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Main Forums => Pre-HAART Long-Term Survivors => Topic started by: Dwayn20 on May 24, 2009, 09:14:41 pm

Title: Neuromuscular
Post by: Dwayn20 on May 24, 2009, 09:14:41 pm
Hey guys has any one ever had Neuromuscular problems like tremor in what started in my hands now it entire body.I don,t know if it is medicine related or something else.What it reminds me of is what Mark,s older sister has MS.Not sure on my spelling would appreciate any input will be bring up subject at doctors on wednesday.I am becoming very alarmed it seem to be worst when I get upset but now it,s all the time.
Scooter
Title: Re: Neuromuscular
Post by: BT65 on May 25, 2009, 09:11:46 am
I wouldn't even venture a guess to what it could be.  I think only a doctor would be able to help with that.
Title: Re: Neuromuscular
Post by: Miss Philicia on May 25, 2009, 09:50:29 am
You've been referring to this tremor situation for a couple of months now, repeatedly.  Why in the world would you not seek the views of a doctor after that amount of time?
Title: Re: Neuromuscular
Post by: J.R.E. on May 25, 2009, 09:52:45 am
I wouldn't even venture a guess to what it could be. 


I couldn't tell you either Scooter. You need to really sit down with your doctor, and open up, and explain everything that's going on. Perhaps some more tests are required. I've never had to deal with that problem.

Hope you get some answers-----Ray
Title: Re: Neuromuscular
Post by: Dwayn20 on May 25, 2009, 10:35:45 am
Yes it has been a couple of months . At first it was very mild not so much any more . I made the mistake to bring mark to the last doctors appointment and I guess you can say I had a brain fart .I thought that by bring mark to the appointment would help him understand fat chance .He was sitting there when the doctor talked to the both of us . He claims to have a bad memory he remembers only what he want to . This weekend we got into three fights having to do with the this computer . He is like a child with a toy he asked a question I tried to help and here we go again. Like I said I go to the doctor office this Wednesday at 11:00 am and my group meeting is at 1:15 pm . lets see if I can make both.
Scooter
P.S. I am sure when I talk to ID Doctor she will say I not sure we will send you to a different Doctor which will take I guess about two months.
Title: Re: Neuromuscular
Post by: BT65 on May 25, 2009, 01:16:09 pm
Trying to find anwers to complex medical problems usually takes time, Dwayn20.  This could have probably been a little ways taken care of if you would have pushed the issue when you saw your doctor last time.  I do not put responsibility on another human being to "remember" what the doctor said, or to take charge of my health problems.  If you can't do that for yourself, maybe you need a guardian.
Title: Re: Neuromuscular
Post by: AndyArrow on May 26, 2009, 03:38:18 am
Remember when you go to not only bring a pad with all the questions you want to ask but also to WRITE DOWN what the DR says.

If the DR says she doesn't know what is wrong and wants to send you to someone else don't get upset she doesn't know the answer but be glad she is concerned enough to follow through.  I know you want answers right away but sometimes we just have to be patient.  I know with my esophageal stricture I wanted to know WHY I had one ... and the DRs answer was that it was an idiopathic stricture.  Idiopathic is a fancy way of saying they don't know.  Unfortunately, there is still a lot about our bodies that doctors don't know and that tends to increase in LTS.

Good luck,
AA
Title: Re: Neuromuscular
Post by: Dwayn20 on May 27, 2009, 10:07:19 pm
They are setting me up with a Neurologist Appointment so we will see what happen I remember every thing I was supposed to ask.My t-cells dropped a little she added another medicine for cholesterol more pills yummy.
Scooter


Quote from: AndyArrow link=topic=27285.msg337606#msg 337606 date=1243323498
Remember when you go to not only bring a pad with all the questions you want to ask but also to WRITE DOWN what the DR says.

If the DR says she doesn't know what is wrong and wants to send you to someone else don't get upset she doesn't know the answer but be glad she is concerned enough to follow through.  I know you want answers right away but sometimes we just have to be patient.  I know with my esophageal stricture I wanted to know WHY I had one ... and the DRs answer was that it was an idiopathic stricture.  Idiopathic is a fancy way of saying they don't know.  Unfortunately, there is still a lot about our bodies that doctors don't know and that tends to increase in LTS.

Good luck,
AA
Title: Re: Neuromuscular
Post by: Lis on May 27, 2009, 11:29:20 pm
I had  those symptoms.. make sure you doc does a T4 T3 TSH .. after years on meds, I developed Graves Disease.. If its that they will send you to an endocrenoligist..

best of luck!!
Title: Re: Neuromuscular
Post by: Dwayn20 on May 28, 2009, 01:00:57 am
Thank you Liz I looked up the info you provided and about seventy percent of what I read is what,s going on with me.
Scooter
P.S.I made a copy of what you said to have checked an no your name is not on it.Thanks Again.


I had  those symptoms.. make sure you doc does a T4 T3 TSH .. after years on meds, I developed Graves Disease.. If its that they will send you to an endocrenoligist..

best of luck!!
Title: Re: Neuromuscular
Post by: Dwayn20 on June 01, 2009, 10:50:06 am
Update talked with my Nurse this morning.She had already did the test and ruled out Graves Disease.So now she said I have to wait to see a neurologist which may take a little while.She said try to be patience because it,s a teaching hospital.So who knows how long it will take I am fine with it as long as the hand tremors are not worst.
Scooter

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