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Author Topic: Disclosing....  (Read 2812 times)

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Offline ALH300

  • Member
  • Posts: 75
  • Some days ur the bug other days ur the windshield!
Disclosing....
« on: August 13, 2007, 05:52:23 pm »
Wow, what a weekend! I have been recently diagnosed and was fortunate enough to be able to tell about 90% of my friends and family. They all kind of knew something was up, so I figured what the hell....I don't want to keep this secret forever. I was actually shocked and suprised with how well they all handled the "news". There was a lot of "no matter what we still love you" "if you ever need anything lets us/me know". For being a redneck in rural Iowa I was suprised! Hopefully the whole stigma thing is dying. I think not too long ago the stigma about cancer is like what it is today with HIV. I am sure not everyone will look at us the same but hopefully this will change with time. People are very stubborn and set in their ways. All we can do is hope! All we need is a few more celebrities or high profile people to come out about their status and there will be alot of changes on how HIV is viewed.

Peace!!!!
Poz 7-27-07 
First Labs:
07/13/2007 "Friday the 13th" What was I thinking???
314 CD4 17% 9410 VL
10/03/2007
479 CD4 18% 8220 VL
01/03/2008
493 CD4 22.5 % 5900 VL
03/18/2008
432 CD4 14.4 % 11,830 VL
05/06/2008
480 CD4 15.0% 2630 VL
07/16/2008
361 CD4 16.4% 12,830 VL
10/31/2008
362 CD4 15.5% 2500 VL
Started Atripla 11-17-2008
1/16/2009
395 CD4 20.5% undect. VL
5/05/2009
426 CD4 20.3% undect. VL
9/15/2009
422 CD4 22.2% undect. VL

Offline MOONLIGHT1114

  • Member
  • Posts: 1,918
  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: Disclosing....
« Reply #1 on: August 13, 2007, 05:56:48 pm »
Hi ALH,

I'm glad to hear of the good outcome with your disclosing to your family.  I was diagnosed pos in late 93 and didn't tell my brother until 4 yrs later, parents a little after that.  I kept it very quiet. 

I still feel that the stigma is out there, unfortunately, but I am personally trying to do little things in my own world to change the stigma around me.  It takes baby steps, as I'm sure you know. 

Know that by posting this topic here that you're helping others to be hopeful, as well!

Keep Smiling!

~Cindy

HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline koksi

  • Member
  • Posts: 83
Re: Disclosing....
« Reply #2 on: August 13, 2007, 07:19:38 pm »
Thanks ALH, it is really heartening to hear this story.
seroconversion in March of 2006
positive test May 2006

10/2013: Undetectable, CD4 1000
2009:  Began Atripla

10/2007:  VL 2,300 // no CD4 numbers! :-(
09/2007:  Begin Truvada/Reyataz/Norvir
08/2007:  VL 824,000 // CD4 344 // 21%
06/2007:  VL 326,000 // CD4 351 // 17%
04/2007:  VL 410,000 // CD4 242 // 26%
06/2006:  VL 444,893 // CD4 479 // 21%
05/2006:  VL >500K    // CD4 402 // 17%

Offline JPinLA

  • Member
  • Posts: 148
  • Cheers!
Re: Disclosing....
« Reply #3 on: August 13, 2007, 07:23:31 pm »
That's great to hear!  I still have not told most of my family or friends because of my fear of stigmatization (and I am not talking the holy kind either..).

I am hoping that when the time comes it was me merely being paranoid and that I will have a very similar experience as you have had. 

Jason
11/06 - Diagnosed - VL/5784 & CD4 326
2/07 - VL/6000 & CD4 290 2/07
3//07 -Began Truvada/Viramune 
4/07 VL/undetectable and CD4 320 22%
7/07 VL/undetectable and CD4 286 22%
11/07 VL/undetectable and CD4 302 26%

Offline red_Dragon888

  • Member
  • Posts: 2,845
  • Love and Be Love in Return
Re: Disclosing....
« Reply #4 on: August 13, 2007, 07:51:33 pm »
I wish you all the best.
http://www.youtube.com/watch?feature=player_embedded&v=I3ba3lnFHik

Off Crystal Meth since May 13, 2013.  In recovery with 20 months clean time.

Offline xyahka

  • Member
  • Posts: 808
  • Dance together!! aha!! aha!! I like it!!
Re: Disclosing....
« Reply #5 on: August 13, 2007, 08:21:07 pm »
Hey so glad to hear everything went well with you. I also disclosed my status to my family members and most of my friends. Almost no rejections (just the person i was dating at that time) and even though everybody was a bit scared about it at the beginning, at the end they all started to educate themselves and have a better understanding of what living with Hiv means nowadays.

I agree with you that stigma is dying, slowly but it is dying. Glad you took the step forward, it brings lot of peace... i think you already know it by now.

hugs,

Juan Carlos
13/03/07 1er diagnóstico /Peso: 79kg
19/04/07 CD4: 494 /CViral: ?? /Peso: 80kg
19/07/07 CD4: 659 /CViral: ?? /Peso: 79.5kg
06/03/08 CD4: 573 (después de meses muy deprimido) /CViral: ?? /Peso: 79kg
17/09/08 CD4: ?? /CViral: ?? /Peso: 84Kg
06/02/09 CD4: ?? /CViral: ?? /Peso: 85Kg /HCV: Neg /HBV: Neg.
07/03/09 CD4: ?? /CViral: ?? /Peso: 87Kg / Gym 3días/semana y Natación 2días/semana.
12/05/09 CD4: 470 /Cviral: ?? /Peso: 87Kg.
08/07/09 CD4: ? /CViral: ? /Peso: 77Kg.
09/12/09 CD4: 510 /CViral: ? /Peso: 78kg. No medicinas aún
10/01/10 CD4: ? /CViral: ? /Peso: 76Kg.
15/05/10 CD4: 320 /CViral: ? /Peso: 76Kg.
01/02/11 CD4: 291 /CViral: ? /Peso: 78kg.
05/05/11 CD4: 366 /CViral: ? /Peso: 78kg.
27/07/11 CD4: 255 /CViral: 138000 /Peso: 78kg.

Disfrutando y aceptando una nueva vida...

Offline DanielMark

  • Member
  • Posts: 1,475
Re: Disclosing....
« Reply #6 on: August 14, 2007, 06:15:14 am »
ALH,

Good for you for disclosing your diagnosis so quickly! Your health will thank you for it in the long run.

It's my belief that when we keep HIV in the closet, we only help feed the stigma (tho I recognise for some it might jeopardize their jobs). If we want that to change then we need to be brave.

The way I see it, keeping secrets is a burden my health can’t afford, so I disclose – with discretion of course – whenever I feel the need to. If nothing else, it sorts out the ones who can be supportive from the ones who won’t be.

Daniel
MEDS: REYATAZ & KIVEXA (SINCE AUG 2008)

MAY 2000 LAB RESULTS: CD4 678
VL STILL UNDETECTABLE

DIAGNOSED IN 1988

Offline ALH300

  • Member
  • Posts: 75
  • Some days ur the bug other days ur the windshield!
Re: Disclosing....
« Reply #7 on: August 14, 2007, 12:09:39 pm »
Thanks for the replies! It's was probably one of the hardest things I have ever had to do in my life besides having an HIV test. I figured I needed to get it off my chest and I really wanted to know who my real friends were so I didn't waste time and energy on people that don't really care about me. The more people that discover and learn about HIV will really really help in the long run. It is our job as HIV+ people to help others with or without HIV learn and understand what this whole thing is about. Although I am newly diagnosed I want to try to change peoples thoughts and views about HIV.
Poz 7-27-07 
First Labs:
07/13/2007 "Friday the 13th" What was I thinking???
314 CD4 17% 9410 VL
10/03/2007
479 CD4 18% 8220 VL
01/03/2008
493 CD4 22.5 % 5900 VL
03/18/2008
432 CD4 14.4 % 11,830 VL
05/06/2008
480 CD4 15.0% 2630 VL
07/16/2008
361 CD4 16.4% 12,830 VL
10/31/2008
362 CD4 15.5% 2500 VL
Started Atripla 11-17-2008
1/16/2009
395 CD4 20.5% undect. VL
5/05/2009
426 CD4 20.3% undect. VL
9/15/2009
422 CD4 22.2% undect. VL

 


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