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Author Topic: Abso maybe losing treatment? I hope not!  (Read 10693 times)

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Offline absopozilutely

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Abso maybe losing treatment? I hope not!
« on: September 16, 2014, 10:38:10 am »
Long story but basically I'm on my parents insurance, and I have another insurance plan through my job, however for brand name drugs it only covers 90% which would cost me $250 a month for Stribild, I can't afford that. And I really don't want to go into a 3 pill a day regimen in order to get Generic, and I've had such good luck with Stribild keeping me UD. I've emailed my doctor to ask about ADAP and see if I can get coverage. In the meantime I'm freaking the eff out!
Logged
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline zach

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Re: Abso maybe losing treatment? I hope not!
« Reply #1 on: September 16, 2014, 10:47:15 am »
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Offline Jmarksto

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Re: Abso maybe losing treatment? I hope not!
« Reply #2 on: September 16, 2014, 11:13:50 am »
Quote from: zach on September 16, 2014, 10:47:15 am
gilead copay assistance card

https://www.stribild.com/paying-for-stribild


Abso,


I use a Gilead co-pay card and it was relatively easy to sign up for and easy at the pharmacy. I hope it works as easy for you as it has for me.


Best, JM
Logged
03/15/12 Negative
06/15/12 Positive
07/11/12 CD4 790          VL 4,000
08/06/12 CD4 816/38%   VL 49,300
08/20/12 Started Complera
11/06/12 CD4   819/41% VL 38
02/11/13 CD4   935/41% VL UD
06/06/13 CD4   816/41% VL UD
10/28/13 CD4 1131/45% VL 25
02/25/14 CD4   792/37% VL UD
07/09/14 CD4 1004/39% VL UD
11/03/14 CD4   711/34% VL UD
03/13/15 CD4   833/36% VL UD
04/??/15 Truvada & Tivicay
06/01/15 CD4 1100/50% VL UD
10/16/15 CD4   826/43% VL UD
??/??/2017 Descov & Tivicay
2017 VL UD, CD4 stable around 850
2018 VL UD, CD4 stable around 850

Offline absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #3 on: September 16, 2014, 06:29:35 pm »
Not accepted at Kaiser California
Logged
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline Since1993

  • Member
  • Posts: 108
Re: Abso maybe losing treatment? I hope not!
« Reply #4 on: September 16, 2014, 07:10:21 pm »
Quote from: absopozilutely on September 16, 2014, 10:38:10 am
Long story but basically I'm on my parents insurance, and I have another insurance plan through my job, however for brand name drugs it only covers 90% which would cost me $250 a month for Stribild, I can't afford that. And I really don't want to go into a 3 pill a day regimen in order to get Generic, and I've had such good luck with Stribild keeping me UD. I've emailed my doctor to ask about ADAP and see if I can get coverage. In the meantime I'm freaking the eff out!

You should contact a medical case manager at your local AIDS Service Organization who can assist you in applying for ADAP assistance.  Some ID clinics have a social worker who assists, but some don't.  In the absence of co-pay assistance from the manufacturer, you should definitely look into ADAP.
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Offline absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #5 on: September 16, 2014, 07:58:59 pm »
My issue is that my family doesn't know, and I don't want my family to see mail from ADAP, and my brother being a very active gay man would know what Ramussen university is for. I guess I'm just scared. I was just getting settled with all of this and now it's another road bump, but I'll get over it. I just want life to calm down
Logged
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline Jmarksto

  • Member
  • Posts: 667
Re: Abso maybe losing treatment? I hope not!
« Reply #6 on: September 16, 2014, 08:37:40 pm »
Quote from: absopozilutely on September 16, 2014, 06:29:35 pm
Not accepted at Kaiser California


Abso, I am not sure I understand.  Are you saying that Kaiser California will not accept payments from Gilead's copayment plan?  That seems odd...there have to be others in your shoes that have figured this out...hopefully a case manager can help you navigate this.
Logged
03/15/12 Negative
06/15/12 Positive
07/11/12 CD4 790          VL 4,000
08/06/12 CD4 816/38%   VL 49,300
08/20/12 Started Complera
11/06/12 CD4   819/41% VL 38
02/11/13 CD4   935/41% VL UD
06/06/13 CD4   816/41% VL UD
10/28/13 CD4 1131/45% VL 25
02/25/14 CD4   792/37% VL UD
07/09/14 CD4 1004/39% VL UD
11/03/14 CD4   711/34% VL UD
03/13/15 CD4   833/36% VL UD
04/??/15 Truvada & Tivicay
06/01/15 CD4 1100/50% VL UD
10/16/15 CD4   826/43% VL UD
??/??/2017 Descov & Tivicay
2017 VL UD, CD4 stable around 850
2018 VL UD, CD4 stable around 850

Offline buginme2

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Re: Abso maybe losing treatment? I hope not!
« Reply #7 on: September 16, 2014, 08:45:29 pm »
Sounds like you have a choice

1.  Staying on your parents plan and verifying that Kaiser doesn't accept Copay cards.  That doesn't sound right, at all.  There's nothing special about a Copay card.  They just run it as secondary insurance after your primary.

2.  Get off your parents plan and find one on your own that you might be able to supplement with ADAP if you need to.  October is open enrollment for Obamacare.  Find a plan that you can afford and if you qualify, sign up for ADAP.

How old are you? Eventually you'll have to get off your parent plan anyway so you might as well start the process if you can.
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Don't be fancy, just get dancey

Offline zach

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Re: Abso maybe losing treatment? I hope not!
« Reply #8 on: September 16, 2014, 09:26:49 pm »
the copay assistance program has a reimbursement process
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Offline BT65

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Re: Abso maybe losing treatment? I hope not!
« Reply #9 on: September 18, 2014, 06:24:39 am »
Abso, I understand your family is not aware of your diagnosis, but this may be the time to deal with it.  If you do not feel you are able to, then you can always ask the ASO if you can use their address for mail from ADAP.  I know at the ASO I worked at, a lot of our clients used that address for their mailing address. 

If you are having some kind of block about telling your family, you may want to seek out a counselor who can help you overcome your fears, anxieties, whatever it is that's standing in your way. 

Like Bug said, you are going to have to get off your parents' insurance eventually, so you may as well get it over with.  But do seek out the nearest ASO and let a case manager handle this.  It will take a load off your mind.

Betty
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Offline tednlou2

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Re: Abso maybe losing treatment? I hope not!
« Reply #10 on: September 20, 2014, 12:53:08 am »
Do you get your own EOB-- doc visits and prescription details?  I would have thought it would come to your parents, as they have the main plan.  I must be wrong, or this would already have been an issue. 
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Offline absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #11 on: September 21, 2014, 01:22:21 am »
Quote from: tednlou2 on September 20, 2014, 12:53:08 am
Do you get your own EOB-- doc visits and prescription details?  I would have thought it would come to your parents, as they have the main plan.  I must be wrong, or this would already have been an issue.
Well two things, with "classified" diseases, they send nothing of any sort with kaiser, that can tie back to said disease. Also, for my medical ID it's all sent to me digitally.
Logged
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline pittman

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  • Posts: 286
Re: Abso maybe losing treatment? I hope not!
« Reply #12 on: September 22, 2014, 09:47:02 pm »
So if you could get the same three medicines you are taking now, but in three pills to take at once instead of just one, what is the difference?
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Offline absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #13 on: September 24, 2014, 10:49:59 am »
Ok, here's the low down, my sugar daddy Irish has cut a check to pay for the next years worth of my prescription. Telling me he couldn't picture life without his mistress. So I'm good for now.


Really, how many of you thought that was true? Lol. Anyways! I signed up and got approved for ADAP, plus found out Kaiser has a "low income" assistance package. Luckily my base salary qualified me for that! Yay! Thank god for OT, I didn't realize how little I was making. So anywho, between those two programs, pending final approval, I will have no medical out of pocket costs, and will get reimbursed from the last 6 months of copays I did pay. Crazy!!!! It may all be working out and I'm so happy that I can breath a little better!
Logged
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #14 on: September 24, 2014, 10:53:46 am »
Oh! And my best cd4 reading ever of 799 and 46% and UD. I feel like I'm getting this under control finally.
Logged
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #15 on: September 30, 2014, 12:12:18 am »
Got my ADAP card today! Having weird dreams lately, dunno why, freaking me out a little. Anxiety has been high for no reason, and I can't knock the chest tightness it's causing. Yes, I've been checked for heart problems, everything checks out. I'll give it another day or two and then email my doctor if not better. Quickly approaching my 1 year mark of infection in December. Been in a bad depression the last couple days, thank you Irish for being there for me. I should post on here for more moral support, but you know I just don't want to be "that guy" the needy one, always bugging you- oh well. Now to get some sleep, please pray for no more nightmares. :)
Logged
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline Irish Eyes

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Re: Abso maybe losing treatment? I hope not!
« Reply #16 on: September 30, 2014, 12:54:53 pm »
Quote from: absopozilutely on September 30, 2014, 12:12:18 am

........ I should post on here for more moral support, but you know I just don't want to be "that guy" the needy one, always bugging you- oh well......


Yes, 'O Needy One', you should post more here for moral support.
I'm out of ideas and you have me practically exhausted. LOL

« Last Edit: September 30, 2014, 01:23:55 pm by Irish Eyes »
Logged
10/30/13          Exposure
Mid-Nov-Jan    Seroconversion (7-8 rough wks)
12.26.2013      WB dx. HIV+
02.01.2014      OraQuick (result Negative?)
01.31.2014      VL 250700
02.03.2014      CD4  491  26%
02.26.2014      CD4  503  26%
03.05.2014      HLA B6701  not present
03.18.2014      VL 530873 (typical fluctuation)
03.21.2014      Start Stribild
04.14.2014      VL 104 after 24 doses
05.12.2014      VL 129 after 52 doses
06.10.2014      CD4 940 32%
06.11.2014      VL 87
07.22.2014      VL 20
09.23.2014      VL 43
11.26.2014      CD4 1350 33%
01.26.2015.     VL 27
01.26.2015      VL <20
06/03/2015      VL 28
06/03/2015      CD4 1135 42%
12/10/2015      VL 27
12/10/2015      CD4 1111 36% cd8+tcell 1058 34%
06/23/2016      VL 49
06/23/2016      CD4 1255 41% cd8+tcell 882 29%

Offline absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #17 on: October 01, 2014, 12:55:15 am »
Quote from: Irish Eyes on September 30, 2014, 12:54:53 pm
Yes, 'O Needy One', you should post more here for moral support.
I'm out of ideas and you have me practically exhausted. LOL

At least you're not panting yet.
Logged
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline Exruton

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Re: Abso maybe losing treatment? I hope not!
« Reply #18 on: November 07, 2014, 09:09:32 am »
Hope everything workout brother
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Offline absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #19 on: November 07, 2014, 10:43:46 am »
Yes got insurance through my job, and found out meds weren't as bad as I thought, I misread the pharmacy section so my prescription is only $25 a month. But is covered for ADAP if I buy the 30 day selection, or I pay $75 for 90 day which I'm going to go with. I keep a backup supply so I can survive, but if I lose this job I'd be screwed. Ugh the stress.
Logged
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline zach

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Re: Abso maybe losing treatment? I hope not!
« Reply #20 on: November 07, 2014, 01:59:48 pm »
i forget, have you signed up for any co-pay assistance? they would probably cover that $75
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Offline absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #21 on: November 07, 2014, 05:44:48 pm »
Quote from: zach on November 07, 2014, 01:59:48 pm
i forget, have you signed up for any co-pay assistance? they would probably cover that $75
The copay assistance program isn't accepted at Kaiser and only works on 30 day supplies I think.
Logged
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy
5/1/19 CD4 1100 VL still UD.

Offline zach

  • Member
  • Posts: 3,586
Re: Abso maybe losing treatment? I hope not!
« Reply #22 on: November 08, 2014, 03:06:04 am »
the copay assistance program has a reimbursement process, see what they say on their side, not just on kaisers side

at one time, i had to keep receipts for my copays, and they always caught up
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