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Author Topic: 2 years  (Read 3782 times)

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Offline klassykitty

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  • Posts: 379
2 years
« on: January 30, 2013, 09:35:21 pm »
YEA!!!!  2 years later my CD4 has gone above 100, (I know it was above 100 before, but it fell back way down so I don't count that).
My VL is still ud
My doctor still calls me his "mystery patient", and still says "see you in 3 months".( I told him he can use me as a test patient to find out why CD4 is such a bugger and VL is doing it's thing) .
There was talk of possibly adding Selzentry, I have 3 months to decide.
Nurse Vampire only got to take blood and didn't get to give shots.  I told her maybe this time next year.
Michelle 8)
How to handle stress like a dog:
If you can't eat it or play with it.....
then pee on it and walk away

Diagnosed 01-20-2011
01-23  CD4 32    VL 125,400
02-18        76     VL 189
03-14  no cd4 test done   VL-52
04-14   69  VL-UNDECTABLE  YEA!!
05-26   50  whoopsy  
06-27   71        %-7
08-15   64 WTF %-9 
10-16  80         %7  
2012  CD4  %Thing   VL-UD
01-18  87    7
04-18  93    8  
07-16  151  8         
10-18  83    9    VL-70
2013   CD4   %thing       VL-UD
01-28  121     9
04-24  148    11   
07-25  157    11   
10-22  185    13
2014   CD-4  %thing   VL-UD
02-07 201 YEA!!!!!!  12
06-03  205      12

Offline emeraldize

  • Member
  • Posts: 3,397
Re: 2 years
« Reply #1 on: January 30, 2013, 10:05:53 pm »
Congratulations KK -- glad you've got a devoted doc.

Offline Rev. Moon

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  • Smart ass faggot ©
Re: 2 years
« Reply #2 on: January 30, 2013, 10:19:28 pm »
Happy AIDSaverssary to one of my favorite gals in this forum.

Hugs  :-*
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline tednlou2

  • Member
  • Posts: 5,730
Re: 2 years
« Reply #3 on: January 30, 2013, 11:03:58 pm »
Good to hear.  I've heard several people here say they weren't seeing much an increase for a few years, and then they saw increases. 

Offline wolfter

  • Member
  • Posts: 5,470
Re: 2 years
« Reply #4 on: January 30, 2013, 11:21:28 pm »
Congrats.  There have been several of us who were slow to see our numbers climb.  Mine eventually really started going up and I plan on having more cd4's than anyone.  :)

Wolfie
Being honest is not wronging others, continuing the dishonesty is.

Offline leatherman

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  • Posts: 8,583
  • Google and HIV meds are Your Friends
Re: 2 years
« Reply #5 on: January 31, 2013, 08:54:08 am »
(I know it was above 100 before, but it fell back way down so I don't count that).
it's probably the "fell back way down" part that really counts. Studies have shown that people who reach a pretty low cd4 nadir (that's the lowest point) often have a hard time recovering cd4s, take a long time recovering, and often never recover very much.

I'll use myself as the example. Having hit some cd4s lows of 5, 17, 12 (these happened in the first 5 yrs of having AIDS), it took me 18 yrs to reach 300. And while 300 isn't all that high and I spent most of the last decade in the low 200s, I also haven't been back in the hospital in 14 yrs 10 months.

So it's not always about how many cd4s you have, but how well they work. ;)
It's really all about staying UD.
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline Jeff G

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  • Member
  • Posts: 17,064
  • How am I doing Beren ?
Re: 2 years
« Reply #6 on: January 31, 2013, 09:13:19 am »
Congrats Michelle . I began treatment with a high viral load and low CD4 count and its taken me 13 or more years to get my numbers above 500 . It took about 5 years to see numbers consistently above 200 ish . Its a long haul but you most likely will get there soon enough . Its been pointed out and its true , its the big picture that counts and yours is looking good ! .   
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Offline darryaz

  • Member
  • Posts: 450
Re: 2 years
« Reply #7 on: January 31, 2013, 09:30:06 am »
I also haven't been back in the hospital in 14 yrs 10 months.

I'm glad to know I'm not the only one who counts months.  2 years 3 months here.

Offline OneTampa

  • Member
  • Posts: 3,021
  • "Butterflies are free."
Re: 2 years
« Reply #8 on: January 31, 2013, 04:37:38 pm »
Wonderful news for you Michelle!

 :)

Me: Total of 28 years this January HIV+.

I am another one where it took me over 15 years to get over 500 CD4 after starting out under 100.  Now undetectable over 12 years and running in the 700s-800s CD4.

So, improvement can indeed happen!

 :)

Take care.
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaíto frito."

Offline WillyWump

  • Member
  • Posts: 7,367
  • EPIC FIERCENESS!
Re: 2 years
« Reply #9 on: January 31, 2013, 06:47:15 pm »
Congrats Michelle! Onward and upward my friend!

-Will
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline leatherman

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  • Member
  • Posts: 8,583
  • Google and HIV meds are Your Friends
Re: 2 years
« Reply #10 on: January 31, 2013, 08:45:23 pm »
it took me 18 yrs to reach 300.
and 20 yrs to reach 430! I just got labs back today and in the last 4 months went from 310 to 430 - the highest I've ever had!! WooHoo!

so hang in there Michelle. I'm sure it won't take you decades  ;)
leatherman (aka Michael)

We were standing all alone
You were leaning in to speak to me
Acting like a mover shaker
Dancing to Madonna then you kissed me
And I think about it all the time
- Darren Hayes, "Chained to You"

Offline oksikoko

  • Member
  • Posts: 690
  • Writing the congressman again
Re: 2 years
« Reply #11 on: February 01, 2013, 07:27:08 pm »
and 20 yrs to reach 430! I just got labs back today and in the last 4 months went from 310 to 430 - the highest I've ever had!! WooHoo!

Congratulations! And to you, Michelle. That's great news. :)
Code: [Select]
2014-11-14: CD4 Wars Episode II: Return of the Stribild (released in Europe as Stribild II: Werewolf Bitch)
2014-11-06:                ☣ VL (→) 12,627      ☣ CD4 (→) 639
2014-??-??: off treatment  ☣ VL (?)              ☣ CD4 (?)
2013-10-03:                ☣ VL (=) undetectable ☣ CD4 (+) 1105
2013-05-23:                ☣ VL (=) undetectable ☣ CD4 (-) 945
2013-02-25:                ☣ VL (-) undetectable ☣ CD4 (+) 1123
2012-12-16: Enter Stribild
2012-11-20: HIV+           ☣ VL (→) 132,683      ☣ CD4 (→) 920
2012-04-01: HIV-
Dates in this signature file conform to ISO 8601. ;-)

If no one complains, nothing will ever change.

Offline mitch777

  • Member
  • Posts: 4,087
Re: 2 years
« Reply #12 on: February 01, 2013, 07:35:45 pm »
great news all around! :)
33 years hiv+ with a curtsy.

 


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