POZ Community Forums
Main Forums => Living With HIV => Topic started by: GSOgymrat on June 22, 2006, 03:52:56 pm
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I was interviewed by the The Body website because of my lipoatrophy. It's the first time I have ever been interviewed for anything outside of a company newsletter. You can check it out http://www.thebody.com/lipo/index.html (http://www.thebody.com/lipo/index.html) if interested. You can even hear me talking over a bad telephone line on their podcast! :o Seriously, I'm glad they put the site together because there are not a lot of resources out there on lipoatrophy. My only caveat is they said I live in a "small Southern town". Greensboro is not New York but it's not Mayberry either.
Ford
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the link doesn't work Ford
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Oops... Try http://www.thebody.com/lipo/index.html (http://www.thebody.com/lipo/index.html).
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Dear Ford,
I don't live in New York or Mayberry either but I do get heard. So does every other person on these forums who has something to say. You were heard in Greensboro and since our forum membership has grown to 815 members worldwide, you can be heard by us and referred to the people we know. I check the stats on my site www.Commission-on-AIDS.org (http://www.Commission-on-AIDS.org) every Tuesday. It is not unusual to find that some office in the House or Senate has seen it that week.
There are 4 or 5 little monthly newspapers which will print anything I write because, I have outed myself in print and on the air. They see my words as being valid because I live with the disease 24/7/365. My words are preferred over the administration because I am real and the admin committee and their staff is prepared and predictable.
You will have other opportunities to be included in press releases and news clips. Take every possible opportunity because you are speaking for each and every one of us. Thank you for your efforts and have thebest day
Michael
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Hi Ford,
Great interview and extremely infomative for us all. With skills like that I think you should run for office - isnt GWB going back to the ranch next year? :) :)
Rob
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Great interview, Ford ! I enjoyed reading it. I have followed your progress, especially when you went for your 2nd treatment, and I must say you look FANTASTIC ! I know you feel better, because you feel better about how you look. Yours is definitely a success story, and I do love a success story.
Hugs,
Alan
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I read the story and I can't seem to get your butt out of my head...
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Nice job, GSO.
Well done.
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GREAT JOB FORD!
You sounded confident and articulate! Very proud of you!
Lisa
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GSO.... Great interview...very informative. My partner is thinking about this.
He is almost as muscled as you are....yum.
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Bravo! Ford
Are you giving autographs ? :P
Jacques
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they said I live in a "small Southern town". Greensboro is not New York but it's not Mayberry either.
LOL! :D :D
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Echoing the others: great interview! And anxiety-reducing too. I'm not on meds. When I had my first conversation with my HIV specialist, he said "Don't be afraid of meds!" (I had expressed my fears.) But I AM afraid of them. It's not the nausea or diarrhoea that frightens me, or elevated lipids, or adherence issues; it's the possibility of lipo which really terrifies me. (That and the possible CNS side effects of efavirenz.) So to learn that there are viable treatment options for this is reassuring. Btw, why is the treatment you had not FDA-approved in the United States?
Jay
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FDA approval is a long and complicated process. I had heard a rumor that bio-alcamid was being submitted for FDA approval. I read Sculptra was fast-tracked through the FDA because of being a HIV lipoatrophy treatment when in reality Dermik is hoping doctors will use it cosmetically for non-HIV patients.