Meds, Mind, Body & Benefits > Lipodystrophy & Metabolic Problems
trial BMS 232632 ( reyataz ) + zerit and videx.
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Paulus:
Hello members,
I was diagnosed HIV+ in okt.1999. CD4 160...So ready for medication. My doctor ask me to participate into a trial for a new medicin now known as Reyataz. I said to her: "only if it can avoid lipoatrophy" She told me: "I have only 2 men with this problem and the rest are women" In another way she said you: it's all save. After 13 month I developed a very high level ( more then 5) of lipoatrophy. I complained al lot but she did not change the meds.. yes after two years of the trial. All the damage can't be restored anymore.
Ten i discover that at the end of 1999/2000 zerit was discoverd as the problem. A lot of issues about this medicaion I found on the internet. Even here in Holland the company of HIV+ doctors said that Zerit was the cause of lipoatrophy. One of these docotors was mine docter. so she knew all about this. But did not say nothing.. so it is against the law. and now I am going in court to find out if she can be accused for this.
Now my question: Bristol Meyers Scuib started a trial around april 1999 in the USA, Argentina, Poland Spain Holland etc. I want to know if peolpe who participate in the tril developped lipoatrophy on the level 4/5+
They can start a process as well to BMS because they had to inform the patiënts. They did not because their position economically worldwide was very very good. It's all about money... but we are the victims.
So let hear what you think about this
Paulus
pozniceguy:
Paulus....I was/ am a cat 5 Lypo ...have been treated with Sculptra...so not so noticeable now..... but there are many cases of persons with HIV ...no meds and get the Lypo anyway.....yes Zerit seems to contribute to the condition if you have meds...so do some other drugs...but stopping Zerit does not stop the Lypo..a few people say they have regained the fat layer that Lypo destroys but many say that they get "humps", fat bellies and fat deposits above the penis......so making a case that just Zerit is the cause will be difficult... it is a contributor but there are many cases with no Zerit involved.......good luck with your case against the Dr....
Miss Philicia:
The question is, IN 1999, did they know Zerit was the prime culprit? I don't recall this being the situation. That is the same year I started to experience lipo but from what I recall they weren't quite zero'd in on what the cause was at that time. Anyway, by '99 I'd probably been on zerit for 3 years. I can't recall when they took me off of it, and if that's the one they even took me off of because they thought it was contribution to lipo, but perhaps that's the one. I've been on about 85% of available HIV meds at one time or the other so it's kind of hard to zero in on things.
I agree with pozniceguy that I've seen nothing that states that ONLY zerit causes this. I think genetics also predispose some of us to this.
newt:
I have no idea how this study protocol got approved. d4T + ddI is a non-pair, and never used together. Many, many standards for many, many years have said this. - matt
Paulus:
Hello pozniceguy, philly and newt,
Thanks for your contribution of my item..On the 12th of febr 2007 . i have a meeting with prof. Brinkman. He found out that zerit caused lipoatrophy by damaging the mithochodriën. He said that my doctor should have know this already in 1999. Find K.Brinkman on google. This was a trial. here in Holland there is a law that says: Everyone how have been asked for participation must get all the information about the meds. She never told or even compare the meds in this trial. So that's the case...she do something against the law.. that's why i am in court. I am now on reyataz,epivir,norvir and viread.. it's a good one but never got back the fat. I have done bioalcamid so my face is better now. But my arms and legs are not very nice to look at. Well we have to live with it.Thanks guys.