Author Topic: Undetectable with no meds (Read 8628 times)

purplerain · « **on:** March 17, 2007, 03:09:29 pm »

Hey everyone it's been a while since I have been on here but couldn't stay away and needed some sense of understanding. Has anyone here ever heard of your cd-4's going up and your viral load going down 2 undetectable without being on meds? Am I just extremely healthy or could it be something else any ideas? Any info on this would be greatly appreciated. Thanks one and all.

JAG

Longislander · « **Reply #1 on:** March 17, 2007, 03:31:03 pm »

that's what HIV dreams are made of~ I hope you continue on that path.!

Sdgirl · « **Reply #2 on:** March 17, 2007, 03:33:11 pm »

Yes, I have heard of that. You could be what some people call a long term non-progressor. Which means your body is able to stave off the virus on it's on. Consider yourself lucky.

Oh............and by the way....................Damn! You are FINE!

Lisa

Longislander · « **Reply #3 on:** March 17, 2007, 03:35:12 pm »

Quote

Damn! You are FINE!

jeez, you woman, I swear..........

Blixer · « **Reply #4 on:** March 17, 2007, 03:36:37 pm »

It happens. Not often. I think the statistic I read was less than 1%. Sometimes it stays that way forever. I hope you are one of those whose body figured out what to do and whammed the virus on its own. Heres to your good health and undetetectable VL for a long long time.

purplerain · « **Reply #5 on:** March 17, 2007, 03:37:45 pm »

Alright Lisa your making me blush LOL I have 2 admit it is strange for me 2 hear from a woman that she finds me attractive. Lisa U may not be my "type" but U did just put a big ol smile on my face so thank U.....

BIG HUGZ
JAG

Sdgirl · « **Reply #6 on:** March 17, 2007, 03:39:59 pm »

If you ever want to come and bat for MY team........................well let's just say I'd make you the captain!

racingmind · « **Reply #7 on:** March 17, 2007, 03:44:27 pm »

W:oW! That's amazing! It's nice to know that it's possible, rare....but possible. Are on any supplements? Do you have any "bad" habits (i.e. smoking, etc)? Just curious.....

purplerain · « **Reply #8 on:** March 17, 2007, 03:45:29 pm »

Lisa I luv U LOL can I call u whenever I am having a fat day? LOL

Sdgirl · « **Reply #9 on:** March 17, 2007, 03:50:43 pm »

You can call me anytime...............I can always cling to "hope" LMAO!

purplerain · « **Reply #10 on:** March 17, 2007, 04:01:02 pm »

In the past I haven't really taken care of myself... Don't take supplements. As of today though it's been 31 days without a drink and 48 hours without a cig. I really would like 2 try and live a healthier life style and not take 4 granted this wonderful life I have been given.

racingmind · « **Reply #11 on:** March 17, 2007, 04:07:13 pm »

wow, even stranger then.....keep up the nonsmoking...I finally quit and love not being a slave to it anymore (and the extra bucks are a nice perk too!). congrats...keep us posted!

purplerain · « **Reply #12 on:** March 17, 2007, 04:09:39 pm »

Thanks RacingMind..... Congrats yourself... How long has it been 4 U?

Teresa · « **Reply #13 on:** March 17, 2007, 04:41:28 pm »

Hey Jag!

So good to hear that you are doing so good! Have missed seeing that gorgeous face of yours here at the forums!

Hugs JAG
From TAG

Andy Velez · « **Reply #14 on:** March 17, 2007, 06:54:13 pm »

Purp, it's great to read that you are one of the very lucky ones who's doing so phenomenally without meds.

Taking care of your health with good nutrition, exercise, moderation regarding drinking and giving up smoking can only have more plus benefits for you. Just make sure you continue to have your doctor monitor your numbers regularly and here's wishing they continue on in the same healthy way.

Cheers,

stratosphere · « **Reply #15 on:** March 17, 2007, 08:01:59 pm »

Here Here! Great job PR i hope you live to be 100 w/o ever taking any of these meds.

And good for you on the non-smoking, you're a stud.

cheers

milker · « **Reply #16 on:** March 17, 2007, 09:20:47 pm »

Purple,

Can I have some of your elixir?

Milker

Queen Tokelove · « **Reply #17 on:** March 18, 2007, 12:06:24 am »

Congrats on your stats. I was drawn to this thread cause of your name. I am a Prince fan in every sense of the word. I have to agree with SD, you are a cutie....

Robert · « **Reply #18 on:** March 18, 2007, 01:18:20 am »

Hey JAG....

It's been too long.

YOur number are good. DId you think, maybe it's the altitude?

robert

Basquo · « **Reply #19 on:** March 18, 2007, 01:44:06 am »

JAG, I hope you are a LTNP (Long-Term Non-Progressor.) I may be one as well, but from what I’ve read the defining period is 10 years from diagnosis. I’m in year 7. I’ve always had a cd4 count around 700, except for one time it was 476, and my viral load has bounced between undetectable and 3000 (currently 87, which, ironically, is the same as my first labs in 2000.)

I try to eat well, and since being diagnosed with Irritable Bowel Syndrome, I’ve greatly improved my dietary habits in the last two years. I try to eat whole grain bread products, and eat more fish and less red meat, basically eat what Jesus would eat

however I drink my wine and beer and am still smoking—but am seriously thinking about quitting, especially since my smokes here in Texas are now close to 7 bucks a pack…

If your labs continue this trend, you might want to consider volunteering for clinical trials/studies. There’s theories that the secret to fighting HIV lies in those whose bodies are keeping the virus in check...bodies like yours and mine.

Best,

Creighton

OzPaul · « **Reply #20 on:** March 18, 2007, 02:07:27 am »

Hey JAG

That's wonderful news about your numbers

As you've read here in replies, your situation is not totally unique but indeed quite unusual. There are folks here at the Forums who are varibly termed Long Term Non Progressors ( LTNP's ) , viremic controllers and 'elite controllers', each of which has a different definition. It seems as though you may be one of these. Some people here at the Forums who are included in this group include, Basquo, Bobino, Emeraldise, Zephyr, Bear60, Oaktree, BizarreTwist and myself.

It is estimated by some researchers that folks like us make up about .3 of 1% of individuals who test positive for HIV or about 1,000 people in the USA. It would obviously be your great fortune and a blessing if you are one of these folks.

There may be studies that you might qualify to particpate in and are in various locations around the USA. I can give you some info on these if you're interested.

I myself don't smoke, though have smoked a fair bit of pot in my time. I drink wine and an occasional beer. I eat very healthy food prepared from scratch ( I'm a chef) and get a fair amount of exercise (walking and swimming).

Welcome to the Forums !! I hope to see more of you.

in Peace and Love
Paul

red_Dragon888 · « **Reply #21 on:** March 18, 2007, 02:57:20 am »

Yes I heard of this and good for you. Just keep an eye on your health for your own self.

Central79 · « **Reply #22 on:** March 18, 2007, 05:29:59 am »

Hey

Congrats on doing so well off meds. Just out of interest, how long did it take you to get to an undetectable viral load? That goes for all the LTNPs on here - were you ever detectable? Or did you just test positive with a VL <50 or 400?

Matt.

Jeffreyj · « **Reply #23 on:** March 18, 2007, 07:10:57 am »

Way to go PR....that is awesome news!

joyluckclub · « **Reply #24 on:** March 19, 2007, 12:14:43 am »

Hey Purple,

It is good to see you online. I am happy for your results. Keep on taking care of yourself.

Corwyn

Sky · « **Reply #25 on:** March 19, 2007, 12:22:53 am »

I've been poz 4 yrs and my VL is undetectable now w/o meds.

jupiter · « **Reply #26 on:** March 19, 2007, 06:09:55 am »

C O N G R A T U L A T I O N S !

i AM VERY HAPPY FOR YOU!!

All things are possible.. tell us your secrets sky and purple rain

Ihavehope · « **Reply #27 on:** March 19, 2007, 11:14:01 am »

purplerain · « **Reply #28 on:** March 19, 2007, 04:52:19 pm »

Ok now I don't know weather 2 be mad, or glad. I just called 2 get my results from march 7th. It was on the 7th that I was told that my viral load was undetectable from my test on Sept. 13th 06. Well come 2 find out that my viral load wasn't undetectable it was 32,800. I started questioning the lady on the phone about my other results and found out I have never known what my correct numbers were. So as of today here's what they tell me.
06/06 cd4-538 vl-155,000
09/06 cd4-680 vl-32,800 40%
03/07 cd4-560 vl-16,400 40%

I don't know if I should be upset or worried that my doctor looked at my chart which said my viral load was 32,800 and told me that it was undetectable. Overall from what I understand my numbers are good either way so I'm not triping on the numbers themselves I'm triping on the fact that out of my first 3 tests I have gotten conflicting results on 2 of them. Doesn't give me the greatest sense of trust in my doctors.

FEELING OVERWHELMED AND FRUSTRATED

milker · « **Reply #29 on:** March 19, 2007, 05:13:53 pm »

Well it's a bit concerning that the doctor said "undetectable" if those were the numbers. I think you should ask for the paperwork so that you can look by yourself, make sure that they have the names right, etc etc, and ask for a review of what your doctor "thought" were the results, what's on your file, etc etc. it's important for your future!!

Those are good numbers anyway, so despite the stab in the back it's good that this was resolved soon enough so they'd be so low you'd have to go on meds on top of this.

Still, you need to get this problem straighten out!!

Milker.

Longislander · « **Reply #30 on:** March 19, 2007, 05:15:45 pm »

I'd have a nice chat with the doc on my next visit, as well. The #'s are still very good, and you're body's doing a good job lowering the VL on it's own. ( I'm STILL a little jealous~)

Teresa · « **Reply #31 on:** March 19, 2007, 05:50:48 pm »

Hey Jag!

Your numbers are still really good. One thing you might want to do is ask for a copy of all your labs. Hubby's Dr sends a copy of all of his labs to us in the mail. I keep them in a notebook. Its nice to compare them to get an idea of how hes doing. I also use the tools here and graph them so I can compare them here too.

HUGS JAG
FROM TAG

Moffie65 · « **Reply #32 on:** March 19, 2007, 06:53:57 pm »

AWW Shit JAG,

Here I was, all enjoying the fact that you might have the joy of being a LTPN, which more than a few of us have been at one time, and then you go and tell us the doctor is dreaming. Well, not so bad though, the numbers you have are not that far from a healthy non-HIV+ person.

I wouldn't go back on any of the changes you have made, but still, you have a long way to go before you have to worry.

Love,

aztecan · « **Reply #33 on:** March 20, 2007, 04:09:46 am »

Hey JAG,

I was absolutely delighted to see your ever-so-handsome face back on the forums again. (Seems I remember a shirtless photo, or maybe that was my overly fertile imagination

)

Sorry for the confusion caused by the doc's undetectable statement, but your numbers are looking great. I note the CD4 is steady and the viral load decreasing, which is something to cheer about.

Hang in there and don't be absent for so long. I enjoy hearing from you.

HUGS,

Mark

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Author Topic: Undetectable with no meds (Read 8628 times)