Welcome, Guest. Please login or register.
March 19, 2024, 12:32:32 am

Login with username, password and session length


Members
Stats
  • Total Posts: 772784
  • Total Topics: 66296
  • Online Today: 244
  • Online Ever: 5484
  • (June 18, 2021, 11:15:29 pm)
Users Online
Users: 1
Guests: 211
Total: 212

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: PML Survivors!  (Read 3501 times)

0 Members and 1 Guest are viewing this topic.

Offline PDXRon31

  • Member
  • Posts: 45
    • PML Survivors & Supporters
PML Survivors!
« on: June 27, 2006, 07:21:53 pm »
Hi! My name is Ron and I am living with HIV and PML. Myself and a fellow PML survivor wanted to test the viability and usefulness of an email support group for others affected by PML. Therefore I have started a Yahoo Group to facilitate this idea. I personally will be posting more details of my own struggle with this illness and invite others to do the same on the site. It seems little is still known of this affliction, so at best this could lead to new ways of seeking treatment for some and at least a forum for finding inspiration and venting frustrations for others.  It has been personally frustrating and isolating for me not being able to efficiently find others with stories to share regarding their experience with PML. I thought it might be helpful to initiate an informal group to alleviate some of this frustration. I ask that you take a moment to join this group TODAY! Please be kind and share anything that you feel willing to share, be it about affective medical treatments, recovery successes, relationship struggles, rejection, finding employment, whatever! Your story just may prove invaluable to another. I am going to post this invite here and on THEBODY.COM, but PLEASE do your own soliciting so that this can grow. Thanks very much for your time!

Related Link:     http://www.ninds.nih.gov/disorders/pml/pml.htm
Post message:     PMLSurvivors@yahoogroups.com
Subscribe:     PMLSurvivors-subscribe@yahoogroups.com
Unsubscribe:     PMLSurvivors-unsubscribe@yahoogroups.com
List owner:     PMLSurvivors-owner@yahoogroups.com
Diagnosed with HIV in 2000
Diagnosed with PML in 2005
Diagnosed with Fabulosity at birth

Current treatments: Sustiva, Combivir, K-PAX supplements, and Myelin Sheath Support.
Last labs: September 2006
CD4 507 VL Undetectable

 


Terms of Membership for these forums
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.