User

Welcome, Guest. Please login or register.
April 26, 2024, 03:42:16 am

Login with username, password and session length


Forums Index

Stats

Members
  • Total Members: 37652
  • Latest: Han2024
Stats
  • Total Posts: 773292
  • Total Topics: 66348
  • Online Today: 677
  • Online Ever: 5484
  • (June 18, 2021, 11:15:29 pm)
Users Online
Users: 0
Guests: 666
Total: 666

Search

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.
« previous next »
Pages: [1]   Go Down

Author Topic: You Could be the Next Berlin Patient!  (Read 5222 times)

0 Members and 1 Guest are viewing this topic.

Offline odyssey

  • Member
  • Posts: 784
  • Mutiny of the neurons!
You Could be the Next Berlin Patient!
« on: November 27, 2011, 03:09:26 pm »
I spotted this clinical trial and apparently they are attempting to replicate what worked on the Berlin Patient in both HIV-positive people with cancer and WITHOUT! You have to be really sick and have failed regimens and a bunch of other qualifications, but its worth looking at. Share the link widely!

Fludarabine and Total-Body Irradiation Followed By Donor Stem Cell Transplant and Cyclosporine and Mycophenolate Mofetil in Treating HIV-Positive Patients With or Without Cancer

http://www.clinicaltrials.gov/ct2/show/NCT00112593?term=hiv+lymphoma&recr=Open&no_unk=Y&rank=9

In case the link changes the clinical trials identifier number is : NCT00112593

Hope this excites someone!
Logged
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-

Offline sam66

  • Member
  • Posts: 277
  • Keep The Faith ; Fight The Fight
Re: You Could be the Next Berlin Patient!
« Reply #1 on: November 28, 2011, 10:13:06 pm »

 With 34 m.  infected ;  1.8m  people dead last year because they don't have access to treatment,

 I'm sure they can find more than enough candidates who qualify on all accounts if  they are really serious
Logged
december 2007 diagnosed +ve ,

Offline ngo1

  • Member
  • Posts: 30
Re: You Could be the Next Berlin Patient!
« Reply #2 on: November 30, 2011, 01:13:16 am »
Strange I work with this doc but can't bring myself to tell him my status
Logged
"Those who pray hundred times a day are not necessarily better than those who masturbate a couple of times a day"......

Offline odyssey

  • Member
  • Posts: 784
  • Mutiny of the neurons!
Re: You Could be the Next Berlin Patient!
« Reply #3 on: December 06, 2011, 06:34:26 pm »
Quote from: ngo1 on November 30, 2011, 01:13:16 am
Strange I work with this doc but can't bring myself to tell him my status

You work with the researcher?
Logged
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-

Offline emeraldize

  • Member
  • Posts: 3,397
Re: You Could be the Next Berlin Patient!
« Reply #4 on: December 06, 2011, 09:50:59 pm »
Quote from: odyssey on December 06, 2011, 06:34:26 pm
You work with the researcher?

This study's been open a while and the goal was 20 participants. Does anyone know how far along they are in enrollment?
Logged

Offline odyssey

  • Member
  • Posts: 784
  • Mutiny of the neurons!
Re: You Could be the Next Berlin Patient!
« Reply #5 on: December 07, 2011, 05:31:51 am »
Quote from: emeraldize on December 06, 2011, 09:50:59 pm
This study's been open a while and the goal was 20 participants. Does anyone know how far along they are in enrollment?

I don't know specifically, but as long as clinicaltrials.gov lists the study as still enrolling new participants it is worth contacting them if you think you qualify and might like to participate!
Logged
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-
Pages: [1]   Go Up
« previous next »
 

Terms of Membership for these forums
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.