Welcome, Guest. Please login or register.
March 19, 2024, 01:49:04 am

Login with username, password and session length


Members
Stats
  • Total Posts: 772784
  • Total Topics: 66296
  • Online Today: 267
  • Online Ever: 5484
  • (June 18, 2021, 11:15:29 pm)
Users Online
Users: 1
Guests: 215
Total: 216

Welcome


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Do I Have HIV?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: How can we support a cure?  (Read 4340 times)

0 Members and 1 Guest are viewing this topic.

Offline wtfimpoz

  • Member
  • Posts: 418
  • Let's make biscuits!
How can we support a cure?
« on: December 21, 2010, 02:39:32 pm »
Brainstorming ideas for what we can do...

1)  We can donate to charities, like Aaron Diamond Research Center, amFar, and the Aids Research Alliance.  What are some other groups which funnel money towards a cure?

2)  We can write the NIH to increase cure research funding.  We can get everyone we know to write the NIH to increase funding for cure research. 

3)  ???

Please, add any suggestions you might have.
09/01/2009-neg
mid april, 2010, "flu like illness".
06/01/2010-weakly reactive ELISA, indeterminant WB
06/06/2010-reactive ELISA, confirmed positive.

DATE       CD4     %     VL
07/15/10  423     33    88k
08/28/10  489     19    189k
09/06/10-Started ATRIPLA
09/15/10  420     38    1400
11/21/10  517     25    51

Offline Jeff G

  • Administrator
  • Member
  • Posts: 17,064
  • How am I doing Beren ?
Re: How can we support a cure?
« Reply #1 on: December 21, 2010, 02:45:30 pm »
I pledge to only BB with other poz guys until there is a cure .
HIV 101 - Basics
HIV 101
You can read more about Transmission and Risks here:
HIV Transmission and Risks
You can read more about Testing here:
HIV Testing
You can read more about Treatment-as-Prevention (TasP) here:
HIV TasP
You can read more about HIV prevention here:
HIV prevention
You can read more about PEP and PrEP here
PEP and PrEP

Offline wtfimpoz

  • Member
  • Posts: 418
  • Let's make biscuits!
Re: How can we support a cure?
« Reply #2 on: December 21, 2010, 03:51:14 pm »
Does anyone have anything of value to suggest?
09/01/2009-neg
mid april, 2010, "flu like illness".
06/01/2010-weakly reactive ELISA, indeterminant WB
06/06/2010-reactive ELISA, confirmed positive.

DATE       CD4     %     VL
07/15/10  423     33    88k
08/28/10  489     19    189k
09/06/10-Started ATRIPLA
09/15/10  420     38    1400
11/21/10  517     25    51

Offline David Evans

  • Standard
  • Member
  • Posts: 97
Re: How can we support a cure?
« Reply #3 on: December 21, 2010, 04:37:19 pm »
WTF,

As an activist, I can think of several things that people can do:

1. Donate to the AIDS Policy Project, Project Inform (http://www.projectinform.org/), the AIDS Treatment Activist Coalition (ATAC) (http://www.atac-usa.org/) and the Treatment Action Group (TAG)(http://www.treatmentactiongroup.org/) - all of whom in one way or another are devoting time and resources to advocate directly with scientists and government officials to ensure that cure-oriented research is happening smartly and quickly.

2. Consider volunteering your time to one of these activist groups. APP has key workers in Philadelphia and San Francisco, but they are trying to hold "cure" town meetings in various cities and could probably use help setting those up. Project Inform is based in San Francisco and TAG is in New York, but ATAC does most of its work by telephone and at home so most anyone can join who has a serious interest. You don't have to be a science geek (though that helps) to contribute your time and talents. In fact, ATAC also needs people with experience working the press and helping with fund raising.

3. Write to Francis Collins, NIH director, about the need for cure research. You can go to APP's website for a sample letter: http://www.aidspolicyproject.org/

4. You can host forums with local researchers and people living with HIV to help them realize that people are willing to volunteer for clinical trials to help the field move forward. One of the reasons that some research never gets off the ground is the struggle to recruit people.

Lastly, stay informed and on top of the research and think critically about "science by press release." Frankly, I tend to trust researchers who don't use the "C" word in their press releases. Some of the best and smartest scientists are least likely to overstate the significance of their findings. Unfortunately, there's no short cut you can take to understand basic science, immunology, virology and all the other "ologies." It simply takes time and effort. On the other hand, as someone who got a D+ my first semester of high school biology and started off my "career" as an activist and educator as a volunteer, I can promise you that it is possible to understand this stuff.

Hope this is helpful and I look forward to other similar responses.

-D




Offline Gio

  • Member
  • Posts: 92
Re: How can we support a cure?
« Reply #4 on: December 21, 2010, 04:51:48 pm »
just to add concerning the AIDS Policy Project website.  The letter to NIH is a link that can be sent via email rather than regular mail depending on your preference.

 


Terms of Membership for these forums
 

© 2024 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.