imagine living in King City, Coalinga or any of those places where they habitually roll up the sidewalks at 10:00 PM every evening? Since putting in so much effort in RWCA reauthorization for the past nine-ten months and being uncertain how the changes in the legislation will affect the care infrastructure, I am putting in a lot of consideration in thoughts of moving to San Francisco, Marin, Los Angeles (again) or San Diego. Have the best day
Michael
www.Commission-on-AIDS.org (http://www.Commission-on-AIDS.org)
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Yeah I used to get tired alot, before the meds. But I am not anymore. So your in San Deigo, I drive down there every 4-5 months to the Naval Medical Center to get my labs done. I love the weather there.
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Yes its the hiv. For over a year before I even knew, I'd get so tired it was beyond tired. It was a clue something was wrong, but I didn’t get tested till a year later. That tiredness was one of the first signs, and not a good sign.
Now on meds for 9 months, I have most if not all the energy back. It scares me how the hiv damages the body. How totally and devastating the damage can be. The meds (in most) stops the hiv, thus stops the damage and the body really wants to recover. But as long as a vl is present, its out to win the hard way.
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Hi Lisa,
I would call the Dr and make sure you are checked for anemia, check your hormone levels, b-12 level, and rule out depression. All of which can cause fatigue. If you are able to rule out those it could just be the good ole' hiv causing the fatigue.
I have been tired for so long, when I have a day where I have energy, I think something is the matter. I also can sleep for 10-12 hours, and not feel rested when I wake up.
Fatigue and nausea are the two worst part of all of this for me. It can be pretty rough at times. I have learned to budget my energy, make sure I sleep enough, and rest when I have to.
Christine
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I was super tired on meds as well. Being naturally anemic BEFORE HIV, I really have had no real recourse. Procrit did not work very well, and insurance ALWAYS hassled my doctor about it. AZT just made the anemia worse, and then discovering I had/have CML, maybe or maybe not caused by long term HAART use, just sorta put the icing on the fatigue cake.
But I still maintain hope. And drink a lot of Red Bull.
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Procrit takes my hemocrit levels up to almost normal..11.9, sometimes I even hit 12. Normal levels for women are 12-14. Every three months the insurance needs to make sure I really need the procrit, so it is usually calls back forth between insurance people, and the doctor's office. It works pretty well for me. I think my lowest count was 9.8, and it felt like my legs were lead, and I had a lot of trouble walking up stairs.
For me, fatigue seems to be part anemia, part side effects, and partly the hiv itself.
Christine
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bumpbitty bump
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I have been getting B12 shots for a couple of months now and I have a lot more energy and don't need a nap as soon as I walk in the door every afternoon.. Ask your doc, they work!
Jena
Sounds very interesting!!
Anyone else here do this too? If so, how often?
Bump for more input everyone
:-*
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I'm being put on Ritalin next month for fatigue. I'll let you know how it works when I get started.
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Lisa, I feel for you honey. As others have suggested, speak to your doctor about it (in a STRONG way).
What really gets on my nerves is people in my life who, for whatever reason, don't seem to understand that I get fatigued easily and may need more rest that the average Joe. Some days, it is just about all I can do to drag my skinny butt out of bed, get dressed, and run out the door just in time to be at my part-time job at 9 am (thank God I only live 2 blocks away). I get off at 3, and some days I go home and flop in my chair and rarely move until time to eat, then back to the chair until bedtime.
I think David is right, exercise helps with fatigue. I am trying to build up some endurance right now, but I have been out of the gym for over 6 months (due to $$ reasons) and now that I'm trying to go back, the slightest thing just wears me out.
But some days I tell myself, "Self, you've had HIV for 20 years. You've had AIDS for over 16 of those. You deserve to rest."
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i suffer terribly from fatigue and have started taking co-enzyme q10, which a +ve friend recommended to me. it works for her, can't tell if it works for me yet. i really feel for you though as i have days where i physically cant get out of bed, and also i seem to spend all my time sleeping.
i personally think a huge amount of the fatigue is due to the (sometimes subconscious) stress or depression of being aware of your own mortality. i dont want to think that the fatigue is due to the fact that this disease is slowly killing me because that will do my head in, but really i can't deny that the immune system constantly fighting a battle against the virus must have something to do with it.
best wishes, i hope you find a solution - if you do let us know! ;)
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I can soooo relate to the fatigue thing, but that was BEFORE I started meds. My CD-4s were around 325 or so and viral load wasn't outrageously high, but once I went undetectible it made all of the difference. I'm going about my business all day with a sustained energy level now and feel much more energetic. I work out and stay as active as possible - keep that blood pumping!!!! Exercise is a huge help!!
Best of luck!
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Hey Sdgirl,
I have the same problem, I'm not on meds either, and when I get home after work if I dare to lay on the couch I'm out for a couple of hours easy, then I go back to bed at 11.30 till 7 am, however I have not been able to sleep through the night for quite a lot of years now, even before HIV, but I definitely feel the deference since HIV. When I talked to my doctor he also sort of dismisses it to lack of exercise,and he may be right, see I have gained 30 pounds since finding out, I quit going to the gym on a regular basis, so now I do try to get to the gym to see if my energy level goes up, he says it will if I lose weight and workout. But yes there is no doubt the HIV takes allot out of our bodies because it has to fight against it all the time.
I'll let you know how I feel as I try the gym again.
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Hey Optionsf,
That Super Nutrition Men, do you know if that is availble in Canada ? Would like to give it a try, don't know if I orderd it online that it would not get held up at the border.
Fosbery
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I used to have the very tired thing all the time beginning with the drugs in 1989. Many mornings I would have to lay down and sleep for two hours. I always had a lack of energy through out the day.
Now, all of sudden,the last two years have been entirely different. I get up everyday between 4am and 4:30am, and am not tired at all during the day. I go to sleep around 9:30pm.-10pm. I have more energy than I have ever had. I dont know what has happened. For instance Saturday, I road 30 min on exercise bike,went on a fast 3 mile walk and then walked 18 holes of golf in afternoon. Never felt tired the entire day. A couple of years ago the exercise bike workout in the morning would have put me down for the day.
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I know exercise obviously isn't an option for some but for those who can it has helped my energy levels tremendously.
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i still get tired sometimes. On the advice of another thread, I started taking B12 pills and it has helped somewhat. Also, I've been making it a point to do about 1/2 hour (at minimum) exercise a day. There are days though that I get completely exhausted and on those days I do listen to my body and ret as soon as I can.
Ty
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I'm being put on Ritalin next month for fatigue. I'll let you know how it works when I get started.
Please do. Best wishes. Warm hug Rodney. "Dominus providebit" baby. And same to you AlanBama
(I thought Ritalin was a Rx for kids. Time for me to Google)
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(I thought Ritalin was a Rx for kids. Time for me to Google)
allopathicholistic, Instead of the actions of a depressives used in children, it acts as speed for adults.
http://www.sfaf.org/treatment/beta/b47/b47fatigue.html (http://www.sfaf.org/treatment/beta/b47/b47fatigue.html)
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It's strange...In the beginning after my diagnosis (a a few months prior to diagnosis), I was more tired than usual. I found myself taking naps in the afternoon and going to bed really early (like 9-9:30) because by that time I was completely exhausted. Looking back, I attribute that to seroconversion prior to diagnosis, and mental exhaustion and slight depression after diagnosis. A few months later I gave up a 20 year smoking habit and started excercising. This helped tremendously.
However, over the past week or so, I find myself sleeping later in the morning and having difficulty getting out of bed. I did have a session with a personal trainer (who kicked my ass) and that caused all kinds of muscle soreness. I think my body needed to recover. I'm back to the gym today. I hope that I can regain my energy because I hate feeling tired all the time. I'm not on meds yet and have just been taking supplements and DanActive. I have been feeling good. I'm up for labs next week and hoping that my positive efforts will be reflected in my numbers.
In short, I would say excercise is a good method to help restore energy. I like the natural high. I like to do a powerwalk on the treadmill for at least 40 minutes.
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1.Depression ?
2.Stress / Post Traumatic Stress Syndrome ?
3.Lack of Testosterone hormone ( males ) ?
4.Dysfunctional spleen ( SGOT SGPT ) ?
5.Anemia : lowered red blood cells , hemoglobin ?
6.Latent infection going on ?
7.Lousy sleeping ?
8.No enough rest ?
9.No exercises ?
10 Low blood pressure ?
11..............low atmospheric pressure , lousy biorhytm , ..................... ?
More on this on www.thebody.com
Dr Bob is a major one for that issue..............................
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allopathicholistic, Instead of the actions of a depressives used in children, it acts as speed for adults.
http://www.sfaf.org/treatment/beta/b47/b47fatigue.html (http://www.sfaf.org/treatment/beta/b47/b47fatigue.html)
Thanks Rodney for sharing this link from SFAF with us.
To everyone: If you're a a non-scientific person who loves to throw questions at doctors :D, you might want to bookmark it because you can gain so much information from it especially on anemia, e.g., information on Epogen, Procrit, low hemoglobin, low hematocrit, bone marrow damage, hemolytic anemia and G-6-PD. I had no clue that "60–90% of people with HIV have some degree of anemia at some time during the course of their illness." Wow.
Many thanks RR! :)
Alex
(Who's posting this for the search function to capture the words above)
(P.S.: Although the article is long you can read it in chunks. Also, it seems some of the anti-retroviral drug data is outdated because it's from 2001)
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I'm being put on Ritalin next month for fatigue. I'll let you know how it works when I get started.
I used to take Ritalin for ADHD. It works fine, made me feel good, and gave me lots of energy. It also made me feel too wired and sweat like hell. If it doesn't work well for you, or if you have the same effects, the long-acting version seemed to be a little better. I take Adderall now, which is basically pharmaceutical speed. It doesn't make me as wired or sweat as much, but does help with fatigue (and ADHD, too). Plus, it makes one feel good! Good luck with it.
David
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Amazing. This is SOOOOOOOOOOO me too. There are some moments when I'm absolutely exhausted all the time! I've noticed this over the past few years, especially as my sinus infections and eczema has gotten worse. (Now that I'm diagnosed I can see - in hindsight - that these are all symptoms of being hiv+).
Plan to ask my doc about the exhaustion at my first appointment for my bloods.
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Thanks Lisa for starting this thread and for all who added to it. I was diagnosed at the time of seroconversion and felt debilitating fatigue for 4 months. It got a better but never returned to normal. My doctor was very supportive and checked all the possible reasons but luckily (?) it came down to the body using its resources to fight the virus 24/7. I have so adjusted to the fatigue that I forgot its not normal. I start work at 7:30 and its an intense, active, on-the-go environment. I am tired by lunchtime and exhausted by 3:30. I am pretty useless in the evenings when I get home around 5. I simply no longer make evening plans during the working week. I go to bed at 9pm and sleep until 6:30am. I feel refreshed for Monday and Tuesday but the decline sets in about Wednesday and Thursday and Friday are a drag. Its strange what we can become accustomed to. I am not on meds yet either.
People at work do not always understand that I just cannot do as much as I used to. I was hyperactive! I can't blame them as they don't know the reason for it. But its still difficult dealing with them noticing a decline in productivity. Friends who I have told about my HIV are more understanding and miss me in the social activities of the group. I have asked them to continue to invite me as that means a lot but to understand that I might bow out early or all together.
all the best to you all
Jonathan
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I was a Pharmacist about 18 years ago when I went on disability...so going on 19 years now being POZ..for the past three years I joined my gym just because it gives me social interaction with the rest of humanity & not just POZ people(there's nothing wrong with all of you people but I just don't like to hang with just you..I like variety :-) )...so I got involved with an aquaaerobics class.........I can not swim but was looking for something that was not high impact & this was the answer...so I do that twice a week on Wed & Friday and have added a day out of the pool on Monday with Nia(which is a combo of karate,ballet,yoga etc)......it's allot of fun & what is MOST IMPORTANT..YOU GO AT YOUR PACE..IT IS NOT A MARATHON..if I tire I just walk to keep my heartbeat up then join in again...I only do it because it HAS to be fun and out of that fun comes the benefit.....which is TOTAL exhaustion when I get home(I almost always take a nap when I come home from the gym) & meeting new & interesting people....but especially in the cold ,dark winter mornings...I drag my ass into that gym because it costs me allot of money...my mind says get up!..go use it...and then it kicks in why I'm there when I'm there....and the bow on the package is that the pool class has now become an extended family of sorts...we have an annual xmas party,Halloween party(in the pool BTW)....so yes yes yes to excercise...if my body was NOT in the shape it was in last year I would never have been able to recover from that cancer in my ear(stage one lymphoma) & the chemo that went with it..I learned that one the hard way!.and always take naps...it helps if you don't work...but I know in this world if you haven't set youself up financially...you have to work!
Tony
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Lisa,
A 12 hour a night sleep is the norm for me anymore. But I've been on meds for 23 years. But I have always battled fatigue, ever since I can remember. I recently went to a sleep center and discovered I have sleep apnea. I'm hoping that once I get started on a new machine, that it will help me sleep better (more REM sleep). I hope this is just a freak thing for you. Has it been going on for a while now?
Hope you get your strength back soon .
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Amazing. This is SOOOOOOOOOOO me too. There are some moments when I'm absolutely exhausted all the time! I've noticed this over the past few years, especially as my sinus infections and eczema has gotten worse. (Now that I'm diagnosed I can see - in hindsight - that these are all symptoms of being hiv+).
Plan to ask my doc about the exhaustion at my first appointment for my bloods.
Your experiences are exactly mine: sinus aches & problems, bad eczema and some days I'm so tired I think I'll fall of my chair.
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I have to get at least 9 hours or more of sleep. And I have noticed that I take more naps recently. With the way my counts have dropped recently, I expect this is the reason for the fatigue.
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Well I'm glad to see that I'm not alone, I am tired all the time and like most of you by the time I get home from work I'm so tired I have to have a nap, this was never something I use to do, and unlike some of you and wish I could have a solid sleep at night, but all I do is twist and turn all night. My doctor like the rest of you seems to dismiss it and tells me to get my ass to the gym andl lose some weight and I won't be so tired. I use to go to the gym 5 days a week and now I'm lucky if I get there twice a week. I've gained like 25lbs since this all started a year ago. It really sucks.
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i am by nature a very nervous person, i always managed with 4 hrs sleep a night and i race tru the day at full speed.
but this year it has been very difficult, i need at least 7 hrs of sleep a night to be in a fit state and when i'm tired i start to shake all over my body.
i know i should slow down but i just can't (won't), i accepted a new job recently wich is much fun but it depletes my energy levels even more then my previous one used to do.
doctor gave me a very mild sedative for, as he put it "put my engine on a lower rev"
it is frustrating though, i dont want to slow down and i see myself in a sort of battle with HIV, most of the days i win, but sadly i noticed that recently HIv is scoring points too!
maybe i'm losing ground, my last labs weren't very good, VL 12000 and CD4 500 ,wich is very low for me, oh we'll see this month , dracula comes to bite again!
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Hello,
I was exhausted some mornings even before infection. Some of it is getting older, but I think my allergies run my body down as well. Going to the gym helps, but then sometimes that makes me feel like sleeping all day. I try to keep busy, but sometimes I have to take a lot of breaks, because if I am exhausted I get easily frustrated with what I am doing and stressed.
Drew