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Author Topic: Numbers are going crazy  (Read 3793 times)

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Offline scud44

  • Member
  • Posts: 393
  • I am watching you
Numbers are going crazy
« on: September 11, 2007, 06:56:51 am »
I have been on Darunavir, Abacavir, Ritonavir and Emtriva (FTC) since mid June and all that has happened, is my T cells (CD4) have gone from around 300 down to 96 and my Viral load went from undetectable to as high as 368,000 in the space of a few weeks.
My doctors are in panic mode and I have been referred to an immunology specialist in another state for urgent testing.
I am wondering if anyone else has had a similar problem with meds not working.
One change that the doctors are considering is starting me on Raltegrevir as soon as possible to try to halt the slide in my condition.
Any comments would be welcome..
Regards
Scuddly
« Last Edit: September 11, 2007, 06:58:24 am by scud44 »
Logged
CD4 = 110 - 30 July 2007 - 10%
VL = 139000 - 30 July 2007
CD4 = 252 - 6th August 2007
VL = 16400 - 23rd August 2007
CD4 = 240 - 23rd August 2007
VL = 400 4th Sept 2007
CD4 = 96 - 4th Sept 2007
CD4 = 120 18th Sept 2007
VL = 386000 19th Nov 2007
CD4 = 160 19th Nov 2007
CD4 = 110 10th Jan 2008
CD4 = 311 29th Jan 2008
VL = <50 29th Jan 2008
CD4 = 148 2nd April 2008
VL = 110,000 2nd April 2008
June 2010 and nothing has improved

Offline newt

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  • Posts: 3,900
  • the one and original newt
Re: Numbers are going crazy
« Reply #1 on: September 11, 2007, 07:13:12 am »
Back in April 2007 your CD4 count was 325 and viral load undetectable.  What were you on then? And why did you switch? 

In any case your doc should order a resistance test eh?

Bummer, soz

- matt
Logged
"The object is to be a well patient, not a good patient"

Offline scud44

  • Member
  • Posts: 393
  • I am watching you
Re: Numbers are going crazy
« Reply #2 on: September 11, 2007, 07:26:24 am »
I have had a resistance test and we are still waiting for the results - should be here next week - most of the tests from here have to go interstate to be done.
I was previously on 3TC, Lamivudine and one other that I can't recall at the moment.
The reason for the change was due to an Auto immune complication causing numbers to go silly.

Logged
CD4 = 110 - 30 July 2007 - 10%
VL = 139000 - 30 July 2007
CD4 = 252 - 6th August 2007
VL = 16400 - 23rd August 2007
CD4 = 240 - 23rd August 2007
VL = 400 4th Sept 2007
CD4 = 96 - 4th Sept 2007
CD4 = 120 18th Sept 2007
VL = 386000 19th Nov 2007
CD4 = 160 19th Nov 2007
CD4 = 110 10th Jan 2008
CD4 = 311 29th Jan 2008
VL = <50 29th Jan 2008
CD4 = 148 2nd April 2008
VL = 110,000 2nd April 2008
June 2010 and nothing has improved

Offline milker

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  • Posts: 4,034
  • Protected phone sex
Re: Numbers are going crazy
« Reply #3 on: September 11, 2007, 11:00:34 am »
scud I hope everything goes back to better numbers soon i'm sure they will find medication that puts you back on track.

hang in there and keep us posted

Milker.
Logged
mid-dec: stupid ass
mid-jan: seroconversion
mid-feb: poz
mar 07: cd4 432 (35%) vl 54000
may 07: cd4 399 (28%) vl 27760
jul 07: cd4 403 (26%) vl 99241
oct 07: cd4 353 (24%) vl 29993
jan 08: cd4 332 (26%) vl 33308
mar 08: cd4 392 (23%) vl 75548
jun 08: cd4 325 (27%) vl 45880
oct 08: cd4 197 (20%) vl 154000 <== aids diagnosis
nov 2 08 start Atripla
nov 30 08: cd4 478 (23%) vl 1880 !!!!!!!!!!!!!!!!!!!!!!!!!!
feb 19 09: cd4 398 (24%) vl 430 getting there!
apr 23 09: cd4 604 (29%) vl 50 woohoo :D :D
jul 30 09: cd4 512 (29%) vl undetectable :D :D
may 27 10: cd4 655 (32%) vl undetectable :D :D

Now accepting applications from blowjob ninjas™

Offline MOONLIGHT1114

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  • Posts: 1,918
  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: Numbers are going crazy
« Reply #4 on: September 11, 2007, 11:34:34 am »
I am glad to hear that you're getting the resistance test done, and that you'll have results by next week.  It seems very strange that your numbers are doing what they are.  I echo Milker in asking why you switched meds previously?  Please keep us in the loop, ok?

~Cindy
Logged
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline billy

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  • Posts: 38
  • be unique... be best
Re: Numbers are going crazy
« Reply #5 on: September 11, 2007, 11:54:36 am »
My numbers are going crazy too   :(
1st number as posted in previous posts:
CD4 523 VL 210.000
2nd numbers (last week)
CD4 600 VL about 1.000.000

Doc said I should start meds??? I dont want
Can I my VL get down without nutrition???

- Billy
Logged
09/07: VL 2.200.000
12/07: Kaletra-Kivexa
01/08: T4 720 VL<50
04/08: T4 1.350 VL<50
09/08: T4 1.465 VL<50
02/09: T4 1.230 VL<50
07/09: T4 1.150 VL<50
12/09: T4 1.110 VL<50
06/10: T4 1.600 VL<50
11/10: T4 1.390 VL<50
05/11: T4 700 VL<50
07/11: T4 1.035 VL<50
02/12: T4 1.010 VL<50
06/12: T4 965 VL<50
11/12: T4 850 VL<50
04/13: T4 1220 VL<50
09/13: T4 1100 VL<50
02/14: T4 1120 VL<50
06/16: T4 1050 VL<50
12/16: T4 1520 VL<50

Offline scud44

  • Member
  • Posts: 393
  • I am watching you
Re: Numbers are going crazy
« Reply #6 on: September 11, 2007, 02:15:17 pm »
The main reason for changing the original meds was because of the continuing bad reactions that I was having to them.
I ended up in hospital for about 3 months with some reaction that I didn't understand and it was affecting my ability to work and carry out normal daily routines.
They put it down to the auto immune problems and also a benign tumor that they eventually found in my head.

Life can be an adventure at times - I'll just keep plodding along until I get to the appropriate gate!

Regards
Scud
Logged
CD4 = 110 - 30 July 2007 - 10%
VL = 139000 - 30 July 2007
CD4 = 252 - 6th August 2007
VL = 16400 - 23rd August 2007
CD4 = 240 - 23rd August 2007
VL = 400 4th Sept 2007
CD4 = 96 - 4th Sept 2007
CD4 = 120 18th Sept 2007
VL = 386000 19th Nov 2007
CD4 = 160 19th Nov 2007
CD4 = 110 10th Jan 2008
CD4 = 311 29th Jan 2008
VL = <50 29th Jan 2008
CD4 = 148 2nd April 2008
VL = 110,000 2nd April 2008
June 2010 and nothing has improved
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