moxieinme:
Hi guys and gals, Mind if I drop in? I'm a newbie here -- you are witnessing my first forum post -- but an old hand at HIV.
I am just relieved to hear people express their burnout. And I'm just as relieved to find a place where people are free to tell their stories. Even the smallest detail, complaint or joy can resonate with someone. I hope I can get into the swing of things here and join the sharing and maybe find the fun side too. I mean, heck, you even got carny workers!
Seriously, coming from someone just dropping into the forums for the first time, none of your stories are old. No one's a broken record. I'm loving all your voices.
"See" you more in the forums I hope.
Thanks for letting me interrupt.
mitch777:
--- Quote from: Fisher on August 16, 2013, 11:02:50 pm ---I'm always here, Buddy!
--- End quote --- Thanks and likewise! :)
--- Quote from: Theyer on August 17, 2013, 04:51:17 am ---On catching up on this thread it occurred to that this content is useful to the people who are not allowed to Post here .
It is important that we try to as honest as we can about our lives , both as an on going historical resource and as a reminder that yes one can face serious disease, get through it but there are costs .
Last week a UK cancer charity McMillan issued a press statement drawing attention to the Post chemo difficulties caused by the damage off the chemo + the Cancer. Its aim was to draw attention to the on going needs off Cancer patients post treatment.
And that is what this forum does also , so Mitch good for you for starting it with the honest simple human statement off frailty.
Its a paradox for us battlers is it not , to be strong enough to admit to damage and frailty.
I now glide out off the philosophizing part off the morning and turn my attention to food , because if I don,t I will fall over.
I thank you Michael
--- End quote --- Thank you and well said Michael! An honest depiction of our lives is important even if it may not be what the newly infected experience as they age with hiv.
--- Quote from: Theyer on August 17, 2013, 04:51:17 am ---
Its a paradox for us battlers is it not , to be strong enough to admit to damage and frailty.
--- End quote ---
This sentence says so much. Thanks! :)
--- Quote from: moxieinme on August 17, 2013, 07:15:00 am ---Hi guys and gals, Mind if I drop in? I'm a newbie here -- you are witnessing my first forum post -- but an old hand at HIV.
I am just relieved to hear people express their burnout. And I'm just as relieved to find a place where people are free to tell their stories. Even the smallest detail, complaint or joy can resonate with someone. I hope I can get into the swing of things here and join the sharing and maybe find the fun side too. I mean, heck, you even got carny workers!
Seriously, coming from someone just dropping into the forums for the first time, none of your stories are old. No one's a broken record. I'm loving all your voices.
"See" you more in the forums I hope.
Thanks for letting me interrupt.
--- End quote --- No apology needed. Glad you found us and yes, this IS a great place with some of the biggest hearted people I've ever met. Welcome aboard Moxie!
m.
Mishma:
Mitch
We've got your back. I'm going through one of those "spells," too. Do your best to ride it out but don't hesitate to grip in this and other forums. I truly believe, for the most part, no one, other than those of us who have personally experienced this BS, has any inkling of what a lot of us have gone through, will go through or is about to go through. Even my docs admit they don't really understand what I'm going through. I'll be the first to admit that I really don't know what "normal" feels like anymore.
Habersham:
--- Quote from: BT65 on August 04, 2013, 07:53:26 pm ---No sweetheart, it's not canary lol. It means a carnival worker. Like have you ever been to a fair where they have all kinds of rides? Carnies are the people who operate the rides, work the fairs. After traveling and living with them (and becoming one), I would never let my daughter ride anything that lifted off the ground. Anyway, that's what a carnie is. :-* Oh, and it is a wild life job.
--- End quote ---
Carnies appear in a lot of Stephen King novels. I was just rereading a John O'Hara short story last night with a shill.
mitch777:
--- Quote from: Mishma on August 19, 2013, 02:45:26 pm ---Mitch
We've got your back. I'm going through one of those "spells," too. Do your best to ride it out but don't hesitate to grip in this and other forums. I truly believe, for the most part, no one, other than those of us who have personally experienced this BS, has any inkling of what a lot of us have gone through, will go through or is about to go through. Even my docs admit they don't really understand what I'm going through. I'll be the first to admit that I really don't know what "normal" feels like anymore.
--- End quote --- Mishma, I think I've gotten through my funk... at least for now. Attending AMG Chicago did wonders. :) Know what you mean about not knowing what "normal" feels like. Seems like constant new challenges pop up. Ya, the docs can have sympathy but not too many can have empathy. Hope you are able to get through your "spell" soon! Thank you very much for adding to this topic. :)