POZ Community Forums
Meds, Mind, Body & Benefits => Questions About Treatment & Side Effects => Topic started by: what a life on January 09, 2008, 11:26:23 am
-
Just over 3 months ago I tested positive for hiv and itp. The hiv was find because the doctors could not figure out the itp. I live a clean lifestyle and I have had two girlfriends in the last 5 years. I have only been with the two girls in the last two years also. My present girlfriend thank god has tested neg for hiv (always safe sex) and has been very supportive.
My Problem ITP the doctors can not get my platelets up. They have been 150,000 after IVIG but soon after they drop to 25,000. I have IVIG, 80mg perisone and still the numbers drop. The Doctors very seem to talk to each other. I have three different doctors A GP, HIV, and ITP They wanted to give me a treatment that kills white bloodcells witch I can not afford and now they want to give me a treatment that kills redblood cells. I have been taken Sativa, trudrda, and bactrim for the last three months with some success with my numbers. Side effects are nasty and the side effects of the prodisone are nasty. I don't know were one starts and the other begins. My counts started v=180,000 and t-cell 48 after 40 days of meds v =50,000 and t-cell went up to 68. This this my fear or treatment of ITP and killing white blood cells. My spelling is not great but I don't want to have all my notes laying all over my desk at work.
Is their anyone who has beat this ITP or has a good understanding of it? I don't know what to do. I'm scared depressed and feel most doctors just see me as a number.
I need help from people how understand. Thank you
-
Sorry for your dg...what is ITP
-
* I'll PM you.
-
I went to the "Blood" Doctor today and saw a new Doctor. That's what I wanted. The first Doctor just didn't seem to have it going on even though the Pratice is highly regardred. The new Doctor talk to me not at me and basically told me I will be dealing with ITP until I get my t-cell and viral count better. I'm on truvada & sustiva with some success but it has only been 60 days. I go back to my ID Doctor on March 5th and I hope the numbers are up. I am happy the ID doctor is so helpful and understanding. So I have some hope. The meds I take at first just gave me crazy dreams but after a month depression really started to effect me. Still I don't know if its the meds or all this new news I am dealing with. I'm sure at least both it not one.
I am still looking for someone who has dealt with ITP and HIV really AIDS because my numbers or so low (68 t- cell) and has had success with beating the ITP or at least getting it under control. The ITP and the treatments for it scare the hell out of me. So any help from personal experience would be great.
Thank you to all that have taking the time to read this.
-
Call me ignorant, but I don't know what ITP is? ???
-
ITP, idiopathic thrombocytopenic purpura, also known as immune thrombocytopenic purpura, is classified as an autoimmune disease. In an autoimmune disease the body mounts an attack toward one or more otherwise normal organ systems. In ITP, platelets are the target. They are marked as foreign by the immune system and eliminated in the spleen, or sometimes the liver.