POZ Community Forums
Main Forums => I Just Tested Poz => Topic started by: muratti on April 01, 2014, 04:05:25 pm
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hi everyone,
last few weeks, since i was tested positive most of the day i am spending in front of my computer and reading this forum for hours. everyone arround me is telling me stop doing this but i just can't. i was thinking should i write something here since i am very conscious about my bad english but i will try.
i was tested positive on march 10 2014. few days after i went to get my adap since i am foreigner. i went to do a blood work and my result was VL 7401 and CD4 487
i know it s not bad and it s not so great.
i didn t get any other diseases ( hep a b c, siphilis, gonorrea or similar ), i never had any problems with health..yes cold here and there, felt tired sometimes but i work a lot so it might by that i was just exhausted. started with therapy 2 days ago, Norvir, Prezista, Truvada. FIrst 2 days no side effects.
i am writing here cause of one thing?
1.i know it s very individual but how long take that adjustment period ? how long i will need to accept fully that my life is going in some new, different way?
cause right now i feel like i am in a limbo. i don t want to see anyone exept people that knows. my 2 poz friends, my 2 neg friends that knows my issue, my boyfriend ( thanks god he is neg ) who is very supportive, my family who is supportive too. i am avoiding everyone else.
2.i see here people living with hiv for 20 and more years but i am curious with how many complications ( in terms of OI ) one has to face every day, year? how often OI comes ? what can i expect with my numbers? how big are chances that i will get KS or Pneumonia. i am trying to eat better now, i am planning to start exercise, quit smoking but i am just affraid of what will bring tomorrow.
doctor, my poz friends are keeping telling me ull be fine, don t worry u will live a long life but somehow fear inside of me is not letting me live and enjoy life. i rather stay home and read this forum for hours and thinking when will my ks show up.
thanks
muratti
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one more thing. i told my doctor that i want to start therapy asap. he said ok and he said he has combo for me but for that combo i need to wait 2 weeks until the resistance test is done. i said that i would like to start it asap and he said..ok start with truvada, norvir, prezista. do u think he is shallow putting me on meds without resistance test? i don t know since the hospital is mount sinai on 25th street and they deal only with hiv patients..i assume they have lots of experience.
thanks
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Sorry you need these forums, but glad you found us.
1.i know it s very individual but how long take that adjustment period ? how long i will need to accept fully that my life is going in some new, different way?
cause right now i feel like i am in a limbo.
As you said, adjusting varies for each individual. I can only share my brief experience so far.
Getting used to the medication is the easier part. Took me about a month for the meds. Of course, I got a 7-day pill box to keep track of my pills. I also set a reminder on Intelecare to remember taking it.
Mentally, it's very different from person to person. When I was first diagnosed, it occupied my mind constantly. I kept myself busy with work and sleep to stop thinking about it. When I did get stuck thinking about it, I hit these forums and read everything that I could find about the disease.
It took me at least 3 months to stop thinking about it all the time. And that was with a psychologist helping me.
Socially, I can finally claim to act normal after 4-5 months. Other than treating doctors, I have only told my psychologist and a close family member. You are lucky to have that many people know and support you.
2.i see here people living with hiv for 20 and more years but i am curious with how many complications ( in terms of OI ) one has to face every day, year? how often OI comes ? what can i expect with my numbers? how big are chances that i will get KS or Pneumonia. i am trying to eat better now, i am planning to start exercise, quit smoking but i am just affraid of what will bring tomorrow.
With your numbers, I'd expect your doctor to tell you: very low risk for OI's. Unless you have already had an AIDS-defining OI, your chances for one now are very low.
Still, you should talk to your treating doctor about your case.
It's good that you are making these changes in your lifestyle. You are investing in yourself for the long haul.
Remember to take each day at a time.
do u think he is shallow putting me on meds without resistance test?
Far from it. Protease inhibitors (PI's) (on top of background therapy) have the highest barrier to resistance of all ART classes. Without knowing what drug resistance you have, your doc is actually being ultra-conservative.
Your regimen is actually a first line recommended by guidelines. My doc put me on the same regimen until my genotyping came back.
http://aidsinfo.nih.gov/guidelines/html/1/adult-and-adolescent-arv-guidelines/11/what-to-start
Once you get yours, your doc can always switch you and simplify your combination. He tried to switch me to Stribild, but I got a rash. Going through a trial with Truvada/Tivicay. No problems so far.
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Hey muratti, welcome.
You know, for a recent diagnosis, seems to me you are surrounded by a very comprehensive support group, and congrats for that. I think you will get out of limbo pretty quickly because you are being matter of fact about it. And the people around you knowing will just help it become normal again.
I don't think you should be worrying about how many OI's you are going to get. You are already on treatment, and your immune system is in good shape starting. Really you will probably have no troubles with OIs .
I don't want to discourage anyone who says they are going to exercise, quit smoking, eat better. But listen to this - a RADICAL change of lifestyle is a lot to manage. But you already have one big thing to manage, for the moment. Please don't feel like its necessary for your health to radically change everything and instantly. The HIV treatment is the thing that deals with HIV infection. You don't have to have a perfect diet or exercise plan to completely control an HIV infection. Is that clear? Its the truth!
Nutrition, exercise, quitting smoking - those are all good things for ANYONE's health, not just for HIV+ people. Really, if it sounds stressful to take everything on at once, relax, breathe and go about your life as normal as possible. Take baby steps on the lifestyle changes and do stuff when you are ready to, and calm about it.
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Thanks guys both of you. Your words are very sweet and nice.
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I have one more question. do u think it can be harmfull with my cd4 487 and viral load 7400 the cold i have now. i started my meds 5 days ago but i don t know does this cold can affect me in a bad way?
it s not cold actually but stuffed nose in the morning and a bit of blood every morning when i blow my nose. it could be also from dry air in my apt but i am just affraid of everything now.
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We get sick and its not the end of the world or doomsday . When you are HIV positive its important to listen to your body and part of that is knowing when its telling you you have the sniffles and not pneumonia .
Having a cold is not HIV related so just watch out for fever or something you may need to see a doctor for . Colds need chicken soup and not antivirals .
Just continue to work with your doctor and decide when its best to start treatment ... but a cold or sniffles is not a thing to worry over with your lab numbers .
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morning jeff.
i did started treatment 5 days ago. truvada norvir prezista.
i am affraid of pneumonia too cause i smoke too. i have to quit i know but it won t happen over the night cause i was heavy smoker.
is it possible to get pneumonia even if u are on treatment and the cd4 are in high 400 like mine?
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morning jeff.
i did started treatment 5 days ago. truvada norvir prezista.
i am affraid of pneumonia too cause i smoke too. i have to quit i know but it won t happen over the night cause i was heavy smoker.
is it possible to get pneumonia even if u are on treatment and the cd4 are in high 400 like mine?
Tough Love ... Its natural for the newly infected to worry over health issues but you must begin to realize that worrying over something that has not happened is not helpful .
You should live your life like you did before HIV and that means if you get sick see your doctor when you have a fever or something is obviously not improving over time .
You are not in danger of PCP pneumonia with your lab numbers but you can still get sick and it has NOTHING to do with HIV . What you are experiencing is anxiety over your diagnosis and maybe a sniffle . If you continue to worry like this please tell your doctor and ask to see a therapist to help you transition into a person who can live well despite HIV .
Its good that you are posting about your anxiety, maybe it will help you separate fears from facts .
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thanks jeff. yes, i am seing therapist next week. i am aware i am anxious but yes, it does help to be here and to hear from u guys. thanks for that.
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thanks jeff. yes, i am seing therapist next week. i am aware i am anxious but yes, it does help to be here and to hear from u guys. thanks for that.
The learning curve to living with HIV can seem steep at first but you will get there if you do the work . You really are going to be OK and now is the time to start believing it .
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it seems hard to believe now but i will trust u. u have more experience.
another thing is disclosing. one day i want to tell everyone and moment after that i don t want anyone to know.
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it seems hard to believe now but i will trust u. u have more experience.
another thing is disclosing. one day i want to tell everyone and moment after that i don t want anyone to know.
There is no hurry so I would suggest that you work on accepting your diagnosis before you deal with how other people may react . I'm speaking about general social situations .
There are people you should always disclose to and that's doctors and dentist and of course mental health care professionals .
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Welcome to the forums. I was diagnosed 4 years ago next month. I was in the hospital with PCP pneumonia, my vl WAS 500,000 and I had eight T cells. To say I was at deaths door seems dramatic but I was obviously closer than I had ever been. The diagnoses did not really come as a surprise. I had avoided being tested because I did not think I could handle the news mentally.
I had a doctor from MD Anderson who was treating AIDS in NYC in the 80's tell me to basically not freak out that this is not the same disease from 30 years ago. He told me that they could effectively reverse my numbers and life expectancy was normal. Within 4 months, my vl was undetectable and CD-4's had rebounded above 300.
I was scared but I held on to what they told me. Went to every doctors appointment. Get my labs done on a regular basis. I don't miss a dose of my med (Atripla). 4 years into this, my biggest challenge is maintaining eligibility for the programs that help with meds and doctors visits. Most days I don't even think about AIDS. Life can return to a "new normal" but it takes time. Everyone processes this stuff differently and in different ways but the reality is that the virus is treatable. Numbers are reversible. Life really does go on.
It helps to get some counseling if it is available.
All the best! ;)
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Thanks guys.
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one more question guys
i took last week drug resistance test but i don t know what am i waiting for. i already started with meds cause my doctor told me to start cause he see i am anxious and willing to start taking them asap.
i don t know how bad can be result of that test?
is it possible that i have type of the virus that none medications can help me?
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hi guys,
i am waiting for my genotype/drug resistance test...what are the possible outcomes?
i always somehow want to prepare myself for the worse option...
is there genotype of the virus that is resistant to all drugs...
i mean..is there a type of the virus that there is no drug that can help me.
cause of my anxiaty since i found out my doctor put me on prezista norvir truvada before he know result from the resistance test
cd4 487 viral load 7400
i might be positive many years.
beside that i feel ok.
thanks
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hi guys,
i am waiting for my genotype/drug resistance test...what are the possible outcomes?
i always somehow want to prepare myself for the worse option...
is there genotype of the virus that is resistant to all drugs...
i mean..is there a type of the virus that there is no drug that can help me.
cause of my anxiaty since i found out my doctor put me on prezista norvir truvada before he know result from the resistance test
cd4 487 viral load 7400
i might be positive many years.
beside that i feel ok.
thanks
Muratti,
I've merged your new thread into your original thread - where you should post all your additional thoughts or questions. It helps us to help you when you keep everything in one thread. It doesn't matter how long it has been since you last posted in your thread or if the subject matter is different.
If you need help finding your thread when you come here, click on the "Show own posts" link under your name in the left-hand column of any forum page.
Please also read through the Welcome Thread so you can familiarize yourself with our Forum Posting Guidelines. Thank you for your cooperation.
Joe
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I would await the HIV genotyping results (aka, resistance testing) and continue your Truvada/Prezista/Norvir regimen for now.
Very unlikely that you are resistant to your current regimen. Protease inhibitors (PI's) like Prezista have the highest barrier to resistance. That means it's very hard for HIV to develop resistance to it, but it can happen.
Missing doses too frequently will do that.
Best case scenario is that your strain is wild type. That means any antiretroviral treatment (ART) regimen will work. In that case, your doctor will talk with you about simplifying your meds.
http://aidsinfo.nih.gov/guidelines/html/1/adult-and-adolescent-arv-guidelines/11/what-to-start
If you get to that point, trust me. It's mentally boosting to cut down on the number and size of the pills. The Prezista/Norvir tablets are huge!
Worse case scenario of multi-class resistance: Then your doctor will work with you on salvage therapy. S/he may keep you on your current combo and add other classes to help. I find this case extremely unlikely, though.
P.S. I hope you didn't get the Norvir capsule. Those need to be refrigerated, or they go bad after a month. Made my doctor switch me to the tablet after the first couple months.
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i am taking red white and blue ( norvir prezista and truvada )..none of them are capsules. but is it possible that my genotype is that there is no any medication that can help. is there any case like that. i am new so please try to understand that i am scared.
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thank you joe and sorry if i am annoying but i would just like to hear someones answer to my question.
that s all. and i don t know the rules of posting on forums. this is my first forum that i am posting in my life..still new on this.
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thank you joe and sorry if i am annoying but i would just like to hear someones answer to my question.
that s all. and i don t know the rules of posting on forums. this is my first forum that i am posting in my life..still new on this.
Muratti,
I never said you were annoying, rather I was explaining the rules of posting, which are presented in the welcoming thread. The fact remains that the best way to get the help you seek, is to keep everything in one thread, so people can understand your issues and provide the best help possible.
Joe
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i know u didn t say but i feel like i am. last 3 weeks, since i found out i am just talking about hiv and reading only about it. i am exhausted of it. and still have million questions.....
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i am taking red white and blue ( norvir prezista and truvada )..none of them are capsules. but is it possible that my genotype is that there is no any medication that can help. is there any case like that. i am new so please try to understand that i am scared.
Muratti,
It would be highly unlikely that you would be resistant to ALL antivirals, especially with you being newly infected. I understand you being new to being poz and having so many questions and I would urge you to just slow down a bit and take it slow. You are being effectively treated and even if your resistance test showed a resistance, it would not mean you would have no options for treatment. You are also worrying about something that you have no control over at all.
As I said, I understand your fears, but you are not going to get sick and die in the near future and with the meds we have today, there is no reason that you will not live a very long time. What I suggest is you just allow yourself to feel, whatever it is you feel, without needing to do anything about any of it. You are still adjusting, so take it slow and be kind to yourself and that includes your body, mind and spirit.
Things will get better, I promise and the best thing for you is to reduce your stress and stop worrying about things that may never happen.
Joe
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i know u didn t say but i feel like i am. last 3 weeks, since i found out i am just talking about hiv and reading only about it. i am exhausted of it. and still have million questions.....
Muratti,
I did not see this response before I posted and you are not being annoying, simply by asking questions. You mention that this is your first forum and we have guidelines to make posting as simple as possible. I never want you to feel that you cannot ask questions, scream, cry or simply vent. Annoying would be you telling us your tie does not match your suit. Asking real questions about you and your life and sharing with us, who you are, is why we are here.
When I ask you keep all your comments in one thread, it is so we can see what is happening as we talk about your issues. If you started different threads, it would be very difficult for you to get the responses you seek.
You have not done anything wrong and if you need some help with posting guidelines, just ask.
Joe
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ok sure. i know. i did ask but noone is answering :(
hopefully someone will.
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i am taking red white and blue ( norvir prezista and truvada )..none of them are capsules. but is it possible that my genotype is that there is no any medication that can help. is there any case like that. i am new so please try to understand that i am scared.
*sigh* i did respond. see earlier post above.
Yes, multi-drug resistant HIV strains do exist. However, they occur in people who are not compliant with meds or have participated in numerous drug trials with suboptimal therapies. Or you received transmission from one of these people. The key here is a virus with previous exposure to ART drugs. If the person who gave it to you didn't know about their diagnosis, chances are they weren't on such drugs.
If you are in none of these situations, it is very unlikely for you to have a multi-drug resistant strain.
http://www.thebodypro.com/content/70988/redefining-expanded-access-for-patients-with-multi.html
You can waste energy worrying about something you don't know and have no control over. Or you can wait for the genotyping result. Then, go from there. You will know shortly and CD4's are okay and you're already on medications, so why worry now?
Breathe. And please: Take one day at a time.
Again. Take one day at a time.
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we will see in few days.
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Please keep us posted.
And hoping you don't have any resistance patterns.
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i hope so.
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Hello Muratti,
I am posting to say Welcome and to underline the point that you have a good number off CD4 , an excellent place to start from. You also said that you feel "physically OK " or words like that. Keep reminding your self off that if you again start building up a whole lot off what if questions . You have done all there is to be done for now, time to work as hard on relaxing your self as well .
All the best
m
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i know i should and i am trying. i am trying to see life beautiful as it was 2 months ago but it s just hard. there is that thick fog of thoughts, questions that overshadow my mind. especially when i am alone.
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Most of us have felt the same as you but with a little work and time it will get better .
I barely even pay attention to my lab work or numbers anymore after 30 years of being poz . I had a few viral load blips pop up from time to time and my doctors were trying to go to great lengths to reassure me so I finally told them that I had seen it all in my time and was not the least bit phased by a few bad labs . You will probably feel the same some day .
What I am trying to say is you do not want to walk around living your life s a total panic obsessing over what if fears . Life is short for ALL human beings so do whatever it takes to get a grip on your fears . In the end I doubt people ever have final thoughts of I wish I had worried more but you may well wish that you didn't waste your healthy days wringing your hands worrying over what tomorrow may bring .
Keep talking about it and get some therapy if that is what it takes so you can make the best of today . If you didn't have a few bad days you wouldn't appreciate the good ones is the way I look at it .
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i know jeff. u r right. thanks man.
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btw is there any chat room for poz people?
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btw is there any chat room for poz people?
I don't know . We are pretty chatty here but I guess you want an instant message format right ? .
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It s ok. Thx
Can i take ibuprofen with meds. I have hedache. Probably as side effect.
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It s ok. Thx
Can i take ibuprofen with meds. I have hedache. Probably as side effect.
Yes
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Muratti, you can chat here. Its not synchronous chat but you have an audience around the world this way. Why don't you introduce yourself some more. People are reading your posts and would surely like to know more.
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what do u mean by that introduce some more..where ..here? sorry my english is not that good..in what way u mean? post my xxx photo:)?
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what do u mean by that introduce some more..where ..here? sorry my english is not that good..in what way u mean? post my xxx photo:)?
No, he means tell us about yourself. You don't need to post a photo.
For example, you say that your English isn't very good (it's ok though), but you don't say what language you grew up with (what we English speakers call your "native tongue"). If you tell us, I might be able to give you some links to hiv information in that language. :)
Ann
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i am croatian but i live in new york. regarding answers in my own language i don t think that there is answer for my question in any language:)
is there any statistics how many people with good cd4 level and low viral load in the begining dies from aids these days if they start with treatment...
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i am croatian but i live in new york. regarding answers in my own language i don t think that there is answer for my question in any language:)
http://i-base.info/category/translations/
http://eacsociety.org/Guidelines.aspx
Scroll down a bit for the Croatian guides.
is there any statistics how many people with good cd4 level and low viral load in the begining dies from aids these days if they start with treatment...
A person with a good CD4 level and low viral load DOES NOT HAVE aids!
With your numbers you are unlikely to have much of anything hiv-related going on and you're not going to suddenly get sick and die.
You'll be just fine until you can start meds. You'll just have to trust me on that.
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i need to hear that every morning i guess:)
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Did you look at the links I gave to you to Croatian hiv information?
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i did, thanks ann. but when i said my english is not good enough i didn't mean not good enough so i can't understand hiv or medical things. I do understand well. I don't get some basic phrases or idioms cause they are more slang...It s more that i don t feel comfortable writing english because my limited knowledge of it. My croatian language was my profession. When u r great in ur language it s very frustrating when u can' t express urself in another.
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Hells Bells you will be the next Shakespere if you end up writting stuff in English you are happy with .
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muratti, this is a pretty international multicultural group. you write in english better than i do. just get it out there, we'll figure it out. the only one you have to watch for is theyer, sometimes he just makes no sense at all
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;)
u r all nice guys:)
if anyone of u is in new york i would like to meet for coffee and chat.
another question...
does anyone has like a 7 days diet, or schedule what to eat. i am bad when it comes to the food. usualy i would be lazy to cook just for myself and i never had particular time when i eat. i think that need to be changed.
if anyone has something i would appreciate if he/she can send it to me.
thanks guys
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Your English is fine. Good, actually.
Not sure about the punctuation - maybe thats just the younger, Internet style of no capital letters. ;)
I dunno how deep you want to go on nutrition, but if you are ok to read something a bit academic and exhaustive, this book is used in introductory nutrition classes in universities:
http://www.amazon.com/Staying-Healthy-Nutrition-rev-Nutritional/dp/1587611791
Nutrition 101 was the single most useful class I took in all my studies... With the possible competition from typing class, in High School. :o
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If you want to know how to eat healthy, look around at what most of the Americans are eating around you and then pick something else! ;D
Honestly, when I lived in France and Switzerland, I never gained the weight I thought I would with all the great food. Mostly it was because it wasn't processed food and was balanced.
If you want to try cooking but don't have the practice, then I suggest this as a starting cook book:
http://www.rakuten.com/prod/easy-meals-with-just-3-ingredients/214104798.html?listingId=212281160&scid=pla_google_BookCloseouts&adid=17260&gclid=CJrLx4Dt2b0CFYFhMgodnBwAEw (http://www.rakuten.com/prod/easy-meals-with-just-3-ingredients/214104798.html?listingId=212281160&scid=pla_google_BookCloseouts&adid=17260&gclid=CJrLx4Dt2b0CFYFhMgodnBwAEw)
The recipes use simple and fresh ingredients and are fairly easy to make. It says each meal is just three ingredients and is mostly follows that if you don't count the spices.
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thanks man but first 3 pages were already too much for me:)
i was thinking more about some simple diet for 7 days that i can stick to.
i really don t enjoy food too much...i mean, i like to eat good but with this lifestyle in new york and being single...cooking for my self on daily basis is kinda pain in the ass.
if i have someone to cook for it would be different story but this way i just want something simple and easy to make.
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I eat turkey wraps allot because they are quick and easy as well as a healthy alternative to sandwiches . Im a diabetic and turkey wraps do not raise my blood sugar and is lipid friendly . You can google them and find ways to make them that suits your taste .
An added benefit was I have lost weight by eating low carb low calorie ingredients .
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ok. that is one meal:). thanks jeff. next?
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Muratti, the school marm in me is coming out. There isn't a simple no brainer solution for your diet. If you really have no clue about nutrition, its time you learned a little bit about it, the basics - fat, carbs, protein, alcohol, and the different kinds of fat, simple and complex carbs, and then actively figuring out what works for your taste, budget, and lifestyle, to keep you healthy for decades to come.
If you aren't a reader, there are other options - you might find a short basic nutrition workshop at a community or health centre or adult ed centre. Or, depended on how you get your health care, you might be eligible for meetings with a nutritionist who will lay it out for you, and put you on the right track.
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i will ask them. thanks man.
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i had two eggs for breakfast, a tuna fish sandwich for lunch, and beef stroganoff for dinner... and i finally choked down two bottles of ensure protein shake
you should go hang out in the wumpette nutrition thread, some great foodie ideas
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ok. that is one meal:). thanks jeff. next?
Are your seriously wanting someone to write a menu for you?
You live in New York, you can find some healthy foods choices.
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ok:) thanks. i will check
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i did wanted..why?
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tomorrow, imma eat two eggs and an ensure for breakfast, a turkey sandwich for lunch, baked chicken and sauteed squash and zucchini for dinner... haven't really thought much past that, but i bet i have two eggs for breakfast on tuesday
dude seriously, theres alot of issues we all deal with, and on the surface nutrition is a more than valid topic. but really, really, just go eat.
i can just imagine you with a menu at a sit down restaurant
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Proper diet is not just learning about what to eat but also how to eat. Study and learn the basics and you can make sound food decisions. I despise fast food restaurants but even they have some healthier alternatives.
I would also suggest that healthier meals are quicker to prepare than standard fare. I detest dinners out as entertainment and usually prepare my meals in mere minutes.
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i love to cook but not just for myself and this is my biggest problem. that is why i always go eat out when i am by myself..and this is most of the time
how many times u guys eat during the day?
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how many times u guys eat during the day?
I will eat between 4 to 8 times a day, depending upon what I am doing. I love yogurt, cheese and fresh veggies or fruits for snacking all day. I rarely eat a large meal and our grocery stores have almost anything you want, already prepared so variety is not a problem. I no longer eat much processed food as I would rather have a small piece of meat or fish, veggies or rice and a salad. Bread is also a big factor, as I can get it fresh daily and there is nothing better than a croissant or baguette with just about anything.
Joe
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but with this lifestyle in new york
... and exactly what level of urban fabulousness are you implying?
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... and exactly what level of urban fabulousness are you implying?
What an odd question . I bet he is enjoys the a level of fabulousness that he can afford based on his own taste just like all of us .
I think he is trying to broaden his horizons since this is not his native country and I also think since he is so new to HIV that we are the only folks he has to talk to right now .
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i can't get a clear read on the level of seriousness to this thread, so will admit to poking a little fun at OPs expense. i've meant no harm or offense. humble apologies if either were felt. in any of my travels i've always gone out of my to eat local stuffs. muratti, i'd be happy to break bread with you and eat whatever food you grew up on.
i do advise against raw pickled salmon in the netherlands after an afternoon at the coffeeshops
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i love to cook but not just for myself and this is my biggest problem. that is why i always go eat out when i am by myself..and this is most of the time
how many times u guys eat during the day?
There are plenty of nutritious meals that don't require cooking. A fresh fruit and veggie plate takes mere minutes. An Evening salad with some cottage cheese takes mere minutes also.
Some grilled tofu requires little effort.
I use "allrecipes.com" on a regular basis to check out simple meals.
I personally think it's requires more time to prepare to go out to dinner than it takes to do it yourself.
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Here is an example of a quick meal that is a usual for me.
(http://i940.photobucket.com/albums/ad246/wolfter/008.jpg)
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Here is an example of a quick meal that is a usual for me.
(http://i940.photobucket.com/albums/ad246/wolfter/008.jpg)
YUM!
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thanks jeff. when i said lifestyle of new york i wanted to say that life goes here very fast and when u don t deal with think such as hiv, person ( or in this case me ) very often even forget to eat. in terms of food and hiv i would just like to hear what u guys eat, how many days a day because 2 months ago i was eating once a day mostly ( like real meal ),...everything else was just snack...
also please consider my bad english so sometimes i just can not express myself in the right way.
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I lived in NYC for 15 years and didn't have my appetite or diet suffer because of it. Don't blame the city for something you're doing on your own. Learn to cook and go to the loads of farmers markets they have there. It's not that complicated.
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new york and sfo chinatowns... i've eaten things i'm not sure what it was, and went back for seconds
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I'm probably the last person to be giving dieting advice. Not sure how our dieting habits are going to assist you. Too many variables.
I don't necessarily eat everyday and some days I eat twice. That doesn't help you much. ;)
The list of things I will eat is much shorter than the list of things I won't. My preference is anything that grows from the earth.
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Muratti,
There comes a point when it is time to put your "big boy pants" on and this is as good a time as any. While I understand you want to learn how to live with HIV, being spoon fed information by posters here, will do little to teach you anything. If you want to live with HIV, or better yet, to THRIVE with HIV you need to get a grip and start living.
You know what would be most beneficial to you, so start doing it. We can only offer advice and suggestions, as your success or failure to live as you wish, is within your control. I realize this may not be what you want to hear, but you really need to stop making excuses for those things you think you cannot do and work on doing the things you can.
Living with HIV is a life-long learning experience and the best experience is that which we give ourselves.
Joe
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Muratti, everyone has pretty different daily routines and needs for food.
When you say you forget to eat, what do you mean?
I am pretty sure you could be well fed with one "real meal" a day and snacks - it all depends what is in the real meal, and the snacks.....
What is your body weight, body type? Are you underweight - skinny, more in the average range, or overweight, chubby?
What is the goal? Weight loss? Weight gain? Healthy food? what?
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my goal is to eat healtier yes. i am average build. not skiny not fat. normal i would say. tall 5 10 and i have 165 pounds. when i say forgot to eat i just wanted to say that food was the last on my list of priorites. and this needs to change. sorry guys if i am bothering u. i was just asking for some hints...miss philica..u are right..i didn t eat better even when i lived in croatia.
joe..u r completly right...i am trying to put my big boy pants on me.
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my goal is to eat healtier yes. i am average build. not skiny not fat. normal i would say. tall 5 10 and i have 165 pounds. when i say forgot to eat i just wanted to say that food was the last on my list of priorites. and this needs to change. sorry guys if i am bothering u. i was just asking for some hints...miss philica..u are right..i didn t eat better even when i lived in croatia.
joe..u r completly right...i am trying to put my big boy pants on me.
Muratti,
You are not bothering anyone and we do understand how hard it can be to find a balanced life. My point was like the adage: "Feed a person a fish and you feed them for a day. Teach that person to fish and you feed them for a lifetime." Your goals would be easier to reach, if you learn the process of buying and preparing your own meals. While cooking is not rocket science, it takes time to learn and do it properly. There are many meals that are easy to make, taste great and provide good nutrition. You just have to learn how to prepare them and find the will to do it.
You need to find a way to live, where you live and the only one that can do that is you.
Joe
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my goal is to eat healtier yes. i am average build. not skiny not fat. normal i would say. tall 5 10 and i have 165 pounds. when i say forgot to eat i just wanted to say that food was the last on my list of priorites. and this needs to change. sorry guys if i am bothering u. i was just asking for some hints...miss philica..u are right..i didn t eat better even when i lived in croatia.
joe..u r completly right...i am trying to put my big boy pants on me.
You're not bothering anyone. But I obviously recognize many code words within your thread and don't want to front you out too much. A little self honestly goes a long way and owning it is important. Typically, people who have a healthy relationship with food don't forget to eat. That usually indicates an avoidance issue or that you've already lost the ability to feel and recognize hunger from past issues/episodes.
best wishes
wolfie
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question
i am waiting for my drug resistance test still. do u guys know how often someones get type of the virus that is impossible to treat?
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question
i am waiting for my drug resistance test still. do u guys know how often someones get type of the virus that is impossible to treat?
Its rare that there is not an effective combo to go to in cases of resistance issues so you need not worry that this may happen to you . Just wait for the test and know that even if you are resistant to a few meds there are still options left . Its probably not going to happen anyway .
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thanks jeff
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hi everyone
i just got my first results after 3 weeks of medications ( truvada prezista norvir ) and my viral load went from 7400 to 400 and my tcells from 487 to 554.
also i got genotype test and it says type B and under lots of mutations...
in paragraph where are the types of medications everywhere says sensitive...can someone explain to me what that means. does it mean that medications works or not?
also i got positive result for HPV...is that dangerous?
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Good results.
Sub Type B is the most common.
Sensitive is good. It means hiv is sensitive to the medication. resistant means there's the right combo of mutations to make your hiv resistant to the particular drug.
Is there a column next to your drug component names that has mutations listed as impacting them? If they're all blank, there is nothing at all to worry about. If there are some, you can still be undetectable (I was) as long as HIV is still resistant to all of your meds, although you could consider switching to a combo with 0 mutation impacts.
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Dont know. This is how it looks
HIV-1 Sub-Type B
RT Mutations V60I, Q102K, I135R/T, C162S, I178L, R211K, A272P, T286A, V293I, E297T,
G333E, K358R, N363N/S, Q367L, T369T/A, T377Q, K390R, K395R, A400T
IN Mutations K7R, S39C, L45L/I/K/Q, G59E, V72I, L101I, V113I, T124A, T125A, S230N,
V234L, S283G
PR Mutations L10I/V, I13V, K14K/R, G16G/E, N37A, L63C, I64V, I93L
Abacavir Genotype Result Sensitive
DIDANOSINE GENOTYPE RESULT Sensitive
Emtricitabine Genotype Result Sensitive
Lamivudine Genotype Result Sensitive
Stavudine Genotype Result Sensitive
Tenofovir Genotype Result Sensitive
Zidovudine Genotype Result Sensitive
Efavirenz Genotype Result Sensitive
Etravirine Genotype Result Sensitive
Nevirapine Genotype Result Sensitive
Rilpivirine Genotype Result Sensitive
DOLUTEGRAVIR GENOTYPE RESULT Sensitive
Elvitegravir Genotype Result Sensitive
BUMBLE BEE VENOM, RI205 Sensitive
Atazanavir Genotype Result Sensitive
Atazanavir/r Genotype Result Sensitive
Darunavir/r Genotype Result Sensitive
Fosamprenavir/r Genotype Result Sensitive
Indinavir/r Genotype Result Sensitive
Lopinavir/r Genotype Result Sensitive
Nelfinavir Genotype Result Sensitive
Ritonavir Genotype Result Sensitive
Saquinavir/r Genotype Result Sensitive
Tipranavir/r Genotype Result Sensitive
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If you right click and highlight and search items such as this ... PR Mutations , it will lead you to pages you can view for information .
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google this
HIV wild virus
fully explore the first four results
they are answering the types of questions you're curious about. and some of the ones you haven't thought of yet
in a nutshell, you're profile looks great
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HVP-------http://www.cdc.gov/STD/HPV/STDFact-HPV.htm (http://www.cdc.gov/STD/HPV/STDFact-HPV.htm)
Its danger just fell to cuddle bear status now you know.
Time to celebrate your good results and your very own Arsenal off Drugs that will bash up your weedy HIV
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It means that you are going to live a long time and we wont have to fight for your belongings .
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thank you guys all of u!
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so, it s been a month and i didn t have drink in a bar. i want to go and have drink tonight. how that works with my meds.
can i have 2, 3 beers?
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so, it s been a month and i didn t have drink in a bar. i want to go and have drink tonight. how that works with my meds.
can i have 2, 3 beers?
Yes you can . Have fun and don't drink and drive and all that stuff your momma would warn you about .
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i did :) thanks jeff.
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hi guys.
i was late tonight with my meds for hour and half. u think this is a problem?
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no problem
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thanks zach :)
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hi guys. does anyone know how dagnerous is to use poppers from time to time?
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hi guys. does anyone know how dagnerous is to use poppers from time to time?
Its not going to harm you to use poppers from time to time unless you have an allergy to some of the ingredenets .
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hi guys.
freaking out again here.
so i got test results again from my doctor after 3 months
it is good i am undetectable and my t cells are 481 although they were 600 last time.
but what worries me is that now it says that hep A is reactive
and HEPATITIS Bs Ab QUAL also reactive
only non reactive result is HEPATITIS BS AG
can someone help me and tell what that means.
first time i was diagnosed hiv ( 3 months ago ) they did test for hep and it was non reactive for a b and c and they gave me vaccine for a and b
is it possible that because of vaccine can show reactive result?
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and also i would like to ask should i be concern about my tcells drop. it went from 667 to 481
3/26/2014 CD4 487 VL 7400
4/18/2014 CD4 554 VL 446
5/22/2014 CD4 667 VL 94
6/26/2014 CD4 481 VL UD
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So how are you doing now?
I am on the same medication regime that you are on (Norvir, Truvada, and Preszista). It works wonders for me. No side effects. Keeps my CD4 above 700 - 1000+.
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Hi guys. I just got my new results....my tcells are ok..arround 550, still waiting for vl ( last time were undetecable ) but i am writting cause my monocyte numbers ar highe then normal in my cbc test. Normal is between 2 and 11. Mine are 11,7. I googled and i saw things like leukemia and similar so i am worried now. Is my increase considerd high or not. Every other results seems to be ok in normal range ...a little increase of mean corp volume but i had that last time and doctor told me it s nothing to worry anout.
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your doctor saw those same labs. doctor didn't mention leukemia though did he? relax. he told you not to worry.
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Ive asked doctor ..ive send him message. I have follow up next week but i worry so i wanted to see with u guys is that considered big increase
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Ive asked doctor ..ive send him message. I have follow up next week but i worry so i wanted to see with u guys is that considered big increase
You should unplug your online access to your lab results. After reading this entire thread it's clear you can't digest that data without it causing you anxiety. Especially if a reading of 11.7 when normal is 11 concerns you.
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i am affraid of pneumonia too cause i smoke too. i have to quit i know but it won t happen over the night cause i was heavy smoker.
I just wanted to tell you how I quit smoking in case it helps. I switched to using an electronic cigarette because I could then control how much nicotine I was getting. I would buy a lower amount of nicotine each time I got a new bottle of juice until I went from 30 mg down to 3 mg. then I just stopped using the e-cig completely and haven't smoked since. No problems with withdrawal at all. If you want to quit smoking, you may want to try this. Plus the e-cig is probably much better for you to be using than inhaling smoke. I'm no doctor, just my opinion. Good luck! Try not to worry so much, and enjoy time with friends and family!
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Hi guys. Just wanted to check in and say hi. My last results in october are ok i guess. Ud vl and cd4 548 with 40 % . Life is ok, anxious a bit about status but gettinguse to it.
Happy holidays to everyone.
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You are doing great, those are fantastic numbers .